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The Quality of life after 15 months smober...!
1Year 3Months 0Weeks 1Day1Hour 43Mins 42Secs Since Hercu Quit Smoking It is so nice to live this new quality life and though it necessary to share with all the quitters, should the quit be a few hours or years but this is how I feel life should be... I started my journey on Champix came down from
1Year 3Months 0Weeks 1Day1Hour 43Mins 42Secs Since Hercu Quit Smoking It is so nice to live this new quality life and though it necessary to share with all the quitters, should the quit be a few hours or years but this is how I feel life should be... I started my journey on Champix came down from
Hercu
Valued Contributor
in
No Smoking Day
8 years ago
Stiff from not moving at night
Since there are so many posts about sleep problems I'm adding this suggestion from my neuro when I complained recently about not moving when I sleep. He said I should increase my dose of Sinamet at night and if I wake in the middle of the night I could take one pramipexole . He said the inability to
Since there are so many posts about sleep problems I'm adding this suggestion from my neuro when I complained recently about not moving when I sleep. He said I should increase my dose of Sinamet at night and if I wake in the middle of the night I could take one pramipexole . He said the inability to
Joanne_Joyce
in
Cure Parkinson's
8 years ago
Vaccine Against Key Parkinson's Target
study results support the continued development of a vaccine against the key Parkinson's protein alpha-synuclein. Researchers hope this therapy may slow or stop disease progression Many (42 percent) of antibody responders from the first trial did not need to increase their dopamine medication over the
study results support the continued development of a vaccine against the key Parkinson's protein alpha-synuclein. Researchers hope this therapy may slow or stop disease progression Many (42 percent) of antibody responders from the first trial did not need to increase their dopamine medication over the
Hidden
in
Cure Parkinson's
8 years ago
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Perspective on the Gut and Parkinson's Disase
PERSPECTIVE on Gut and Parkinson’s Recently there have been some Posts on indications that the inflammation process that destroys dopamine producing neurons in our Substantia Nigra originates in our Gut, reaching our brain via the vagus nerve. Think about it, this is good news, at last the cause
PERSPECTIVE on Gut and Parkinson’s Recently there have been some Posts on indications that the inflammation process that destroys dopamine producing neurons in our Substantia Nigra originates in our Gut, reaching our brain via the vagus nerve. Think about it, this is good news, at last the cause
BillDavid
in
Cure Parkinson's
8 years ago
Advanced Parkinsons treatment
I have had pd for at at least twenty years. After dx I had been put on Cabaser by a neurologist who then retired and my gp informed me that there were insufficient funds to replace him. He would just keep prescribing this med. and I would just continue without a Neuro. Cabaser turned out to be particularly
I have had pd for at at least twenty years. After dx I had been put on Cabaser by a neurologist who then retired and my gp informed me that there were insufficient funds to replace him. He would just keep prescribing this med. and I would just continue without a Neuro. Cabaser turned out to be particularly
batwing
in
Cure Parkinson's
8 years ago
Changing Meds to balance motor fluctuation and dyskinesia - Still working on it.
I recently had my annual visit with my neurologist. The main thing I asked him to help me with was to adjust my meds to reduce off times while preventing/reducing dyskinesia. Since I had been on Stalevo he suggested I change to Sinamet with the same strength but without the addition of entacapone that
I recently had my annual visit with my neurologist. The main thing I asked him to help me with was to adjust my meds to reduce off times while preventing/reducing dyskinesia. Since I had been on Stalevo he suggested I change to Sinamet with the same strength but without the addition of entacapone that
Joanne_Joyce
in
Cure Parkinson's
8 years ago
Manufacturing Dopamine in the Brain with Gene Therapy
https://www.technologyreview.com/s/602193/manufacturing-dopamine-in-the-brain-with-gene-therapy/ “This trial is to restore the enzyme and allow them to be awakened, or ‘on,’ for a longer period of time.” There are other gene therapies for Parkinson’s disease planned or in testing. A trial developed at
https://www.technologyreview.com/s/602193/manufacturing-dopamine-in-the-brain-with-gene-therapy/ “This trial is to restore the enzyme and allow them to be awakened, or ‘on,’ for a longer period of time.” There are other gene therapies for Parkinson’s disease planned or in testing. A trial developed at
Hidden
in
Cure Parkinson's
8 years ago
Relaxation techniques
Hi, have suffered from RLS since a teenager, but it all got much worse a year or so ago. As written in a previous post, I began pramipexole, but it stopped working and I got augmentation, so after reading this forum, I decided to try to avoid the dopmanine agonists. So, am trying FODMAPS diet, valium
Hi, have suffered from RLS since a teenager, but it all got much worse a year or so ago. As written in a previous post, I began pramipexole, but it stopped working and I got augmentation, so after reading this forum, I decided to try to avoid the dopmanine agonists. So, am trying FODMAPS diet, valium
EveW
in
Restless Legs Syndrome
8 years ago
What are reasonable expectations for my neurologist
I have Parkinsons. I recently went in for my annual neurological checkup. After reporting in on symptom progression I expressed interest in knowing more about Nilotinib. To my surprise my physician really seemed to know little about it and dismissed the subject with the statement that "there wasn't
I have Parkinsons. I recently went in for my annual neurological checkup. After reporting in on symptom progression I expressed interest in knowing more about Nilotinib. To my surprise my physician really seemed to know little about it and dismissed the subject with the statement that "there wasn't
FMundo
in
Cure Parkinson's
8 years ago
Could dopamine be too much? Or is it a wrong Diagnostic PD 5 years ago?
I was diagnosed 5 years ago with PD , started then on levodopa carbidopa (Sinemet) , I am now on 2 tablets 4 times a day. I get Dystonia (I was told) in my feet from time to time ! I ,this week , participated in my local hospital study on 4 days.....1 day an MRI was taken when I had to be OFF medications
I was diagnosed 5 years ago with PD , started then on levodopa carbidopa (Sinemet) , I am now on 2 tablets 4 times a day. I get Dystonia (I was told) in my feet from time to time ! I ,this week , participated in my local hospital study on 4 days.....1 day an MRI was taken when I had to be OFF medications
Bouffere85
in
Cure Parkinson's
8 years ago
PSP can be easily managed.
Not my words. A quote from the physio at DV Hospital. Bugs got up in the early hours of yesterday , went to the bathroom, fell over into the bath and cut the back of her head on the taps. I did not hear anything and she did not call me. She just went back to bed. So at 7am I was greeted by a scene that
Not my words. A quote from the physio at DV Hospital. Bugs got up in the early hours of yesterday , went to the bathroom, fell over into the bath and cut the back of her head on the taps. I did not hear anything and she did not call me. She just went back to bed. So at 7am I was greeted by a scene that
Tokki
in
PSP Association
8 years ago
What kinds of OTC pills mimic PD or make it worse?
http://www.parkinsons.org.uk/sites/default/files/publications/download/english/b0148_keyinformationforcommunitypharmacists.pdf We all hear daily that OTC meds are being tied to an increasing list of ugly side-effects, such as liver-injury, kidney failure, stroke, or dementia. But PwPs need to be
http://www.parkinsons.org.uk/sites/default/files/publications/download/english/b0148_keyinformationforcommunitypharmacists.pdf We all hear daily that OTC meds are being tied to an increasing list of ugly side-effects, such as liver-injury, kidney failure, stroke, or dementia. But PwPs need to be
lempa_nik
in
Cure Parkinson's
8 years ago
I'm off the 8mg patches, now how long do I have to stay off before I can reintroduce at lower dose?
Hi everyone, As someone who was ill-advisedly prescribed 8mg patches of Rotigatine, I have now been off them for a week, although the drugs used to fill the gap have turned me into something of a zombie. Assuming that the maximum dose I should be taking is 3mg, how long should I leave myself off dopamine
Hi everyone, As someone who was ill-advisedly prescribed 8mg patches of Rotigatine, I have now been off them for a week, although the drugs used to fill the gap have turned me into something of a zombie. Assuming that the maximum dose I should be taking is 3mg, how long should I leave myself off dopamine
TimmyTonga
in
Restless Legs Syndrome
8 years ago
Tramadol withdrawal
I have written previously about withdrawal from Ropinirole which was horrendous. The doctor prescribed me Tramadol to help and I took 100mg a night for 4 weeks. Perhaps too long but I had a holiday booked and didn't want to spoil it with sleepless nights and restless legs. I have now tapered off the
I have written previously about withdrawal from Ropinirole which was horrendous. The doctor prescribed me Tramadol to help and I took 100mg a night for 4 weeks. Perhaps too long but I had a holiday booked and didn't want to spoil it with sleepless nights and restless legs. I have now tapered off the
Pam34
in
Restless Legs Syndrome
8 years ago
I am not an art critic, but I do play one on TV.
Thank you so much silvestrov for sharing your art work. When I first saw your landscape I thought oh I see a Munch influence but I looked at your earlier works and thought hmm, that's more like Dali and your later works have sort of a van Gogh feeling to it. I understand that artist explore new directions
Thank you so much silvestrov for sharing your art work. When I first saw your landscape I thought oh I see a Munch influence but I looked at your earlier works and thought hmm, that's more like Dali and your later works have sort of a van Gogh feeling to it. I understand that artist explore new directions
Hidden
in
Cure Parkinson's
8 years ago
Hi .. My name is Betsy and I have RLS
My Doctor has given me 3 different dopamine drugs in the last 6 months and I have not been able to tolerate any of them even at the lowest 0.25 dose . I felt explosions in my head when falling asleep , and after that woke up every hour . I was so confused the next day I forgot what I was doing all the
My Doctor has given me 3 different dopamine drugs in the last 6 months and I have not been able to tolerate any of them even at the lowest 0.25 dose . I felt explosions in my head when falling asleep , and after that woke up every hour . I was so confused the next day I forgot what I was doing all the
hiattbj57
in
Restless Legs Syndrome
8 years ago
follow up how early can you get PD
Thank you all off you for your kindness and help. I have given my daughter 2 inj. with B12 depot for 2 weeks no and the effect is amazing. My wife put it this way ....we have got our daughter back. She is more happy , more social and a new person. To early to conclude of cause but we are filled with
Thank you all off you for your kindness and help. I have given my daughter 2 inj. with B12 depot for 2 weeks no and the effect is amazing. My wife put it this way ....we have got our daughter back. She is more happy , more social and a new person. To early to conclude of cause but we are filled with
snorre
in
Cure Parkinson's
8 years ago
Natural Dopamine vs C/L
I was reading an article about this and can send a link later but wondered if anyone had any information about this. I guess the primary concern would be whether dopamine crosses the blood-brain barrier. It's late and I'm exhausted will check tomorrow thank you for your replies
I was reading an article about this and can send a link later but wondered if anyone had any information about this. I guess the primary concern would be whether dopamine crosses the blood-brain barrier. It's late and I'm exhausted will check tomorrow thank you for your replies
Boyce3600
in
Cure Parkinson's
8 years ago
Pain in Parkinson's
https://www.michaeljfox.org/foundation/news-detail.php?podcast-pain-in-parkinson&et_cid=616359&et_rid=61545383&et_lid=July+podcastem_cid= Pain is a significant non-motor symptom of Parkinson’s disease (PD) that researchers are beginning to recognize and investigate. Some studies report that up to 80
https://www.michaeljfox.org/foundation/news-detail.php?podcast-pain-in-parkinson&et_cid=616359&et_rid=61545383&et_lid=July+podcastem_cid= Pain is a significant non-motor symptom of Parkinson’s disease (PD) that researchers are beginning to recognize and investigate. Some studies report that up to 80
Hidden
in
Cure Parkinson's
8 years ago
In recovery, Getting back to Basics
Hello, I have had a turbulent few months and I apologize for not checking in on the forum. I have had internet access but have developed a bit of a fixation with podcasts and knitting patterns (my dopamine hit, it could be worse, eh?) and don't extend myself much beyond those. I was determind to hold
Hello, I have had a turbulent few months and I apologize for not checking in on the forum. I have had internet access but have developed a bit of a fixation with podcasts and knitting patterns (my dopamine hit, it could be worse, eh?) and don't extend myself much beyond those. I was determind to hold
Sara_6s-7s
in
Mental Health Support
8 years ago
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