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Dry eye syndrome
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Biotin and ESR/CRP Testing
Good evening. I have been taking supplements - AdCalD3 (of course!), Vit K2, VitB complex magnesium glycerine/malate and fish oil - fairly religiously since starting on pred. To help with hair/skin/bone thinning, I have also taken collagen and biotin. I was alarmed to discover tonight that biotin can
Good evening. I have been taking supplements - AdCalD3 (of course!), Vit K2, VitB complex magnesium glycerine/malate and fish oil - fairly religiously since starting on pred. To help with hair/skin/bone thinning, I have also taken collagen and biotin. I was alarmed to discover tonight that biotin can
Burroughs123
in
PMRGCAuk
8 months ago
Cataract surgery with AMD
I have injections in both eyes for wet macular degeneration. Left eye has scar tissue caused by retinal tear. Am having cataract surgery on 23rd October in right eye first. I am short sighted and have agreed to have sight corrected at same time. I am now worried about wisdom of this as think it will
I have injections in both eyes for wet macular degeneration. Left eye has scar tissue caused by retinal tear. Am having cataract surgery on 23rd October in right eye first. I am short sighted and have agreed to have sight corrected at same time. I am now worried about wisdom of this as think it will
Cockeyed
in
Macular Society
9 months ago
Normal Pressure Glaucoma
I have suspected Normal Pressure Glaucoma and have been prescribed single use Monopost eye drops. I have been putting them in for about three weeks and since then I have been having mild headaches. The pressure in my left eye is 9 and in my right eye 10. Because I am a type 1 Diabetic I have an eye
I have suspected Normal Pressure Glaucoma and have been prescribed single use Monopost eye drops. I have been putting them in for about three weeks and since then I have been having mild headaches. The pressure in my left eye is 9 and in my right eye 10. Because I am a type 1 Diabetic I have an eye
AnnieJo41
in
Glaucoma UK
9 months ago
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Heat pads
After getting rid of pramipexole using kratom, I continued on kratom as it turned out to be quite effective keeping the jittering down. I don't know if it is the cold weather or tolerance to kratom, but RLS is rearing it's ugly head again. The symptoms are disruptive but nothing like the horror I experienced
After getting rid of pramipexole using kratom, I continued on kratom as it turned out to be quite effective keeping the jittering down. I don't know if it is the cold weather or tolerance to kratom, but RLS is rearing it's ugly head again. The symptoms are disruptive but nothing like the horror I experienced
sigurdur
in
Restless Legs Syndrome
8 months ago
Dry skin
Does anyone feel that Hydroxyurea causes your skin to dry out and wrinkle faster?
Does anyone feel that Hydroxyurea causes your skin to dry out and wrinkle faster?
Winchie
in
MPN Voice
9 months ago
Newly Diagnosed with RSL and trying to get my head around it!
In the space of a week I have gone from a sane and active older lady to a sleep deprived zombie, unable to grasp how this diagnosis, which sounds relatively innocuous, is about to disrupt and change my life and I'm struggling to come terms with the prospect of living with what I can only describe as
In the space of a week I have gone from a sane and active older lady to a sleep deprived zombie, unable to grasp how this diagnosis, which sounds relatively innocuous, is about to disrupt and change my life and I'm struggling to come terms with the prospect of living with what I can only describe as
Lettucenotforget
in
Restless Legs Syndrome
8 months ago
Dry eyes
Hi helpful warriors I am on 35 mg of pred for next 2 weeks, then tapering to 30. Does pred cause dry eyes? ( did have cataract removal surgery in June of 2023.) Since diagnosis of GCA in late July 2023 I have had very dry eyes. I am on Thealoz Duo drops (3% Trehalose, 0.15 Sodium Hyaluronate).
Hi helpful warriors I am on 35 mg of pred for next 2 weeks, then tapering to 30. Does pred cause dry eyes? ( did have cataract removal surgery in June of 2023.) Since diagnosis of GCA in late July 2023 I have had very dry eyes. I am on Thealoz Duo drops (3% Trehalose, 0.15 Sodium Hyaluronate).
Groda
in
PMRGCAuk
9 months ago
Some good news
Just to keep you all up to date. I have been on 50mg daily of Agomelatine, for depression, foe the padt month. I feel the best I have felt in years!. Severe restless legs are 75% better. Some nights I have no rls at all. Always good to have a good news story - especially for me after the last 6 months
Just to keep you all up to date. I have been on 50mg daily of Agomelatine, for depression, foe the padt month. I feel the best I have felt in years!. Severe restless legs are 75% better. Some nights I have no rls at all. Always good to have a good news story - especially for me after the last 6 months
Trish8433
in
Restless Legs Syndrome
8 months ago
No more spaghetti or jelly legs!
I recently posted a question just prior to my neurology visit about my gate being off and got some really good answers however after visiting my neurologist I was put on a medication called ampyra. You have to get it from a specialty pharmacy and my copay is 47$ a month but it is ms specific. It takes
I recently posted a question just prior to my neurology visit about my gate being off and got some really good answers however after visiting my neurologist I was put on a medication called ampyra. You have to get it from a specialty pharmacy and my copay is 47$ a month but it is ms specific. It takes
Mark1499
in
My MSAA Community
10 months ago
cateract surgery
Hello: I’m a little worried about having cateract surgery as I like most have tremor or dyskinesia. The doctor asked could I be still. Funny. Anyone experience this? Any thoughts? Thanks.
Hello: I’m a little worried about having cateract surgery as I like most have tremor or dyskinesia. The doctor asked could I be still. Funny. Anyone experience this? Any thoughts? Thanks.
Ep0522
in
Cure Parkinson's
10 months ago
Who has had cataract surgery with a bleb?
So as is the way with this condition, you cruise for a while then your eyes decide they do not wish to play ball! So basically I’ve been noticing a decrease in clarity with my right eye. The Glaucoma clinic doesn’t think I’m an urgent case so I’m waiting till November where I will see a nurse 😒.
So as is the way with this condition, you cruise for a while then your eyes decide they do not wish to play ball! So basically I’ve been noticing a decrease in clarity with my right eye. The Glaucoma clinic doesn’t think I’m an urgent case so I’m waiting till November where I will see a nurse 😒.
Vich81
in
Glaucoma UK
10 months ago
reversal of approval
Ihave been on Buprenorphine for two and a half month and doing well. I was able to stop the Pramipexol. All of a sudden, the pharmacy says it can’t refill it as it doesn’t carry an indication for RLS.. They are Dayi g their pharmacist made a mistake. My doctor has spoken to them and they are demanding
Ihave been on Buprenorphine for two and a half month and doing well. I was able to stop the Pramipexol. All of a sudden, the pharmacy says it can’t refill it as it doesn’t carry an indication for RLS.. They are Dayi g their pharmacist made a mistake. My doctor has spoken to them and they are demanding
teakabeagle
in
Restless Legs Syndrome
8 months ago
Requip and Collagen
I have been taking Requip for several years and started taking Collagen last year as I had come off HRTand my hair and nails were in a terrible condition. I seem to remember seeing that taking both was not advised, is that correct? I have gone back on HRT but it has not made any difference.
I have been taking Requip for several years and started taking Collagen last year as I had come off HRTand my hair and nails were in a terrible condition. I seem to remember seeing that taking both was not advised, is that correct? I have gone back on HRT but it has not made any difference.
Brenda48
in
Restless Legs Syndrome
9 months ago
Update
I've finally come off ropinirole and am taking pregabalin150 mg only. It's not been easy. It's now 4 weeks since the last sliver of ropinirole and since then the symptoms have started to slowly creep back. I know from advice here that this is to be expected and the pregabalin dose can be increased. The
I've finally come off ropinirole and am taking pregabalin150 mg only. It's not been easy. It's now 4 weeks since the last sliver of ropinirole and since then the symptoms have started to slowly creep back. I know from advice here that this is to be expected and the pregabalin dose can be increased. The
Firenze1
in
Restless Legs Syndrome
9 months ago
getting off pramipexole
I’ve run into a RLP problem trying to get off pramipexole. I reduced the pramipexole from .5 mg to .375 mg. I’m into my 4 th week. I’ve increased the Gabapentin to 600 mg and having to use codine twice daily. I’m taking 5 mg of codine per dose. I’m still having from moderate to severe RLS pain. I need
I’ve run into a RLP problem trying to get off pramipexole. I reduced the pramipexole from .5 mg to .375 mg. I’m into my 4 th week. I’ve increased the Gabapentin to 600 mg and having to use codine twice daily. I’m taking 5 mg of codine per dose. I’m still having from moderate to severe RLS pain. I need
Moretravel1
in
Restless Legs Syndrome
9 months ago
Being taking off Pegasys. :( Looking for alternatives
Hi all, I have ET & PV with Jak2. I am 40. I have been on aspirin for over 10 years, but had to start Pegasys 3 months ago. I haven't tolerated it well. Severe shortness of breath etc. My hematologist reduced my dose to 30 per week, but I am suffering with hypertension (150 to 69/96 on average) and
Hi all, I have ET & PV with Jak2. I am 40. I have been on aspirin for over 10 years, but had to start Pegasys 3 months ago. I haven't tolerated it well. Severe shortness of breath etc. My hematologist reduced my dose to 30 per week, but I am suffering with hypertension (150 to 69/96 on average) and
JustKeepSw1mming
in
MPN Voice
10 months ago
Coming out of a very very long dark tunnel.
Those of you who have the patience to read my sometimes rambling posts will know that I was taking 6mg of Ropinirole a day and had been taking it for quite some time with Neupro patches before that anyway I finally went private to see a terrific Doctor Jose Thomas at the Spire Hospital in Cardiff who
Those of you who have the patience to read my sometimes rambling posts will know that I was taking 6mg of Ropinirole a day and had been taking it for quite some time with Neupro patches before that anyway I finally went private to see a terrific Doctor Jose Thomas at the Spire Hospital in Cardiff who
HipHop1972
in
Restless Legs Syndrome
9 months ago
a little drama
I have just reduced to 5mg. And like many others my energy is crashing. So a bit of a roller coaster and trying to plan things so that I don’t have too much excitement all at once! Wednesday my husband was diagnosed with detached retina, yesterday was an hour and a half trip to eye hospital for his
I have just reduced to 5mg. And like many others my energy is crashing. So a bit of a roller coaster and trying to plan things so that I don’t have too much excitement all at once! Wednesday my husband was diagnosed with detached retina, yesterday was an hour and a half trip to eye hospital for his
Alazarin
in
PMRGCAuk
10 months ago
Augmentation- Report via Yellow Card Scheme
The MHRA is encouraging people to report adverse side effects via the Yellow Card Scheme. If you have suffered drug induced worsening on Ropinirole, Pramipexole or the Neupro patch, please report to help raise awareness among medical professionals. https://content.govdelivery.com/accounts/UKMHRA/bulletins
The MHRA is encouraging people to report adverse side effects via the Yellow Card Scheme. If you have suffered drug induced worsening on Ropinirole, Pramipexole or the Neupro patch, please report to help raise awareness among medical professionals. https://content.govdelivery.com/accounts/UKMHRA/bulletins
Joolsg
in
Restless Legs Syndrome
9 months ago
Haemolysis
Hi all. Sent for Monitor my Health blood test for TSH, T4+T3. Sent 1st thing Tues am. Only got a response Thurs pm to say test received. Could the delay by Royal Mail have resulted in Haemolysis? My first test in May went thru no probs, other than getting enough blood. This time, after all the tips I
Hi all. Sent for Monitor my Health blood test for TSH, T4+T3. Sent 1st thing Tues am. Only got a response Thurs pm to say test received. Could the delay by Royal Mail have resulted in Haemolysis? My first test in May went thru no probs, other than getting enough blood. This time, after all the tips I
Lottyplum
in
Thyroid UK
11 months ago
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