Search
Search
About
Log in
Join
Experiences with
Colonic polyps
Posts
Communities
2,351 public posts
Filter results
CLLSA Cancer Awareness Month
A video for you to share has been posted on the CLLSA Facebook page and Twitter along with a request to answers to a few questions that might help others when diagnosed with cll https://www.facebook.com/CLLSA-CLL-Support-Association-1016024785086154/
A video for you to share has been posted on the CLLSA Facebook page and Twitter along with a request to answers to a few questions that might help others when diagnosed with cll https://www.facebook.com/CLLSA-CLL-Support-Association-1016024785086154/
Myrddin
in
CLL Support
7 years ago
Not sure if it's chronic fatigue syndrome or just my anxiety!
Haven't been on here in a while. But I don't know if this horrible tiredness is chronic fatigue syndrome , anxiety, or just me going to sleep at 2-3 am every morning but I still get some good sleep in I wanna say. Even though I go to sleep around 2-3 o'clock in the morning . I wake up most of The around
Haven't been on here in a while. But I don't know if this horrible tiredness is chronic fatigue syndrome , anxiety, or just me going to sleep at 2-3 am every morning but I still get some good sleep in I wanna say. Even though I go to sleep around 2-3 o'clock in the morning . I wake up most of The around
Vicky810
in
Anxiety Support
7 years ago
Chronic kidney disease
Hi There, My mom is diagnosed with chronic kidney disease and her creatinine level is 2.4mg/dl... How serious is this?? Just in a week her creatinine spiked up to 3 and fluids went into lungs and she is having issues in breathing... She is hospitalized again... Can anyone tell me how this is treated
Hi There, My mom is diagnosed with chronic kidney disease and her creatinine level is 2.4mg/dl... How serious is this?? Just in a week her creatinine spiked up to 3 and fluids went into lungs and she is having issues in breathing... She is hospitalized again... Can anyone tell me how this is treated
Shilpamn
in
Early CKD Support
7 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
One Week Until Final Clinical Trial Mythbusters Webinar!
Is there medical research going on that is open to you and could be the key to feeling better? That’s what a clinical trial can be, but many people are unaware, hesitant, afraid, or stymied by logistics. It doesn’t have to be that way and we can help. Please tune in live or as a replay to Patient Empowerment
Is there medical research going on that is open to you and could be the key to feeling better? That’s what a clinical trial can be, but many people are unaware, hesitant, afraid, or stymied by logistics. It doesn’t have to be that way and we can help. Please tune in live or as a replay to Patient Empowerment
tclementi
in
CLL Support
7 years ago
My Life
Hi my name is Faithkmj...I received a kidney Transplant. I have my New Kidney for 2 Years now. This is my second Kidney, n I'm Truly Blessed to have received another one. I went on the list for 10 yrs. And when I received my first Kidney I did get it in 5 yrs. I did Hemo Dialysis for 5 yrs. And I had
Hi my name is Faithkmj...I received a kidney Transplant. I have my New Kidney for 2 Years now. This is my second Kidney, n I'm Truly Blessed to have received another one. I went on the list for 10 yrs. And when I received my first Kidney I did get it in 5 yrs. I did Hemo Dialysis for 5 yrs. And I had
Faithkmj
in
Kidney Dialysis
7 years ago
IBS ATTACK OR FOOD POISONING?
After having been out for lunch which I ate scallops and truffle mac and cheese, glass of wine and coffee, approx 2 hours later I was violently ill, sick and needing the loo, whilst driving home, pouring with rain. Fortunately for me, a lady was kind enough to let me use her facilities, however I was
After having been out for lunch which I ate scallops and truffle mac and cheese, glass of wine and coffee, approx 2 hours later I was violently ill, sick and needing the loo, whilst driving home, pouring with rain. Fortunately for me, a lady was kind enough to let me use her facilities, however I was
SusanMargaret47
in
Healthy Eating
7 years ago
Type 1
My son is 17 and a type 1 diabetic. At bedtime, his sugar level is about 110-140. How much lantus is required?
My son is 17 and a type 1 diabetic. At bedtime, his sugar level is about 110-140. How much lantus is required?
ssingh28
in
Diabetes India
7 years ago
Just putting a tentative toe in the on line world!
Although I am new to the on line community I was diagnosed as having CLL a bit over nine years ago now, was treated was chlorambucil and then with FCR the following year. I guess I was lucky in that I only needed three courses rather than the usual six for my white cell count to come right down. And
Although I am new to the on line community I was diagnosed as having CLL a bit over nine years ago now, was treated was chlorambucil and then with FCR the following year. I guess I was lucky in that I only needed three courses rather than the usual six for my white cell count to come right down. And
Patientgill
in
CLL Support
7 years ago
Serevent Confusion
I was prescribed "Serevent" (Salmeterol) to replace the maintreatment of "Tiotrupium" (Spiriva). The dose prescribed was 1 dose daily. It wasn't helping so I switched back to Tiotrupium, however closely reading the GSK Instructions for Salmeterol it clearly states "the normal starting dose is 2 puffs
I was prescribed "Serevent" (Salmeterol) to replace the maintreatment of "Tiotrupium" (Spiriva). The dose prescribed was 1 dose daily. It wasn't helping so I switched back to Tiotrupium, however closely reading the GSK Instructions for Salmeterol it clearly states "the normal starting dose is 2 puffs
Puffandpant
in
Lung Conditions Community Forum
7 years ago
Looking for guidance
hi. I was diagnosed with Endometrial Cancer 3 Years ago that spread to my lungs. I was treated with Chemo PaciTaxil that stopped helpiing. I am now on Avastin. Anything out there
hi. I was diagnosed with Endometrial Cancer 3 Years ago that spread to my lungs. I was treated with Chemo PaciTaxil that stopped helpiing. I am now on Avastin. Anything out there
lynnsie44
in
Lung Cancer Support
7 years ago
Survival Through the Years
my husband needs to see his PC asap. im very concerned. passing blood and clots in his urine. He has had an iliostomy, open heart surgery, clustor headaches, had crohns disease and has lumps in his lungs, yet he remains active at the age of 73. What next?
my husband needs to see his PC asap. im very concerned. passing blood and clots in his urine. He has had an iliostomy, open heart surgery, clustor headaches, had crohns disease and has lumps in his lungs, yet he remains active at the age of 73. What next?
SuzyQ1940
in
Healthy Evidence
7 years ago
Stage 3 kidney disease
Anyone have SLE and kidney disease? I knew my kidneys weren't great, but [i]I [/i]was hoping dialysis and kidney transplant were not going to be something I had to address anytime in my lifetime. [i] I am trying to stay calm, but need the support of this community right now, because my husband is not
Anyone have SLE and kidney disease? I knew my kidneys weren't great, but [i]I [/i]was hoping dialysis and kidney transplant were not going to be something I had to address anytime in my lifetime. [i] I am trying to stay calm, but need the support of this community right now, because my husband is not
Natura
in
LUPUS UK
7 years ago
Some promising news from iwCLL On Richter's Transformation
Hi, One of the most urgent unmet needs in CLL is Richter's Transformation when CLL turns bad and transforms into usually an aggressive diffuse B cell lymphoma. At the iwCLL meeting in Manhattan last May, I had the chance to talk to Dr. John Pagel about the research being done with PD-1 inhibitors for
Hi, One of the most urgent unmet needs in CLL is Richter's Transformation when CLL turns bad and transforms into usually an aggressive diffuse B cell lymphoma. At the iwCLL meeting in Manhattan last May, I had the chance to talk to Dr. John Pagel about the research being done with PD-1 inhibitors for
bkoffman
CLL CURE Hero
in
CLL Support
7 years ago
ANA Positive
Hi all, can someone please tell me if having a positive ANA result after many negatives over the last three years, and if anyone else has had anti-dsDNA autoantibodies show in blood tests?
Hi all, can someone please tell me if having a positive ANA result after many negatives over the last three years, and if anyone else has had anti-dsDNA autoantibodies show in blood tests?
Clm1978
in
LUPUS UK
7 years ago
Peritoneal dialysis
I am new to this site, hello! I am 65 years young, have been on peritoneal dialysis for a year and a half. I chose peritoneal over hemodialysis as I feel more normal and not wiped out after treatment. Getting a good night's sleep has been a challenge, seem to wake up every 2-3 hours. Just had to
I am new to this site, hello! I am 65 years young, have been on peritoneal dialysis for a year and a half. I chose peritoneal over hemodialysis as I feel more normal and not wiped out after treatment. Getting a good night's sleep has been a challenge, seem to wake up every 2-3 hours. Just had to
dobremski
in
Kidney Dialysis
7 years ago
Advice
Hi folks - I've just been diagnosed though I think it's been going awhile - I'm 70 living in the wilds of Brittany and am trying to work out a regime which might deal with the problem naturally before I get sucked into pharma world. So far I've settled on raw garlic (just as well I'm on my own !) - milk
Hi folks - I've just been diagnosed though I think it's been going awhile - I'm 70 living in the wilds of Brittany and am trying to work out a regime which might deal with the problem naturally before I get sucked into pharma world. So far I've settled on raw garlic (just as well I'm on my own !) - milk
John-Searle
in
CLL Support
7 years ago
Ibrutinib severe bone pain
My father got cll from last year. We have tried FRC regimen which was not effective. His disease is associated with p53 mutation. Now it becane refractory cll. We have started ibrutinib from last week. One capsul each two days.(mon, wed, fri...) but from the first dose he experienced a severe bone pain
My father got cll from last year. We have tried FRC regimen which was not effective. His disease is associated with p53 mutation. Now it becane refractory cll. We have started ibrutinib from last week. One capsul each two days.(mon, wed, fri...) but from the first dose he experienced a severe bone pain
Aliyeh
in
CLL Support
7 years ago
FISH test result changed post chemo
My first post! My husband was diagnosed with CLL in 2004. He had 6 rounds of FC and achieved a good remission. In 2010 he relapsed and had FRC again 6 rounds, again a very good remission. He is IVG mutated and FISH test was negative to all deletions. He is now out of remission. Has just had a FISH test
My first post! My husband was diagnosed with CLL in 2004. He had 6 rounds of FC and achieved a good remission. In 2010 he relapsed and had FRC again 6 rounds, again a very good remission. He is IVG mutated and FISH test was negative to all deletions. He is now out of remission. Has just had a FISH test
lemsford
in
CLL Support
7 years ago
Ibrutinib as frontline??
Hello everyone! Does anyone know why Ibrutinib is only available to CLL patients whose previous treatments have been unsuccessful? It was first made routinely available to leukaemia patients through the NHS in 2016, apparently after years of campaigning by Bloodwise, the cancer research charity. I've
Hello everyone! Does anyone know why Ibrutinib is only available to CLL patients whose previous treatments have been unsuccessful? It was first made routinely available to leukaemia patients through the NHS in 2016, apparently after years of campaigning by Bloodwise, the cancer research charity. I've
bendintheroad1
in
CLL Support
7 years ago
ANA positive
Has anyone else had a low (1/160 titre) positive ANA test with nucleolar pattern after years of ANA negative results?
Has anyone else had a low (1/160 titre) positive ANA test with nucleolar pattern after years of ANA negative results?
Queencara78
in
Fibromyalgia Action UK
7 years ago
1
...
68
69
70
...
100
Next page
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
CLL Support
1441 results
Lung Conditions Community Forum
217 results
Diabetes India
81 results
View top 10 communities
Sort by
Most Relevant
Newest