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Experiences with
D-bifunctional protein (DBP) deficiency
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Has DBS changed your anxiety/depression either way?
If so do you know if the placements were in the subthalamic nucleus or globus pallidus?
If so do you know if the placements were in the subthalamic nucleus or globus pallidus?
etterus
in
Cure Parkinson's
12 years ago
I've read on here about several people having real time MRI DBS Surgery,
but can find no info on it outside of trials being done. Anyone know anymore?
but can find no info on it outside of trials being done. Anyone know anymore?
wynn7
in
Cure Parkinson's
12 years ago
Does anyone have steppage gait?
I just returned from 3 days at Barrows Neuro, Mohamed Ali Research center in Phoenix. I was reviewed for DBS. I surprised the Doc during the on-off testing showing very little rigidity, tremor and no freezing. When asked what my walking issue was I demonstrated foot drop and high knee for swing phase
I just returned from 3 days at Barrows Neuro, Mohamed Ali Research center in Phoenix. I was reviewed for DBS. I surprised the Doc during the on-off testing showing very little rigidity, tremor and no freezing. When asked what my walking issue was I demonstrated foot drop and high knee for swing phase
etterus
in
Cure Parkinson's
12 years ago
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has any one else started expeincing siezures,a year or so after dbs surgery??
rhougham
in
Cure Parkinson's
12 years ago
Iron Deficiency Symptoms
These can be common in newbie Coeliacs (2 yrs CD (and women for obvious reasons). Don't just put up with feeling crappy. Often friends and family will get used to you feeling unwell. Write down your energy levels at different times and compare them with other people you know in similar circumstances
These can be common in newbie Coeliacs (2 yrs CD (and women for obvious reasons). Don't just put up with feeling crappy. Often friends and family will get used to you feeling unwell. Write down your energy levels at different times and compare them with other people you know in similar circumstances
Irene
Administrator
in
Gluten Free Guerrillas
12 years ago
How does one find the best DBS programmers?
Programmers hold the key to successful DBS, yet so little known about who they are and where to find them. Does anyone have advice about a directory or "Angie's List" that includes DBS programmers? How about when one is traveling-- where are they?
Programmers hold the key to successful DBS, yet so little known about who they are and where to find them. Does anyone have advice about a directory or "Angie's List" that includes DBS programmers? How about when one is traveling-- where are they?
Jash
in
Cure Parkinson's
12 years ago
waiting......
Chilling while waiting for my drilling is killing my patience and fueling my anxiety:PP (yeah I know, punning at this time too...proves I am a nutso:PP))) (Still waiting for my appt with the DBS surgeon)
Chilling while waiting for my drilling is killing my patience and fueling my anxiety:PP (yeah I know, punning at this time too...proves I am a nutso:PP))) (Still waiting for my appt with the DBS surgeon)
SuKas
in
Cure Parkinson's
12 years ago
Post DBS - physical symptoms of Anxiety. Anyone? Anyone?
DBS done in Feb 2012 - had numbness in toes soon after it was turned on. Have had the DBS steadily for 3 months now. Prescribing meds for anxiety? I never had these physical manifestations of anxiety before. Could lead/contact be the cause? Docs say no. I certainly don't feel depressed - I'm on disabiity
DBS done in Feb 2012 - had numbness in toes soon after it was turned on. Have had the DBS steadily for 3 months now. Prescribing meds for anxiety? I never had these physical manifestations of anxiety before. Could lead/contact be the cause? Docs say no. I certainly don't feel depressed - I'm on disabiity
cepd
in
Cure Parkinson's
12 years ago
Blood tests
Hi I wonder whether anyone can explain to me which blood tests I would need to have that would indicate being low in vitamins etc. I decided to ask the receptionist at our doctors to print out my last full blood count results but at first glance they might as well have been in a foreign language
Hi I wonder whether anyone can explain to me which blood tests I would need to have that would indicate being low in vitamins etc. I decided to ask the receptionist at our doctors to print out my last full blood count results but at first glance they might as well have been in a foreign language
tmoxon
in
Gluten Free Guerrillas
12 years ago
WELL IVE GOT THE FIGURES FROM MY BLOOD TEST TO LOOK AT ON REFERAL
Fbc Total white cell count 11.7 10*9 (4.0 – 11.0) HIGH Netrophil count 8.55 10*9/L (1.7 –7.5) HIGH Monocyte count 0.9 10.*9/l (0.2 – 0.8 ) HIGH Protein electrophoresis Serum total protein 73 g/l (64 –83) Serum albumin 50 g/l (35 – 52) Serum globulin 23 g/l (20 – 37 Report will be filed
Fbc Total white cell count 11.7 10*9 (4.0 – 11.0) HIGH Netrophil count 8.55 10*9/L (1.7 –7.5) HIGH Monocyte count 0.9 10.*9/l (0.2 – 0.8 ) HIGH Protein electrophoresis Serum total protein 73 g/l (64 –83) Serum albumin 50 g/l (35 – 52) Serum globulin 23 g/l (20 – 37 Report will be filed
minka
in
NRAS
12 years ago
For those wondering what happens during DBS surgery, a great video to educate you.
http://www.youtube.com/watch?v=Flov7Q6pQNk&feature=youtube_gdata_player
http://www.youtube.com/watch?v=Flov7Q6pQNk&feature=youtube_gdata_player
WayneP
in
Cure Parkinson's
12 years ago
I qualify for the DBS surgery (which scares me to death) & wonder if the Neupro patch could delay the surgery. Am on 4mg. so far.
wynn7
in
Cure Parkinson's
12 years ago
So I had my DBS evaluations
September 10th bright and early I left for the clinic, which is about an hour and a half away..My appt was at 9.30 and I had to miss my 5 am and 8 am dosage...the last dosage I had was the previous nite at 7.15 pm..so I was way off.... Then I was checked during off, then had one dose, waited for about
September 10th bright and early I left for the clinic, which is about an hour and a half away..My appt was at 9.30 and I had to miss my 5 am and 8 am dosage...the last dosage I had was the previous nite at 7.15 pm..so I was way off.... Then I was checked during off, then had one dose, waited for about
SuKas
in
Cure Parkinson's
12 years ago
Medications and food to avoid, applies to most of us who has RLS. This is taken from the www.rlshelp.org website..
Drugs and Foods to avoid to improve RLS This section will discuss various drugs and foods that may worsen RLS. Things that cause worsening of RLS in some patients may not bother others in the same way; in fact, others may even be helped by these same medications or foods that worsen others. Please
Drugs and Foods to avoid to improve RLS This section will discuss various drugs and foods that may worsen RLS. Things that cause worsening of RLS in some patients may not bother others in the same way; in fact, others may even be helped by these same medications or foods that worsen others. Please
Hidden
in
Restless Legs Syndrome
12 years ago
who has had problems with not being able to go to the bathroom both ways? Did the drs know what was wrong or did it become a big mystery?
My poor husband had this happen to him. It was after he was put under general anesthisia for the MRI that they need for the DBS. He was completely put under with the intibation tube in his throat so he'd be perfectly still. When he woke they had him pee and eat and then let him go home. Once he got home
My poor husband had this happen to him. It was after he was put under general anesthisia for the MRI that they need for the DBS. He was completely put under with the intibation tube in his throat so he'd be perfectly still. When he woke they had him pee and eat and then let him go home. Once he got home
lmbanni
in
Cure Parkinson's
12 years ago
Hi EXPORT again in the uk .I keep getting fob off about my DBS not working . Just seen my GP PHONED WALTON CENTER WHAT NEXT ?
GOOD OLD N-H-S any one know what my next step should be . As i have run out number . NO ONE IS AT HOME THE LIGHT ARE ON BUT NOT LISTENING BLESS . YOURS EXPORT . PS PISS 'T OFF
GOOD OLD N-H-S any one know what my next step should be . As i have run out number . NO ONE IS AT HOME THE LIGHT ARE ON BUT NOT LISTENING BLESS . YOURS EXPORT . PS PISS 'T OFF
export
in
Cure Parkinson's
12 years ago
We have a question about DBS. Hi all! My husband is considering getting DBS. We are concerened with a situation that Export had yesterday.
First we didn't know some DBS didn't come without a control for the person it is in. We didn't know that the issue of the battery going dead was that complitated. We thought it would give advance notice somehow. 1.) How old is your DBS Export? We were told they are using a differant model now.
First we didn't know some DBS didn't come without a control for the person it is in. We didn't know that the issue of the battery going dead was that complitated. We thought it would give advance notice somehow. 1.) How old is your DBS Export? We were told they are using a differant model now.
lmbanni
in
Cure Parkinson's
12 years ago
DBS Evaluations......
on September 10th...where I will be evaluated for physcal, that is being ON n OFF meds and memory test...as for psych, as I am already under treatment for depression, i a=don't need that....will let u guys know how that went...still a couple of weeks away...
on September 10th...where I will be evaluated for physcal, that is being ON n OFF meds and memory test...as for psych, as I am already under treatment for depression, i a=don't need that....will let u guys know how that went...still a couple of weeks away...
SuKas
in
Cure Parkinson's
12 years ago
Has anyone had vision problems due to PD and then had a DBS operation and then found that has helped improve their vision?
Pete-1
in
Cure Parkinson's
12 years ago
DBS HOW CAN I TELL IF ITS NOT WORKING. ANY ONE WHO'S HAS HAD A DBS STOP'T WORKINGPLEASE TELL ME ABOUT IT .
EXPORT HERE CAN HARDLY MOVE BEEN LIKE THIS FOR 36 HOURS .AND I DON'T KNOW WHY . I AM VERY WEEK IT WOULD HAPPEN ON A BANK HOLIDAY I LIVE ON MY OWN AND WOULD LIKE SOME IDEAS OF WHAT IT COULD BE YOURS EXPORT.
EXPORT HERE CAN HARDLY MOVE BEEN LIKE THIS FOR 36 HOURS .AND I DON'T KNOW WHY . I AM VERY WEEK IT WOULD HAPPEN ON A BANK HOLIDAY I LIVE ON MY OWN AND WOULD LIKE SOME IDEAS OF WHAT IT COULD BE YOURS EXPORT.
export
in
Cure Parkinson's
12 years ago
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