Thank you for your great responses.
It's horrid to see that many are suffering pain on top of everything else. It must be distressing for both cared for and the carers.
Please keep replying to it if you haven't yet done so - I am still gathering info.
So much for the article in "Neurology" that PSP folk seldom suffer pain!
It is apparently more common with CBD because of issues with the Basal Ganglia. I will post information on that when I have finished reading up.
This is a distillation of your responses from here and elsewhere on the forum. Each has a clinical basis for treating pain:
Massage and physio
Minor pain killers; Paracetamol; nonsteroidal anti-inflammatory drugs (Naproxin, Aspirin, Ibuprofen.)
Anxiolytics and antidepressants.
Strong pain killers opioids etc
(As well as the odd thing like Amantidine - Which treats tremors and rigidity - and the Medics aren't sure how it works - but it often does)
Baclofen pain and stiffness commonly used in the treatment of MS.
There will be more.
It's clear that what works for one person does not necessarily work so well for the next person. Additionally it appears that pain in PSP/CBD can have different causes. (More on that when I have done more reading).
Now, I am not playing Doctor here. In the same way I would not expect you to fly in a plane I had just fixed using my copy of "Fix your Airliner for Dummies".
What I am going to try and do is read up on these interventions and then try to give simple descriptions and efficacy based on research papers. Hopefully that might give us all a bit of a pain vocabulary to use in discussions with our Doctors.
It will take a week or two.
Any comments or suggestions would be most welcome.
Best to you all