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Anyone diagnosed SM-AHN?
Jak2 and D816v CKit positive. Anyone dx with both mutations? Systemic Madtocytosis and Polycythemia Vera
Jak2 and D816v CKit positive. Anyone dx with both mutations? Systemic Madtocytosis and Polycythemia Vera
shaks
in
MPN Voice
4 years ago
ET progressed to Myelofibrosis
I was discharged from hospital yesterday, originally admitted with shortness of breath but was soon diagnosed with Myelofibrosis. It was a huge shock as my haematologist has repeatedly told me that my falling blood counts could not be MF as my WBC were falling. I was treated by a different consultant
I was discharged from hospital yesterday, originally admitted with shortness of breath but was soon diagnosed with Myelofibrosis. It was a huge shock as my haematologist has repeatedly told me that my falling blood counts could not be MF as my WBC were falling. I was treated by a different consultant
Otterfield
in
MPN Voice
4 years ago
Blood results in CBC
Hi All, I wrote two months ago that my blood work had returned to normal after two abnormal and a tentative dx of CLL. Well, this month it is abnormal again. I am so confused. The receptionist said they never diagnose until at least six months of blood results.
Hi All, I wrote two months ago that my blood work had returned to normal after two abnormal and a tentative dx of CLL. Well, this month it is abnormal again. I am so confused. The receptionist said they never diagnose until at least six months of blood results.
gustave
in
CLL Support
4 years ago
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BFP
Frankly speaking, I didn't expect to get positive from the very first time though I have been keeping my fingers crossed all the time since the transfer. I knew that my hubby wanted to have a baby but didn't think that I would ever see his tears, you know. That moment was so sensitive šš and I am so
Frankly speaking, I didn't expect to get positive from the very first time though I have been keeping my fingers crossed all the time since the transfer. I knew that my hubby wanted to have a baby but didn't think that I would ever see his tears, you know. That moment was so sensitive šš and I am so
Nickon
in
Fertility Network UK
4 years ago
Free Prescription home deliveries appear to have been stopped by Boots
Since the start of lockdown my local Boots pharmacy has been efficiently delivering my prescriptions to my front door. Latest was sent my GP to them 2 weeks ago. I rang today and was told as the Government had stopped support for the vulnerable, they has stopped free deliveries. The very nice manager
Since the start of lockdown my local Boots pharmacy has been efficiently delivering my prescriptions to my front door. Latest was sent my GP to them 2 weeks ago. I rang today and was told as the Government had stopped support for the vulnerable, they has stopped free deliveries. The very nice manager
Harvist
in
CLL Support
4 years ago
5weeks pregnant is it miscarriage?
Itās my first pregnancy abd I donāt even know it is still there. My hcg was in the upper side, we got 3+ day 14. I am only a bit nauseous but not sick at all and not all the time. My breast are a bit sore but not much. Yesterday I did another digital test and it showed 2-3 weeks. I was in tears but we
Itās my first pregnancy abd I donāt even know it is still there. My hcg was in the upper side, we got 3+ day 14. I am only a bit nauseous but not sick at all and not all the time. My breast are a bit sore but not much. Yesterday I did another digital test and it showed 2-3 weeks. I was in tears but we
Snuggling
in
Fertility Network UK
4 years ago
Webinar on CLL treatment - a Changing Landscape
CLL treatment - a changing landscape
When: Jun 29, 2020 11:00 AM You are invited to join us for a webinar by our sister charity
Leukaemia
Care on
chronic
lymphocytic
leukaemia
(CLL) treatment.
CLL treatment - a changing landscape
When: Jun 29, 2020 11:00 AM You are invited to join us for a webinar by our sister charity
Leukaemia
Care on
chronic
lymphocytic
leukaemia
(CLL) treatment.
Jm954
Administrator
in
CLL Support
4 years ago
Join us and spread the word about the symptoms of leukaemia
'We may be living in uncertain times, but there is one thing we are certain of: awareness of leukaemia needs to be dramatically improved.' Each year we reach millions of people with our spot leukaemia campaign but despite our efforts, awareness of blood cancer amongst the public, as well as in primary
'We may be living in uncertain times, but there is one thing we are certain of: awareness of leukaemia needs to be dramatically improved.' Each year we reach millions of people with our spot leukaemia campaign but despite our efforts, awareness of blood cancer amongst the public, as well as in primary
HAIRBEAR_UK
Administrator
in
Leukaemia CARE
4 years ago
Treating Asymptomatic Patients With Polycythemia Vera
Jerry L. Spivak, MD, discusses treating patients with polycythemia vera, which is a type of myeloproliferative neoplasm that can often derive from essential thrombocythemia, particularly among women. https://www.targetedonc.com/view/treating-asymptomatic-patients-with-polycythemia-vera
Jerry L. Spivak, MD, discusses treating patients with polycythemia vera, which is a type of myeloproliferative neoplasm that can often derive from essential thrombocythemia, particularly among women. https://www.targetedonc.com/view/treating-asymptomatic-patients-with-polycythemia-vera
Manouche
in
MPN Voice
4 years ago
Feeling really down
Hey, just felt a bit alone so thought I would write my thoughts here. Partner and I have been ttc baby number 2. Felt light headed on wed so took a pregnancy test which was positive. Couple of days later line has faded and I ended up in a and e early hours of this morning with an endo flare. Given painkillers
Hey, just felt a bit alone so thought I would write my thoughts here. Partner and I have been ttc baby number 2. Felt light headed on wed so took a pregnancy test which was positive. Couple of days later line has faded and I ended up in a and e early hours of this morning with an endo flare. Given painkillers
pinkfairydust10
in
Endometriosis UK
4 years ago
SLL/CLL Numbers
Thanks for all of you with your previous replies. As you know I have been diagnosed last month with SLL/CLL and now I have all my test results. I hope you can share your experience with similar results to mine and dice me with what to expect: 1) CBC all numbers are within the normal range 2) Flow
Thanks for all of you with your previous replies. As you know I have been diagnosed last month with SLL/CLL and now I have all my test results. I hope you can share your experience with similar results to mine and dice me with what to expect: 1) CBC all numbers are within the normal range 2) Flow
Egypt58
in
CLL Support
4 years ago
Clemastine (Tavegyl), an over-the-counter drug, found to be effective at inducing LMP and cell death
For what it may be worth, thougbt some of you might like to see this: "Lysosomes in chronic lymphocytic leukemia (CLL) cells have previously been identified as a promising target for therapeutic intervention in combination with targeted therapies. Recent studies have shown that antihistamines can induce
For what it may be worth, thougbt some of you might like to see this: "Lysosomes in chronic lymphocytic leukemia (CLL) cells have previously been identified as a promising target for therapeutic intervention in combination with targeted therapies. Recent studies have shown that antihistamines can induce
Pogee
in
CLL Support
4 years ago
Low HCG Level
So after receiving my positive result Iāve been having low hcg levels. First result was 49, second was 78, and third was 117. Dr says itās not looking too good for a viable pregnancy. I have just been in tears ever since. He says since my numbers arenāt doubling as they should itās looking like I might
So after receiving my positive result Iāve been having low hcg levels. First result was 49, second was 78, and third was 117. Dr says itās not looking too good for a viable pregnancy. I have just been in tears ever since. He says since my numbers arenāt doubling as they should itās looking like I might
MiraclesCanHappen
in
Fertility Network UK
4 years ago
T cell leukemia
Just diagnosed with T cell leukemia, I do not have a subtype yet. Any other T cell types out there?
Just diagnosed with T cell leukemia, I do not have a subtype yet. Any other T cell types out there?
Mom-mom-e
in
CLL Support
4 years ago
Hcg levels 6800
Hi everyone, Iām so confused. We got told we had non viable pregnancy last week. We are still being monitored by our fertility clinic. Got bloods today and the hcg levels are still rising. Got scan last week and seen a sac but nothing inside it. Are we being silly and thinking we could still be in
Hi everyone, Iām so confused. We got told we had non viable pregnancy last week. We are still being monitored by our fertility clinic. Got bloods today and the hcg levels are still rising. Got scan last week and seen a sac but nothing inside it. Are we being silly and thinking we could still be in
Lauren85
in
Fertility Network UK
4 years ago
Twin pregnancy beta hcg
Hello .My beta hcg on Day 15 after 5 days transfer is 3904.Is it indicate a twin pregnancy.
Hello .My beta hcg on Day 15 after 5 days transfer is 3904.Is it indicate a twin pregnancy.
Rthakur
in
Fertility Network UK
4 years ago
Imbruvica-related issues: Qs + comments
The following are questions and comments I'll be asking my oncologist when I see him tomorrow. I believe at least some of them might be relevant to what some among us are experiencing and research some of us are engaging in. Clearly, none of the comments here are meant to be authoritative nor intended
The following are questions and comments I'll be asking my oncologist when I see him tomorrow. I believe at least some of them might be relevant to what some among us are experiencing and research some of us are engaging in. Clearly, none of the comments here are meant to be authoritative nor intended
Pogee
in
CLL Support
4 years ago
has anyone been on exjade
You can all see my post from 2 or so weeks ago. I knew shortly after my iron levels were elevated due to transfusions. Ferritin is also an inflammatory marker but my total iron combining capacity has also been rising steadily ( TIBC). I cannot reduce my transfusion dependency as I have gone down to 52
You can all see my post from 2 or so weeks ago. I knew shortly after my iron levels were elevated due to transfusions. Ferritin is also an inflammatory marker but my total iron combining capacity has also been rising steadily ( TIBC). I cannot reduce my transfusion dependency as I have gone down to 52
skodaguy
in
MPN Voice
4 years ago
Sensitive/Emotional/Loss mentioned
Hey my lovely ladies. I havenāt been on the site for a while itās been a hell of a year. Hope you are all well and happy ā¤ļøā¤ļøā¤ļø So after my last chemical in January after my FET Iāve decided to give myself a break (1 natural early miscarriage and 3 chemicals after IVF transfer). All was going really
Hey my lovely ladies. I havenāt been on the site for a while itās been a hell of a year. Hope you are all well and happy ā¤ļøā¤ļøā¤ļø So after my last chemical in January after my FET Iāve decided to give myself a break (1 natural early miscarriage and 3 chemicals after IVF transfer). All was going really
Klndmr
in
Fertility Network UK
4 years ago
FCR
Iāll avoid FCR at all. Dangerous and tricky. Increase the probability of AL occurrence as well as second neoplasm and Richter transformation in the long run. You have to be "fit patientā to receive FCR, IGHV mutated and without tp53 mutation or 17p deletion. Find a responsible doctor with a robust experience
Iāll avoid FCR at all. Dangerous and tricky. Increase the probability of AL occurrence as well as second neoplasm and Richter transformation in the long run. You have to be "fit patientā to receive FCR, IGHV mutated and without tp53 mutation or 17p deletion. Find a responsible doctor with a robust experience
Rccfrc00
in
CLL Support
4 years ago
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