Pegasys skin?: Has anyone else had their skin turn... - MPN Voice

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Pegasys skin?

dogsandhorses profile image
8 Replies

Has anyone else had their skin turn into rough, dry, chicken skin on large parts of their bodies after taking Pegasys? Mine started out with itchiness, and now the skin itself is weird. I've used tons of lotion, including Sarna. I have also taken Beta Alanine orally. Problem is growing worse. Any solutions out there?

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dogsandhorses
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8 Replies
Exeter21 profile image
Exeter21

I found after a year on peg I started getting dark rough scab type lumps on my body skin. On sides & soft skin areas. If you leave it dry it eventually rubs off or drops off after a couple of months. Moisturiser doesn’t rectify it . But I had not read this as a side effect . Julia UK 👌

dogsandhorses profile image
dogsandhorses in reply to Exeter21

So far mine are widespread over my body. Mostly the core, back, abdomen, rear end. Itches, and feels like chicken skin where the feathers have been pulled out. I'm a farm girl by birth!

Mazcd profile image
MazcdPartnerMPNVoice

Hi, best to get this checked out by your GP to rule out any other cause for this, and then discuss with your haematologist. They may also be able to advise you on something to help with this. Best wishes, Maz

dogsandhorses profile image
dogsandhorses in reply to Mazcd

I am seeing my hematologist before my Primary care Doc, so I will talk to him. Since he hasn't taken the drug himself, I wanted to ask people who have taken it before talking to him.

Cat1001954 profile image
Cat1001954

I have ET and my skin is just like chicken skin it wasn’t before I started oral chemo

dogsandhorses profile image
dogsandhorses in reply to Cat1001954

What treatment are you on? I didn't have this for the 5 years I was on Hydroxyurea. Had other issues, mostly gastrointestinal on that. Now different side effects. Not sure which are worse. What have you tried for your skin? Has anything worked?

Cat1001954 profile image
Cat1001954 in reply to dogsandhorses

I’m on oral chemo And nothing really helps

Bellakeira profile image
Bellakeira

Yep I hear ya been on it for over 12 months n my skin is dry with red spots itchy back drives me spare. AU

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