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Experiences with
D-bifunctional protein (DBP) deficiency
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Levothyroxine sodium oral solution to control thyroid function in a patient with hypothyroidism and celiac disease
How can it take over twelve years to get to an adequate dose? Yes, I recognise that Tirosint Sol was not available in 2007, but the failure even to consider gluten for so long is unforgivable. (Tirosint Sol seems limited to the USA at present. Certainly not heard of anyone in the UK getting it.) [
How can it take over twelve years to get to an adequate dose? Yes, I recognise that Tirosint Sol was not available in 2007, but the failure even to consider gluten for so long is unforgivable. (Tirosint Sol seems limited to the USA at present. Certainly not heard of anyone in the UK getting it.) [
helvella
Thyroid UK
in
Thyroid UK
3 years ago
Botox success for dystonia; how long did it last ?… and other ?’s
It’s been a long time since I approached this site. I just got overwhelmed with the summation of the pandemic, the environment, the degradation of our political leadership and my own 20+ years of declining success with living the life of PIGD pd. However I’m faced with an acceleration of the decline
It’s been a long time since I approached this site. I just got overwhelmed with the summation of the pandemic, the environment, the degradation of our political leadership and my own 20+ years of declining success with living the life of PIGD pd. However I’m faced with an acceleration of the decline
etterus
in
Cure Parkinson's
3 years ago
non anaemic iron deficiency (low ferritin)
Anybody else have this? Did taking the ferrous sulfate help?
Anybody else have this? Did taking the ferrous sulfate help?
Brychni
in
NRAS
3 years ago
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Possible coeliac?
I’ve just had some blood results back due to iron deficiency. I also had my first booster jab after loading dose for low B12. Iron is just back in range but results say that serum tissue triglutaminase is high and consistent with coeliac disease. Got an appointment with doctor next week but wondering
I’ve just had some blood results back due to iron deficiency. I also had my first booster jab after loading dose for low B12. Iron is just back in range but results say that serum tissue triglutaminase is high and consistent with coeliac disease. Got an appointment with doctor next week but wondering
MrsBRE
in
Pernicious Anaemia Society
3 years ago
Investigating the Influence of Excipients on the Stability of Levothyroxine Sodium Pentahydrate
There has been a tiny rivulet of papers questioning the formulation of levothyroxine products. Time and again, the papers identify problems with excipients of which a large proportion of real products contain at least one. I'm sure it is not the entire picture. But this rivulet has been flowing for
There has been a tiny rivulet of papers questioning the formulation of levothyroxine products. Time and again, the papers identify problems with excipients of which a large proportion of real products contain at least one. I'm sure it is not the entire picture. But this rivulet has been flowing for
helvella
Thyroid UK
in
Thyroid UK
3 years ago
Vitamin B12 deficiency - Recently diagnosed
Hi there. I was previously in the Thyroid UK group but one member suggested me this forum because of my low Vitamin B12. I am a 33-year-old woman. I weigh 60 kilos (22,7 BMI), non-smoker, non-drinker. I have a pretty healthy lifestyle. My symptoms started almost 3 years ago. I have mistaken symptoms
Hi there. I was previously in the Thyroid UK group but one member suggested me this forum because of my low Vitamin B12. I am a 33-year-old woman. I weigh 60 kilos (22,7 BMI), non-smoker, non-drinker. I have a pretty healthy lifestyle. My symptoms started almost 3 years ago. I have mistaken symptoms
Praga
in
Pernicious Anaemia Society
3 years ago
FUS PTT Surgery. 6 months update
After 6 months things look bit more stable. I still have some issues, and sometimes it is still hard to accept that i still have Parkinson’s. 6 months gone, and gone all my dyskinesia. Still have some tremor, 90% solved on my treated side, about 80% on my untreated side, slowness it is still one of the
After 6 months things look bit more stable. I still have some issues, and sometimes it is still hard to accept that i still have Parkinson’s. 6 months gone, and gone all my dyskinesia. Still have some tremor, 90% solved on my treated side, about 80% on my untreated side, slowness it is still one of the
Markbit
in
Cure Parkinson's
3 years ago
Ambulance called, please help explain blood test results
Hi, I'm hypothyroid (self-prescribe additional T3 with help of this forum) and have been taking thyroid meds for around 25 years. Currently I take I take 125mcg T4 and 18.75mcg T3 in the morning, and 18.75mcg T3 in the evening. I also have ME, Fibromyalgia, Guillain-Barré and have had Long COVID since
Hi, I'm hypothyroid (self-prescribe additional T3 with help of this forum) and have been taking thyroid meds for around 25 years. Currently I take I take 125mcg T4 and 18.75mcg T3 in the morning, and 18.75mcg T3 in the evening. I also have ME, Fibromyalgia, Guillain-Barré and have had Long COVID since
Abi-Abster
in
Thyroid UK
3 years ago
Ferrous Sulfate gives me headaches
Hi, sorry if I've posted this in the wrong section as I dont have Thyroid problems. I've recently had a low iron deficiency confirmed and have been told to buy supplements and take them 3x a day. The chemist recommended Ferrous Sulfate 200mg. I have found that after taking just one I get an awful headache
Hi, sorry if I've posted this in the wrong section as I dont have Thyroid problems. I've recently had a low iron deficiency confirmed and have been told to buy supplements and take them 3x a day. The chemist recommended Ferrous Sulfate 200mg. I have found that after taking just one I get an awful headache
xxkiexx
in
Thyroid UK
3 years ago
Using 7 tesla MRI power for DBS “The first time I ... showed the neurosurgeon the images, it was like turning on a light in a dark room."
They are still making dramatic improvements in DBS. "The problem with this promising therapy ... is that not every patient receives a video-worthy benefit. “There’s a big distribution of the quality of outcomes that patients actually get from DBS—in some cases, it can even cause more side effects than
They are still making dramatic improvements in DBS. "The problem with this promising therapy ... is that not every patient receives a video-worthy benefit. “There’s a big distribution of the quality of outcomes that patients actually get from DBS—in some cases, it can even cause more side effects than
MBAnderson
in
Cure Parkinson's
3 years ago
Have UK ref ranges for ferritin changed?
Hi, I'm sure I read on the forum recently that UK ref ranges for ferritin have changed. Does anyone know if this is true? I can't find the post where it was mentioned so please post a link if anyone finds it or to other UK documents/guidance. Apologies if this is a false memory. I've found it... https
Hi, I'm sure I read on the forum recently that UK ref ranges for ferritin have changed. Does anyone know if this is true? I can't find the post where it was mentioned so please post a link if anyone finds it or to other UK documents/guidance. Apologies if this is a false memory. I've found it... https
Sleepybunny
in
Pernicious Anaemia Society
3 years ago
Do you continue taking B1 Thiamin HCL, High Dose Therapy (HDT)?
I’m wondering if HDT benefits after having had DBS surgery. What are you thoughts?
I’m wondering if HDT benefits after having had DBS surgery. What are you thoughts?
Kingdomcome
in
Cure Parkinson's
3 years ago
WHERE WILL I FIND DBS POSTINGS
I am assuming there are a lot of postings
I am assuming there are a lot of postings
powerfemale
in
Cure Parkinson's
3 years ago
Iron panel, CRP, ESR?
Hi all, so after having a Medichecks full thyroid test in April my result were: TSH 1.39 mIU/L (0.27-4.2)F Freethyroxine 19.4pmol/l (12-22) Yesterday my GP repeated a TSH only test which came back as follows: 0.62 mIU/L (0.38-5.5). Could I be going slightly hyper now? I wasnt expecting the GP to repeat
Hi all, so after having a Medichecks full thyroid test in April my result were: TSH 1.39 mIU/L (0.27-4.2)F Freethyroxine 19.4pmol/l (12-22) Yesterday my GP repeated a TSH only test which came back as follows: 0.62 mIU/L (0.38-5.5). Could I be going slightly hyper now? I wasnt expecting the GP to repeat
Minimouse1
in
Thyroid UK
3 years ago
Why constant low iron issues
I need some help understanding why Im constantly having low iron issues. I was taking Iron tabs late last year after testing for low iron but I stopped taking tabs in January and was suppose to retest but I didn’t and last Saturday I “almost” passed out but as quick as that happened it disappeared
I need some help understanding why Im constantly having low iron issues. I was taking Iron tabs late last year after testing for low iron but I stopped taking tabs in January and was suppose to retest but I didn’t and last Saturday I “almost” passed out but as quick as that happened it disappeared
Batty1
in
Thyroid UK
3 years ago
Can you have anemia with normal CBC?
I have low b12 but normal CBC and Hemoglobin. Iron levels are normal. I'm waiting on the folate test. Does this mean I am not anemic?
I have low b12 but normal CBC and Hemoglobin. Iron levels are normal. I'm waiting on the folate test. Does this mean I am not anemic?
B12life
in
Pernicious Anaemia Society
3 years ago
MCV
Does anyone know what this means on NICE Guidelines" An MCV less than 95 femtolitres has a sensitivity of 97.6% for iron deficiency anaemia. In people with anaemia and an MCV of more than 95 femtolitres, there is a low probability of iron deficiency. My MCV was 83.4 fL
Does anyone know what this means on NICE Guidelines" An MCV less than 95 femtolitres has a sensitivity of 97.6% for iron deficiency anaemia. In people with anaemia and an MCV of more than 95 femtolitres, there is a low probability of iron deficiency. My MCV was 83.4 fL
yewotc23
in
Thyroid UK
3 years ago
Abdomen, Severe distension and bloatingAbdomen
Abdomen, Severe distension and bloating I am not constipated, but abdomen is as tight as a drum with pain (6-7), Seems nothing helps, Have tried Bisacodyl, Miralax laxatives with no effect. Also have violent shake of L-Hand. Global neuropathy, Neuro has suggested DBS for shaking. GI doctor has
Abdomen, Severe distension and bloating I am not constipated, but abdomen is as tight as a drum with pain (6-7), Seems nothing helps, Have tried Bisacodyl, Miralax laxatives with no effect. Also have violent shake of L-Hand. Global neuropathy, Neuro has suggested DBS for shaking. GI doctor has
gl2238
in
Cure Parkinson's
3 years ago
HIGH FERRITIN
Hello partners We always speak of low Ferritin, because that condition is what can indicate that iron is low in the body and consequently in the brain, producing R.L.S. I´m suffering from PMML, and an ultrasound brain Doppler test confirmed insufficient iron in brain stores. But nevertheless I have 700
Hello partners We always speak of low Ferritin, because that condition is what can indicate that iron is low in the body and consequently in the brain, producing R.L.S. I´m suffering from PMML, and an ultrasound brain Doppler test confirmed insufficient iron in brain stores. But nevertheless I have 700
Arjiji
in
Restless Legs Syndrome
3 years ago
Am I losing my mind?
Hello, I had DBS surgery about 6 weeks ago. And I have so much anxiety and panic attacks throughout the day it’s unbearable. Is this psychosis? If so, how is it manageable?? My thyroid panel doesn’t show a hyperthyroid so I’m good there but I can’t seem to be able to control my anxiety. Everything sets
Hello, I had DBS surgery about 6 weeks ago. And I have so much anxiety and panic attacks throughout the day it’s unbearable. Is this psychosis? If so, how is it manageable?? My thyroid panel doesn’t show a hyperthyroid so I’m good there but I can’t seem to be able to control my anxiety. Everything sets
fossygma
in
Cure Parkinson's
3 years ago
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