Experiences with

Chronic leukaemia

Hi Group, I have ET Jak2 + and am 64yrs old My bone mass has been declining faster than I would have expected given my level of activity, genetic history and diet. I have seen some information that HU affects the production of osteoblasts as well. My info is from a quick read of Hydroxyurea Induces

When this happens, it’s most commonly associated with a group of blood cancers known as myeloid disorders, but has also occurred in association with chronic lymphocytic leukaemia and other cancers, infection, and medication. https://www.cureus.com/articles/287505#!/

I'm wondering Which medication is more effective for post pv/mf. Ruxolitinib or interferon? I was diagnosed with pv in 2017. 2 years of hydroxy, then ruxolitinib at 20mg a day. A bmb in december showed progression to mf. Grade 2 fibrosis. The rux has recently been increased to 30mg a day along with

Hello, maybe someone has an idea. After 5 years w&w my spleen has now enlarged (splenomegaly). I've also been having pain on my left side for a few days now. Are there any natural or herbal ways I can support my spleen? Because I don't want to have a spleen removed. I don't take any other medicine,

I have seen other discussions re bad mutations , on my regular letter to my doctor from my haematologist it states : Chronic Lymphocytic Leukemia associated with high risk variants including loss of the LEU and ATM genes. As per my normal blood results, do these have a high and low level and if so

Anyone with CLL and Myelodysplasia? A month ago I was diagnosed with Myelodysplasia after undergoing a biopsy when I was at the end of the Venetoclax treatment.

Two doctors who have spent many many hours helping the CLL community. I FEEL SURE THAT WE ALL EXPRESS OUR MANY THANKS. THIS IS AN AWARD THAT IS WELL DESERVED. During this past weekend's 20th biennial International Workshop on Chronic Lymphocytic Leukemia (iwCLL), Susan M

Hi everyone. I was diagnosed with primary MF 9 years ago and have been relatively well managed on Ruxolitinib for most of that time. Recently however my platelets have been consistently low, 37, 56, 59 and about same now. My spleen has enlarged again and I have been put on a reduced dose of Ruxolitinib

Spotlight on Chronic Lymphocytic Leukemia (CLL) May 24, 2023 Nicole Lamanna, MD https://www.lls.org/patient-education-webcasts/spotlight-chronic-lymphocytic-leukemia-cll https://youtu.be/6KziJk3zQ_I Topics Covered: Emerging therapies and clinical trials for CLL Managing side effects Strategies

LIVE & IN-PERSON EVENT- LET'S TALK CLL Patients & Doctors Discuss the Latest Live! DATE: SATURDAY, OCTOBER 14, 2023 LOCATION: MD ANDERSON CANCER CENTER Virtual program begins at 10am (CT). Register here: https://us06web.zoom.us/webinar/register/5216926341361/WN_8BHNtMXZR9Gjf211Nh_lhA - We're

[u][i]SEE THIS REPLY [/i][/u][u]for the latest update to this post[/u]: https://healthunlocked.com/cllsupport/posts/150056558/shingrix-availability-on-pbs-in-australia-from-1-november-has-been-confirmed?responses=150067213 Earlier this year, I posted about a possible change to the PBS to make Shingrix

I recently informed here that after nine therapy free years since 2014 (FCR) my CLL bounced back in 10/2022 with an DLBCL and a suspicion of Richters. Biopsy and Lab tests predicted that. Therefore I was immediately treated with R-CHOP 14 CI Therapy first in Hospital one week and then within the ambulance

✨Powered by AI The recent research paper titled "Effects of Semaglutide on Heart Failure Outcomes in Diabetes and Chronic Kidney Disease in the FLOW Trial" provides valuable insights into the potential benefits of Semaglutide for patients with diabetes and chronic kidney disease (CKD). The

I am an 87 year old Male with diabetes, heart disease, and stage four kidney disease. My Nephrologist sent me to a class on types of dialysis and I will be seeing him in January. I am thinking he will probably want me to get a fistula. A little concerned, but take it one day at a time

Hello I'm currently a dialysis patient, diabetic, and heart failure I was recently diagnosed with. So my question is there anyone living with heart failure and doing dialysis?I'm not sure on what I should be feeling finding out about living with heart failure. Any advice would help. Thank you for your

Hi All, Jools, Sue and everyone do you know how much Oxycodone is safe to take? I was prescribed 5mg did nothing. Neurologist letter adviced G.P to go to 10 mg Oxycodine with 5mg Naloxcone. G.P said he’s only prepared to prescribe 10 mg Oxycodone and he can’t prescribe Naloxone as it not allowed

After thorough consideration and evaluation, we want to inform you that Leukaemia Care's HealthUnlocked Online Forum Service will be closing on the 30th April 2024. Despite the closure of the HealthUnlocked forum, Leukaemia Care remains committed to supporting individuals affected by leukaemia through

I don't post much because my RLS isn't too bad most nights.I tried adding that both my kidneys have failed because of catching Covid for the second time and already I have a number of health issues. I am on Peritoneal Dialysis and I am diabetic. I treat my RLS with 75mg Pregabalin, I know it's nothing

Is it likely that treatment might be needed in the near future? Husband is trisomy 12, TP53 negative. Mutated. He has splenomegaly, and enlarged nodes. Fish is in process. INTERPRETATION A phenotypically abnormal population with forward and right-angle scatter features of small lymphocytes constitutes

Just saw this abstract, which is one of the papers being presented at the Boston CLL conference: https://journals.plos.org/plosmedicine/article?id=10.1371/journal.pmed.1004157 I don't understand most of it, but this is one of the "Findings": [i]CLL patients and other immunocompromised populations