Any bowel problems with GPA?

[ludo]

Hi, for several months now I've had a change in bowel habit. Colonoscopy clear thank goodness. But the problem continues and have had a couple of episodes of near incontince of faeces. And deep rectal pain. Just wondered if any one else has had similar symptoms.

[tiachibird]

I have been having the same problem, I am MPA. I have to be careful what I eat. I havent told the consultant yet, because we are booked for a holiday on 13 May, but when we get back I will definitely need to do something.

[ludo in reply to tiachibird]

Hi thanks for your reply tiachibird. I saw the vasculitis nurse practioner yesterday. As the colonoscopy didn't show inflammation she didn't think it was caused by vasculitis. She did say she would discuss it with the consultant. My GP Is checkng for elastane? in a stool sample he requested. Apparently it's something your pancreas can excrete. Waiting on the results. Enjoy your holiday and if your consultant comes up with anything I would love to hear from you.

Best wishes Ludo

[paullevans]

Hi Ludo I am constantly in the smallest room dark to black stools and awfull odour have been last 4 to 5 months I have changed diets they have discoverd haetis hernia and inflammation of the osophagus (barrats desease) not clear if related to my large vessel vasculitis but they said the same about iaortitis' severe constant muscle pains in legs arms back and loss of eyesite.

[ludo in reply to paullevans]

Thanks for your reply paullevans. Sounds like you had a little bleed going on causing the black stools. Its difficult to know what's related to Vasculitis isn't it. Hope your bowel problems resolve soon. Mine too! It can cause anxiety if there's not a loo nearby!

[paullevans]

Thanks Ludo

in addition I hàve recently been made aware that hernias can give similar symptoms to derviculitus? possible explaination for the constant toilet issues? we live and wonder

[gillygl]

Hi

Have you been tested for coeliac disease? It's another autoimmune disease, and once you have one, you have an increased chance of others. I have GPA, and I'm also coeliac. It means a lifelong gluten free diet but does free you from being tied to the small room. A blood test is needed in the first instance, it is then confirmed by endoscopy.

[ludo]

Many thanks gillygirl. I will get it checked out.