Experiences with

Chronic leukaemia

Hello, this is my first pregnancy. I’m around 8-9weeks pregnant. I started bleeding at 7. Last week on 10/04. At first it was a light and I’ll add some pictures for you guys to see. I then started to cramp and I was thinking maybe it was just the baby growing and my body stretching. It got worse every

Hello The paper below recently came out in May. I thought member would be interested. Apologies if this is old news. “A randomized phase 3 trial of interferon-α vs hydroxyurea in polycythemia vera and essential thrombocythemia” It is freely downloadable from PubMed at https://pubmed.ncbi.nlm.nih.gov

The incurable disease CLL, silently creeps into our bodies, and gently starts launching an attack on the bone marrow. Wait and watch says the doctor, we can challenge it, with medications we can treat it. We wait until CLL has full control of the bone marrow and started presenting what the doctors call

Yesterday at 15dp5dt I went for a blood test and my HCG is only 150. Has anyone else had a similar level and went on to have a normal pregnancy? My home pregnancy tests have been stronger every day but the digital one only said 1-2 weeks. I’m getting retested on Monday and I know the important thing

Hi is anyone from Edinburgh that has been diagnosed with Essential Thrombocythaemia Calr mutation?

Hello! I am 5 weeks today, my hcg at 4 weeks 3 days was 1043 which I think is good? I'm now just overcome with constant anxiety about having symptoms or not. Some days I'm hungry all the time, others not at all. Some days I feel little cramps, some days not. Has anyone else felt like this? I'm

Richter's Transformation Hello partners. I want to update the status of the Richter transform group. Three weeks ago my hematologist told me that after insisting so much that all Richter's cases be shared between doctors, it has finally been achieved. He told me that they had managed to collect 52 cases

My test day is on 8th of October but couldn’t wait. My first hcg test turned positive. Over the 🌝 moon. Haven’t seen a positive results past 6 years.

Sooo here we are, today was OTD. 10dp 5dt HCG came back at 303 phew. Last week progesterone was at 25 now is at 52 which is good too. Let's hope my 8th pregnancy will be the one to stay! I do have some cramps/sensitive lower abdomen which worries me a bit but let's say is due to the high progesterone

Hi all, I was diagnosed in jan 22. My platelets were over 1100. I was immediately put on hydroxyurea and phlebotomy’s every 2weeks. Levels started to improve and then Started having an intolerance to the hydroxyurea. Continued with phlebotomy’s only as I can’t take aspirin. Platlets back up to 1100

thank you alll sooo much for the kind wishes. The results came in 12dp5dt with a hcg of 343. It’s been a long journey so far and I know it’s just the beginning of the next journey. But oh my goodness the shock when the doctor told us I was speechless for the first time in my life. 😂😂 for everyone

Following up on my first two posts following PD Catheter Surgery: https://healthunlocked.com/nkf-dialysis/posts/148305786/peritoneal-dialysis-week-two-after-surgery https://healthunlocked.com/nkf-dialysis/posts/148337395/peritoneal-dialysis-week-three-after-surgery I received a call late Friday from

I was officially ‘discharged’ by my IVF clinic on Friday at 9 weeks pregnant as all is looking good ❤️ I have now done a self referral to the maternity unity of my hospital in London and they said they’ll get in touch within 10 days. After being so closely followed by my IVF clinic, I really feel a

I have been having horrendous leg cramps every night - they move around from ankle to leg front or back of leg. My feet go into spasm. I have Myelofibrosis and am on Ruxolitinib. I am not getting much sleep. Can anyone help? SkipperL

Hi everyone, currently 4weeks+5 days and just went to the toilet and had some light brown discharge and am now fearing the worst. Sorry for the TMI pic, wondering if I need to get my bloods drawn again on Monday to see if my HCG has dropped x

So I took a pregnancy test yesterday at 9dp5dt and I got a faint line. I had a cry and wrote this cycle off as a chemical. I was going to stop all my medications but I didn’t since my partner asked me to keep taking them. Even though I’ve had a several transfers I don’t have much experience with early

hello, this is my 2nd pregnancy first ends in miscarriage at 7 weeks, now I’m 6 weeks and i got a blood work when i was 5 weeks 2 days (21 days after IUI treatment) my HCG levels was 975, the doctor said that is normal but I know it’s low and she didn’t send me more blood work to see if the number is

Hi everyone, Alex here from Leukaemia Care. 👋 September is Blood Cancer Awareness Month and we will be running our Spot Leukaemia campaign, which aims to raise awareness of the signs and symptoms of leukaemia. In order to raise awareness, we are looking for leukaemia stories to share throughout

In this study, we tested serological and cellular response to SARS-CoV-2 mRNA vaccines in 16 patients treated with Ibrutinib, 16 treated with maintenance Rituximab, 18 patients with chronic lymphocytic leukaemia (CLL) with watch and wait status and 21 healthy volunteers.

Hi everyone, to give you an update, just got my HCG results back (I am 11dp5dt) as official test day and it’s at 492! Really shocked and relieved 😭🫶🏼🥰 Interestingly though my progesterone has dipped, I had it originally drawn the day before my transfer and it was 45, and today it was 36.5. Apparently