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Experiences with
D-bifunctional protein (DBP) deficiency
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Fox's PDIQ + YOU Conference in Phoenix . . .
Where were the DBS Manufacturers and what about Duopa (Levodopa pump) at this conference.? Is there therapy after oral medications flame out ? I heard from one person Fox didn't invite them.. Anyone know more? Otherwise, every vendor in the universe seemed to be there. It;s unlikely these companies
Where were the DBS Manufacturers and what about Duopa (Levodopa pump) at this conference.? Is there therapy after oral medications flame out ? I heard from one person Fox didn't invite them.. Anyone know more? Otherwise, every vendor in the universe seemed to be there. It;s unlikely these companies
FMundo
in
Cure Parkinson's
4 years ago
Vitamin And Nutrients plus Thyroid Health
I am taking a vitamin complex called rainbow light its a food based multivitamin and I am trying to help if I am low with any vitamins. I started a multi vitamin regimen for about a week. I am wondering if I previously overcame a iron deficiency and I have only had low vitamin should it effect my thyroid
I am taking a vitamin complex called rainbow light its a food based multivitamin and I am trying to help if I am low with any vitamins. I started a multi vitamin regimen for about a week. I am wondering if I previously overcame a iron deficiency and I have only had low vitamin should it effect my thyroid
Hidden
in
Thyroid UK
5 years ago
What's New in MS Research - January 2020
Catch up on some of the latest findings from studies conducted about MS-related issues in MSAA's January edition of What's New in MS Research: https://mymsaa.org/news/whats-new-in-ms-research-january-2020/ Topics covered include: 1. Deep brain stimulation for tremors 2. Language impairment and speech
Catch up on some of the latest findings from studies conducted about MS-related issues in MSAA's January edition of What's New in MS Research: https://mymsaa.org/news/whats-new-in-ms-research-january-2020/ Topics covered include: 1. Deep brain stimulation for tremors 2. Language impairment and speech
MSAA_Staff
in
My MSAA Community
4 years ago
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DBS for Mom who is 85
My Mom was initially not ready for DBS. Now she would like to go that direction. I contacted her Neuro and they said she is not a candidate for DBS and mentioned her age of 85. Now what? Do I push for another opinion from another Neuro? Or is there typically a cutoff for this type of surgery
My Mom was initially not ready for DBS. Now she would like to go that direction. I contacted her Neuro and they said she is not a candidate for DBS and mentioned her age of 85. Now what? Do I push for another opinion from another Neuro? Or is there typically a cutoff for this type of surgery
Hidden
in
Cure Parkinson's
4 years ago
Struggling after moving to a new city
I have recently moved to a new city. I know some people here but don’t see them much as they are often busy. I am waiting for DBS and other work documents to go through soo have several weeks before my job starts. I am struggling not knowing many people, not having a purpose and having very little money
I have recently moved to a new city. I know some people here but don’t see them much as they are often busy. I am waiting for DBS and other work documents to go through soo have several weeks before my job starts. I am struggling not knowing many people, not having a purpose and having very little money
benbt
in
Mental Health Support
4 years ago
B12 Oral
Hi I am taking a multivitamin which has following composition. Vitamin B12 1500mcg + Vitamin B9 1.5mg + Vitamin B6 3mg + Vitamin D3 1000 IU + Alpha lipoic acid 100mg Can I take this daily for lifetime. I mean can I get vitamin toxicity if I pursue this for long term I have B12 deficiency and feel horrible
Hi I am taking a multivitamin which has following composition. Vitamin B12 1500mcg + Vitamin B9 1.5mg + Vitamin B6 3mg + Vitamin D3 1000 IU + Alpha lipoic acid 100mg Can I take this daily for lifetime. I mean can I get vitamin toxicity if I pursue this for long term I have B12 deficiency and feel horrible
Riseup01
in
Pernicious Anaemia Society
5 years ago
New member, question about iron and rls
Hello, hope someone can help me, I've been given ferrous sulfate tablets 200mg three times a day as I have rls symptoms and a ferritin level of 27. I was just wondering how long it takes on these tablets for ferritin levels to show any improvement and to get to the recommended level needed to improve
Hello, hope someone can help me, I've been given ferrous sulfate tablets 200mg three times a day as I have rls symptoms and a ferritin level of 27. I was just wondering how long it takes on these tablets for ferritin levels to show any improvement and to get to the recommended level needed to improve
V1974
in
Restless Legs Syndrome
5 years ago
Neurologist Examination
Neurologist exam this morning, 1/9/2020, review: I was diagnosed 2012 Bedtime C/L 50-200 ER: Because it is ER, I take with or w/o food. 5 x day C/L 25 - 100 IR: 6:30, 9:30, 12:30, 3:30, 6:30 B1 (8 am 2g, and 12:30 pm 2g) vitamin B1 as thiamine HCL. 500mg, easy swallow capsules Assessment and Plan
Neurologist exam this morning, 1/9/2020, review: I was diagnosed 2012 Bedtime C/L 50-200 ER: Because it is ER, I take with or w/o food. 5 x day C/L 25 - 100 IR: 6:30, 9:30, 12:30, 3:30, 6:30 B1 (8 am 2g, and 12:30 pm 2g) vitamin B1 as thiamine HCL. 500mg, easy swallow capsules Assessment and Plan
Hidden
in
Cure Parkinson's
5 years ago
Drop in globulin??
Hi everyone. I signed up to patient access to look at my current vit D status and stumbled across my last set of lfts which were in october. I was a heavy drinker and stopped just before my first set of lfts which were fine, I have not continued to drink alcohol on a regular basis. Before my second test
Hi everyone. I signed up to patient access to look at my current vit D status and stumbled across my last set of lfts which were in october. I was a heavy drinker and stopped just before my first set of lfts which were fine, I have not continued to drink alcohol on a regular basis. Before my second test
Hidden
in
British Liver Trust
5 years ago
More information on DBS from Simon
https://scienceofparkinsons.com/2019/12/15/dbs/
https://scienceofparkinsons.com/2019/12/15/dbs/
parkie13
in
Cure Parkinson's
5 years ago
Low iron
My ferritine was 59ug/dl 2 weeks ago. I have been having my periods for 5 days every 28 days for years. My doc gave me iron supplement once a day. I have been taking it for 2 weeks. I took a blood test 2 days ago and the results showed my iron is low.. 47ug/dl. How is it possible if I am taking 2 weeks
My ferritine was 59ug/dl 2 weeks ago. I have been having my periods for 5 days every 28 days for years. My doc gave me iron supplement once a day. I have been taking it for 2 weeks. I took a blood test 2 days ago and the results showed my iron is low.. 47ug/dl. How is it possible if I am taking 2 weeks
Blueazul
in
Pernicious Anaemia Society
5 years ago
Too soon to be tested?
I have an endo appointment on Tuesday to review meds. I’ve just checked my diary and discovered that the next bloods will be drawn just over 4 weeks since my T3 dose was doubled and my T4 increased from 50 to 75mcg. I thought it was longer. I’ve asked questions recently about this describing feeling
I have an endo appointment on Tuesday to review meds. I’ve just checked my diary and discovered that the next bloods will be drawn just over 4 weeks since my T3 dose was doubled and my T4 increased from 50 to 75mcg. I thought it was longer. I’ve asked questions recently about this describing feeling
Mickeydooley
in
Thyroid UK
5 years ago
Chiropractic care to reduce “Pisa (leaning tower posture”.
Has anybody tried Chiropractic care to straighten spine? Husband with DBS, pd falls constantly, severe leaning to right. Interested in knowing if this helped you with posture.
Has anybody tried Chiropractic care to straighten spine? Husband with DBS, pd falls constantly, severe leaning to right. Interested in knowing if this helped you with posture.
Parkiewife
in
Cure Parkinson's
5 years ago
Job.
Hi ladies and gents. I have got a part-time cleaning job at a local school. I have applied for my enhanced DBS even though I already have one. I go to register on Wednesday and will probably start work after Christmas now. I am feeling very well in myself. I have been reading my books on Narcissistic
Hi ladies and gents. I have got a part-time cleaning job at a local school. I have applied for my enhanced DBS even though I already have one. I go to register on Wednesday and will probably start work after Christmas now. I am feeling very well in myself. I have been reading my books on Narcissistic
Poulson
in
Action on Postpartum Psychosis
5 years ago
Hot Springs while B12 and Iron Deficiency?
I have these deficiencies while the reason (such PA) is still assessed. In the meantime I'm being treated with b12 injections and I wonder whether bath in hot springs (such sulfur) is healthy for my symptoms or rather dangerous? I have many symptoms including muscle weakness, tightness and pain So I
I have these deficiencies while the reason (such PA) is still assessed. In the meantime I'm being treated with b12 injections and I wonder whether bath in hot springs (such sulfur) is healthy for my symptoms or rather dangerous? I have many symptoms including muscle weakness, tightness and pain So I
Shajarin
in
Pernicious Anaemia Society
5 years ago
Do other dopamine boosters also cause augmentation?
I’m experiencing really bad RLS augmentation from supplementing with L-Dopa for three months, but wondering if I switch to other dopamine boosters such as Chlonine, Uridine, L-theanine, will the effect be the same? For context, this is what they specifically do: https://www.mindlabpro.com/blogs/nootropics
I’m experiencing really bad RLS augmentation from supplementing with L-Dopa for three months, but wondering if I switch to other dopamine boosters such as Chlonine, Uridine, L-theanine, will the effect be the same? For context, this is what they specifically do: https://www.mindlabpro.com/blogs/nootropics
RoDomHarr
in
Restless Legs Syndrome
5 years ago
NY Times Report: 9 PwP Lost Ability to Swim After DBS
This is a blow for those of us looking at DBS further down the road as a possible last-resort therapy, but I guess it will be a matter of weighing up the pros and cons when we have to confront the choice to go ahead or not. Has anyone in this community who’s had DBS encountered the same issue? https
This is a blow for those of us looking at DBS further down the road as a possible last-resort therapy, but I guess it will be a matter of weighing up the pros and cons when we have to confront the choice to go ahead or not. Has anyone in this community who’s had DBS encountered the same issue? https
Skydome
in
Cure Parkinson's
5 years ago
Duopa pump and my day at work
Today at work in the interventional radiology department, i had a patient that was a pwp. He was there to have a tube replacement for his duopa pump system. This was new to me, so I am going to discuss it here for those who have also never heard of it . The duopa system is a wearable external pump that
Today at work in the interventional radiology department, i had a patient that was a pwp. He was there to have a tube replacement for his duopa pump system. This was new to me, so I am going to discuss it here for those who have also never heard of it . The duopa system is a wearable external pump that
bassofspades
in
Cure Parkinson's
5 years ago
DBS does it help to stop progression
I'm considering DBS I'd like to know if it stops progression of PD does it help in all areas of PD and where can I find the success rate of this surgery Thanks
I'm considering DBS I'd like to know if it stops progression of PD does it help in all areas of PD and where can I find the success rate of this surgery Thanks
Yhae
in
Cure Parkinson's
5 years ago
Has anyone tried Nicotine to reduce Dyskinesia?
I am wondering if anyone has tried Nicotine to reduce severe episodes of dyskinesia brought on by levadopa. I watched some amazing videos by a girl named Jasmine Sturr. She has has early onset pediatric PD. She ended up doing DBS and then inventing her own levadopa pump with her feeding tube. She went
I am wondering if anyone has tried Nicotine to reduce severe episodes of dyskinesia brought on by levadopa. I watched some amazing videos by a girl named Jasmine Sturr. She has has early onset pediatric PD. She ended up doing DBS and then inventing her own levadopa pump with her feeding tube. She went
Leylaleyla
in
Cure Parkinson's
5 years ago
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