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CCL tests
Before treatment I received the following medical record : Please advice me, which test are belonging to : Flow Cytometry Test FISH Test IgVH Mutation Status Test Radiology report Thank you - my precious advisers , Chính Note : I'm sorry , my Medical record in Vietnamese added with English
Before treatment I received the following medical record : Please advice me, which test are belonging to : Flow Cytometry Test FISH Test IgVH Mutation Status Test Radiology report Thank you - my precious advisers , Chính Note : I'm sorry , my Medical record in Vietnamese added with English
Chinhdo
in
CLL Support
3 years ago
Antibody test
Received the NHS antibody test today. Just done the finger prick blood test and now have to wait ten to 15 minutes for the test results. The accompanying letter states that the test cannot be 100% accurate on an individual basis so if the lines appear on the test it does not mean that you have antibodies
Received the NHS antibody test today. Just done the finger prick blood test and now have to wait ten to 15 minutes for the test results. The accompanying letter states that the test cannot be 100% accurate on an individual basis so if the lines appear on the test it does not mean that you have antibodies
jillydabrat
in
MPN Voice
3 years ago
BETA HCG results. Can I have some advice please
I had a beta blood test for some peace of mind after some brown spotting (that happened on one occasion), but had no more blood since. My beta is 20801iu/l. Is this a good number ? My Dr said it's high and I don't need to repeat the beta and to wait for my viability scan on the 3rd or August. What were
I had a beta blood test for some peace of mind after some brown spotting (that happened on one occasion), but had no more blood since. My beta is 20801iu/l. Is this a good number ? My Dr said it's high and I don't need to repeat the beta and to wait for my viability scan on the 3rd or August. What were
Hope_1234
in
Fertility Network UK
3 years ago
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A day of surprises
Hi all Yesterday I had the first face to face consultation since the pandemic. I must say I was wary of the reasons for this but went along anyway. The consultant reported that my blood tests results were unchanged and stable and the pegasys had reduced my spleen size by 0.7cm. He said that I am quite
Hi all Yesterday I had the first face to face consultation since the pandemic. I must say I was wary of the reasons for this but went along anyway. The consultant reported that my blood tests results were unchanged and stable and the pegasys had reduced my spleen size by 0.7cm. He said that I am quite
ConniesDad
in
MPN Voice
3 years ago
Beta HCG 4824 day 15 5DT
Hi all just an update my beta came as 4824. I hope this is a good number on day15 5DT.
Hi all just an update my beta came as 4824. I hope this is a good number on day15 5DT.
Anam11
in
Fertility Network UK
3 years ago
CLL with “normal” FISH
Hello so while I am diagnosed with CLL, my FISH was normal meaning any abnormalities were not present in amounts sufficient to be detected. And while my diagnosis is recent, I have probably had CLL for five years without knowing it because my lymphocyte count has been high enough all along. It’s only
Hello so while I am diagnosed with CLL, my FISH was normal meaning any abnormalities were not present in amounts sufficient to be detected. And while my diagnosis is recent, I have probably had CLL for five years without knowing it because my lymphocyte count has been high enough all along. It’s only
Luap001
in
CLL Support
3 years ago
8dp5dt—when should I do blood test?
So my doctor basically hates me (it feels like) and has no hope for us. For previous transfers he made us wait TWO WEEKS before getting a blood test. This time he did not even really give us an OTD, I just have a prescription to go get an HCG blood test whenever. So, when is a good safe day to go get
So my doctor basically hates me (it feels like) and has no hope for us. For previous transfers he made us wait TWO WEEKS before getting a blood test. This time he did not even really give us an OTD, I just have a prescription to go get an HCG blood test whenever. So, when is a good safe day to go get
LuxFleur
in
Fertility Network UK
3 years ago
Research to investigate how patients with MPN and also CML respond to vaccination against Covid-19
Researchers at Guy's and St Thomas' NHS Foundation Trust are carrying out research to investigate how patients with MPN and also CML respond to vaccination against Covid-19. They would like to recruit patients with a known MPN – who have either not yet received a second dose OR are less than 6 weeks
Researchers at Guy's and St Thomas' NHS Foundation Trust are carrying out research to investigate how patients with MPN and also CML respond to vaccination against Covid-19. They would like to recruit patients with a known MPN – who have either not yet received a second dose OR are less than 6 weeks
Mazcd
MPNVoice
in
MPN Voice
3 years ago
Trigger shot - when does it come out of your system?
Hi, I’m 5dp5dt from a fresh transfer, and curious about when the trigger shot HCG comes out of your system? My OTD isn’t until 25th, but I’m really tempted to test on Friday 23rd… Xx🍍🙏🌈
Hi, I’m 5dp5dt from a fresh transfer, and curious about when the trigger shot HCG comes out of your system? My OTD isn’t until 25th, but I’m really tempted to test on Friday 23rd… Xx🍍🙏🌈
Becatoms
in
Fertility Network UK
3 years ago
post-vaccination antibody test
Hi have a question for people with CLL who have already had an RNA vaccine (Pfizer and Moderna) or other. have you done a serological test for antibodies in the laboratory? After what time did you do such a test? what was your result of this test? Greetings from Poland Thank you for your response
Hi have a question for people with CLL who have already had an RNA vaccine (Pfizer and Moderna) or other. have you done a serological test for antibodies in the laboratory? After what time did you do such a test? what was your result of this test? Greetings from Poland Thank you for your response
BART4
in
CLL Support
3 years ago
CAR-NK and me
I came to MD Anderson to take part in the CAR-NK trial. I am a good candidate: in July my marrow involvement was 5%. Natural Killer cells don’t return to the marrow so CAR-NK doesn’t do much in the marrow. The lymphodepleting chemo given before the CAR-NK infusion might, however, clear the marrow a bit
I came to MD Anderson to take part in the CAR-NK trial. I am a good candidate: in July my marrow involvement was 5%. Natural Killer cells don’t return to the marrow so CAR-NK doesn’t do much in the marrow. The lymphodepleting chemo given before the CAR-NK infusion might, however, clear the marrow a bit
john-doe
in
CLL Support
3 years ago
Advice on hcg testing please !
Hi lovely ladies ! I’m reaching out today because I’m driving myself a bit crazy in the wait for the 7 week scan. I had my test day almost two weeks ago so only a week before the scan… I’ve been feeling exhausted and have been experiencing nausea for about a week. I did another urine pregnancy test exactly
Hi lovely ladies ! I’m reaching out today because I’m driving myself a bit crazy in the wait for the 7 week scan. I had my test day almost two weeks ago so only a week before the scan… I’ve been feeling exhausted and have been experiencing nausea for about a week. I did another urine pregnancy test exactly
Gatarra
in
Fertility Network UK
3 years ago
CLL and Numb Chin Syndrome
Hi everyone. I am 40 year old male in the UK and was diagnosed with CLL in Feb 2019. I have been on w&w for the entire time. I have had no real symptoms with the exception of swolen glands and fatigue. Also my Spleen is swollen. Over the last few days I'e noticed that the righ side of chin feels numb
Hi everyone. I am 40 year old male in the UK and was diagnosed with CLL in Feb 2019. I have been on w&w for the entire time. I have had no real symptoms with the exception of swolen glands and fatigue. Also my Spleen is swollen. Over the last few days I'e noticed that the righ side of chin feels numb
Devans81
in
CLL Support
3 years ago
CLL Specialist
Hi. I am new to this group, and newly diagnosed. My CLL was a blaring red flag since 2017 and went undiagnosed until now (another story)......... But, I have read a few posts on this forum that recommended seeing a Hematologist that specializes in CLL, and I can't Thank you enough! While awaiting the
Hi. I am new to this group, and newly diagnosed. My CLL was a blaring red flag since 2017 and went undiagnosed until now (another story)......... But, I have read a few posts on this forum that recommended seeing a Hematologist that specializes in CLL, and I can't Thank you enough! While awaiting the
Tracibfine
in
CLL Support
3 years ago
13Q Deletion and ATM Mutation
Hi All, While I wait for my appointment to see a specialist at Dana Farber (June 1) and have only been seen by a local to me Hematologist ( Diagnosed in January 21) I understand that the 13Q is the better of the the Marks but that the Loss of ATM ( 11? ) is not good. I read that having the ATM mutation
Hi All, While I wait for my appointment to see a specialist at Dana Farber (June 1) and have only been seen by a local to me Hematologist ( Diagnosed in January 21) I understand that the 13Q is the better of the the Marks but that the Loss of ATM ( 11? ) is not good. I read that having the ATM mutation
controlsct
in
CLL Support
3 years ago
Vaccines and CLL/SLL plus
Can people with CLL and an active SLL but also with other chronic conditions like Mast Cell activation syndrome,CFS and Hashimoto take the Pfizer vaccine, along with multiple allergies to foods and medicines, could take the vaccine ? What about if the Lymphatic system is congested with little tumors?
Can people with CLL and an active SLL but also with other chronic conditions like Mast Cell activation syndrome,CFS and Hashimoto take the Pfizer vaccine, along with multiple allergies to foods and medicines, could take the vaccine ? What about if the Lymphatic system is congested with little tumors?
CarmenLuisa
in
CLL Support
3 years ago
FDA Plans to OK Pfizer Vaccine for Those Aged 12 and Up
The U.S. Food and Drug Administration plans to expand emergency use of Pfizer's coronavirus vaccine by next week so that children as young as 12 can be immunized. After Pfizer's trial in adolescents showed its vaccine worked as well in teens as it does in adults, the FDA started preparing to add an
The U.S. Food and Drug Administration plans to expand emergency use of Pfizer's coronavirus vaccine by next week so that children as young as 12 can be immunized. After Pfizer's trial in adolescents showed its vaccine worked as well in teens as it does in adults, the FDA started preparing to add an
2greys
in
Lung Conditions Community Forum
3 years ago
Watch & Wait versus the risk of Richter’s
I am newly diagnosed. No “B symptoms”. I have probably had this for a few years already given that my lymphocytes have been sufficiently high to “qualify”. So time to play Tevye (forgive the brief intrusion by Michael Buble): On the one hand, so long as I am feelin’ good, I can continue to W&W. On the
I am newly diagnosed. No “B symptoms”. I have probably had this for a few years already given that my lymphocytes have been sufficiently high to “qualify”. So time to play Tevye (forgive the brief intrusion by Michael Buble): On the one hand, so long as I am feelin’ good, I can continue to W&W. On the
Luap001
in
CLL Support
3 years ago
First IVF cycle Failure
Hello ladies I got my first ivf cycle done and for the first embryo transfer they put 2 embryos, unfortunately both my hcg results show below 5 which means it's negative but I still haven't got my period Dr said they could be a possibility of the treatment being unsuccessful Plz help ladies, did anyone
Hello ladies I got my first ivf cycle done and for the first embryo transfer they put 2 embryos, unfortunately both my hcg results show below 5 which means it's negative but I still haven't got my period Dr said they could be a possibility of the treatment being unsuccessful Plz help ladies, did anyone
PrettyExceptional
in
Fertility Network UK
3 years ago
Blood work suddenly normal
Hello everyone, I was just diagnosed this Feb as stage 0 and on watch and wait. When I had my first follow up appointment with my Hematologist last week, the blood work wasn’t ready. We have a program at the hospital where I can see the blood work as soon as it’s ready and I was really shocked. My Abs
Hello everyone, I was just diagnosed this Feb as stage 0 and on watch and wait. When I had my first follow up appointment with my Hematologist last week, the blood work wasn’t ready. We have a program at the hospital where I can see the blood work as soon as it’s ready and I was really shocked. My Abs
Can2021
in
CLL Support
3 years ago
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