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Sjogrens Syndrome
Sjogrens, Raynauds, Mixed Connective Tissue Disorder….. was diagnosed maybe 20 years ago with Sjogrens. No treatment was needed other eye drops. Then I started having the dry mouth and dental issues. I currently taking 400mg daily of hydroxychloroquine. The medication has helped tremendously .
Sjogrens, Raynauds, Mixed Connective Tissue Disorder….. was diagnosed maybe 20 years ago with Sjogrens. No treatment was needed other eye drops. Then I started having the dry mouth and dental issues. I currently taking 400mg daily of hydroxychloroquine. The medication has helped tremendously .
Juanburr1950
in
Scleroderma & Raynaud's UK (SRUK)
4 months ago
Can you help regarding symptoms?
Full disclosure here. My ability to determine my health status is lacking. I either over-react or under-react. I never believed I had PMR but I also didn't believe I had a ruptured appendix. I am a hard worker, managing a small farm so I do feel sore at times. I am presently on 10 mgs prednisone. I
Full disclosure here. My ability to determine my health status is lacking. I either over-react or under-react. I never believed I had PMR but I also didn't believe I had a ruptured appendix. I am a hard worker, managing a small farm so I do feel sore at times. I am presently on 10 mgs prednisone. I
FreeWolf
in
PMRGCAuk
2 months ago
Informing DVLA
Hi all. You've been super helpful before so wonder if you can help with another question. One for the UK based folk. Question about informing the DVLA of a TBI. Has anyone navigated this process please? I know I need to inform them and have looked at their form. I'm not currently well enough to drive
Hi all. You've been super helpful before so wonder if you can help with another question. One for the UK based folk. Question about informing the DVLA of a TBI. Has anyone navigated this process please? I know I need to inform them and have looked at their form. I'm not currently well enough to drive
Ideogram
in
Headway
4 months ago
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Clonidine - success with RLS anyone?
Evening team I have a query. As some of you may remember I was prescribed Buprenorphine two years ago by a neurologist for my restless limbs. I have a feeling I may have asked this question before, maybe not in one of my posts, (can't remember!) Does anyone out there take Clonidine for RLS? if
Evening team I have a query. As some of you may remember I was prescribed Buprenorphine two years ago by a neurologist for my restless limbs. I have a feeling I may have asked this question before, maybe not in one of my posts, (can't remember!) Does anyone out there take Clonidine for RLS? if
Heatherandgorse
in
Restless Legs Syndrome
4 months ago
Efficacy of Trihexyphenidyl on Apraxia of Eyelid Opening in Parkinsonism: A Case Report
Apraxia of eyelid opening (AEO) is occasionally seen in Parkinson’s disease (PD) or related diseases. However, many clinicians have trouble with the management of AEO by Parkinsonism. The following link mentions a case of apraxia of eyelids opening in PD patient which was successfully treated with the
Apraxia of eyelid opening (AEO) is occasionally seen in Parkinson’s disease (PD) or related diseases. However, many clinicians have trouble with the management of AEO by Parkinsonism. The following link mentions a case of apraxia of eyelids opening in PD patient which was successfully treated with the
Farooqji
in
Cure Parkinson's
4 months ago
Dry Eye Syndrome
I was at opthalmology today re another matter and whilst there he diagnosed
Dry
Eye
Syndrome
. He said it was most likely another autoimmune condition I had. He said it would be a lifelong condition with drops a cream for my eyes. Has anyone else with alopecia been diagnosed with this.
I was at opthalmology today re another matter and whilst there he diagnosed
Dry
Eye
Syndrome
. He said it was most likely another autoimmune condition I had. He said it would be a lifelong condition with drops a cream for my eyes. Has anyone else with alopecia been diagnosed with this.
cjbroon
in
Alopecia UK
1 year ago
Great progress on Pegasys!
I’ve been on Pegasys for 16 months. When I started, my JAK-2 Allele burden was 29%. Today it is 14%! I was one of the folks who needed a higher dose of Peg to respond. Over 7 months, my dose was gradually increased, and I didn’t see a response until I was at 180mg/week. My blood work is now 100%
I’ve been on Pegasys for 16 months. When I started, my JAK-2 Allele burden was 29%. Today it is 14%! I was one of the folks who needed a higher dose of Peg to respond. Over 7 months, my dose was gradually increased, and I didn’t see a response until I was at 180mg/week. My blood work is now 100%
Minify
in
MPN Voice
6 minutes ago
Worried- pressure at 5 at trabeculectomy follow up today
Has anyone had to deal with low pressure after trabeculecyomy? I had the fourth of my weekly post- trabeculectomy follow ups today. The pressure was 5. Before the operation the pressure was consistently around 15. Week one after surgery it was 15, week two, 17 ( then stitch removed) Week 3 was 20. Stitch
Has anyone had to deal with low pressure after trabeculecyomy? I had the fourth of my weekly post- trabeculectomy follow ups today. The pressure was 5. Before the operation the pressure was consistently around 15. Week one after surgery it was 15, week two, 17 ( then stitch removed) Week 3 was 20. Stitch
Iona57
in
Glaucoma UK
19 hours ago
Filling the syringe
I did my first 8 subcutaneous b12 injections as I was shown by the doctor. Since then the nurse at my g.p. surgery has been doing my injections every 2 weeks as prescribed. (She offered me the choice of continuing to do it myself or she would do it.)The consultant had told me if I wanted to give myself
I did my first 8 subcutaneous b12 injections as I was shown by the doctor. Since then the nurse at my g.p. surgery has been doing my injections every 2 weeks as prescribed. (She offered me the choice of continuing to do it myself or she would do it.)The consultant had told me if I wanted to give myself
Suesue246
in
Pernicious Anaemia Society
21 hours ago
SSI Registration - any reason not to?
Hi, I asked my previous eye consultant if they would fill a form out to say I was visually impaired. It was a few years ago but they refused which was frustrating because I wanted to apply for a disabled railcard :-). Anyway pretty much out of the blue my current eye consultant proactively asked
Hi, I asked my previous eye consultant if they would fill a form out to say I was visually impaired. It was a few years ago but they refused which was frustrating because I wanted to apply for a disabled railcard :-). Anyway pretty much out of the blue my current eye consultant proactively asked
Blindbatuk
in
Glaucoma UK
22 hours ago
MPN and vision problems
Hi all I'd like to ask if anyone has experienced vision problems associated with their MPN? I have ET (Jak2+) and in recent months have had frequent/daily disturbances in the periphery (bottom right) of my vision. It's different from the 'classic' scintillating scotoma (visual migraine/migraine with
Hi all I'd like to ask if anyone has experienced vision problems associated with their MPN? I have ET (Jak2+) and in recent months have had frequent/daily disturbances in the periphery (bottom right) of my vision. It's different from the 'classic' scintillating scotoma (visual migraine/migraine with
junebuggy
in
MPN Voice
2 days ago
Pegasys skin?
Has anyone else had their skin turn into rough, dry, chicken skin on large parts of their bodies after taking Pegasys? Mine started out with itchiness, and now the skin itself is weird. I've used tons of lotion, including Sarna. I have also taken Beta Alanine orally. Problem is growing worse. Any solutions
Has anyone else had their skin turn into rough, dry, chicken skin on large parts of their bodies after taking Pegasys? Mine started out with itchiness, and now the skin itself is weird. I've used tons of lotion, including Sarna. I have also taken Beta Alanine orally. Problem is growing worse. Any solutions
dogsandhorses
in
MPN Voice
4 days ago
Ikervis (Cyclosporin)
Has anyone been prescribed this for dry eye/corneal issues? I was referred to an iritis clinic and prescribed this drop mid June x 2 drops in right eye per day. Though I don't see out of my right, vision in my left was pretty good up till then (had cataract op in left last year) but it started getting
Has anyone been prescribed this for dry eye/corneal issues? I was referred to an iritis clinic and prescribed this drop mid June x 2 drops in right eye per day. Though I don't see out of my right, vision in my left was pretty good up till then (had cataract op in left last year) but it started getting
whitedog
in
Glaucoma UK
8 days ago
UTI experience with Imbruvica
hello, when I was on Imbruvica I had many UTI. This is side effects of Imbruvica. I asked my doctor to switch me for another medication and now they m on Venclecta. This is even worse. I do not have UTI anymore , but I’m already sick for Ramsay Hunt this is like Bels Pasley. All these pills for CLL have
hello, when I was on Imbruvica I had many UTI. This is side effects of Imbruvica. I asked my doctor to switch me for another medication and now they m on Venclecta. This is even worse. I do not have UTI anymore , but I’m already sick for Ramsay Hunt this is like Bels Pasley. All these pills for CLL have
farber
in
CLL Support
9 days ago
Eye symptoms
Has any one been told they have early onset macular degeneration? Also weak retina? I was given a Amsler grid last eye test/scan and told to go straight to A & E if lines go curved. I have had a bad cellulitis infection in 2021 which I had a cyst also, antibiotics and drops eventually sorted this.
Has any one been told they have early onset macular degeneration? Also weak retina? I was given a Amsler grid last eye test/scan and told to go straight to A & E if lines go curved. I have had a bad cellulitis infection in 2021 which I had a cyst also, antibiotics and drops eventually sorted this.
Missyjasper
in
Behçet's UK
11 days ago
Dry Mouth and Methotrexate
I started s.c. Methotrexate a couple of months ago and am increasingly developing a dry mouth. This aggravates my erosive oral lichen planus. Is this common with Methotrexate??
I started s.c. Methotrexate a couple of months ago and am increasingly developing a dry mouth. This aggravates my erosive oral lichen planus. Is this common with Methotrexate??
13Lab
in
NRAS
12 days ago
Squint surgery
Hi all today i had surgery for a squint in my left eye which is my weak eye. I have wet AMD in both eyes and have Eyelea injections. Also have ocular hypertension in both eyes and use drops. What fun! I have been given Maxitrol drops 4 x times daily for 2 week then 2 x times daily for the following
Hi all today i had surgery for a squint in my left eye which is my weak eye. I have wet AMD in both eyes and have Eyelea injections. Also have ocular hypertension in both eyes and use drops. What fun! I have been given Maxitrol drops 4 x times daily for 2 week then 2 x times daily for the following
EthelPledge94
in
Macular Society
13 days ago
what to do now ?
Hi All Confused what to do next ? These are my results after 6 weeks on new regime Bloods taken 8am and 12 hours after last dose of T3 125 mcg Tirosint 2.5 mcg T3 I’m feeling much warmer and brain fog is better although I do feel a little angst and teary at times ? Energy is much better.
Hi All Confused what to do next ? These are my results after 6 weeks on new regime Bloods taken 8am and 12 hours after last dose of T3 125 mcg Tirosint 2.5 mcg T3 I’m feeling much warmer and brain fog is better although I do feel a little angst and teary at times ? Energy is much better.
joskie
in
Thyroid UK
14 days ago
Tuesday's Tips
from Dr. Jones's book [u][i]
The Definitive Guide for Patients With Primary Biliary Cholangitis....
[/i][/u] One of the most common other auto immune diseases associated with PBC is Sjogrens Syndrome. With having the salivary and tear glands are affected, the patient experiences lack of tears,
from Dr. Jones's book [u][i]
The Definitive Guide for Patients With Primary Biliary Cholangitis....
[/i][/u] One of the most common other auto immune diseases associated with PBC is Sjogrens Syndrome. With having the salivary and tear glands are affected, the patient experiences lack of tears,
DonnaBoll
Administrator
in
PBC Foundation
16 days ago
DVLA Esterman Test - trial test?
Hi I am awful at hospital visual field tests.. I get anxious, my eyes dry up, I worry if I blink I’ll miss a light, I’m hesitant to click on lower light blips (I’m overly cautious.. don’t know why!). I fret I didn’t press the buzzer when I should have (I.e. was that a dim light or not?) then miss the
Hi I am awful at hospital visual field tests.. I get anxious, my eyes dry up, I worry if I blink I’ll miss a light, I’m hesitant to click on lower light blips (I’m overly cautious.. don’t know why!). I fret I didn’t press the buzzer when I should have (I.e. was that a dim light or not?) then miss the
Blindbatuk
in
Glaucoma UK
16 days ago
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