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DBS and Falls
First Post here. My wife was diagnosed in 2006 and had DBS in 1/2015. Shortly thereafter she began experiencing falling where she had not had the problem before the DBS. I am becoming increasingly convinced the falls (several per day) are somehow directly related to the DBS or the placement of the
First Post here. My wife was diagnosed in 2006 and had DBS in 1/2015. Shortly thereafter she began experiencing falling where she had not had the problem before the DBS. I am becoming increasingly convinced the falls (several per day) are somehow directly related to the DBS or the placement of the
LBXX
in
Cure Parkinson's
7 years ago
DBS DOESN'T SEEM TO WORK
My son, 56, diagnosed 7 years ago, suffered terribly with violent tremors and wild dyskinesia for the past few years. He was completely housebound, mostly bedridden, and suffered broken bones in dyskinetic falls. He was sent for discussion re: DBS 4 years ago, finally it was approved and bilateral
My son, 56, diagnosed 7 years ago, suffered terribly with violent tremors and wild dyskinesia for the past few years. He was completely housebound, mostly bedridden, and suffered broken bones in dyskinetic falls. He was sent for discussion re: DBS 4 years ago, finally it was approved and bilateral
Lorelei12
in
Cure Parkinson's
7 years ago
Some thoughts have been on my mind with a few days
Hi everyone.. I hope that all of ye are feeling good today.. Few thoughts on my mind with a few days.. Has anyone with Itp have psoriasis, there seems to be a link here from what I have read and I for one have the two diseases.. The other question is have many of you guys done a gluten-free diet and
Hi everyone.. I hope that all of ye are feeling good today.. Few thoughts on my mind with a few days.. Has anyone with Itp have psoriasis, there seems to be a link here from what I have read and I for one have the two diseases.. The other question is have many of you guys done a gluten-free diet and
Bluebuzz
in
ITP Support Association
7 years ago
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Goitrogens versus gluten free versus diet for boosting immune system...
I've become addicted to this site. Even casual perusing of the daily blog gives me new insights. Feeling much better having gone gluten free for four weeks and now adding a wee bit of T3 based on some recent blood tests. However, I don't seem to get more than two consecutive days feeling really good
I've become addicted to this site. Even casual perusing of the daily blog gives me new insights. Feeling much better having gone gluten free for four weeks and now adding a wee bit of T3 based on some recent blood tests. However, I don't seem to get more than two consecutive days feeling really good
Wantie
in
Thyroid UK
7 years ago
Scared to eat
I'm undiagnosed posible ibd, dr's are slow and difficult but I am pushing for a colonscopy to find out once and for all what's going on. I'm in pain constantly. I am on a gluten free diet and it helped to start with. But now I'm in pain no matter what I eat. Even a cup of coffee or water is painful for
I'm undiagnosed posible ibd, dr's are slow and difficult but I am pushing for a colonscopy to find out once and for all what's going on. I'm in pain constantly. I am on a gluten free diet and it helped to start with. But now I'm in pain no matter what I eat. Even a cup of coffee or water is painful for
Ummijan
in
Crohn's and Colitis Support
7 years ago
Deciding to have brain surgery - Part 2
Hi all This is a link to my 2nd vlog on the decision to have deep brain stimulation surgery. https://youtu.be/06K1GIoQ7sE Cheers, Ian
Hi all This is a link to my 2nd vlog on the decision to have deep brain stimulation surgery. https://youtu.be/06K1GIoQ7sE Cheers, Ian
Ianfrizell
in
Cure Parkinson's
7 years ago
Should I take Selenium?
Hello, I have Hashimoto's and I am slowly weaning myself towards a gluten free diet. Can anybody advise if I should also take Selenium? I have heard it can help decrease my antibodies? Thank you.
Hello, I have Hashimoto's and I am slowly weaning myself towards a gluten free diet. Can anybody advise if I should also take Selenium? I have heard it can help decrease my antibodies? Thank you.
Dotty1340
in
Thyroid UK
7 years ago
Looking into T3
Hi all, I just want to say how thankful I am for this community and how helpful you are! I have been on t4 since August after being diagnosed with Hypothyroidism. (I take 50 mg every other day and 25 mg on the other days... a full pill then a half of one). However, I still feel exhausted, have bouts
Hi all, I just want to say how thankful I am for this community and how helpful you are! I have been on t4 since August after being diagnosed with Hypothyroidism. (I take 50 mg every other day and 25 mg on the other days... a full pill then a half of one). However, I still feel exhausted, have bouts
JMaraJade
in
Thyroid UK
7 years ago
Latest results-feedback please
Hello there dear wise ones- Please offer comments as I keep chugging along making slow progress. I am in USA. These are my latest results from 2/2017. 48.75mg Naturethroid 2 times a day=97.50mg/day total: Free T3 3.3 (2.0-4.4pg/ml) Rev T3 14.6 (9.2-24.1ng/dL) TSH 0.145 (0.450-4.500uIL/mL) Free T4 1.10
Hello there dear wise ones- Please offer comments as I keep chugging along making slow progress. I am in USA. These are my latest results from 2/2017. 48.75mg Naturethroid 2 times a day=97.50mg/day total: Free T3 3.3 (2.0-4.4pg/ml) Rev T3 14.6 (9.2-24.1ng/dL) TSH 0.145 (0.450-4.500uIL/mL) Free T4 1.10
Furbabymommy
in
Thyroid UK
7 years ago
First blood test after starting Thiroyd
Hello Even though I have been re-experiencing some symptoms of tiredness, tinnitus and a hoarse croaky voice recently, I was still surprised to get my latest results from Blue Horizon. I have been taking 11/2 grains of Thiroyd since last October and was feeling OK until January this year after I took
Hello Even though I have been re-experiencing some symptoms of tiredness, tinnitus and a hoarse croaky voice recently, I was still surprised to get my latest results from Blue Horizon. I have been taking 11/2 grains of Thiroyd since last October and was feeling OK until January this year after I took
wisewoman108
in
Thyroid UK
7 years ago
The strangest affliction I have ever endured or even heard of before...
It began about three years ago, and as I write it's approaching midnight after a full day of periodic episodes from the time I woke up before getting dressed this morning. This has always been the case; and until I have another night's sleep it's likely to occur again. However, it first began when I
It began about three years ago, and as I write it's approaching midnight after a full day of periodic episodes from the time I woke up before getting dressed this morning. This has always been the case; and until I have another night's sleep it's likely to occur again. However, it first began when I
Islaywhisky
in
Men's Health Forum
7 years ago
Deciding to have Deep Brain Stimulation surgery
My latest vlog about deciding to have brain surgery https://youtu.be/0yZdMv8_jNI Cheers, Ian
My latest vlog about deciding to have brain surgery https://youtu.be/0yZdMv8_jNI Cheers, Ian
Ianfrizell
in
Cure Parkinson's
7 years ago
Gait freezing
Does anyone has problems with walking because of gait freezing, i.e freezing suddenly while walking. My husband had DBS done for the freezing problem. The dr who operated on him said that it has to be programmed different way, not as for dyskenesia. But unfortunately the dr who is doing his programming
Does anyone has problems with walking because of gait freezing, i.e freezing suddenly while walking. My husband had DBS done for the freezing problem. The dr who operated on him said that it has to be programmed different way, not as for dyskenesia. But unfortunately the dr who is doing his programming
Lodiroad
in
Cure Parkinson's
7 years ago
Take my pain away, P-L-E-A-S-E!!!!
I had a stroke when I was 50 (hole of my heart - now closed). I am fine, with some little frustration but I really would like the government to have funding for DBS which would take my hemiplegic pain away!! From my hair of my head to the toes of the foot on my right sided of my body, the pain I have
I had a stroke when I was 50 (hole of my heart - now closed). I am fine, with some little frustration but I really would like the government to have funding for DBS which would take my hemiplegic pain away!! From my hair of my head to the toes of the foot on my right sided of my body, the pain I have
Kiwibron
in
NHS England: A Call to Action
7 years ago
Immune system help?
Ive had many symptoms for many years-with things being diagnosed on route- but general low immunity-back to back infections/virals/fatigue. In 2014 I was diagnosed with coeliac disease and in 2016 I was diagnosed with underactive thyroid (through advice on here found out its hashimoto disease and low
Ive had many symptoms for many years-with things being diagnosed on route- but general low immunity-back to back infections/virals/fatigue. In 2014 I was diagnosed with coeliac disease and in 2016 I was diagnosed with underactive thyroid (through advice on here found out its hashimoto disease and low
autoimmunekate
in
Thyroid UK
7 years ago
Hi, RESULTS HELP needed please.
I have been on 2 grains of Nature Thyroid for a while now but unsure as to whether I should up the dose as I still feel just as bad as I did when I switched from levo to Nature Thyroid meds. I'm also now concerned about my "high" iron level (see below). Please can someone give me some advice. TSH
I have been on 2 grains of Nature Thyroid for a while now but unsure as to whether I should up the dose as I still feel just as bad as I did when I switched from levo to Nature Thyroid meds. I'm also now concerned about my "high" iron level (see below). Please can someone give me some advice. TSH
shilling11
in
Thyroid UK
7 years ago
DBS surgery
My husband is going in for dbs in march at Ucsf. Dr said he would be in the hospital only 2-3 days. He is 70
My husband is going in for dbs in march at Ucsf. Dr said he would be in the hospital only 2-3 days. He is 70
Anking
in
Cure Parkinson's
7 years ago
Blood results do they mean I have hashis ?
Hi just got my blood test results back the only 2 that have come back out of range are the Se thyroid peroxidase AB conc & also my serum folate very slightly under range. My Tsh is 0.92 and T4 is 20.8 does this confirm hashimotos or not ? All other tests Vit D etc have all come back in range. Do I
Hi just got my blood test results back the only 2 that have come back out of range are the Se thyroid peroxidase AB conc & also my serum folate very slightly under range. My Tsh is 0.92 and T4 is 20.8 does this confirm hashimotos or not ? All other tests Vit D etc have all come back in range. Do I
alysonkerry-
in
Thyroid UK
7 years ago
Weight gain
I've seen lost of posts mention weight loss but none of weight gain? I was diagnosed with SLE in Sept 16 & eat very healthily. I don't drink alcohol and have a Gluten free diet. I am on Hydroxichlorine. However the weight continues to go on and this is getting me down!!! Anyone else experienced this
I've seen lost of posts mention weight loss but none of weight gain? I was diagnosed with SLE in Sept 16 & eat very healthily. I don't drink alcohol and have a Gluten free diet. I am on Hydroxichlorine. However the weight continues to go on and this is getting me down!!! Anyone else experienced this
Ndwndw
in
LUPUS UK
7 years ago
DBS
I got the Boston-Scientific Vercise-DBS-System in 2016 in Würzburg
I got the Boston-Scientific Vercise-DBS-System in 2016 in Würzburg
guenoe
in
Cure Parkinson's
8 years ago
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