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ACR results
So I'm so confused lol I phoned the gp who's receptionist told me my urine microalbumin level was 3 and satisfactory. I went and got a print out and infact my microalbumin was <3 mg/l which I'm gathering is good. My urine creatinine was 3.5mmol/L but there were no ranges so I'm not sure if that's good
So I'm so confused lol I phoned the gp who's receptionist told me my urine microalbumin level was 3 and satisfactory. I went and got a print out and infact my microalbumin was <3 mg/l which I'm gathering is good. My urine creatinine was 3.5mmol/L but there were no ranges so I'm not sure if that's good
Jodyfmurphy
in
Early CKD Support
3 years ago
"Becoming Your Own (CLL)Project Manager" by Doreen Zetterlund is part of CLL Society & Huntsman Cancer Institute's Monday Nov. 8th CLL Forum
Tuesday Nov. 9th! Still time to register! Patients who manage their own CLL strategies without the help of a caregiver are in for a rare treat as CLL patient Doreen Zetterlund leads us through her amazing "how to" video Becoming Your Own Project Manager. Doreen's presentation is part of Huntsman Cancer
Tuesday Nov. 9th! Still time to register! Patients who manage their own CLL strategies without the help of a caregiver are in for a rare treat as CLL patient Doreen Zetterlund leads us through her amazing "how to" video Becoming Your Own Project Manager. Doreen's presentation is part of Huntsman Cancer
bkoffman
CLL CURE Hero
in
CLL Support
3 years ago
ANA positive patients needed for a new research study
Hi everyone, I have received a request from researchers at University of Nottingham for a project about whether antinuclear antibodies (ANA) can be predictive of disease.
[u]Lay summary[/u]
[i]Patients with rare diseases frequently describe a long path to diagnosis. ANA-associated diseases are
Hi everyone, I have received a request from researchers at University of Nottingham for a project about whether antinuclear antibodies (ANA) can be predictive of disease.
[u]Lay summary[/u]
[i]Patients with rare diseases frequently describe a long path to diagnosis. ANA-associated diseases are
Paul_Howard
LUPUS UK
in
LUPUS UK
3 years ago
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CD38 In CLL
Went for my annual checkup yesterday, WBC at 19.1 from 15.1 last year. Not enough WBC to know if mutated or not. The doctor did confirm I'm don't have 17p but I do have CD38.. according to Goggle I may see God sooner! What's the deal?
Went for my annual checkup yesterday, WBC at 19.1 from 15.1 last year. Not enough WBC to know if mutated or not. The doctor did confirm I'm don't have 17p but I do have CD38.. according to Goggle I may see God sooner! What's the deal?
Laura3mini
in
CLL Support
3 years ago
My husband hasCKD. I’m so scared
Hello everyone! I’m really scared for my husbands life. He is 45 years old and his primary has just diagnosed him with CKD. He has GFR of 70. Doctor really scared us by telling us that at his age he would properly require Dialysis and a kidney transplant. We have an appointment to see a specialist
Hello everyone! I’m really scared for my husbands life. He is 45 years old and his primary has just diagnosed him with CKD. He has GFR of 70. Doctor really scared us by telling us that at his age he would properly require Dialysis and a kidney transplant. We have an appointment to see a specialist
Dianamillo
in
Early CKD Support
3 years ago
Treatment option with del 17 positive but IGHV mutated
I am CLL since 2003 on wait and watch. Now my count has increased to 80000 and platlets fallen to 1 Lakhs. RBC is normal.My spleen is 16.5 cms My FISH report indicates del17 positive but IGHV is mutated. Is my CLL agressive and needs special treatment especially because I am del17 positive . But IGHV
I am CLL since 2003 on wait and watch. Now my count has increased to 80000 and platlets fallen to 1 Lakhs. RBC is normal.My spleen is 16.5 cms My FISH report indicates del17 positive but IGHV is mutated. Is my CLL agressive and needs special treatment especially because I am del17 positive . But IGHV
Ashwas
in
CLL Support
3 years ago
Inhibition of Epstein-Barr virus reactivation in nasopharyngeal carcinoma cells by dietary sulforaphane 2013
EBV is a very common latent virus (up to 95% prevalence) and has been linked to autoimmune diseases and inflammation. PD may be an autoimmune disease. Seeing what things tamper down EBV. Inhibition of Epstein-Barr virus reactivation in nasopharyngeal carcinoma cells by dietary sulforaphane 2013 https
EBV is a very common latent virus (up to 95% prevalence) and has been linked to autoimmune diseases and inflammation. PD may be an autoimmune disease. Seeing what things tamper down EBV. Inhibition of Epstein-Barr virus reactivation in nasopharyngeal carcinoma cells by dietary sulforaphane 2013 https
Bolt_Upright
in
Cure Parkinson's
3 years ago
UK National COVID cancer test survey - Any results
Hi. I have just had a negative antibody test result after taking the National COVID cancer survey test. Obviously disappointed after having the 3rd dose of the Pfizer vaccine on the 2 Oct. Not sure if it makes a difference to me only waiting 17 day between the Jab and the test, perhaps I should have
Hi. I have just had a negative antibody test result after taking the National COVID cancer survey test. Obviously disappointed after having the 3rd dose of the Pfizer vaccine on the 2 Oct. Not sure if it makes a difference to me only waiting 17 day between the Jab and the test, perhaps I should have
Strech51
in
CLL Support
3 years ago
Rambler 64
Hi. I'm have CKD stage 4, possibly 5. My gfr is 13. I'm on the national renal transplant list for a donated kidney. I have opted for peritoneal dialysis when it gets to gfr 9. I get restless legs in bed & sometimes when I'm sitting watching the TV at night. I've put some weights on my legs at night which
Hi. I'm have CKD stage 4, possibly 5. My gfr is 13. I'm on the national renal transplant list for a donated kidney. I have opted for peritoneal dialysis when it gets to gfr 9. I get restless legs in bed & sometimes when I'm sitting watching the TV at night. I've put some weights on my legs at night which
Rambler64
in
Restless Legs Syndrome
3 years ago
Intense exercise
I have early stage CLL diagnosed about a year ago. I am a regular marathon runner and just a week ago ran my first 50 mile run. My hematologist told me not to change anything I was doing including my ultra running. So far I don’t think I have had any adverse effects from this passion of mine which is
I have early stage CLL diagnosed about a year ago. I am a regular marathon runner and just a week ago ran my first 50 mile run. My hematologist told me not to change anything I was doing including my ultra running. So far I don’t think I have had any adverse effects from this passion of mine which is
celticfan
in
CLL Support
3 years ago
Acalabrutinib Plus Venetoclax and Obinutuzumab Achieves High Bone Marrow uMRD Rate in Chronic Lymphocytic Leukemia - CLL
Great news from this long awaited first published phase 2 study reporting the efficacy of this AVO triplet, which are the most active new drugs approved for patients with CLL. [i]"In patients with chronic lymphocytic leukemia (CLL) and undetectable minimal residual disease (MRD) in the bone marrow,
Great news from this long awaited first published phase 2 study reporting the efficacy of this AVO triplet, which are the most active new drugs approved for patients with CLL. [i]"In patients with chronic lymphocytic leukemia (CLL) and undetectable minimal residual disease (MRD) in the bone marrow,
AussieNeil
Partner
in
CLL Support
3 years ago
Waiting for diagnosis
Hello I'm 61 and haven't yet been diagnosed with CLL although my GP has suggested I have it. I'm waiting for my haematology appointment but have been triaged as on the 12 week list. That's all very well for them to say - they don't have to lie awake thinking about whether or not I have a blood cancer
Hello I'm 61 and haven't yet been diagnosed with CLL although my GP has suggested I have it. I'm waiting for my haematology appointment but have been triaged as on the 12 week list. That's all very well for them to say - they don't have to lie awake thinking about whether or not I have a blood cancer
Stitcher100
in
CLL Support
3 years ago
Low triiodothyronine levels correlate with high B-type natriuretic peptide levels in patients with heart failure
An association between low T3 and cardiac disorders. They appear to very responsibly avoid unwarranted conclusions - which came first? - but at least the question is being asked. [i] • Open Access • Published: 08 November 2021
Low triiodothyronine levels correlate with high B-type natriuretic
An association between low T3 and cardiac disorders. They appear to very responsibly avoid unwarranted conclusions - which came first? - but at least the question is being asked. [i] • Open Access • Published: 08 November 2021
Low triiodothyronine levels correlate with high B-type natriuretic
helvella
Thyroid UK
in
Thyroid UK
3 years ago
New in Type 1 Diabetes "Monogenic Diabetes"
In today's Daily Mail online, you can read about how " Monogenic Diabetes do produce some insulin. " https://www.dailymail.co.uk/health/article-10171247/Type-1-diabetes-sufferers-ditch-insulin-turns-different-hidden-type.html
In today's Daily Mail online, you can read about how " Monogenic Diabetes do produce some insulin. " https://www.dailymail.co.uk/health/article-10171247/Type-1-diabetes-sufferers-ditch-insulin-turns-different-hidden-type.html
sandybrown
in
Diabetes India
3 years ago
Making sense of IVF in your 40s…
Hi, first time on here and hoping to connect with some of you and your stories. I’m 41, just completed a second round of ICSI which has failed. OTD tomorrow morning but BFNs up until this point. Should say I’ve had a left blocked tube and hydrosalpinx, as well as a polyp removal. My AMH is 6.19 1st
Hi, first time on here and hoping to connect with some of you and your stories. I’m 41, just completed a second round of ICSI which has failed. OTD tomorrow morning but BFNs up until this point. Should say I’ve had a left blocked tube and hydrosalpinx, as well as a polyp removal. My AMH is 6.19 1st
Sabretooth
in
Fertility Network UK
3 years ago
Kid ni Not
My book relating experiences, dialysis, and food choices. Available at Amazon and Barnes and Noble. Kid ni Not Paperback by Dorothy Chang-Van Horn (Author) See all formats and editions Kid ni Not is intended for readers with kidney failure and their relatives. It describes the kidneys' functions
My book relating experiences, dialysis, and food choices. Available at Amazon and Barnes and Noble. Kid ni Not Paperback by Dorothy Chang-Van Horn (Author) See all formats and editions Kid ni Not is intended for readers with kidney failure and their relatives. It describes the kidneys' functions
TuLiChang
in
Kidney Dialysis
3 years ago
Help for those who need a kidney transplant
From a nonprofit organization: www.LKDN.org a Free online program that shows you how others have achieved a successful living kidney transplant experience. Having Your Kidney Donor Find YOU! www.havingyourkidneydonorfindyou.org Information developed by a 2-time kidney transplant recipient.
From a nonprofit organization: www.LKDN.org a Free online program that shows you how others have achieved a successful living kidney transplant experience. Having Your Kidney Donor Find YOU! www.havingyourkidneydonorfindyou.org Information developed by a 2-time kidney transplant recipient.
hmysel
in
Kidney Transplant Patient Support
3 years ago
An unusual, potent antibody to SARS-CoV-2 variants is isolated from a recovered patient
Given time, ongoing mutation of the SARS-COV2 virus is likely to produce a super-lineage, at least as transmissible as the Delta variant and more resistant to current vaccines and monoclonal antibodies aimed at different targets in the receptor binding domain of the spike protein. A variety of candidate
Given time, ongoing mutation of the SARS-COV2 virus is likely to produce a super-lineage, at least as transmissible as the Delta variant and more resistant to current vaccines and monoclonal antibodies aimed at different targets in the receptor binding domain of the spike protein. A variety of candidate
bennevisplace
in
CLL Support
3 years ago
I’m new here…
My husband (66) newly diagnosed with full blown CLL, otherwise good health. Just started on Imbruvica this week.. just trying to learn everything about the journey we are on. Waiting to get the results of the FISH test done a week ago.
My husband (66) newly diagnosed with full blown CLL, otherwise good health. Just started on Imbruvica this week.. just trying to learn everything about the journey we are on. Waiting to get the results of the FISH test done a week ago.
GrannyMyers
in
CLL Support
3 years ago
Some CLL clinical trials insist that patients have multiple CT scans. Every test should have a reason.
Special Article: The Cumulative Risk of Multiple CT Scans on Blood Cancer Patients Enrolled in Clinical Trials by Board member Bob Levis. Some CLL clinical trials insist that patients have multiple CT scans. Every test should have a reason. Patients should ask questions! https://cllsociety.org/2021/09
Special Article: The Cumulative Risk of Multiple CT Scans on Blood Cancer Patients Enrolled in Clinical Trials by Board member Bob Levis. Some CLL clinical trials insist that patients have multiple CT scans. Every test should have a reason. Patients should ask questions! https://cllsociety.org/2021/09
bkoffman
CLL CURE Hero
in
CLL Support
3 years ago
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