Sleep study: Hi all! I just wanted to... - Cure Parkinson's

Cure Parkinson's

25,550 members26,870 posts

Sleep study

0 Replies

Hi all! I just wanted to encourage anyone who has severe issues in the morning to get a sleep study done even if you don’t have sleepiness during the day. I live in North Dakota and have pretty limited access to good neurologists or movement disorder specialists. I’ve only been diagnosed for a year and a half and I’ve been pretty discouraged because I am on a much higher dose of sinemet than most people at this stage but I couldn’t function without it. I was so bad in the morning that I would have freezing episodes, could barely walk and I would just have to sit and wait for the sinemet to kick in. Then I would spend the whole day feeling like I never even had enough meds in me. After a very long wait I finally got into a neurologist that actually knows a lot about PD. One of the things he asked me was if I’ve ever had a sleep study. I don’t think any other doctor asked about it because I never had daytime sleepiness even though I didn’t sleep a lot. I had the study done and it showed moderate sleep apnea. I was put on an auto CPAP. Last night was only night 3 on the CPAP but I am amazed at the effect on my PD already. Each morning has been better than the one before. I actually got up to use the bathroom during the night last night and didn’t have to take a sinemet to be able to get back to sleep. Between my breathing episodes and other arousals they said my brain was waking up on average of 40 times an hour. I must have been using up dopamine all night when your brain should be storing it. So get a study done if you have morning issues!

Read more about...

You may also like...

Help need sleep advice

Most days it’s like he didn’t sleep at all He wakes up exhausted and foggy brained takes him 1/2...

Sleep/Anxiety almost perfect!!!

ton but still woke up a couple times a night. (Same as I have done for years, way before PD)...

managing days with poor sleep.

make you face your greatest fears! I’ve been terrified of not sleeping since the first real long...

L-Tryptophan supplements to aid sleep issues

although I still wake up at night, my sleep quality in general, is better. If you have similar...

help please PArkinson RLS, need to sleep

Dear all, I have been diagnosed with Parkinson end of 2012 and i am now 65 years old. Based on my...