Poor response to medication

[nanster]

My specialist is not happy with my response to taking 10 Kinson per day, neither am I. He is sending me for an MRI of the brain, then I go into hospital, go off all Parkinson meds for 18 hours so he can see the results. He is considering me as a candidate for Deep Brain stimulation and this scares me, anyone had DBS and would like to share how they find it?

[ccobroussard]

Wonderful had, dbs surgery. March 2013_and would do it again if needed

[MBAnderson]

Davis Phinney Foundation is having a webinar on DBS

davisphinneyfoundation.org/...

[Enidah]

I plan on doing it as soon as it is reasonable. Right now I don't think it's such a great idea going into the hospital. I would say one of the most important things is to do the research; read read read. Almost without fail people say, I wish I had done it sooner. The more you know the less you fear. I also think it's vitally important that you not do it for somebody else but be sure it's the right time for you. I personally have simply lost patience with unpredictable meds and dyskinesia. I would like to do DBS while I'm young enough to enjoy it and if it doesn't work what do I have to lose. Rhetorical question. This sucker is progressive so...

[Enidah]

Thought of something I have to lose-my hair. it may sound silly but I had to go to the mental processes of accepting that.

[rescuema in reply to Enidah]

Understand, but perhaps you could get a temporary wig to cope with the situation.

[lenamm in reply to Enidah]

I lost all my hair going through a FUS surgery. I felt so much better after I didn't miss it a bit. And yes I'm female and my hair was my defining feature as I dyed it bright colors. It grew back quickly also! I bought wigs but ended up just embracing being bald for awhile.

[Enidah in reply to lenamm]

Lenamm-I responded to you below

[aspergerian13]

Another possibility:

healthunlocked.com/parkinso...

[Enidah]

You know I was thinking about the hair thing and thought it could fun to have a short hair adventure. Long hair gets to be more and more trouble...thank you for being encouraging.