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Experiences with
D-bifunctional protein (DBP) deficiency
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Teva levothyroxine
Hi, i think I'm experiencing a reaction to levothyroxine. 4 weeks ago I was feeling fine on 50mcg (Accord) Northstar, I had my routine yearly blood test which showed TSH 9.8 so GP increased me to 75mcg with an additional 25mcg tablet, from Northstar but inside is from TEVA. 3 weeks in taking them and
Hi, i think I'm experiencing a reaction to levothyroxine. 4 weeks ago I was feeling fine on 50mcg (Accord) Northstar, I had my routine yearly blood test which showed TSH 9.8 so GP increased me to 75mcg with an additional 25mcg tablet, from Northstar but inside is from TEVA. 3 weeks in taking them and
philwarren5
in
Thyroid UK
3 years ago
To studied benefits of DBS
The study below says that the benefits last at least 10 years. https://www.michaeljfox.org/news/news-context-deep-brain-stimulation-offers-long-term-benefits-parkinsons
The study below says that the benefits last at least 10 years. https://www.michaeljfox.org/news/news-context-deep-brain-stimulation-offers-long-term-benefits-parkinsons
pdpatient
in
Cure Parkinson's
3 years ago
Taking injections when iron is low
If my iron is low and I’m getting symptoms of low iron is it ok to continue b12 injections . I’m taking iron and trying to keep levels up but still have symptoms
If my iron is low and I’m getting symptoms of low iron is it ok to continue b12 injections . I’m taking iron and trying to keep levels up but still have symptoms
Andypandy30
in
Pernicious Anaemia Society
3 years ago
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Dancing no more
Dose anyone who has Parkinson’s out there go dancing and if so what do you take to loosen up your body so you can dance , this is one thing I miss since getting Parkinson’s 7 years ago any help would be appreciated I have both sides completed with dbs if that matters thanks for any help
Dose anyone who has Parkinson’s out there go dancing and if so what do you take to loosen up your body so you can dance , this is one thing I miss since getting Parkinson’s 7 years ago any help would be appreciated I have both sides completed with dbs if that matters thanks for any help
hindle1245
in
Cure Parkinson's
3 years ago
Sinemet intake blocked by Proteins
I was diagnosed in 1992 and have had DBS surgery. At 73, I am actually quite healthy. My question deals with protein intake due to Sinemet being blocked by animal and even quite a few plant proteins, namely amino acid foods. Are the other Parkinson drugs also sensitive to proteins? Has anyone else
I was diagnosed in 1992 and have had DBS surgery. At 73, I am actually quite healthy. My question deals with protein intake due to Sinemet being blocked by animal and even quite a few plant proteins, namely amino acid foods. Are the other Parkinson drugs also sensitive to proteins? Has anyone else
annmariebaird
in
Cure Parkinson's
3 years ago
Levothyroxine sodium – Anhydrous vs. Pentahydrate
helvella – Levothyroxine sodium – Anhydrous vs. Pentahydrate
[i]If you read about levothyroxine, especially as a medicine, you will see mention of two forms used as the Active Pharmaceutical Ingredient (API) in levothyroxine medicines: levothyroxine sodium (anhydrous) and levothyroxine sodium
helvella – Levothyroxine sodium – Anhydrous vs. Pentahydrate
[i]If you read about levothyroxine, especially as a medicine, you will see mention of two forms used as the Active Pharmaceutical Ingredient (API) in levothyroxine medicines: levothyroxine sodium (anhydrous) and levothyroxine sodium
helvella
Thyroid UK
in
Thyroid UK
3 years ago
Abnormal iron results
Hello, can anyone let me know if abnormal iron results are a Hashi's thing? They've been like this for a couple of years now (tests all done privately) but NHS haven't ever tested for it. Is it worth pursuing with the GP or just leave it alone. I don't take any iron supplements so I don't really
Hello, can anyone let me know if abnormal iron results are a Hashi's thing? They've been like this for a couple of years now (tests all done privately) but NHS haven't ever tested for it. Is it worth pursuing with the GP or just leave it alone. I don't take any iron supplements so I don't really
jostafford0
in
Thyroid UK
3 years ago
Parkinsons, DBS, Covid19 Pfizer Vaccine
My wife had DBS 10/2020. Everything isn't back to normal but they are much much much better than before DBS. All tremors and difficult times were gone. She received her 1st Pfizer Covid vaccine shot 3/29/2021. On 4/6/2021 she started to have breakthrough tremors and can barely walk without help. The
My wife had DBS 10/2020. Everything isn't back to normal but they are much much much better than before DBS. All tremors and difficult times were gone. She received her 1st Pfizer Covid vaccine shot 3/29/2021. On 4/6/2021 she started to have breakthrough tremors and can barely walk without help. The
royal57
in
Cure Parkinson's
3 years ago
Does B12 deficiency deplete iron levels?
Hi everyone ! I’m a bit stumped regarding my newest iron panel results (below). First of all, I’ve been supplementing with 60 mg every other day and having an iron rich diet with vitamin C. Even so, my levels have been dropping quite dramatically: 09/29/2020 Total Iron 92 ug/dL (50-212) Iron Binding
Hi everyone ! I’m a bit stumped regarding my newest iron panel results (below). First of all, I’ve been supplementing with 60 mg every other day and having an iron rich diet with vitamin C. Even so, my levels have been dropping quite dramatically: 09/29/2020 Total Iron 92 ug/dL (50-212) Iron Binding
Dolansan
in
Pernicious Anaemia Society
3 years ago
Present and future of subthalamotomy in the management of Parkinson´s disease: a systematic review
Article highlights The subthalamic nucleus (STN) plays a key role in the pathophysiology of Parkinson´s disease (PD). Neurosurgical targeting of the STN with Deep Brain Stimulation is a worldwide procedure for PD. Ablation of the STN with Radio Frequency has also been undertaken in several hundred
Article highlights The subthalamic nucleus (STN) plays a key role in the pathophysiology of Parkinson´s disease (PD). Neurosurgical targeting of the STN with Deep Brain Stimulation is a worldwide procedure for PD. Ablation of the STN with Radio Frequency has also been undertaken in several hundred
Farooqji
in
Cure Parkinson's
3 years ago
PTT - Pallidothalamic Tractotomy
Hi, My father has parkinson's for 15 years and I am trying to halt progression in some of the ways you all have. My father's issue has always been freezing and energy / just feeling unwell on days that freezing is predominant. PTT, are there any outcomes on freezing specifically? His DBS has essentially
Hi, My father has parkinson's for 15 years and I am trying to halt progression in some of the ways you all have. My father's issue has always been freezing and energy / just feeling unwell on days that freezing is predominant. PTT, are there any outcomes on freezing specifically? His DBS has essentially
simonasays
in
Cure Parkinson's
3 years ago
Does a lack of intrinsic factor prevent iron absorption?
Does a lack of intrinsic factor prevent the absorption of iron too or is it simply B12? If so what would be the best way to get iron into the body and does anyone know of any decent iron supplements that are readily absorbed? Thank you all for any help
Does a lack of intrinsic factor prevent the absorption of iron too or is it simply B12? If so what would be the best way to get iron into the body and does anyone know of any decent iron supplements that are readily absorbed? Thank you all for any help
WorkingProgress
in
Pernicious Anaemia Society
3 years ago
DBS
I want to know your experience with DBS
I want to know your experience with DBS
gigi9
in
Cure Parkinson's
3 years ago
Help with iron panel results please?
I have had a test at the surgery which has come back normal but thought I’d check here? As I don’t understand it and I understand that ferritin is important but that you shouldn’t just take iron if your iron count is good but how do you increase only the ferritin ? Thanks 😊 Ferritin 79. Range 11
I have had a test at the surgery which has come back normal but thought I’d check here? As I don’t understand it and I understand that ferritin is important but that you shouldn’t just take iron if your iron count is good but how do you increase only the ferritin ? Thanks 😊 Ferritin 79. Range 11
Blackpanther46
in
Thyroid UK
3 years ago
Could I still have low iron?
I haven’t yet returned to normal since my low iron diagnosis and iron infusion treatment in October. All my tests are coming back good or normal. My mean cell value is 86.7 [80-100] Ferritin 276 [10-300] As my MCV is low in the range, could this indicate that my red blood cells are still small? I’m still
I haven’t yet returned to normal since my low iron diagnosis and iron infusion treatment in October. All my tests are coming back good or normal. My mean cell value is 86.7 [80-100] Ferritin 276 [10-300] As my MCV is low in the range, could this indicate that my red blood cells are still small? I’m still
Pastelart
in
Thyroid UK
3 years ago
Supplement Folate or Vitamin B12 First
Hi I stopped supplementing B complex with Folate and Vitamin B12 a few months ago as I was feeling quite anxious and read sometimes the wrong type of B Vits can sometimes cause this. My thyroid levels are TSH 0.5 range 0.49 - 4.67 FT4 21.1 range 12 - 22 FT3 5.2 range 3.1 - 6.8 I take 125mcg. levo
Hi I stopped supplementing B complex with Folate and Vitamin B12 a few months ago as I was feeling quite anxious and read sometimes the wrong type of B Vits can sometimes cause this. My thyroid levels are TSH 0.5 range 0.49 - 4.67 FT4 21.1 range 12 - 22 FT3 5.2 range 3.1 - 6.8 I take 125mcg. levo
lucylocks
in
Thyroid UK
3 years ago
Vit B12 and diarrhoea
How well is the link between Vit B12 and diarrhoea understood? Does it just amount to observation that people with Vit B12 deficiency can have diarrhoea. This link: https://www.nhlbi.nih.gov/health-topics/pernicious-anemia. "Other symptoms of vitamin B12 deficiency involve the digestive tract. These
How well is the link between Vit B12 and diarrhoea understood? Does it just amount to observation that people with Vit B12 deficiency can have diarrhoea. This link: https://www.nhlbi.nih.gov/health-topics/pernicious-anemia. "Other symptoms of vitamin B12 deficiency involve the digestive tract. These
mickeymouse42
in
Pernicious Anaemia Society
3 years ago
First Blood Results - Feelng Nervous!
Hi So after a few decades plodding along with an underactive thyroid and taking just a starter dose of 50mcg Levo (Accord) - I stumbled accross this site - decided recently it was critical I paid for a private blood test and the results are just in. I believe from being around this site just a few months
Hi So after a few decades plodding along with an underactive thyroid and taking just a starter dose of 50mcg Levo (Accord) - I stumbled accross this site - decided recently it was critical I paid for a private blood test and the results are just in. I believe from being around this site just a few months
Levo50
in
Thyroid UK
3 years ago
Signs of B12 deficiency in the mouth
Hi All, I posted most of this on another thread but thought I'd start my own thread in case someone found it useful. Sometimes the route to diagnosis of B12 deficiency can involve other health professionals besides GPs. If you have a GP who won't listen to your concerns about B12 deficiency maybe other
Hi All, I posted most of this on another thread but thought I'd start my own thread in case someone found it useful. Sometimes the route to diagnosis of B12 deficiency can involve other health professionals besides GPs. If you have a GP who won't listen to your concerns about B12 deficiency maybe other
Sleepybunny
in
Pernicious Anaemia Society
3 years ago
FUS vs. DBS An interesting debate on twitter
Expert's favour DBS over FUS
Expert's favour DBS over FUS
Farooqji
in
Cure Parkinson's
3 years ago
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