Hello,
I had DBS surgery about 6 weeks ago. And I have so much anxiety and panic attacks throughout the day it’s unbearable. Is this psychosis? If so, how is it manageable??
My thyroid panel doesn’t show a hyperthyroid so I’m good there but I can’t seem to be able to control my anxiety. Everything sets it off from too much noise to very minimal stress. Any help is appreciated. Thank you!
Were you stressed as a ‘type’ before you had the surgery?
"stressed as a type"??
My husband has had this bad too and it seemed to be caused by the sertraline and levodopa drugs. His anxiety has reduced since using the apolloneuro device, red light coronet helmet and taking 1/4 procyclidine morning and night. Also GABA sublingual when he is starting to feel worse. If he is feeling particularly bad he has 1/4 of a clonazapam and maybe another 1/4 after half an hour if still feeling panicky although he hasn’t needed any of that for some time now.
Perhaps your dbs means you no longer need as much of the medication. What are you taking? My observation from watching my husband is that the anxiety is caused by over stimulation from being over medicated.
ok thanks Marion p. i like all your ideas. very good will think of them and share with husband
good to know this about the over stimulation but who can stand the under medicated stage either. Brutal
Look up the side effects of each medication. Often they are the same as the condition they are prescribed for. I think there is a sweet spot for each person where it is just the right amount to help. And too much or too little and the symptoms remain. The amount each person needs is different depending on their genetics, size, sex, etc but the doctors prescribe the same for everyone. That’s just my guess.
When did all this start? Post-DBS surgery? If you'd had it previously, you're going to need to supply a ton of basic history and health/medical information about yourself or you won't be able to find much help here, it could be dozens of possibilities, more actually, no way to sift them down without a lot of info. Otherwise it's like asking for an elaborate family history by just supplying your middle name or hat size. We have to have a great deal to go on first.
Though is this entry of yours a starting point? If so, then you really need to get back to your surgical team extremely fast with your declared emergency. You may have to camp in their office, tell them you suspect that you've been injured by the procedure or whatever you suspect. If you name your country and general region then perhaps other avenues to add might become a bit more visible.
healthunlocked.com/cure-par...
oh yes after surgery, without a doubt
Hope you don't mind me asking but what was it like before DBs just wondering why you had it done
Trt taking: Rhodiola and L-Theanine every morning on an empty stomach- has always helped me with anxiety and panic attacks.. I also take a good quality B complex.... Good Luck!
I'll throw in a blank guess not knowing your history. It may be that you're running low in serotonin that could exacerbate anxiety and fight or flight response. Levodopa use can also contribute to the serotonin deficit. If not already, consider lowering your meds after consulting your Dr. since it is possible you do not need as much dopamine after DBS. To improve the serotonin level, exercise, get some sun (or red light), meditate, and try carefully supplementing 5-htp ( the same enzyme AAAD catalyzes L-DOPA, could depress dopamine if in excess) near bedtime starting with the minimal dosage around 25mg and/or combine with Tyrosine 1:10 ratio.
healthline.com/health/how-t...
everywomanover29.com/blog/5...
Irrelevant, but I found it interesting, Rescuma:
articles.mercola.com/sites/...
I tried to grow saffron for culinary use but I couldn't manage to because all the squirrels stole the bulbs I planted. Gioc has tons of saffron at his home garden that I'm very jealous of protected by his cat.
It goes to show how many natural spices and foods work medicinally in our bodies and we should vary our diet to incorporate them as much as possible. However, my bet is on curcumin over the milder and costly saffron since it's a better researched and widely available option.
A town in Northern Greece, Kozani, is a huge manufacturer of Saffron. I have been using it for years, but I was not aware of its benefits. Weird, I find it in TJMAXX, Marshall's , and Home Goods shops.
We could find it but they're sooo expensive for only 0.0* oz usually. It is literally the most expensive spice in the world.
what a great idea I'm dizzy and light headed a lot too
I hope it helps you. For dizziness and fatigue (check for low BP first), I don't know what your diet is like currently but try to reduce the processed/refined high carb foods, especially sugar - they feed pathogenic gut bacteria to contribute to dysbiosis. Eat lots of fibrous vegs along with sprouted whole grains (helps with butyrate) and try adding a good methyl B-Complex, such as Pure Encapsulations B-Complex Plus (includes 100mg B1 hcl).
sweet ideas great info i do have low blood pressure good observation
Don't forget to hydrate (and move around more) since your thirst sensation may not be optimal, and add extra salt to your diet or snack on extra pickles for immediate help ... BUT, you should be aware that a very low potassium (K is antagonistic to sodium) level can also contribute to hypotension, and eating high sulfur foods (cauliflower, cabbage, asparagus, etc) could deplete potassium in that state. If you're also low on chloride, K in foods binds to phosphate and you won't easily correct the deficiency, so look into supplementing potassium chloride (check your last blood work to verify the lower K and chloride range first). Potassium and magnesium are regulated by B1 activity (thus the B recommendation above), and often supplementing zinc can help restore K level better than supplementing K with low Zn homeostasis (common in PD), so try Jarrow's Zinc Balance to see if that helps too,.
can we meaning parkies take vitamin 6 using the meds we use ?
Just space it out from the C/L at least 2 hrs away and you should be fine. See the below for more detail.
healthunlocked.com/cure-par...
MY SHAKING body is the trouble starter. tells my mind to panic..
I'm not sure in what context you're responding but often your panicking/stress is not warranted and may worsen problems on its own. Watch the first few minutes of the below video and perhaps it could help reframe your mind when dealing with certain symptoms.
You’re not losing your mind. Something is causing this and it sounds like it might be better to go back to the doctor and just explain what’s going on. I know that’s kind of a process and it doesn’t always yield instant relief but I think it’s the best way to go and maybe look into the supplements to see if you can take them safely with whatever else you take. I’ve had anxiety all my life and it’s been crushing it time so I know it’s really really uncomfortable and I feel for you. For me, panic attacks are linked to whatever scares me: an activity or something like that. I think panic attacks are usually linked to an activity that makes the person nervous. It sounds like you’re saying you’re just having them throughout the day maybe for no particular reason. I’m not sure; I’m just wondering if that makes it all the more important to go back to the doctor to let them know what’s going on.
I found my intense panic attacks either came from known things- like sitting around a table about to have a meeting... or out of the blue... then it just escalates because I keep focusing on it- strange enough since the pd diagnosis it's been a lot less..I also find taking Lion's Mane helps..
exactly, i figured out it was shaky body causing all the trouble. when it starts shaking it goes to town on the mind. whooooo hooooo , now i must learn to talk to my brain and tell it its just the body mind over and over again. try and not act panicky too in my actions. this very hard waiting for meds to kick in or adjust my dbs. just learning how this works .
my body shaking is starting it. come on meds or dbs adjustment
Oh, okay. That's difficult with your body starting it first, so sorry. Were you able to get in touch with the doc? I'm thinking maybe it's related to the DBS surgery and they can adjust it for you.
This article goes into great detail about different causes of panic attacks and things that can be helpful
I pray you get help! I’m so sorry you are going through this maybe some of the suggestions will be helpful, I would definitely go to a doctor, if you trust the one who did your surgery go to them if not go to another but you need medical attention right away
I am having a great response with TTDF.
Hi my question is do I have Parkinson's
Is this brain fog or am I just not intelligent/educated enough to understand
I am not convinced that I have PD. Could anyone tell me if they have had any of these experiences?
YES I am still on Coconut Oil, aka CO
