Hi I have constant lower back ache joint pain and nausea I can’t gain weight and have ibs - just sent off to confirm is ibs not ibd so that’s not confirmed - prev diagnosis of PCOS total hysto inc bilateral salphingo oopherectomy two yrs ago didn’t stop night sweats and symptoms - underweight and feeling unwell I’m also hypermobile physio did beighton score very recently always been dbl jointed
Ok stillbirth 4yrs ago - since then tsh consistently low sits between 0.1 and 0.3 and I’m subclinical hyper but negative for antibodies seen endoc
They found low cortisol 269 9am (uk)
Synacthen was 310 (cut off is 300 if not on hrt I am) she said it didn’t matter)
Raised to 529
Left it as fine
I’m anemic but folate raised from 4.5 to 17 b12 went from 312 to 290 in that period when was prescribed folate
getting dizzy breathless and temp regulation issues and palpitations also memory cognitive
Brain mri found 6mm pineal cyst Neuro said incidental put me on topamax for migraine and discharged
Endoc found 3 thyroid nodules one is U3 Bethesda on ultrasound and came out indeterminate on first biopsy 6 months ago so I started on CBD and tincture since then second biopsy was benign and they are scanning the nodule every 3 months and haven’t made a decision whether to leave it yet or take I don’t know what’s happening I just feel unwell
Last trip to endo I told her I was leaking milk from one side only a new symptom she said how are my periods
As I’ve had hysto I don’t have them and feel all of that has a bearing on the decisions she makes re nodule etc etc ... can anyone help with what’s wrong with me or my bloods these were last yr other than topamax for migraine and anxiety meds I’m not on anything else
And they aren’t treating my thyroid or adrenals at all
Thanks ❤️ any help massively appreciated x
Currently just leaving all of these things as separate issues and telling me I’m just anxious but I ache all over and keep feeling like I might pass out I’m not really eating as my digestive issues have got so bad and I’m feeling breathless most of the time I’m only 37 feel about 80 🙈
Also I don’t know why but my nan her sister my aunty in oz and all on my mums side have all had thyroidectomy 🤔
Any ideas or help massively helpful I’m as sick of me as my drs 😂😂