Myopic Degeneration

[myopiaisdangerous]

26 years old Diagnosed with Myopic Degneration, I was told that I have Mild Posterior Staphylomas I tend to see flashes a lot and have constant floaters (which I was seeing those for 2 years but I gotten worst) what I really want to know is what to expect? My retina Specialist tells me it’s rare that I will go blind from this but even I know when that word “Degneration” get thrown around it’s never good.

[Kelly_macularsociety Partner]

Good morning myopiaisdangerous,

The Macular Society is running a support group for those who have myopic macular degeneration.

The first MMD Support Group meeting will be on Tuesday 14 December at 7pm. The group will give the opportunity for people with both new and existing diagnosis of MMD to connect and share experiences and offer peer support. For more information and to register to join the meeting follow the link below.

macularsociety.org/about/me...

If you have any further questions on this, please contact our working age and young people manager Colin at Colin Daniels [e-mail] or the Advice and Information service on 0300 3030 111.

Warm regards,

Kelly

Kelly Ephgrave

Advice and Information Service Administrator

Macular Society

Tel [phone]

macularsociety.org

[StokeySue]

I too have myopic macular degeneration, unfortunately the disease is protean, i.e. it affects everyone a bit differently depending on the level of your myopia, the shape of your eyeball, and the state of your retinal blood vessels.

I was diagnosed in my early 30s, over 30 years ago, before there was any treatment, losing central vision in my right eye, but I'm still here (having had treatment for my left eye for CNV pver the last 11 years, and some treatment for cataract & pressure to both eyes, and still typing, reading the screen without an audio assistant. I was driving (legally!) until about 8 years ago, still get around alone and play backgammon at club levle

Flashing lights (photopsia), mine go round the edge of my field of vision like those L.E.D. chains in which the lights flash sequentially in shop windows are irritating, but you do get used to them and floaters too, I had a wasp shaped one for years among others, but he seems to have gone now.

Good luck!

[ANetliner]

I was just diagnosed with CNV (choroidal neovascularization), due to high myopia.

My retinal doctor tells me that, although there are no iron-clad guarantees, this condition is generally more treatable than other types of wet macular degeneration and usually does *not* lead to blindness.

I’ve been reading about experimental treatments, and they are starting to look at gene therapy and oral medications for treating this condition, instead of shots.