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Experiences with
D-bifunctional protein (DBP) deficiency
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Ferrous Sulfate gives me headaches
Hi, sorry if I've posted this in the wrong section as I dont have Thyroid problems. I've recently had a low iron deficiency confirmed and have been told to buy supplements and take them 3x a day. The chemist recommended Ferrous Sulfate 200mg. I have found that after taking just one I get an awful headache
Hi, sorry if I've posted this in the wrong section as I dont have Thyroid problems. I've recently had a low iron deficiency confirmed and have been told to buy supplements and take them 3x a day. The chemist recommended Ferrous Sulfate 200mg. I have found that after taking just one I get an awful headache
xxkiexx
in
Thyroid UK
3 years ago
Have UK ref ranges for ferritin changed?
Hi, I'm sure I read on the forum recently that UK ref ranges for ferritin have changed. Does anyone know if this is true? I can't find the post where it was mentioned so please post a link if anyone finds it or to other UK documents/guidance. Apologies if this is a false memory. I've found it... https
Hi, I'm sure I read on the forum recently that UK ref ranges for ferritin have changed. Does anyone know if this is true? I can't find the post where it was mentioned so please post a link if anyone finds it or to other UK documents/guidance. Apologies if this is a false memory. I've found it... https
Sleepybunny
in
Pernicious Anaemia Society
3 years ago
Iron panel, CRP, ESR?
Hi all, so after having a Medichecks full thyroid test in April my result were: TSH 1.39 mIU/L (0.27-4.2)F Freethyroxine 19.4pmol/l (12-22) Yesterday my GP repeated a TSH only test which came back as follows: 0.62 mIU/L (0.38-5.5). Could I be going slightly hyper now? I wasnt expecting the GP to repeat
Hi all, so after having a Medichecks full thyroid test in April my result were: TSH 1.39 mIU/L (0.27-4.2)F Freethyroxine 19.4pmol/l (12-22) Yesterday my GP repeated a TSH only test which came back as follows: 0.62 mIU/L (0.38-5.5). Could I be going slightly hyper now? I wasnt expecting the GP to repeat
Minimouse1
in
Thyroid UK
3 years ago
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Why constant low iron issues
I need some help understanding why Im constantly having low iron issues. I was taking Iron tabs late last year after testing for low iron but I stopped taking tabs in January and was suppose to retest but I didn’t and last Saturday I “almost” passed out but as quick as that happened it disappeared
I need some help understanding why Im constantly having low iron issues. I was taking Iron tabs late last year after testing for low iron but I stopped taking tabs in January and was suppose to retest but I didn’t and last Saturday I “almost” passed out but as quick as that happened it disappeared
Batty1
in
Thyroid UK
3 years ago
Can you have anemia with normal CBC?
I have low b12 but normal CBC and Hemoglobin. Iron levels are normal. I'm waiting on the folate test. Does this mean I am not anemic?
I have low b12 but normal CBC and Hemoglobin. Iron levels are normal. I'm waiting on the folate test. Does this mean I am not anemic?
B12life
in
Pernicious Anaemia Society
3 years ago
MCV
Does anyone know what this means on NICE Guidelines" An MCV less than 95 femtolitres has a sensitivity of 97.6% for iron deficiency anaemia. In people with anaemia and an MCV of more than 95 femtolitres, there is a low probability of iron deficiency. My MCV was 83.4 fL
Does anyone know what this means on NICE Guidelines" An MCV less than 95 femtolitres has a sensitivity of 97.6% for iron deficiency anaemia. In people with anaemia and an MCV of more than 95 femtolitres, there is a low probability of iron deficiency. My MCV was 83.4 fL
yewotc23
in
Thyroid UK
3 years ago
Abdomen, Severe distension and bloatingAbdomen
Abdomen, Severe distension and bloating I am not constipated, but abdomen is as tight as a drum with pain (6-7), Seems nothing helps, Have tried Bisacodyl, Miralax laxatives with no effect. Also have violent shake of L-Hand. Global neuropathy, Neuro has suggested DBS for shaking. GI doctor has
Abdomen, Severe distension and bloating I am not constipated, but abdomen is as tight as a drum with pain (6-7), Seems nothing helps, Have tried Bisacodyl, Miralax laxatives with no effect. Also have violent shake of L-Hand. Global neuropathy, Neuro has suggested DBS for shaking. GI doctor has
gl2238
in
Cure Parkinson's
3 years ago
Am I losing my mind?
Hello, I had DBS surgery about 6 weeks ago. And I have so much anxiety and panic attacks throughout the day it’s unbearable. Is this psychosis? If so, how is it manageable?? My thyroid panel doesn’t show a hyperthyroid so I’m good there but I can’t seem to be able to control my anxiety. Everything sets
Hello, I had DBS surgery about 6 weeks ago. And I have so much anxiety and panic attacks throughout the day it’s unbearable. Is this psychosis? If so, how is it manageable?? My thyroid panel doesn’t show a hyperthyroid so I’m good there but I can’t seem to be able to control my anxiety. Everything sets
fossygma
in
Cure Parkinson's
3 years ago
HIGH FERRITIN
Hello partners We always speak of low Ferritin, because that condition is what can indicate that iron is low in the body and consequently in the brain, producing R.L.S. I´m suffering from PMML, and an ultrasound brain Doppler test confirmed insufficient iron in brain stores. But nevertheless I have 700
Hello partners We always speak of low Ferritin, because that condition is what can indicate that iron is low in the body and consequently in the brain, producing R.L.S. I´m suffering from PMML, and an ultrasound brain Doppler test confirmed insufficient iron in brain stores. But nevertheless I have 700
Arjiji
in
Restless Legs Syndrome
3 years ago
What improvements can we anticipate within 10-15 years?
I am not seeking false hope nor do I want to perpetuate it but I do think there will be more treatments within the next 10-15 years. A off the top of my head list: There may be stem cells for PWP. Perhaps intravenous like the UT trial. There may be personalized cell therapy (pluripotent neurons
I am not seeking false hope nor do I want to perpetuate it but I do think there will be more treatments within the next 10-15 years. A off the top of my head list: There may be stem cells for PWP. Perhaps intravenous like the UT trial. There may be personalized cell therapy (pluripotent neurons
Hidden
in
Cure Parkinson's
3 years ago
How long should I go off iron supplements before testing?
Hi I’ve been on 3 prescription iron supplements a day since January and am having my iron, ferritin, and cbc tested on Friday. How long should I go off my iron supplements to get an accurate reading? Thanks so much
Hi I’ve been on 3 prescription iron supplements a day since January and am having my iron, ferritin, and cbc tested on Friday. How long should I go off my iron supplements to get an accurate reading? Thanks so much
Hidden
in
Thyroid UK
3 years ago
Back to Work??
Some of you will know that since my diagnosis 2yrs ago, I have made 2 unsuccessful attempts to return to my job working in a nursery class in a primary school. Over the past two years I've only managed to attend work for two half term periods! I absolutely love my job and love all the wonderful children
Some of you will know that since my diagnosis 2yrs ago, I have made 2 unsuccessful attempts to return to my job working in a nursery class in a primary school. Over the past two years I've only managed to attend work for two half term periods! I absolutely love my job and love all the wonderful children
Kendrew
in
PMRGCAuk
3 years ago
Ferritin of 56
I was taking iron tablets for anaemia for a few months, and when I was re-tested recently my ferritin was 56. The GP advised me that I was no longer anaemic and to stop the iron. I am extremely tired and I have diffuse hair loss. I have started taking a maintenance dose of ferrous sulphate again and
I was taking iron tablets for anaemia for a few months, and when I was re-tested recently my ferritin was 56. The GP advised me that I was no longer anaemic and to stop the iron. I am extremely tired and I have diffuse hair loss. I have started taking a maintenance dose of ferrous sulphate again and
Boon79
in
Thyroid UK
3 years ago
B12 and iron deficiency
Is there anyone just like me who has both iron and b12 deficiency ... ?
Is there anyone just like me who has both iron and b12 deficiency ... ?
Akashrajput
in
Pernicious Anaemia Society
3 years ago
Finally meet my MDS after my FUS surgery
I went to see my MDS two days ago, 4 months after my PTT FUS surgery and he was really happy with the results. He opposed initially and tried to convence me to go through DBS, but he was very pleased with my evolution. He advised me i should up l-dopa a bit, what i'm trying adding mucuna, and i feel
I went to see my MDS two days ago, 4 months after my PTT FUS surgery and he was really happy with the results. He opposed initially and tried to convence me to go through DBS, but he was very pleased with my evolution. He advised me i should up l-dopa a bit, what i'm trying adding mucuna, and i feel
Markbit
in
Cure Parkinson's
3 years ago
Benjamin Stecher About To Undergo DBS
I'm not posting this to start a debate about the merits of Deep Brain Stimulation (DBS), but I do hope we all keep Benjamin Stecher in our thoughts as he is about to undergo DBS. Benjamin was diagnosed with Parkinson’s Disease approximately eight years ago, at the age of 29. Since then, he has been
I'm not posting this to start a debate about the merits of Deep Brain Stimulation (DBS), but I do hope we all keep Benjamin Stecher in our thoughts as he is about to undergo DBS. Benjamin was diagnosed with Parkinson’s Disease approximately eight years ago, at the age of 29. Since then, he has been
jimcaster
in
Cure Parkinson's
3 years ago
Drug Interaction Bisoprolol Fumarate with Thyroxine.
Just diagnosed with Atrial Fibrillation and prescribed Bisoprolol Fumarate. Does anyone know of any incompatibilities with Thyroxine. I take Thyroxine early am on waking. Thanks
Just diagnosed with Atrial Fibrillation and prescribed Bisoprolol Fumarate. Does anyone know of any incompatibilities with Thyroxine. I take Thyroxine early am on waking. Thanks
Loafinabout
in
Thyroid UK
3 years ago
Problems immediately after DBS surgery , pls help
Me omg , i am having a horrible reaction to dbs surgery, what in the world is going on??? symptom's i never had before are present, what in the hell is going on here? frozen with anxiety, other horrible weird symptom's i just pray to go home to my savior. anyone have a bad outcome from the surgery
Me omg , i am having a horrible reaction to dbs surgery, what in the world is going on??? symptom's i never had before are present, what in the hell is going on here? frozen with anxiety, other horrible weird symptom's i just pray to go home to my savior. anyone have a bad outcome from the surgery
fossygma
in
Cure Parkinson's
3 years ago
I’ve been diagnosed with iron deficiency anemia. My hemoglobin is 10.6 and ferritin is 20. I am currently on acalabrutnib.
Iron Deficiency Anemia
Iron Deficiency Anemia
Mackiec1108
in
CLL Support
3 years ago
UIBC level
Has anyone with PA/B12 deficiency had this scenario: B12 low Iron Normal UIBC LOW If so, what ended up being the solution/treatment? NOTE: https://www.msdmanuals.com/-/media/Manual/LabTests/IronTests.html Expand the "What does the test result mean" question and you will see details of what the results
Has anyone with PA/B12 deficiency had this scenario: B12 low Iron Normal UIBC LOW If so, what ended up being the solution/treatment? NOTE: https://www.msdmanuals.com/-/media/Manual/LabTests/IronTests.html Expand the "What does the test result mean" question and you will see details of what the results
B12life
in
Pernicious Anaemia Society
3 years ago
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