Experiences with

Chronic leukaemia

On 6 January 2025, the journal [i]BJ Haem[/i] published a review article titled [i]Management strategies for patients with lymphocytic leukaemia harbouring complex karyotype[/i] written by a team from Padua, Italy.

hi all a bit of a random question here I suppose My mother in law has chronic leukaemia (diagnosed 5 years ago) and wanting to go the all natural route, what would be the prognosis with no treatment?

I was wondering if others had experienced a slow increase in lymphocyte count in the years following V&O therapy? I’m worried the CLL is slowly relapsing, but my haematologist says I shouldn’t worry and that it may be due to slow recovery of the lymphocytes after treatment. I don’t have any new symptoms

I’ve had CLL for nine years. I was treated (O&V) a couple of years ago, and my numbers are great! Unfortunately, I developed a secondary cancer this past March. I had emergency surgery for a mass removal in my small intestine. I’m wondering if anyone else has Neuroendocrine Tumors (NET)? I’ve been told

Hi all i currently take supplements D3 &k2 ,vitamin C and B12.am considering taking Echinacea for immune system and turkesterone to help beef meback up . I have cll and currently on watch and wait. Any advice greatly appreciated.

i am a relapsed CLL patient , just diagnosed , live in India, had chemo therapy in 2018 with Bendamustine and ritixamab of 6 cycles. . what are the criteria for staring treatment ? is it good to start at an early stage of relapse of CLL ? Is oral medication good as i am aged 80 years. Please help

Does any one have an AFLAC Cancer Insurance policy? It is supposed to leukemia but treatments have evolved since I got the initial policy. It says it covers Leukemias but the info seems to focus more on tumors vs blood cancer.It includes a 1st Occurance Benefit. I'm not sure as a person with CLL at Stage

This just made my day. We are on the cusp of serious changes in how cancer is treated and managed. Lots of trials will be coming once funding is made available. This is about solid tumors, not CLL, but given the threat of secondary cancers (which I admit without torture that they do worry me), I thought

Rocbrutinib is a new drug offering hope to patients with what are known as gatekeeper mutations that confer resistance to Pirtobrutinib. This BTKi is unique in being both a covalent and non covalent inhibitor of BTK. Patients with gatekeeper mutations have poor outcomes and short survival and demonstrate

I was just diagnosed with Stage 0 CLL. I'm in the "Watch & Worry" stage - my dad died of complications from CLL in 1999; if I didnt know what he went through, I probably wouldnt be so stressed over this. I know treatments have really advanced since then. The Hematologist who ordered my Flow test is

Hi All, my journey continues and things are going well besides the infections and so on. Finished Obinituzumab some months ago and now i have four more months of Venetoclax ahead. The problem is that due to antibiotics (almost one or two every month) and maybe Venetoclax i started suffering from hepatotoxicity

hello. I'm new to all this. I had CLL with anemia, neutropenia and felt like death but no night sweats at age 42. then it went into remission, asymptomatic, normal blood counts. has anyone had this happen and then have it come back? Were there any lingering symptoms in between? How does it exhibit

Pirtobrutinib is the first FDA approved non-covalent BTK inhibitor (BTKi) for the treatment of CLL. The previously approved BTKi drugs (acalabrutinib, ibrutinib and zanubrutinib) bond covalently. Eventually, these drugs can stop inhibiting CLL, when DNA changes in the BTK enzyme prevent the BTKi from

[i]For those of us trying to keep up with or in need of an update on the many CLL treatment developments of the past year, this MedPage Today summary is an excellent resource to do so. It has numerous links to the various developments noted within the article, so use the link to the full article at the

the CLL listserv that I participated in has just announced. They were disbanding. This group was recommended by one of their members. I look forward to learning from all of you. I was diagnosed with CLL in 2020; had rituximab and now I am on avatrombopag for ITP. Val

Acalabrutinib plus obinutuzumab had a 100 percent response rate at 14 months and a deep reduction of disease in the bone marrow in treatment-naive CLL. Limited-duration combination therapies are starting to reshape how chronic lymphocytic leukemia (CLL) will be treated, but which combination is best

Hi All An update to what I would have described as a failed Stem Cell Transplant has actually been a part success- I don’t seem to have any sign of CLL but instead I am back to SLL status which is what I was initially diagnosed with 10 years ago. The scans post transplant show enlarged nodes but bloods

In the past ten years, there has been a shift away from treating CLL/SLL with chemoimmunotherapy to treating it with more targeted therapies. To support practitioners in real world settings in the US, the Leukemia Research Foundation convened a panel of CLL/SLL specialists to write a consensus statement

Finished the 6 treatment last week for CLL/ AIHA and had the PICC line took out today after the blood tested done . I don't see the doctor until the new year, unless something shows up in the blood tests. The GP ask to see me last month, to go through all hospital reports and scans I had back in