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Experiences with
D-bifunctional protein (DBP) deficiency
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B12 query
Thanks to all who posted to my recent comment about deficiency. Probably going to get B12 active blood test via home kit Have had couple of feroglobin tablets earlier this week ( new pack - thought they were B9 iron tablets - only then realised they were B12 with iron ( B12 ug 10 per tablet on breakdown
Thanks to all who posted to my recent comment about deficiency. Probably going to get B12 active blood test via home kit Have had couple of feroglobin tablets earlier this week ( new pack - thought they were B9 iron tablets - only then realised they were B12 with iron ( B12 ug 10 per tablet on breakdown
Red1973
in
Pernicious Anaemia Society
4 years ago
Sensitivite intestine causing extreme 'off-time' esp after opening bowels
Hello I'm in my ninth year (diagnosed age 37) of living with YOPD. About 16 months ago I suddenly was hit with a new symptom... The mere ingestion of food or even medication tablets would often set of an intense off-time period. Last year I had two separate one week stays in hospital trying to resolve
Hello I'm in my ninth year (diagnosed age 37) of living with YOPD. About 16 months ago I suddenly was hit with a new symptom... The mere ingestion of food or even medication tablets would often set of an intense off-time period. Last year I had two separate one week stays in hospital trying to resolve
DaMoJo
in
Cure Parkinson's
4 years ago
Latest blood results
Hi all Since my last post my ENT specialist has started me on Levothyroxine 50mcg. My GP has done further bloods as my Medichecks result showed low ferritin and folate. But typically, GP rang me this morning saying ferritin and folate are within normal range so just take a multivitamin. She said she
Hi all Since my last post my ENT specialist has started me on Levothyroxine 50mcg. My GP has done further bloods as my Medichecks result showed low ferritin and folate. But typically, GP rang me this morning saying ferritin and folate are within normal range so just take a multivitamin. She said she
Chris1802p
in
Thyroid UK
4 years ago
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WHICH IRON
I’ve heard iron tablets are good for Hashimotos - which iron is best “Gentle” iron , iron “Complex” or just normal iron ?
I’ve heard iron tablets are good for Hashimotos - which iron is best “Gentle” iron , iron “Complex” or just normal iron ?
Petf
in
Thyroid UK
4 years ago
Low serum ferritin, but iron tests normal?
Hello all, I posted my blood tests results a couple of weeks ago: FT3: 4.2 (range 3.5-6.5) (pre Levo level 3.9) FT4: 15 (range 11.5-22.7) (pre Levo level 10.8) TSH: 0.25 (0.55-4.78) (pre Levo level 0.34, but I am TSH deficient because of pituitary issues - also adrenal insufficient because of ACTH
Hello all, I posted my blood tests results a couple of weeks ago: FT3: 4.2 (range 3.5-6.5) (pre Levo level 3.9) FT4: 15 (range 11.5-22.7) (pre Levo level 10.8) TSH: 0.25 (0.55-4.78) (pre Levo level 0.34, but I am TSH deficient because of pituitary issues - also adrenal insufficient because of ACTH
luckyed
in
Thyroid UK
4 years ago
RYTARY OR SINEMET, WHICH WORKS BEST AND CAUSES MILD OR NO DYSKINESIA OR DYSTONIA?
Hi Friends, Diagnosed as a Yopd patient. I need your honest opinion as regards Rytary and Sinemet,I am roughly 4yrs on this PD journey,and have been on sinemet with less severe side effects,until recently the ''on period'' of Sinemet decreased to 2hrs instead off initial 4 or 3hrs.I then had to dose
Hi Friends, Diagnosed as a Yopd patient. I need your honest opinion as regards Rytary and Sinemet,I am roughly 4yrs on this PD journey,and have been on sinemet with less severe side effects,until recently the ''on period'' of Sinemet decreased to 2hrs instead off initial 4 or 3hrs.I then had to dose
OREOLU
in
Cure Parkinson's
4 years ago
New pinprick blood test for Covid-19 antibodies.
A convenient, low-cost blood test for Covid-19 has been developed by scientists in Wales. Dried blood spot (DBS) samples have been used since the 1960s to test newborn babies for inherited disorders. The antibody test puts a single drop of blood from a skin prick onto specialized filter paper cards
A convenient, low-cost blood test for Covid-19 has been developed by scientists in Wales. Dried blood spot (DBS) samples have been used since the 1960s to test newborn babies for inherited disorders. The antibody test puts a single drop of blood from a skin prick onto specialized filter paper cards
2greys
in
Lung Conditions Community Forum
4 years ago
RLS & Osteopath, does it help?
Hi! I’m wondering if anyone can help, I’m 21 and I feel this age is very young to be experiencing RLS. Since lockdown occurred, I stopped sleeping - my legs constantly had a feeling of ants running in them, like they are filled with fizzy drinks, having the urge to constantly move them, throbbing and
Hi! I’m wondering if anyone can help, I’m 21 and I feel this age is very young to be experiencing RLS. Since lockdown occurred, I stopped sleeping - my legs constantly had a feeling of ants running in them, like they are filled with fizzy drinks, having the urge to constantly move them, throbbing and
SunflowerLife
in
Restless Legs Syndrome
4 years ago
Any other PD people out there...your major PD symptom is toes curling up on both feet
Hi to everyone. I haven't signed in for awhile, so I hope all is well with everyone. The last time I signed in, I was going in for my first colonoscopy (April/May of 2019)...and I am happy to say that I got a clean bill of health for my colon and don't have to go back in for colonoscopy for 10 years
Hi to everyone. I haven't signed in for awhile, so I hope all is well with everyone. The last time I signed in, I was going in for my first colonoscopy (April/May of 2019)...and I am happy to say that I got a clean bill of health for my colon and don't have to go back in for colonoscopy for 10 years
willason
in
Cure Parkinson's
4 years ago
Huge win for me
After DBS i called my wife into the bathroom...she said what? I said look... she said WHAT?? I said I am peeing standing up again!! We laughed :) but that is actually a big deal for guy with PD
After DBS i called my wife into the bathroom...she said what? I said look... she said WHAT?? I said I am peeing standing up again!! We laughed :) but that is actually a big deal for guy with PD
JeffroC
in
Cure Parkinson's
4 years ago
My experience with DBS (Deep Brain Stimulation) Surgery
First, a little about me. I am 47 years old and was diagnosed early onset PD at 35 or so. I grew up on a farm in a small town in central FL. I played sports my whole life. Baseball, Wrestling, Softball, and even a little football. I married my high school sweetheart, have a great job, and two sons
First, a little about me. I am 47 years old and was diagnosed early onset PD at 35 or so. I grew up on a farm in a small town in central FL. I played sports my whole life. Baseball, Wrestling, Softball, and even a little football. I married my high school sweetheart, have a great job, and two sons
JeffroC
in
Cure Parkinson's
4 years ago
high iron and low ferritin,thyroid meds
hi everyone im concerned about my labs done in April I did one blood donation already to try and lower my blood heres the labs Iron total 189(40-190) Iron binding 369(250-450) Sat%49(16-35) Ferritin 22(28-70) How can this be fixed?im doing blood donations and keeping track of labs I got new labs
hi everyone im concerned about my labs done in April I did one blood donation already to try and lower my blood heres the labs Iron total 189(40-190) Iron binding 369(250-450) Sat%49(16-35) Ferritin 22(28-70) How can this be fixed?im doing blood donations and keeping track of labs I got new labs
Netty510
in
Thyroid UK
4 years ago
FDA Approves Medtronic’s Percept PC Deep Brain Stimulation System
https://parkinsonsnewstoday.com/2020/07/02/fda-approves-medtronic-percept-pc-deep-brain-stimulation-system-for-parkinsons/ 'While this device is the fourth deep brain stimulation (DBS) system to be approved in the U.S., it is the first system able to sense and record brain signals while therapy is delivered
https://parkinsonsnewstoday.com/2020/07/02/fda-approves-medtronic-percept-pc-deep-brain-stimulation-system-for-parkinsons/ 'While this device is the fourth deep brain stimulation (DBS) system to be approved in the U.S., it is the first system able to sense and record brain signals while therapy is delivered
pvw2
in
Cure Parkinson's
4 years ago
Study: Deep brain stimulation may slow Parkinson's disease
OK, here is a reason to get DBS without waiting until meds don't work. https://www.upi.com/Health_News/2020/07/01/Study-Deep-brain-stimulation-may-slow-Parkinsons-disease/6891593556182/
OK, here is a reason to get DBS without waiting until meds don't work. https://www.upi.com/Health_News/2020/07/01/Study-Deep-brain-stimulation-may-slow-Parkinsons-disease/6891593556182/
pvw2
in
Cure Parkinson's
4 years ago
Lowered immune system
Hi, I was just wondering if having crohns disease and pernicious anaemia (well i had been told I had PA and had injections for 17 yrs.... until the recent palava) would lower my immune system. I'm just asking as we are about to go back to work and had emails asking if we had any medical conditions that
Hi, I was just wondering if having crohns disease and pernicious anaemia (well i had been told I had PA and had injections for 17 yrs.... until the recent palava) would lower my immune system. I'm just asking as we are about to go back to work and had emails asking if we had any medical conditions that
lfc4eva
in
Pernicious Anaemia Society
4 years ago
So I finished the book...
I didn't know what to expect, maybe a primer on running and PD. Lots of aphorisms similar to Just Do It and Git 'er Done. Learned that standing is more difficult than running because it uses more dopamine. And Steve Evans was the first marathon finisher to have had DBS treatment. He finished
I didn't know what to expect, maybe a primer on running and PD. Lots of aphorisms similar to Just Do It and Git 'er Done. Learned that standing is more difficult than running because it uses more dopamine. And Steve Evans was the first marathon finisher to have had DBS treatment. He finished
kaypeeoh
in
Cure Parkinson's
4 years ago
Liquid Thyroxine
After four years if fighting a battle with my Endo regarding side effects of Levothyroxine tablets. Dizziness. Faintness.achick muscles.foggy thinking tiredness!!lots more..he sent me for electocardiograph. And CAT brain scan and tested every drop if blood and vitimin known to man..it all came back normal
After four years if fighting a battle with my Endo regarding side effects of Levothyroxine tablets. Dizziness. Faintness.achick muscles.foggy thinking tiredness!!lots more..he sent me for electocardiograph. And CAT brain scan and tested every drop if blood and vitimin known to man..it all came back normal
Hurtlocker
in
Thyroid UK
4 years ago
Multidosing and Iron supplements
I find it pretty difficult to fit in iron supplements...ie Spatone....as I multi dose with my t3 only regime .... Does anyone have any bright ideas ....or do you think Taking iron later in day matters,.
I find it pretty difficult to fit in iron supplements...ie Spatone....as I multi dose with my t3 only regime .... Does anyone have any bright ideas ....or do you think Taking iron later in day matters,.
Jollypolly
in
Thyroid UK
4 years ago
B12 deficiency and Potassium deficiency
Hi All Do any of you have a b12 deficiency and a potassium deficiency? I'm asking as some of the symptoms are similar to that of the b12 and I'm wondering if I should have my potassium checked out also. Recently been having a lot of pain in the heart area. Thanks
Hi All Do any of you have a b12 deficiency and a potassium deficiency? I'm asking as some of the symptoms are similar to that of the b12 and I'm wondering if I should have my potassium checked out also. Recently been having a lot of pain in the heart area. Thanks
Sunshine1932
in
Pernicious Anaemia Society
4 years ago
Rice researchers create tiny, magnetically-powered neural stimulator
It seems this could improve DBS. https://www.news-medical.net/news/20200608/Rice-researchers-create-tiny-magnetically-powered-neural-stimulator.aspx
It seems this could improve DBS. https://www.news-medical.net/news/20200608/Rice-researchers-create-tiny-magnetically-powered-neural-stimulator.aspx
pvw2
in
Cure Parkinson's
4 years ago
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