Search
Search
About
Log in
Join
Experiences with
Colonic polyps
Posts
Communities
2,351 public posts
Filter results
IGVH Unmutated and Stereotypes
I have a question that I am going to ask my CLL doctor when I see him, but I am wondering if anyone can answer. I am IGVH unmutated, which I understand is correlated with an aggressive disease. Is that true for everyone who unmutated? Or are there some sub-set of unmutated who belong to selected VH
I have a question that I am going to ask my CLL doctor when I see him, but I am wondering if anyone can answer. I am IGVH unmutated, which I understand is correlated with an aggressive disease. Is that true for everyone who unmutated? Or are there some sub-set of unmutated who belong to selected VH
DaleFL
in
CLL Support
7 years ago
Dilemma
Hi after my liver transplant nearly two years which was combined with a kidney transplant (luckily my liver transplant is good but the kidney failed. ) Now I am faced with the choice of staying on dialysis or going for another kidney there are advantages and disadvantages 1 ) I would like to come off
Hi after my liver transplant nearly two years which was combined with a kidney transplant (luckily my liver transplant is good but the kidney failed. ) Now I am faced with the choice of staying on dialysis or going for another kidney there are advantages and disadvantages 1 ) I would like to come off
Elouise444
in
British Liver Trust
7 years ago
Feeling unsure
Hello! So I am new to this site, and forum, so hoping I'm doing this right! I have had painful periods since I started in my early teens, but they have got worse as the years have gone on. When I was at high school, I could still go in and do my lessons, although I'd feel sore and under the weather
Hello! So I am new to this site, and forum, so hoping I'm doing this right! I have had painful periods since I started in my early teens, but they have got worse as the years have gone on. When I was at high school, I could still go in and do my lessons, although I'd feel sore and under the weather
northernsoul96
in
Endometriosis UK
7 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Large Polyp - Any idea on waiting times for removal? What are your experiences?
Hi all, I am 37 and I have a long term history of pelvic & liver/diaphragm endo. I have had various surgeries & still have some endometriomas and adenomyosis. I have been trying to get pregnant for the last 3 years & have had various surgeries and 3 miscarriages so far - the last one at the beginning
Hi all, I am 37 and I have a long term history of pelvic & liver/diaphragm endo. I have had various surgeries & still have some endometriomas and adenomyosis. I have been trying to get pregnant for the last 3 years & have had various surgeries and 3 miscarriages so far - the last one at the beginning
beckygrim
in
Endometriosis UK
7 years ago
Leukaemia conference North East England . feedback
Hi everyone, just a bit of feedback from a leukaemia conference i attended yesterday in the North East of England. The conference covered many leukaemia's including cll. It was very well attended and informative. A historical overview of the development of treatments over the years in particular the
Hi everyone, just a bit of feedback from a leukaemia conference i attended yesterday in the North East of England. The conference covered many leukaemia's including cll. It was very well attended and informative. A historical overview of the development of treatments over the years in particular the
annmcgowan
in
CLL Support
7 years ago
Dad has stage 5 CKD
My Dad has chronic nephritis and now he is down to only 14% function which puts him at stage 5 :( The Dr is not suggesting dialysis, my dad is 86 and has not really asked why it's not being offered. I am looking at diet etc and any supplements that might help him but everything I read online seems to
My Dad has chronic nephritis and now he is down to only 14% function which puts him at stage 5 :( The Dr is not suggesting dialysis, my dad is 86 and has not really asked why it's not being offered. I am looking at diet etc and any supplements that might help him but everything I read online seems to
HeatherBatch
in
Early CKD Support
7 years ago
Won't tell me anything
Hi my name is Robin first time on here just trying to find answers I had Blood work done at beginning of month and have to wait until October my primary care won't tell me anything says have to wait and see what the hemotaligist says REALLY I have so much anxiety don't need to wait this is what the pathologist
Hi my name is Robin first time on here just trying to find answers I had Blood work done at beginning of month and have to wait until October my primary care won't tell me anything says have to wait and see what the hemotaligist says REALLY I have so much anxiety don't need to wait this is what the pathologist
robinwhipps
in
CLL Support
7 years ago
Misrable life after 07 years of gall bladder surgery
Hello Every one, i am 31 year old male i removed my gall bladder in 2010 because of gall bladder polyps-----actually polyp is to small but i read on internet the risk of cancer thats why i take a decission of surgery though my doc suggests follow up-----after gall bladder surgery they send my gallbladder
Hello Every one, i am 31 year old male i removed my gall bladder in 2010 because of gall bladder polyps-----actually polyp is to small but i read on internet the risk of cancer thats why i take a decission of surgery though my doc suggests follow up-----after gall bladder surgery they send my gallbladder
Hanachan
in
Anxiety Support
7 years ago
Caffeine and Bronchiectasis
I gave up caffeine two weeks ago, just a whim, not for any particular reason. Had headaches for a week. The plus side is, since then my phlegm has been significantly reduced. Not sure how long it will last but I'm enjoying it while it does. I wasn't aware that caffeine caused phlegm until I googled
I gave up caffeine two weeks ago, just a whim, not for any particular reason. Had headaches for a week. The plus side is, since then my phlegm has been significantly reduced. Not sure how long it will last but I'm enjoying it while it does. I wasn't aware that caffeine caused phlegm until I googled
Fuzzy12
in
Lung Conditions Community Forum
7 years ago
Confused about fluid restriction
Hi all hope you are all doing well My gfr is 7% and not on dialysis but have my fistula ready for action. For the last 15months I've been on fluid restriction of 1000mls and 160mg of diuretic. All was going well until the last 10 weeks and all I seem to do is gain fluid. Saw my consultant Wednesday and
Hi all hope you are all doing well My gfr is 7% and not on dialysis but have my fistula ready for action. For the last 15months I've been on fluid restriction of 1000mls and 160mg of diuretic. All was going well until the last 10 weeks and all I seem to do is gain fluid. Saw my consultant Wednesday and
Charlene_Coxhead
in
Dialysis Support
7 years ago
Labs back on my progressing cll ...thoughts.
Ive been concerned my cll is transforming into Richter's. I just got back two lab numbers. LDH is normal at 134 (87-241 normal) Uric acid is elevated at 7.6 (3.5 to 7.2) Can I infer anything based upon my richters concerns ?
Ive been concerned my cll is transforming into Richter's. I just got back two lab numbers. LDH is normal at 134 (87-241 normal) Uric acid is elevated at 7.6 (3.5 to 7.2) Can I infer anything based upon my richters concerns ?
Todd52
in
CLL Support
7 years ago
PRIZES & CATEGORIES, Saturday 16th Sept, 'SPOT LEUKAEMIA', FREE dog show, picnic and dog walk
Calling all animal lovers! Just come along and Join us if you can, have a little fun and raise awareness of leukaemia during Blood Cancer Awareness Month. Don't have a dog? Not a problem! just come along & dress spotty, Bring a picnic and suitable clothing if also walking.
Saturday 16th September
Calling all animal lovers! Just come along and Join us if you can, have a little fun and raise awareness of leukaemia during Blood Cancer Awareness Month. Don't have a dog? Not a problem! just come along & dress spotty, Bring a picnic and suitable clothing if also walking.
Saturday 16th September
HAIRBEAR_UK
Administrator
in
CLL Support
7 years ago
Cardiff Support Group Visit Research Labs.
Hi friends. It is with great personal pleasure, I report (second hand) on yesterdays visit to the University Hospital of Wales research labs in Cardiff. During 2016 this support group was established by Professor Chris Fegan, CLLSA and Leukaemia CARE,, to support those living in South Wales who are
Hi friends. It is with great personal pleasure, I report (second hand) on yesterdays visit to the University Hospital of Wales research labs in Cardiff. During 2016 this support group was established by Professor Chris Fegan, CLLSA and Leukaemia CARE,, to support those living in South Wales who are
HAIRBEAR_UK
Administrator
in
CLL Support
7 years ago
Diarrhea
Hello, It's been more than 2 years since transplant. Last 3-4 months I've had diarrhea. Is it happening to anyone here? I'm taking prograf 3mg everyday and I'm feeling perfect overall
Hello, It's been more than 2 years since transplant. Last 3-4 months I've had diarrhea. Is it happening to anyone here? I'm taking prograf 3mg everyday and I'm feeling perfect overall
monmex
in
British Liver Trust
7 years ago
Wondering about Social Life in HD Centers
Hi All! I am 64-year-old man with a long history of dealing with CKD and dialysis. I started doing peritoneal dialysis in 2005 and continued until I got a transplant in 2009. I think I was probably lucky that I didn't have to wait longer. My kidney has been holding up, but my eGFR has been hanging around
Hi All! I am 64-year-old man with a long history of dealing with CKD and dialysis. I started doing peritoneal dialysis in 2005 and continued until I got a transplant in 2009. I think I was probably lucky that I didn't have to wait longer. My kidney has been holding up, but my eGFR has been hanging around
lincoln53
in
Dialysis Support
7 years ago
Unmutated CLL and MRD-
Hi all - I was just posting this question on the CLL Group for Younger Aged People on Facebook, and I thought I would post it here as well. When you were diagnosed with CLL, were you mutated or unmutated? If you were unmutated and received treatment, did you achieve MRD-? If so, have you relapsed? How
Hi all - I was just posting this question on the CLL Group for Younger Aged People on Facebook, and I thought I would post it here as well. When you were diagnosed with CLL, were you mutated or unmutated? If you were unmutated and received treatment, did you achieve MRD-? If so, have you relapsed? How
dsspivak2018
in
CLL Support
7 years ago
Duvelisib Drug Succeeds in Late-Stage Trial
I subscribe to Newsmax Health, and this was just released. I've seen this 'in trial' drug mentioned recently for CLL, and this looks like a promising new drug option. The manufacturer is going to submit the drug next year for approval. Here is a paragraph from the writeup: "Verastem's drug, Duvelisib
I subscribe to Newsmax Health, and this was just released. I've seen this 'in trial' drug mentioned recently for CLL, and this looks like a promising new drug option. The manufacturer is going to submit the drug next year for approval. Here is a paragraph from the writeup: "Verastem's drug, Duvelisib
crystalsky
in
CLL Support
7 years ago
UPDATE ON: Help! 31yr old newly diagnosed CLL.
UPDATE: hi everyone.... Just wanted to post an update on my brother and say thank you to everyone for all the info.... Really helped us have intelligent and productive conversations with our new doctor at Yale today. We saw the new doc. He was amazing. We spent 2+hrs explaining everything anyone ever
UPDATE: hi everyone.... Just wanted to post an update on my brother and say thank you to everyone for all the info.... Really helped us have intelligent and productive conversations with our new doctor at Yale today. We saw the new doc. He was amazing. We spent 2+hrs explaining everything anyone ever
Jade263
in
CLL Support
7 years ago
Verastem, with Phase 3 Results, to Request FDA Approve Oral Duvelisib to Treat Advanced CLL and SLL
Verastem’s duvelisib was seen to outperform Arzerra (ofatumumab) in a Phase 3 trial of patients with relapsed or refractory chronic lymphocytic leukemia (CLL) or small lymphocytic lymphoma (SLL), the company announced. The oral therapy nearly halved the risk of disease progression or death, and held
Verastem’s duvelisib was seen to outperform Arzerra (ofatumumab) in a Phase 3 trial of patients with relapsed or refractory chronic lymphocytic leukemia (CLL) or small lymphocytic lymphoma (SLL), the company announced. The oral therapy nearly halved the risk of disease progression or death, and held
wmay13241
in
CLL Support
7 years ago
chlorambucil + obinutuzumba
I am 68 and untreated and been on W&W for 5 years. I have an enlarged lymph node on neck and one smaller to side of face. They don't hurt but are bothersome. My doctor has recommended chlorambucil and obinutuzumba as treatment for 6 months. Has anyone had experience with this combination? Also considering
I am 68 and untreated and been on W&W for 5 years. I have an enlarged lymph node on neck and one smaller to side of face. They don't hurt but are bothersome. My doctor has recommended chlorambucil and obinutuzumba as treatment for 6 months. Has anyone had experience with this combination? Also considering
eoravillo
in
CLL Support
7 years ago
1
...
67
68
69
...
100
Next page
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
CLL Support
1441 results
Lung Conditions Community Forum
217 results
Diabetes India
81 results
View top 10 communities
Sort by
Most Relevant
Newest