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Experiences with
D-bifunctional protein (DBP) deficiency
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Is there a limit on Dopaboost intake?
My dad is on a surgery waitlist for DBS here in Canada (probably next year) and we could potentially do FUS in Switzerland... But in the meantime, we have been trying to figure out the best dopamine sources to help him on the daily. Mucuna is much more effective than his Sinemet, which barely works anymore
My dad is on a surgery waitlist for DBS here in Canada (probably next year) and we could potentially do FUS in Switzerland... But in the meantime, we have been trying to figure out the best dopamine sources to help him on the daily. Mucuna is much more effective than his Sinemet, which barely works anymore
pdkid
in
Cure Parkinson's
4 years ago
Xarasho
I am Suffering from severe RLS and I’ve tried everything from vitamins to CBT OIL, 5 HTP Hydroxytry.. , nothing works, the only thing helps is the agnostic dopamine drugs which is for Parkinson disease, it has really bad side effects , please someone help me and be. genuine!!!
I am Suffering from severe RLS and I’ve tried everything from vitamins to CBT OIL, 5 HTP Hydroxytry.. , nothing works, the only thing helps is the agnostic dopamine drugs which is for Parkinson disease, it has really bad side effects , please someone help me and be. genuine!!!
Xarasho
in
Restless Legs Syndrome
4 years ago
Sand volleyball after DBS
Does anyone play sand volleyball after having DBS? My programming nurse said I should be fine to play...I had DBS in October/November 2019. I guess I'm concerned about getting hit in the battery.
Does anyone play sand volleyball after having DBS? My programming nurse said I should be fine to play...I had DBS in October/November 2019. I guess I'm concerned about getting hit in the battery.
Jlloy5
in
Cure Parkinson's
4 years ago
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Paramedic views on B12 deficiency
I recently had to call out a paramedic. I had been tired and a bit breathless and generally unwell for several days and then developed other more concerning symptoms (didn't have co-vid19 as no cough or temperature). My call to 111 service for advice resulted in the arrival of an ambulance. When the
I recently had to call out a paramedic. I had been tired and a bit breathless and generally unwell for several days and then developed other more concerning symptoms (didn't have co-vid19 as no cough or temperature). My call to 111 service for advice resulted in the arrival of an ambulance. When the
carer999
in
Pernicious Anaemia Society
4 years ago
Low iron levels
Have been prescribed ferrous fumarate as my iron levels are low which may be causing my breathlessness. I have had ECG and xray etc and they are ok. Wondered if anyone else has had this problem and how long these tablets take to work.
Have been prescribed ferrous fumarate as my iron levels are low which may be causing my breathlessness. I have had ECG and xray etc and they are ok. Wondered if anyone else has had this problem and how long these tablets take to work.
Gilly100
in
Asthma Community Forum
4 years ago
Blood test advice, specifically Iron
I am currently on 100mcg of thyroxine, but have been struggling over the last year with tiredness and dizziness, dry skin, hair loss. I did a private test last year (I will attach more pics in the comments), this identified low vit D and folate and also low ferritin. I took this to my GP who advised
I am currently on 100mcg of thyroxine, but have been struggling over the last year with tiredness and dizziness, dry skin, hair loss. I did a private test last year (I will attach more pics in the comments), this identified low vit D and folate and also low ferritin. I took this to my GP who advised
Ejsmith
in
Thyroid UK
4 years ago
b12 injection query
ACTIVE B12 49.8 37.5 - 187.5 Recent bloods showed my iron stores good on the upper end of the scale. My folate was 10 in January and I have been supplementing since My Active B12 is just in range. If I inject B12 will it make my iron too high or does it not affect iron. I get shortness of breath
ACTIVE B12 49.8 37.5 - 187.5 Recent bloods showed my iron stores good on the upper end of the scale. My folate was 10 in January and I have been supplementing since My Active B12 is just in range. If I inject B12 will it make my iron too high or does it not affect iron. I get shortness of breath
ninja1
in
Pernicious Anaemia Society
4 years ago
DBS completion
i need to complete my DBS checks with ID info
i need to complete my DBS checks with ID info
annsuelyn
in
Mencap
4 years ago
!!!"Iron deficiency anemia/ B12 deficiency cause heart palpations/flutters?
Desperately seeking reassurance, advice etc. I've had on and off heart palpations and ectopic beats since I lost a lot of blood during child birth 7 years ago. That's when it all started. I've had all the checks but my heart is structurally fine. The doctor thinks because my iron is very low this
Desperately seeking reassurance, advice etc. I've had on and off heart palpations and ectopic beats since I lost a lot of blood during child birth 7 years ago. That's when it all started. I've had all the checks but my heart is structurally fine. The doctor thinks because my iron is very low this
Lilianxious
in
Pernicious Anaemia Society
4 years ago
Parkinsons Disease and B12 deficiency
Hi All, Saw this link on a recent thread and thought I'd draw attention to it. https://parkinsonsnewstoday.com/2020/03/27/possible-link-between-vitamin-b12-and-dementia-in-parkinsons-disease/ I had both dementia symptoms and tremors when at my worst and suspect that sometimes people are misdiagnosed
Hi All, Saw this link on a recent thread and thought I'd draw attention to it. https://parkinsonsnewstoday.com/2020/03/27/possible-link-between-vitamin-b12-and-dementia-in-parkinsons-disease/ I had both dementia symptoms and tremors when at my worst and suspect that sometimes people are misdiagnosed
Sleepybunny
in
Pernicious Anaemia Society
4 years ago
What helped my ferritin - hopefully helps someone :)
Hey there, I've decided to share some good news! I have tried everything to increase my ferritin, it was always a bit low in range. I have tested in September 2019 and it was 52 (13-150) which is about 28% of range. I was already happy with it because previously it had been even lower. I went for tests
Hey there, I've decided to share some good news! I have tried everything to increase my ferritin, it was always a bit low in range. I have tested in September 2019 and it was 52 (13-150) which is about 28% of range. I was already happy with it because previously it had been even lower. I went for tests
Hidden
in
Thyroid UK
4 years ago
DBS - deep brain stimulation for Dystonia
Has anyone on here experienced or has DBS plz - I know mainly it’s for Parkinson’s but they do it for Dystonia too & wondered if anyone had the procedure or had any advice plz - I’m yet to have Botox so any advice on that would be most helpful too - or herbal remedies ? Maybe cannabis oil !
Has anyone on here experienced or has DBS plz - I know mainly it’s for Parkinson’s but they do it for Dystonia too & wondered if anyone had the procedure or had any advice plz - I’m yet to have Botox so any advice on that would be most helpful too - or herbal remedies ? Maybe cannabis oil !
Toto88
in
Dystonia Society
4 years ago
What do my new levels mean? Been taking levo for six weeks. Many thanks.
Good evening! Please can I have some advice on my levels? Have included previous blood levels below. Many thanks!!!!! FYI Have been taking Levo 50mcg since 4 feb 2020 Have had a ferritin deficiency for a long time and have been taking ferrous sulphate for seven months. 2x200 a day. Indeed my ferritin
Good evening! Please can I have some advice on my levels? Have included previous blood levels below. Many thanks!!!!! FYI Have been taking Levo 50mcg since 4 feb 2020 Have had a ferritin deficiency for a long time and have been taking ferrous sulphate for seven months. 2x200 a day. Indeed my ferritin
Flashgirl
in
Thyroid UK
4 years ago
HAS ANYONE WITH PD HAD SPINAL CORD STIMULATOR IMPLANTED FOR POSTURE CORRECTION,PAIN MODULATION AND MOTOR FUNCTION?
Hi,friends,this procedure might be relatively new. I have read that it is similarly to DBS,but it targets the spinal cord instead of the brain.I was wondering,if anyone had this procedure done,please share your experience. How effective is it?Is it safer ,compared to DBS? Thanks in advance.
Hi,friends,this procedure might be relatively new. I have read that it is similarly to DBS,but it targets the spinal cord instead of the brain.I was wondering,if anyone had this procedure done,please share your experience. How effective is it?Is it safer ,compared to DBS? Thanks in advance.
OREOLU
in
Cure Parkinson's
4 years ago
Poor response to medication
My specialist is not happy with my response to taking 10 Kinson per day, neither am I. He is sending me for an MRI of the brain, then I go into hospital, go off all Parkinson meds for 18 hours so he can see the results. He is considering me as a candidate for Deep Brain stimulation and this scares
My specialist is not happy with my response to taking 10 Kinson per day, neither am I. He is sending me for an MRI of the brain, then I go into hospital, go off all Parkinson meds for 18 hours so he can see the results. He is considering me as a candidate for Deep Brain stimulation and this scares
nanster
in
Cure Parkinson's
4 years ago
Saying hello from isolation W2 Day1
Hello everybody, It’s the beginning of W2 in the 12 week isolation advised by the CMO/Gov, and I just wanted to say Hi. I’ve been following every bodies progress with interest, (albeit I’m a little jealous) and you’re all doing fab 👍😁 I had a few days in the doldrums, but can’t go on like that for
Hello everybody, It’s the beginning of W2 in the 12 week isolation advised by the CMO/Gov, and I just wanted to say Hi. I’ve been following every bodies progress with interest, (albeit I’m a little jealous) and you’re all doing fab 👍😁 I had a few days in the doldrums, but can’t go on like that for
Wenderwoo
Graduate
in
Couch to 5K
4 years ago
Are these iron results ok?
Range wasn't given Transferrin 2.3 Transferrin saturation % 19 Iron 11 (theres a * next to it but doc didn't bring it up as a problem) Ferritin 51 BTW TSH currently 1.29 and FT4 13 on 50ug levo but this was a random test I wasn't expecting. I will be doing early morning with T3 next week
Range wasn't given Transferrin 2.3 Transferrin saturation % 19 Iron 11 (theres a * next to it but doc didn't bring it up as a problem) Ferritin 51 BTW TSH currently 1.29 and FT4 13 on 50ug levo but this was a random test I wasn't expecting. I will be doing early morning with T3 next week
agyk
in
Thyroid UK
4 years ago
Ferritin v Haeomoglobin
Evening all I noticed on a previous post a reference to Ferritin tests, I dont think I have ever seen this test on my exhaustive list! Is it the same test as checking your HB to see if your anaemic or is it something else (Dr. dreaded Google says) to do with ' a protein in the body that contains iron
Evening all I noticed on a previous post a reference to Ferritin tests, I dont think I have ever seen this test on my exhaustive list! Is it the same test as checking your HB to see if your anaemic or is it something else (Dr. dreaded Google says) to do with ' a protein in the body that contains iron
LHR007
in
British Liver Trust
4 years ago
DBS procedure
Does anyone know why anyone know why a doctor how the doctor knows which area of the brain to target (GPI or STN) during DBS procedure?
Does anyone know why anyone know why a doctor how the doctor knows which area of the brain to target (GPI or STN) during DBS procedure?
moonsake10
in
Cure Parkinson's
4 years ago
NHS website - Blood tests for iron deficiency anaemia
Just happened to notice this paragraph when I was checking something else entirely.
[i]Blood tests for iron deficiency anaemia[/i]
[i]Your GP will usually order a full blood count (FBC) test. This will find out if the number of red blood cells you have (your red blood cell count) is normal
Just happened to notice this paragraph when I was checking something else entirely.
[i]Blood tests for iron deficiency anaemia[/i]
[i]Your GP will usually order a full blood count (FBC) test. This will find out if the number of red blood cells you have (your red blood cell count) is normal
helvella
in
Pernicious Anaemia Society
4 years ago
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