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GCA and clinical trials
I was just diagnosed Great cell Arteritise, I am currently on prednisone. I have an opportunity to joint a clinical trial group, that combines prednisone and Stelara. Has anyone had any experience with clinical trial using drug combinations?
I was just diagnosed Great cell Arteritise, I am currently on prednisone. I have an opportunity to joint a clinical trial group, that combines prednisone and Stelara. Has anyone had any experience with clinical trial using drug combinations?
golf26
in
PMRGCAuk
6 years ago
GCA and people not understanding
I have just come back from a wonderful but tiring holiday in Cornwall. I am so much better now I am on Tocilizumab but still not my old self. This was the first time I have been taking it fortnightly, by injection. rather than weekly and I was told I was not to do too much. I had a long day visiting
I have just come back from a wonderful but tiring holiday in Cornwall. I am so much better now I am on Tocilizumab but still not my old self. This was the first time I have been taking it fortnightly, by injection. rather than weekly and I was told I was not to do too much. I had a long day visiting
christine2715
in
PMRGCAuk
6 years ago
To port or not to port
Hi everyone. I’ve appreciated reading everyone else’s posts and hearing about the individual journeys we have all been on with MBC. I was orig diagnosed with stage II in dec 2013 (at the age of 44)and had 2 surgeries including a mastectomy, 8 courses of dose dense chemo, and 5 1/2 weeks radiation all
Hi everyone. I’ve appreciated reading everyone else’s posts and hearing about the individual journeys we have all been on with MBC. I was orig diagnosed with stage II in dec 2013 (at the age of 44)and had 2 surgeries including a mastectomy, 8 courses of dose dense chemo, and 5 1/2 weeks radiation all
harriet91
in
SHARE Metastatic Breast Cancer
6 years ago
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And the good news is . . .
It took just 10 minutes final assessment yesterday for Keith (hospital rheumatologist) to tell me that Giant Cell Arteritis (GCA) is over and the lack of headaches during the final months suggests there will not be any flares. It took 18 months tapering to wipe off the slate. He predicted this, saying
It took just 10 minutes final assessment yesterday for Keith (hospital rheumatologist) to tell me that Giant Cell Arteritis (GCA) is over and the lack of headaches during the final months suggests there will not be any flares. It took 18 months tapering to wipe off the slate. He predicted this, saying
sondya
in
PMRGCAuk
6 years ago
Endo back after ovary removal
18 months ago i had my ovaries removed aswell as extensive endo in various places. My doctor at the time said it wouldnt return as i wasnt going to be producing oestrogen and until now i believed her but the pain has come back in the last month with a vengeance and am now waiting for an appointment next
18 months ago i had my ovaries removed aswell as extensive endo in various places. My doctor at the time said it wouldnt return as i wasnt going to be producing oestrogen and until now i believed her but the pain has come back in the last month with a vengeance and am now waiting for an appointment next
nicolajones63
in
Endometriosis UK
6 years ago
Bra problems
Hi all just wondering if anyone has found the perfect bra post surgery. I have had Lwe with lymph node removal and then re excision for clear margins followed with 20 radiotherapy blasts. I have been measured in 2 different shops bought bras which feel comfortable for about 2 hours then I have to take
Hi all just wondering if anyone has found the perfect bra post surgery. I have had Lwe with lymph node removal and then re excision for clear margins followed with 20 radiotherapy blasts. I have been measured in 2 different shops bought bras which feel comfortable for about 2 hours then I have to take
RuthJ
in
My Breast Cancer Community
6 years ago
Wondering if I need to up my ERFA dose after surgery?
I had surgery nearly 3 weeks ago under GA for removal go ovarian cyst and a cervical polypectomy. I've recovered from the affects of the GA and my surgical wounds have healed, but I'm not feeling great. Tired and gaining weight very easily. I'm currently taking Erfa Thyroid. I take 90mg in the morning
I had surgery nearly 3 weeks ago under GA for removal go ovarian cyst and a cervical polypectomy. I've recovered from the affects of the GA and my surgical wounds have healed, but I'm not feeling great. Tired and gaining weight very easily. I'm currently taking Erfa Thyroid. I take 90mg in the morning
franniebabes
in
Thyroid UK
6 years ago
Endo and Major Surgery
Hi Ladies, I’ve just had a Bi-lateral Salpingo Oophorectomy, a Total Hysteroscopy and a bowel and bladder repair. My story is I have had years of the wrong diagnosis. I was told I had IBS, Fibromyalgia, Acid Reflux, Fibroids etc. Then after one MRA test through suffering with my gallbladder, they found
Hi Ladies, I’ve just had a Bi-lateral Salpingo Oophorectomy, a Total Hysteroscopy and a bowel and bladder repair. My story is I have had years of the wrong diagnosis. I was told I had IBS, Fibromyalgia, Acid Reflux, Fibroids etc. Then after one MRA test through suffering with my gallbladder, they found
Hidden
in
Endometriosis UK
6 years ago
New to 16 hours a day oxygen
My husband has just returned home from being in hospital for hernia repair it was herendus as the operation was done under local anaesthetic. The up shot of it is he is now on 16 hour a day oxygen. He had oxygen for exercising. He alway been active even running the London marathon along time ago. My
My husband has just returned home from being in hospital for hernia repair it was herendus as the operation was done under local anaesthetic. The up shot of it is he is now on 16 hour a day oxygen. He had oxygen for exercising. He alway been active even running the London marathon along time ago. My
alyvonne
in
Lung Conditions Community Forum
6 years ago
PBC, tired but hopeful
I was diagnosed Jan 2017. Though my symptoms go back to my late teens early 20’s. I had an emergency gallbladder removal and spent 5 days in the hospital at 25 (2002) for a mystery liver infection. Gallbladder was just swollen no stones. The blessing came because the several weeks of antibiotics I
I was diagnosed Jan 2017. Though my symptoms go back to my late teens early 20’s. I had an emergency gallbladder removal and spent 5 days in the hospital at 25 (2002) for a mystery liver infection. Gallbladder was just swollen no stones. The blessing came because the several weeks of antibiotics I
kalikrissy
in
PBC Foundation
6 years ago
New forum member
Hello and thank you for allowing me to join. I was diagnosed with MF on the 21st of May this year so I am still in the early stages of it sinking in! I am 53 (tomorrow) and came across diagnosis by accident. I went to my doctors in February experiencing stomach pains and vomiting along with chest wind
Hello and thank you for allowing me to join. I was diagnosed with MF on the 21st of May this year so I am still in the early stages of it sinking in! I am 53 (tomorrow) and came across diagnosis by accident. I went to my doctors in February experiencing stomach pains and vomiting along with chest wind
Graham7694
in
MPN Voice
6 years ago
Paroxymal AF and a general anaesthetic
I am undergoing an elective keyhole gallbladder removal next week.. I met with my anaesthetist today and after listening to him describe the RISKS involved having a general anaesthetic with Paroxymal AF I’m now wondering just how safe it is to go thro with the op ...just wonder if anyone out there has
I am undergoing an elective keyhole gallbladder removal next week.. I met with my anaesthetist today and after listening to him describe the RISKS involved having a general anaesthetic with Paroxymal AF I’m now wondering just how safe it is to go thro with the op ...just wonder if anyone out there has
Pugsley
in
AF Association
6 years ago
Recovery after laproscopy
Hi all, I was discharged from hospital without consultation with a doctor and without a sick note for work. I had laproscopy, hysteroscopy and uterine polypectomy and am a fair amount of pain. Hoping someone on here might be able to give me advice on recovery, what I should and shouldn't do, and for
Hi all, I was discharged from hospital without consultation with a doctor and without a sick note for work. I had laproscopy, hysteroscopy and uterine polypectomy and am a fair amount of pain. Hoping someone on here might be able to give me advice on recovery, what I should and shouldn't do, and for
Hidden
in
Endometriosis UK
6 years ago
Time to start pablocib
After what time pablocib and litrazole should be started after radiation oophorectomy
After what time pablocib and litrazole should be started after radiation oophorectomy
amitgarg27
in
SHARE Metastatic Breast Cancer
6 years ago
Muscle heaviness .
Hello I can feel the PMR is active in my body ,it is a wierd feeling which I expect you all can relate too.I also have intermittent one -sided shoulder pain.The question which I would like to ask however ,concerns the muscles in my upper arms and thighs (including lower buttocks!)They feel heavy and
Hello I can feel the PMR is active in my body ,it is a wierd feeling which I expect you all can relate too.I also have intermittent one -sided shoulder pain.The question which I would like to ask however ,concerns the muscles in my upper arms and thighs (including lower buttocks!)They feel heavy and
Dewdrop456
in
PMRGCAuk
6 years ago
Nearly a week on from laparoscopic hysterectomy....
Hello everyone Just thought that I would update on my op which I've had as a consequence of tamoxifen for 2 years which have caused endometrial hyperplasia (thickening of uterus). I had it Friday morning and came home Saturday afternoon not needing to be on pain relief! I've had a total hysterectomy
Hello everyone Just thought that I would update on my op which I've had as a consequence of tamoxifen for 2 years which have caused endometrial hyperplasia (thickening of uterus). I had it Friday morning and came home Saturday afternoon not needing to be on pain relief! I've had a total hysterectomy
Hidden
in
My Breast Cancer Community
6 years ago
Looking for input on lung cancer surgery with lymph node removal and mild COPD
I am now down to 3 lobes due to lung cancer surgeries. It has been 5 weeks and I still get short of breath with any exertion. My heart rate goes up as high as 120, but my O2 level pretty much stays above 90. As soon as I sit down my heart rate starts to drop and my O2 level goes up. My oncologist has
I am now down to 3 lobes due to lung cancer surgeries. It has been 5 weeks and I still get short of breath with any exertion. My heart rate goes up as high as 120, but my O2 level pretty much stays above 90. As soon as I sit down my heart rate starts to drop and my O2 level goes up. My oncologist has
KatherineK
in
American Cancer Survivors
6 years ago
Pred tapering starts tomorrow
I was diagnosed with GCA/PMR May 7th and started on 60mg of prednisone. I will be lowering that dose to 50mg tomorrow. The doctor wants me to consider Tocilizumab weekly infusions. I have read the study and understand the side effects, but I would like to hear some of your thoughts and/or experiences
I was diagnosed with GCA/PMR May 7th and started on 60mg of prednisone. I will be lowering that dose to 50mg tomorrow. The doctor wants me to consider Tocilizumab weekly infusions. I have read the study and understand the side effects, but I would like to hear some of your thoughts and/or experiences
kay7954
in
PMRGCAuk
6 years ago
Post hysterectomy and dating...when to mention that Ive had this done and why.
Hi Everyone. Firstly let me just say that I had the total hysterectomy and oopherectomy done over a year ago privately and so I am not suggesting that I wasnt aware of the possibility that it could cause some questions about my actions. I am happy I chose this way. I do not refret my decision and now
Hi Everyone. Firstly let me just say that I had the total hysterectomy and oopherectomy done over a year ago privately and so I am not suggesting that I wasnt aware of the possibility that it could cause some questions about my actions. I am happy I chose this way. I do not refret my decision and now
NH88
in
Endometriosis UK
6 years ago
Eejit!!!!
Well, I guess there's a first time for everything... but feel I like a right idiot!!! It was 1:30 this afternoon, before I realised, I had forgotten to take my Prednisolone! I wondered why I felt weird and sluggish, just off... it was like I was going in slow motion and couldn't get going. Not
Well, I guess there's a first time for everything... but feel I like a right idiot!!! It was 1:30 this afternoon, before I realised, I had forgotten to take my Prednisolone! I wondered why I felt weird and sluggish, just off... it was like I was going in slow motion and couldn't get going. Not
Hidden
in
PMRGCAuk
6 years ago
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