Pegasys skin?: Has anyone else had their skin turn... - MPN Voice

MPN Voice

10,874 members15,189 posts

Pegasys skin?

dogsandhorses profile image
8 Replies

Has anyone else had their skin turn into rough, dry, chicken skin on large parts of their bodies after taking Pegasys? Mine started out with itchiness, and now the skin itself is weird. I've used tons of lotion, including Sarna. I have also taken Beta Alanine orally. Problem is growing worse. Any solutions out there?

Written by
dogsandhorses profile image
dogsandhorses
To view profiles and participate in discussions please or .
Read more about...
8 Replies
Exeter21 profile image
Exeter21

I found after a year on peg I started getting dark rough scab type lumps on my body skin. On sides & soft skin areas. If you leave it dry it eventually rubs off or drops off after a couple of months. Moisturiser doesn’t rectify it . But I had not read this as a side effect . Julia UK 👌

dogsandhorses profile image
dogsandhorses in reply toExeter21

So far mine are widespread over my body. Mostly the core, back, abdomen, rear end. Itches, and feels like chicken skin where the feathers have been pulled out. I'm a farm girl by birth!

Mazcd profile image
MazcdPartnerMPNVoice

Hi, best to get this checked out by your GP to rule out any other cause for this, and then discuss with your haematologist. They may also be able to advise you on something to help with this. Best wishes, Maz

dogsandhorses profile image
dogsandhorses in reply toMazcd

I am seeing my hematologist before my Primary care Doc, so I will talk to him. Since he hasn't taken the drug himself, I wanted to ask people who have taken it before talking to him.

Cat1001954 profile image
Cat1001954

I have ET and my skin is just like chicken skin it wasn’t before I started oral chemo

dogsandhorses profile image
dogsandhorses in reply toCat1001954

What treatment are you on? I didn't have this for the 5 years I was on Hydroxyurea. Had other issues, mostly gastrointestinal on that. Now different side effects. Not sure which are worse. What have you tried for your skin? Has anything worked?

Cat1001954 profile image
Cat1001954 in reply todogsandhorses

I’m on oral chemo And nothing really helps

Bellakeira profile image
Bellakeira

Yep I hear ya been on it for over 12 months n my skin is dry with red spots itchy back drives me spare. AU

Not what you're looking for?

You may also like...

Rapid aging of facial skin with Pegasys?

I am almost embarrassed to ask this but here goes. Since starting on Pegasys (have had 9th...
Planti profile image

Switching from HU To Pegasys: Skin Cancer Risk

Six months ago I was diagnosed with ET Jak2.  I’m high risk (age, prior stroke) and I started...
Minify profile image

First day of Pegasys.

After two and half years on hydroxycarbamide, today was my first day on Pegasys. Injected myself...
Raphael_UK profile image

Pegasys

Husband was started on Pegasys after being on Ruxolitinib since 2017.. He has Polycythaemia Vera He...
waddles22 profile image

Ruxolitnib and bad skin

Has anybody on Rux experienced a deterioration in their facial skin. 9 months in I am gradually...
JP1952 profile image

Moderation team

Debinha profile image
DebinhaAdministrator
Mazcd profile image
MazcdPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.