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Life changer
Hello everyone my name is Stuart and I am 49 and just completed C25K, I started eating healthier since October 23rd 2017 following slimmers World, however I did not join slimmers World just copied the diet I was 21stone 4lb, diagnosed with high blood pressure, my iron was dangerously low, and border
Hello everyone my name is Stuart and I am 49 and just completed C25K, I started eating healthier since October 23rd 2017 following slimmers World, however I did not join slimmers World just copied the diet I was 21stone 4lb, diagnosed with high blood pressure, my iron was dangerously low, and border
guruevo
in
Couch to 5K
6 years ago
Sleep study
Hi all! I just wanted to encourage anyone who has severe issues in the morning to get a sleep study done even if you don’t have sleepiness during the day. I live in North Dakota and have pretty limited access to good neurologists or movement disorder specialists. I’ve only been diagnosed for a year and
Hi all! I just wanted to encourage anyone who has severe issues in the morning to get a sleep study done even if you don’t have sleepiness during the day. I live in North Dakota and have pretty limited access to good neurologists or movement disorder specialists. I’ve only been diagnosed for a year and
Hidden
in
Cure Parkinson's
6 years ago
Cell discovery holds out promise for Parkinson’s therapy
Israelis discover proteins that promote dopamine secretion in study that has potential applications for Parkinson’s disease cell-replacement therapy. An Israeli-led international study featured on the cover of The Journal of Neuroscience in February, holds the promise of advancing the field of cell-replacement
Israelis discover proteins that promote dopamine secretion in study that has potential applications for Parkinson’s disease cell-replacement therapy. An Israeli-led international study featured on the cover of The Journal of Neuroscience in February, holds the promise of advancing the field of cell-replacement
Farooqji
in
Cure Parkinson's
6 years ago
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Pain Poll Results
Hi folks. Thank you for your great responses. It's horrid to see that many are suffering pain on top of everything else. It must be distressing for both cared for and the carers.
Please keep replying to it if you haven't yet done so - I am still gathering info.
https://healthunlocked.com/psp
Hi folks. Thank you for your great responses. It's horrid to see that many are suffering pain on top of everything else. It must be distressing for both cared for and the carers.
Please keep replying to it if you haven't yet done so - I am still gathering info.
https://healthunlocked.com/psp
Kevin_1
in
PSP Association
6 years ago
Lab Results: Amphetamines Skewing Results?
I will be following up with the Endocrinologist tomorrow, it will be our second meeting. In our first meeting he was unsure if I have a thyroid problems but suspected adult growth hormone deficiency. I shared an article on how GH deficiency can mask subclinical/mild Central hypothyroidism and was hoping
I will be following up with the Endocrinologist tomorrow, it will be our second meeting. In our first meeting he was unsure if I have a thyroid problems but suspected adult growth hormone deficiency. I shared an article on how GH deficiency can mask subclinical/mild Central hypothyroidism and was hoping
Andyb1205
in
Thyroid UK
6 years ago
There is a treatment
Watching programme on tv about restless legs. Difficult to watch so much suffering. My neurologist is a specialist in sleep disturbances and treats my restless legs with iron tablets. The brain of people with restless legs seems to need more iron which works as a co-enzyme on the dopamine system. The
Watching programme on tv about restless legs. Difficult to watch so much suffering. My neurologist is a specialist in sleep disturbances and treats my restless legs with iron tablets. The brain of people with restless legs seems to need more iron which works as a co-enzyme on the dopamine system. The
Annbird
in
Restless Legs Syndrome
6 years ago
Augmentation drug study
I see in the latest Nightwalker that a study is being undertaken by William Ondo MD at Houston Methodist Neurological Institute (Texas) evaluating the possibile role of the drug ecopipam in reversing dopamine agonist augmentation. They are looking for participants who are: Available for 6 or 7 visits
I see in the latest Nightwalker that a study is being undertaken by William Ondo MD at Houston Methodist Neurological Institute (Texas) evaluating the possibile role of the drug ecopipam in reversing dopamine agonist augmentation. They are looking for participants who are: Available for 6 or 7 visits
involuntarydancer
in
Restless Legs Syndrome
6 years ago
5-HTP in patients not taking Sinemet can worsen symptoms of PD
According to The Clinician's Handbook of Natural Medicine 5-Hydroxy-l-tryptophan (5-HTP) is beneficial only if used in combination with the drug Sinemet (a combination of l-dopa and decarboxylase inhibitor carbidopa). Brain serotonin is decreased in PD, but reduction in dopamine receptors is more severe
According to The Clinician's Handbook of Natural Medicine 5-Hydroxy-l-tryptophan (5-HTP) is beneficial only if used in combination with the drug Sinemet (a combination of l-dopa and decarboxylase inhibitor carbidopa). Brain serotonin is decreased in PD, but reduction in dopamine receptors is more severe
Farooqji
in
Cure Parkinson's
6 years ago
Beta blockers
Hi , Has anyone explored too much adrenaline , and not too little dopamine as a cause of their restless leg? And/or been prescribed beta blockers to treat their rls? Thanks
Hi , Has anyone explored too much adrenaline , and not too little dopamine as a cause of their restless leg? And/or been prescribed beta blockers to treat their rls? Thanks
Elizab32
in
Restless Legs Syndrome
6 years ago
Sleeping
Hi dear people, I understand from previous posts some of you get clonazepam for sleeping, in what dosage? I was taking Zyprexa and slept well but when my neurologist found out I was put on Zyprexa by my GP she had fit. She said it affects the dopamine receptors and is a No for MSA patients... I wish
Hi dear people, I understand from previous posts some of you get clonazepam for sleeping, in what dosage? I was taking Zyprexa and slept well but when my neurologist found out I was put on Zyprexa by my GP she had fit. She said it affects the dopamine receptors and is a No for MSA patients... I wish
Gerdy
in
Multiple System Atrophy Trust
6 years ago
MRI with low dose radiation?
This is what my dad was invited to have after a neurology consult. He has many Parkinson's symptoms but doc not sure if it is vasculitic Parkinson's in which case the drugs won't work. Anyone had this done. He said it would show how much dopamine was available (or something like that). We were given
This is what my dad was invited to have after a neurology consult. He has many Parkinson's symptoms but doc not sure if it is vasculitic Parkinson's in which case the drugs won't work. Anyone had this done. He said it would show how much dopamine was available (or something like that). We were given
Carrollee
in
Cure Parkinson's
6 years ago
Restless arms
I'm on carbidopa levodopa 50 12.5. Rasagiline 1mg. I've been taking 200mg daily tramadol for back pain but tried leaving it out because of constipation. Developed severe akathesia of my arms at night. I suppose it serves me right for taking tramadol. Maybe if I stick it out I'll recover. But its also
I'm on carbidopa levodopa 50 12.5. Rasagiline 1mg. I've been taking 200mg daily tramadol for back pain but tried leaving it out because of constipation. Developed severe akathesia of my arms at night. I suppose it serves me right for taking tramadol. Maybe if I stick it out I'll recover. But its also
Johnmo
in
Cure Parkinson's
6 years ago
Update 3/26/18
UPDATE 3/26/18: Last neurologist visit on 3/21 has me on an agreed upon path of getting off the Neupro patch and all dopamine agonists. Currently still on the Neupro 3mg and now taking Gabapentin 300mg 4 times per day. Instructed to reduce Neupro to 2mg on 4/6/18, then switch to Gabapentin 400mg 3 times
UPDATE 3/26/18: Last neurologist visit on 3/21 has me on an agreed upon path of getting off the Neupro patch and all dopamine agonists. Currently still on the Neupro 3mg and now taking Gabapentin 300mg 4 times per day. Instructed to reduce Neupro to 2mg on 4/6/18, then switch to Gabapentin 400mg 3 times
lenpharleyd
in
Restless Legs Syndrome
6 years ago
Correlation Between ADHD subtype and Libido
There is a strong correlation between ADHD subtype and Libido. This stems from the differences in neurochemistry of the 3 subtypes. From my studies I frequently encountered information mentioning how people with the Hyperactive subtype are constantly looking for things/activities to make them feel
There is a strong correlation between ADHD subtype and Libido. This stems from the differences in neurochemistry of the 3 subtypes. From my studies I frequently encountered information mentioning how people with the Hyperactive subtype are constantly looking for things/activities to make them feel
Eclecticentric77
in
CHADD's Adult ADHD Support
6 years ago
FIRST NIGHT ON LOW-DOSE NALTREXONE
As I posted last week I am still trying to wean off of 0.25 Pramipexole after having suffered for a long time with augmentation from first Ropinirole and then Pramipexole...no more dopamine agonists for me...a painful lesson painfully learned!!!! Last Thursday I was able to get in to see my new Neurologist
As I posted last week I am still trying to wean off of 0.25 Pramipexole after having suffered for a long time with augmentation from first Ropinirole and then Pramipexole...no more dopamine agonists for me...a painful lesson painfully learned!!!! Last Thursday I was able to get in to see my new Neurologist
lbrosa
in
Restless Legs Syndrome
6 years ago
Interproximal gaps in teeth..side effect of dopamine drug?
Hi, I haven't been on the site for a while because the RLS is better. However I have interproximal gaps at the top of and in-between my teeth. Does anyone know if this is a side effect ? I'm on Ropinerole, metoprolol, Xanax, Bupropion, Levothyroxine.Is it a side effect from a drug, overbite,grinding
Hi, I haven't been on the site for a while because the RLS is better. However I have interproximal gaps at the top of and in-between my teeth. Does anyone know if this is a side effect ? I'm on Ropinerole, metoprolol, Xanax, Bupropion, Levothyroxine.Is it a side effect from a drug, overbite,grinding
Tazmania1
in
Restless Legs Syndrome
6 years ago
Research breakthrough in Mexico! Mexico team makes progress in Parkinson’s treatment
This article was published in 2015. Mexican researchers developed a dopamine patch that is implanted in an individuals brain. The dopamine patch has helped PD sufferers recover to 85% of their capacity. Has anyone heard of this? Why aren't we hearing about something like this? https://www.youtube.com
This article was published in 2015. Mexican researchers developed a dopamine patch that is implanted in an individuals brain. The dopamine patch has helped PD sufferers recover to 85% of their capacity. Has anyone heard of this? Why aren't we hearing about something like this? https://www.youtube.com
yeramian
in
Cure Parkinson's
6 years ago
The brain that heals itself
I am reading a book titled “the brain’s way of healing”, by Norman Doidge. He is considered the next Oliver Sacks, although he is a psychiatrist. You may have heard of his first book, “the brain that changes itself”. Both books are about the plasticity of the brain. In that second book he writes about
I am reading a book titled “the brain’s way of healing”, by Norman Doidge. He is considered the next Oliver Sacks, although he is a psychiatrist. You may have heard of his first book, “the brain that changes itself”. Both books are about the plasticity of the brain. In that second book he writes about
christos_k
in
Cure Parkinson's
6 years ago
PD drugs accelerate disease progression
quotes - "All along PD progression brain produces less and less dopamine. Since l-dopa inhibits dopamine production it accelerates deficiency and patient becomes addicted to l-dopa. At this stage brain will never produce dopamine again." - "Since PD is not understood, its treatment actually accelerates
quotes - "All along PD progression brain produces less and less dopamine. Since l-dopa inhibits dopamine production it accelerates deficiency and patient becomes addicted to l-dopa. At this stage brain will never produce dopamine again." - "Since PD is not understood, its treatment actually accelerates
Hidden
in
Cure Parkinson's
6 years ago
Foot problems
Hi. I am new to this forum. I have been diagnosed with RLS - but in one foot. As I understand it most people suffer at night - I am exactly the opposite and have pain all day but once resting in prone position the pain virtually diasppears. Does anyone else have this pattern of pain and relief? Re medication
Hi. I am new to this forum. I have been diagnosed with RLS - but in one foot. As I understand it most people suffer at night - I am exactly the opposite and have pain all day but once resting in prone position the pain virtually diasppears. Does anyone else have this pattern of pain and relief? Re medication
Hidden
in
Restless Legs Syndrome
6 years ago
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