Search
Search
About
Log in
Join
Experiences with
Chronic leukaemia
Posts
Communities
5,550 public posts
Filter results
Clearblue digital....
Hello, Does anyone here have experience with the clearblue digital? I am 6dp5dt, and it is showing 1-2 weeks, but because i have had 2 chemicals, i am worried this is just another one. I am regretting doing a urine test , my hcg blood test is on Wednesday.
Hello, Does anyone here have experience with the clearblue digital? I am 6dp5dt, and it is showing 1-2 weeks, but because i have had 2 chemicals, i am worried this is just another one. I am regretting doing a urine test , my hcg blood test is on Wednesday.
Leii9
in
Fertility Network UK
1 year ago
is HCG monitoring needed ?
hello I had a positive pregnancy test yesterday (from euploid frozen embryo transfer by embryo donor) and an initial HCG test with a level of 410 which the nurse said is very good. I am now unclear about whether I need to keep monitoring HCG levels like most of my friends did when they went through ivf
hello I had a positive pregnancy test yesterday (from euploid frozen embryo transfer by embryo donor) and an initial HCG test with a level of 410 which the nurse said is very good. I am now unclear about whether I need to keep monitoring HCG levels like most of my friends did when they went through ivf
Linzeeee
in
Fertility Network UK
1 year ago
Switching to home hemodialysis
I have been on peritoneal dialysis using a cycler, which has been wonderful, for two years. Unfortunately my clearance has been falling over the last four months and treatment increase in the amount of dextrose has caused me to gain nearly 30 lb. My clinic has me scheduled to begin training for home
I have been on peritoneal dialysis using a cycler, which has been wonderful, for two years. Unfortunately my clearance has been falling over the last four months and treatment increase in the amount of dextrose has caused me to gain nearly 30 lb. My clinic has me scheduled to begin training for home
platypusak
in
Kidney Dialysis
1 year ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
EXTREME bone pain with Neupogen injections, advise welcome!
Has anyone experienced extreme pain with Neupogen GCSF injections? My husband has received 2 out of 4 injections and is in agonizing bone pain. His specialist recommended a hot bath, Claritin, and Tylenol. I also have a heating pad on his back. Just wondering how long this will last and how he is going
Has anyone experienced extreme pain with Neupogen GCSF injections? My husband has received 2 out of 4 injections and is in agonizing bone pain. His specialist recommended a hot bath, Claritin, and Tylenol. I also have a heating pad on his back. Just wondering how long this will last and how he is going
lisakc1
in
CLL Support
2 years ago
Elevated creatinine from tacrolimus?
I am 19 months out from my kidney transplant from a deceased donor. Was doing well and my creatinine was actually within the normal range at about a year post transplant. However, since then my creatinine has been creeping up and now is 1.74. Have tried lowering my protein intake, and more hydration
I am 19 months out from my kidney transplant from a deceased donor. Was doing well and my creatinine was actually within the normal range at about a year post transplant. However, since then my creatinine has been creeping up and now is 1.74. Have tried lowering my protein intake, and more hydration
Hawk12
in
Kidney Transplant Patient Support
1 year ago
ALC is still going up
Well, today I had another CBC. My ALC continues to go up consistently at each 2 week check and I will be seeing my onco at the beginning of Feb. In addition to the rising alc, test shows a few other little changes that i don't fully understand -- my MCV is now reading high (99.50) and my MCHC is low
Well, today I had another CBC. My ALC continues to go up consistently at each 2 week check and I will be seeing my onco at the beginning of Feb. In addition to the rising alc, test shows a few other little changes that i don't fully understand -- my MCV is now reading high (99.50) and my MCHC is low
Moonmyst
in
CLL Support
2 years ago
Any motivation; This cycle seems long and tiring compare to my first (IVF) and seconday cycle(ICSI).
Hello Ladies, I am not really someone that post but everyone's journey has serve as motivation for me. I am currently undergoing my second ICSI protocol and Thursday is my egg retrieval. This cycle seems long and tiring compare to my first (IVF) and seconday cycle(ICSI). I am repetiting my third cycle
Hello Ladies, I am not really someone that post but everyone's journey has serve as motivation for me. I am currently undergoing my second ICSI protocol and Thursday is my egg retrieval. This cycle seems long and tiring compare to my first (IVF) and seconday cycle(ICSI). I am repetiting my third cycle
Fauzytt
in
Fertility Network UK
1 year ago
Exercise is the fountain of youth
I always loved the natural high that exercise brings but I never really knew how totally therapeutic it is. I was always the Captain in Team Sports growing up & just generally active. Things slowed down during college & never got added to my ‘adult’ life of creating a career & family. Anyway, after
I always loved the natural high that exercise brings but I never really knew how totally therapeutic it is. I was always the Captain in Team Sports growing up & just generally active. Things slowed down during college & never got added to my ‘adult’ life of creating a career & family. Anyway, after
CoachVera55
in
CLL Support
2 years ago
Webinar - What You Need To Know About Polycythemia Vera
[i]From our friends at MPN Advocacy & Education International. [/i]
A Conversation with MPN Specialists - What You Need To Know About Polycythemia Vera
Wednesday, April 12, 2023 11:30am-1:00pm EST Drs. Gaby Hobbs, Mass General, and Andrew Kuykendall, Moffitt Cancer Center, will focus their
[i]From our friends at MPN Advocacy & Education International. [/i]
A Conversation with MPN Specialists - What You Need To Know About Polycythemia Vera
Wednesday, April 12, 2023 11:30am-1:00pm EST Drs. Gaby Hobbs, Mass General, and Andrew Kuykendall, Moffitt Cancer Center, will focus their
hunter5582
in
MPN Voice
2 years ago
HCG tests where?
I see people posting the HCG tests every few days. Is that done by the NHS? Is it something private or you can do at home? in any case where do you book the tests? Thanks
I see people posting the HCG tests every few days. Is that done by the NHS? Is it something private or you can do at home? in any case where do you book the tests? Thanks
Babytocome
in
Fertility Network UK
1 year ago
Having to start treatment
CLL with no mutations. Numbers are very high and I have no visible symptoms. I'm going to need to start treatment. The two options I am being told are Ibrutinib or Venetoclax. I am a healthy person not overweight I'm on no medication I'm 60 years old are there any thoughts on which medication. And has
CLL with no mutations. Numbers are very high and I have no visible symptoms. I'm going to need to start treatment. The two options I am being told are Ibrutinib or Venetoclax. I am a healthy person not overweight I'm on no medication I'm 60 years old are there any thoughts on which medication. And has
Mog811
in
CLL Support
2 years ago
8 weeks and 5 days pregnant with symptoms easing
Hi! I'm really worried because I'm now 8 weeks and 5 days pregnant and my symptoms are easing of, I have read online that it should be the worse now between week 9 and 10, I'm still really tired, slightly sore boobs but they never got to sore to start with, my nausea is really mild the last few days
Hi! I'm really worried because I'm now 8 weeks and 5 days pregnant and my symptoms are easing of, I have read online that it should be the worse now between week 9 and 10, I'm still really tired, slightly sore boobs but they never got to sore to start with, my nausea is really mild the last few days
Asha82
in
Fertility Network UK - Pregnancy Support
1 year ago
Some good Clonoseq results
I just wanted to share that I received some positive news from Clonoseq blood test. This is a blood test for MRD. It did not detect any CLL. So, my doctor has scheduled a bone marrow biopsy to do further testing. If that too comes back negative, I will be able to go off treatment. I started my
I just wanted to share that I received some positive news from Clonoseq blood test. This is a blood test for MRD. It did not detect any CLL. So, my doctor has scheduled a bone marrow biopsy to do further testing. If that too comes back negative, I will be able to go off treatment. I started my
Kvb-texas
in
CLL Support
2 years ago
WBC rising
After 2 years in remission post B+R my white count is starting to go up. In Aug. it was 7.925, Dec 8 was 11.78, and last week was 15.05. I have to go for another CBC next week. I am also noticing periods of feeling a little out of breath with little exertion. I'm scared that this might be heading
After 2 years in remission post B+R my white count is starting to go up. In Aug. it was 7.925, Dec 8 was 11.78, and last week was 15.05. I have to go for another CBC next week. I am also noticing periods of feeling a little out of breath with little exertion. I'm scared that this might be heading
Moonmyst
in
CLL Support
2 years ago
CLL Staging
Hello. My husband, Simon, was diagnosed with CLL several years ago and has been closely monitored. On his last visit to his consultant he was told that he needs to start treatment. Either Rituximab or Venetoclax. My husband is always dismissive of his condition and does not want to discuss with me
Hello. My husband, Simon, was diagnosed with CLL several years ago and has been closely monitored. On his last visit to his consultant he was told that he needs to start treatment. Either Rituximab or Venetoclax. My husband is always dismissive of his condition and does not want to discuss with me
Rocky0181
in
CLL Support
2 years ago
A tip for Australians with Chronic Lymphocytic Leukemia trying to access pneumococcal vaccination through the National Immunisation Program
What a morning I've had to get my third pneumococcal vaccine. I'll share the details here as the solution I found could help others with CLL in Australia who are having difficulty accessing these vaccines through the National Immunisation Program (NIP). In Australia, since 1 July 2020, it's standard
What a morning I've had to get my third pneumococcal vaccine. I'll share the details here as the solution I found could help others with CLL in Australia who are having difficulty accessing these vaccines through the National Immunisation Program (NIP). In Australia, since 1 July 2020, it's standard
CLLerinOz
Administrator
in
CLL Support
2 years ago
Things that made a difference...
Trigger: Late loss and live birth mentions Quick list of things that worked for me after 3 years of IVF treatment , 6 rounds, a late loss at 18 weeks, and finally a live birth at 43 years old. I was lucky to have lots of eggs (averaging 14 each collection), good number of blasts (averaging 4 per
Trigger: Late loss and live birth mentions Quick list of things that worked for me after 3 years of IVF treatment , 6 rounds, a late loss at 18 weeks, and finally a live birth at 43 years old. I was lucky to have lots of eggs (averaging 14 each collection), good number of blasts (averaging 4 per
SB342
in
Fertility Network UK
1 year ago
Kidneys affected by Hydroxyurea?
Was admitted to hospital last week due to severely low sodium levels and creatinine levels were way off normal. Admitting diagnosis was acute kidney failure. Nephrologists were not sure what was causing the change in my kidney’s health. They wondered if the Hydroxyurea could be playing a part
Was admitted to hospital last week due to severely low sodium levels and creatinine levels were way off normal. Admitting diagnosis was acute kidney failure. Nephrologists were not sure what was causing the change in my kidney’s health. They wondered if the Hydroxyurea could be playing a part
KHardey
in
MPN Voice
2 years ago
Early pregnancy progesterone levels?
I’m 5 weeks pregnant following 4th FET. History of recurrent miscarriages so naturally worrying. HCG seems to be doubling as it should. Progesterone on transfer day was 83 Now it’s only increased to 104 even though I’m on 3 pessaries and one injection Should it be higher?
I’m 5 weeks pregnant following 4th FET. History of recurrent miscarriages so naturally worrying. HCG seems to be doubling as it should. Progesterone on transfer day was 83 Now it’s only increased to 104 even though I’m on 3 pessaries and one injection Should it be higher?
DG2022
in
Fertility Network UK
1 year ago
Managing Life With an MPN | What You Need to Know
Looks like it may be an interesting Webinar from our friends at Patient Empowerment Network. In this webinar, Dr. Raajit Rampal, an MPN specialist, will share advice for making treatment decisions for patients with essential thrombocythemia (ET), polycythemia vera (PV), and myelofibrosis (MF). Dr.
Looks like it may be an interesting Webinar from our friends at Patient Empowerment Network. In this webinar, Dr. Raajit Rampal, an MPN specialist, will share advice for making treatment decisions for patients with essential thrombocythemia (ET), polycythemia vera (PV), and myelofibrosis (MF). Dr.
hunter5582
in
MPN Voice
2 years ago
1
...
29
30
31
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
CLL Support
1726 results
Fertility Network UK
1566 results
MPN Voice
811 results
View top 10 communities
Sort by
Most Relevant
Newest