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5+4 weeks with tested embryo and good HCG results but terrified for viability scan
Hi all, I'm newly pregnant (currently 5.4 weeks). I've had two good HCG blood test results, the first was >700 at 12dp6dt and the second was >1800 at 14dpt. My clinic says these are good numbers and don't recommend I test again, but I'm already struggling with the wait for the viability scan. I'm terrified
Hi all, I'm newly pregnant (currently 5.4 weeks). I've had two good HCG blood test results, the first was >700 at 12dp6dt and the second was >1800 at 14dpt. My clinic says these are good numbers and don't recommend I test again, but I'm already struggling with the wait for the viability scan. I'm terrified
Mudra85
in
Fertility Network UK - Pregnancy Support
2 years ago
Recently diagnosed with Primary Myelofibrosis
Up until I caught Covid at the beginning of June 2022 I was fit, healthy and pretty active, always outdoors doing something like playing golf two or three times a week. I never really recovered from Covid although tested negative after two weeks. Since that time, I became more and more out of breath
Up until I caught Covid at the beginning of June 2022 I was fit, healthy and pretty active, always outdoors doing something like playing golf two or three times a week. I never really recovered from Covid although tested negative after two weeks. Since that time, I became more and more out of breath
Flyingsteamer
in
MPN Voice
2 years ago
Collagen
Good Day All I am 80 years old and have been on W & W for 5 years. I am considering taking a collagen supplement for joint pain in my knee. Does anyone know of reason I shouldn't take collagen with CLL. Thanks very much.
Good Day All I am 80 years old and have been on W & W for 5 years. I am considering taking a collagen supplement for joint pain in my knee. Does anyone know of reason I shouldn't take collagen with CLL. Thanks very much.
Buttons42
in
CLL Support
2 years ago
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6 weeks pregnancy with abnormal vaginal bleeding
Hello everyone, So I rushed to the ER yesterday morning wednsday march 15th 2023 as my bleeding got worse i had sudden bleeding as they call it , and I had some more bleeding today, My hcg level was at a 4,000 no definite pregnancy was detected๐๐they also said my uterine lining had thickened ?
Hello everyone, So I rushed to the ER yesterday morning wednsday march 15th 2023 as my bleeding got worse i had sudden bleeding as they call it , and I had some more bleeding today, My hcg level was at a 4,000 no definite pregnancy was detected๐๐they also said my uterine lining had thickened ?
Bvegaa17
in
Pregnancy and Parenting Support
2 years ago
Evosheld
I joined the Evosheld UK Facebook page where there is a strong campaign for the government to authorise Evusheld. We were asked to write to our MPs and ask for the question to raised on the House of Commons. I have written several letters to my MP and generally get a stock reply. Here is the latest
I joined the Evosheld UK Facebook page where there is a strong campaign for the government to authorise Evusheld. We were asked to write to our MPs and ask for the question to raised on the House of Commons. I have written several letters to my MP and generally get a stock reply. Here is the latest
kitchengardener2
in
CLL Support
2 years ago
CLL highly correlated to other cancers?
My husband has MBL - I understand this as stage 0 CLL. He is asymptomatic and well. His iron/ ferritin suddenly dropped and a small bowel malignant tumour was diagnosed and successfully removed. The Haematologist who manages the CLL commented that itโs unsurprising that he developed a secondary cancer
My husband has MBL - I understand this as stage 0 CLL. He is asymptomatic and well. His iron/ ferritin suddenly dropped and a small bowel malignant tumour was diagnosed and successfully removed. The Haematologist who manages the CLL commented that itโs unsurprising that he developed a secondary cancer
NixRose
in
CLL Support
2 years ago
Relapse Worries? Help, Please!
Hi everyone, I started treatment (V + O) in January 2020; a year later, I was done, and had a flow blood result of "no detectable abnormalities" or whatever. Yay! Today, however, I got the results of another flow blood test, 20 months after treatment ended, and it says "the immunophenotype of these
Hi everyone, I started treatment (V + O) in January 2020; a year later, I was done, and had a flow blood result of "no detectable abnormalities" or whatever. Yay! Today, however, I got the results of another flow blood test, 20 months after treatment ended, and it says "the immunophenotype of these
DRM18
in
CLL Support
2 years ago
Withdrawal from Jakafi
I've been on Jakafi for about two months now, and I'm afraid that it doesn't seem to be working out for me. For the first six weeks, everything looked good: WBC and PLT in normal range and stable, RBC, HCT and HGB steadily declining but still only slightly less than normal. Because of the decline,
I've been on Jakafi for about two months now, and I'm afraid that it doesn't seem to be working out for me. For the first six weeks, everything looked good: WBC and PLT in normal range and stable, RBC, HCT and HGB steadily declining but still only slightly less than normal. Because of the decline,
sbs_patient
in
MPN Voice
2 years ago
Late ovulation on Letrozole/Femara?
Hi all, I did a medicated cycle last months (5 days of letrozole + HCG trigger + progesterone pessaries for luteal phase). By day 14 I was experiencing usual ovulation signs and the follicle was large enough, so I was triggered day 14. This cycle i'm away so I am unmonitored. It's day 14 and i've
Hi all, I did a medicated cycle last months (5 days of letrozole + HCG trigger + progesterone pessaries for luteal phase). By day 14 I was experiencing usual ovulation signs and the follicle was large enough, so I was triggered day 14. This cycle i'm away so I am unmonitored. It's day 14 and i've
CarlottaD27
in
Fertility Network UK
2 years ago
Fed Up with everything.
I have been on haemodialysis since May. Having completed all the tests etc at the beginning of November, I was just waiting to go live in the transplant list. My previous consultant, who is now on maternity leave, said my results were good and she even said, I would probably receive a new kidney before
I have been on haemodialysis since May. Having completed all the tests etc at the beginning of November, I was just waiting to go live in the transplant list. My previous consultant, who is now on maternity leave, said my results were good and she even said, I would probably receive a new kidney before
Ziggydoodah
in
Kidney Dialysis
2 years ago
Negative home pregnancy test/ HCG test tomorrow is it all over?
Hi, Ladies. I hope you are all doing ok. ๐๐๐๐ธ๐ธ๐ธ๐ธ๐ธ๐๐๐๐๐๐๐ I have just had my two embryos (day five blastocysts) fet on March 3rd 2023.ย So here it goes. I had implantation bleeding on day 5, took a pregnancy test, and it showed faint line (positive) doctor told me to check progesterone
Hi, Ladies. I hope you are all doing ok. ๐๐๐๐ธ๐ธ๐ธ๐ธ๐ธ๐๐๐๐๐๐๐ I have just had my two embryos (day five blastocysts) fet on March 3rd 2023.ย So here it goes. I had implantation bleeding on day 5, took a pregnancy test, and it showed faint line (positive) doctor told me to check progesterone
Storm4
in
Fertility Network UK
2 years ago
Looks like itโs all over ๐ข
Second FET, positive test on OTD but not looking good, I should be 6 weeks + 2, after 2 days of spotting and mild cramps went to EPU yesterday to say they canโt seeing anything. Blood tests show HCG levels are very low and no where near what they should be. Another blood is scheduled for tomorrow but
Second FET, positive test on OTD but not looking good, I should be 6 weeks + 2, after 2 days of spotting and mild cramps went to EPU yesterday to say they canโt seeing anything. Blood tests show HCG levels are very low and no where near what they should be. Another blood is scheduled for tomorrow but
Bonita928
in
Fertility Network UK
2 years ago
Second opinion
Hi,I suffer from polycythaemia vera and have done so for the last 7 years. I am on hydroxycarbamide, which they have kept increasing the dosage, but it is failing to keep my platelet levels etc in check. The consultant wants to give me a bone marrow biopsy and change my medication, but I would like a
Hi,I suffer from polycythaemia vera and have done so for the last 7 years. I am on hydroxycarbamide, which they have kept increasing the dosage, but it is failing to keep my platelet levels etc in check. The consultant wants to give me a bone marrow biopsy and change my medication, but I would like a
Georgehb
in
MPN Voice
2 years ago
9 month Besremi update
Hi All, Latest test results showed that I need a phlebotomy: My HCT was 44.5 and though I'm slightly increasing my Besremi dose (now at 160ish), it hasn't kept the HCT under my target of 42. I went ahead and got a phlebotomy this past weekend--the full amount of 500ml. the previous one I had was
Hi All, Latest test results showed that I need a phlebotomy: My HCT was 44.5 and though I'm slightly increasing my Besremi dose (now at 160ish), it hasn't kept the HCT under my target of 42. I went ahead and got a phlebotomy this past weekend--the full amount of 500ml. the previous one I had was
Elizka
in
MPN Voice
2 years ago
Monoclonal antibodies vs. Paxlovid
I recently recovered from Covid-19 after taking Paxlovid. I was diagnosed with CLL in 2009 and began treatment with Ibrutinib in early December 2020. I also received the full recommended doses of Evusheld since antibody tests showed I had an inadequate response to the vaccine. My case of Covid was
I recently recovered from Covid-19 after taking Paxlovid. I was diagnosed with CLL in 2009 and began treatment with Ibrutinib in early December 2020. I also received the full recommended doses of Evusheld since antibody tests showed I had an inadequate response to the vaccine. My case of Covid was
AVD92449
in
CLL Support
2 years ago
Testing just before OTD
Hello ladies, me again. The I want to desperately test early person ๐ I have never had an hcg shot before 2ww so need your experience. If I test just say the night before OTD, would the test result be quite accurate? Especially if the line goes really dark? My OTD is on day 13, by then the line should
Hello ladies, me again. The I want to desperately test early person ๐ I have never had an hcg shot before 2ww so need your experience. If I test just say the night before OTD, would the test result be quite accurate? Especially if the line goes really dark? My OTD is on day 13, by then the line should
pink_lemon
in
Fertility Network UK
2 years ago
New Diagnosis :what does all this blood work mean?
I was recently diagnosed with CLL. My hematologist/oncologist ran the standard tests and this is some of the info I see: No Jak2 17 mutation detected, No 9 mutation detected, No 12 mutation detected, No 10 mutation detected, No 14/17 Mutation detected A negative FISH for BCR-ABLI fusion. 2 weeks
I was recently diagnosed with CLL. My hematologist/oncologist ran the standard tests and this is some of the info I see: No Jak2 17 mutation detected, No 9 mutation detected, No 12 mutation detected, No 10 mutation detected, No 14/17 Mutation detected A negative FISH for BCR-ABLI fusion. 2 weeks
Adante
in
CLL Support
2 years ago
Ruxolitinib and urinary tract infections
I've been on Jakafi for a couple of months and am starting to see indications of a possible bladder infection. I understand that UTIs are a reported side effect of this medication. I found a posting on this topic from a few years ago and was wondering if anyone else has been having this problem.
I've been on Jakafi for a couple of months and am starting to see indications of a possible bladder infection. I understand that UTIs are a reported side effect of this medication. I found a posting on this topic from a few years ago and was wondering if anyone else has been having this problem.
sbs_patient
in
MPN Voice
2 years ago
Covid vaccines , boosters and shingles
I am feeling better after 4 weekly infusions of Gazyva and 2 blood transfusions 1 week apart .... it was a sunny day here in southern oregon .. and my wife and i had a nice bike ride with our 2 dogs .. i would like some of you researchers to let me know if this article applies to us CLL patience .
I am feeling better after 4 weekly infusions of Gazyva and 2 blood transfusions 1 week apart .... it was a sunny day here in southern oregon .. and my wife and i had a nice bike ride with our 2 dogs .. i would like some of you researchers to let me know if this article applies to us CLL patience .
craterlake
in
CLL Support
2 years ago
World CLL Day / Blood Cancer Awareness Month
CLL Support is marking Blood Cancer Awareness Month in September with an initiative that underpins ourย โYou Can Live Well with CLLโ message.ย This is not simply a convenient phrase that rhymes but seeks to demonstrate and empower our members to endeavour to make the best of their diagnosis, treatment
CLL Support is marking Blood Cancer Awareness Month in September with an initiative that underpins ourย โYou Can Live Well with CLLโ message.ย This is not simply a convenient phrase that rhymes but seeks to demonstrate and empower our members to endeavour to make the best of their diagnosis, treatment
Mild-Rover
in
CLL Support
2 years ago
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