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Aplastic anaemia
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Less symptoms but still RLS sleep issues
I have supplemented iron for 4 months now and my RLS has reduced more and more but still have a bit of sleeping problems. I take no medications beside also Vitamin D. Last time my doctors checked my blood my ferritin level were in the normal range (around 140). Question is if I should continue taking
I have supplemented iron for 4 months now and my RLS has reduced more and more but still have a bit of sleeping problems. I take no medications beside also Vitamin D. Last time my doctors checked my blood my ferritin level were in the normal range (around 140). Question is if I should continue taking
LineVec
in
Restless Legs Syndrome
10 months ago
Paper: Receiving a Diagnosis of Pernicious Anemia: Exploring Experiences of Relationships With Health Professionals
I assume this has been posted before but I saw this for the first time today Seage, et al,
Receiving a Diagnosis of Pernicious Anemia: Exploring Experiences of Relationships With Health Professionals
, J Patient Exp. 2020 Oct; 7(5): 766–770. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7705842
I assume this has been posted before but I saw this for the first time today Seage, et al,
Receiving a Diagnosis of Pernicious Anemia: Exploring Experiences of Relationships With Health Professionals
, J Patient Exp. 2020 Oct; 7(5): 766–770. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7705842
jade_s
in
Pernicious Anaemia Society
10 months ago
Migraines
Hello lovely community, I was in hospital yesterday with a flare-up; we now think it was an atypical migraine. But it looked a lot like past episodes I have had. For the past few years I have had recurrent unexplained heart episodes, where my heart rate goes up and stays elevated for hours at a time
Hello lovely community, I was in hospital yesterday with a flare-up; we now think it was an atypical migraine. But it looked a lot like past episodes I have had. For the past few years I have had recurrent unexplained heart episodes, where my heart rate goes up and stays elevated for hours at a time
MusicalFurbaby
in
LUPUS UK
7 months ago
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High Transferrin Saturation without optimal iron levels
Hello, I am currently trying to get my iron levels up and they are slowly creeping in the right direction. However. My latest bloods show that my TSAT is now too high at 65% (up from 39% two months ago), and ferritin at 70ug/L (up from 65ug/L.) Is this just something to monitor for now?
Hello, I am currently trying to get my iron levels up and they are slowly creeping in the right direction. However. My latest bloods show that my TSAT is now too high at 65% (up from 39% two months ago), and ferritin at 70ug/L (up from 65ug/L.) Is this just something to monitor for now?
Thywotsit
in
Thyroid UK
4 months ago
MCV and supplement question
Hi all, I'm hypothyroid and frequently have MCV and MCH outside of range. In general I feel better supplementing with methyl Bs and have added folate. I want to ask though if there is anything concerning and how to address these results. Is my ferritin ok or are there additional tests to run? Thank
Hi all, I'm hypothyroid and frequently have MCV and MCH outside of range. In general I feel better supplementing with methyl Bs and have added folate. I want to ask though if there is anything concerning and how to address these results. Is my ferritin ok or are there additional tests to run? Thank
EchoWS
in
Pernicious Anaemia Society
10 months ago
Repost results
Im taking teva levothyroxine 100mcgThybon t3, 15mcg, split 3 x 5mcg dose Magnesium glycinate 650mg Vit D3,k2 mk-7, 5000iu Any advice very much appreciated 🌸🌸🌸🌸🌸🌸🌸
Im taking teva levothyroxine 100mcgThybon t3, 15mcg, split 3 x 5mcg dose Magnesium glycinate 650mg Vit D3,k2 mk-7, 5000iu Any advice very much appreciated 🌸🌸🌸🌸🌸🌸🌸
Geegee777
in
Thyroid UK
4 months ago
Advice on Iron levels
Serum Ferritin level blood test has come back showing at 15 ug/l - is this low? Doctor saying it is low normal rangeand not normally consdered as iron deficiency - but am presenting symptoms and thought range was 15.0 - 300.0 ug/L. Advise needed please.
Serum Ferritin level blood test has come back showing at 15 ug/l - is this low? Doctor saying it is low normal rangeand not normally consdered as iron deficiency - but am presenting symptoms and thought range was 15.0 - 300.0 ug/L. Advise needed please.
Rolbo
in
Thyroid UK
4 months ago
Update- I no longer take Dipyridamole
I have been meaning to update the group on this. I have stopped taking Dipyridamole for over a month now, closer to two months. I took Dipyridamole for two years. I was nearing the end of my Dipyridamole supply. I was wondering how much it was helping. So I stopped abruptly. Since then I have
I have been meaning to update the group on this. I have stopped taking Dipyridamole for over a month now, closer to two months. I took Dipyridamole for two years. I was nearing the end of my Dipyridamole supply. I was wondering how much it was helping. So I stopped abruptly. Since then I have
WideBody
in
Restless Legs Syndrome
10 months ago
Liposomal Iron
I have atrophic gastritis and my stomach can not tolerate normal iron supplements.I came across Liposomal on the web and wondered if anyone has had any success taking this supplement please as I am iron deficient ? Thanks
I have atrophic gastritis and my stomach can not tolerate normal iron supplements.I came across Liposomal on the web and wondered if anyone has had any success taking this supplement please as I am iron deficient ? Thanks
davina70
in
Pernicious Anaemia Society
10 months ago
What’s the protocol for GP actioning full iron panel?
It’s become apparent that my daughter’s ferritin levels are deficient and she’s going to put in a request to her GP for a full iron panel. I routinely read here that one shouldn’t supplement with iron based on a low ferritin reading alone but I’d like to know what the supporting information for this
It’s become apparent that my daughter’s ferritin levels are deficient and she’s going to put in a request to her GP for a full iron panel. I routinely read here that one shouldn’t supplement with iron based on a low ferritin reading alone but I’d like to know what the supporting information for this
J972
in
Thyroid UK
4 months ago
advice needed please re iron and thyroxine
hi there, I’d really appreciate some advice. I’ve been on Thyroxine for a number of years and have been fine, I’ve just been told that I have Anaemia and have started on Ferrous Fumarate tabs 210 mg. I’ve started to feel tearful and anxious this last week and wonder if the iron is affecting my thyroid
hi there, I’d really appreciate some advice. I’ve been on Thyroxine for a number of years and have been fine, I’ve just been told that I have Anaemia and have started on Ferrous Fumarate tabs 210 mg. I’ve started to feel tearful and anxious this last week and wonder if the iron is affecting my thyroid
Poppyqueen
in
Thyroid UK
4 months ago
Diagnosis
Good Morning I have suffered with my condition for over 20 years and have also been told I was born with it, the doctor agrees I have all the symptoms of fibromyalgia but says they haven't givin it that label as it all falls under the same umbrella of musculoskeletal disorder, which is what I have
Good Morning I have suffered with my condition for over 20 years and have also been told I was born with it, the doctor agrees I have all the symptoms of fibromyalgia but says they haven't givin it that label as it all falls under the same umbrella of musculoskeletal disorder, which is what I have
pixieraine23
in
Fibromyalgia Action UK
10 months ago
Anybody left with servere virtigo after covid ?
I caught covid after visiting the hospital for an MRI to look at my gastric issues. The virus hit my balance to the extent I wasn't able to walk unaided which I have to say was very disturbing to say the least. Since the virus has cleared I have suffered a few events of vertigo ! I am not the steadiest
I caught covid after visiting the hospital for an MRI to look at my gastric issues. The virus hit my balance to the extent I wasn't able to walk unaided which I have to say was very disturbing to say the least. Since the virus has cleared I have suffered a few events of vertigo ! I am not the steadiest
Jillymo
in
Pernicious Anaemia Society
7 months ago
Advice needed please about liquid Levothyroxine side effects
Hello, I wrote a post about a month ago saying my adult son was unable to get liquid levothyroxine as it was out of stock. He was taking the brill Pharma brand and tolerated it really well. The chemist managed to source Teva liquid levothyroxine three weeks after we asked for a repeat prescription
Hello, I wrote a post about a month ago saying my adult son was unable to get liquid levothyroxine as it was out of stock. He was taking the brill Pharma brand and tolerated it really well. The chemist managed to source Teva liquid levothyroxine three weeks after we asked for a repeat prescription
Annie567
in
Thyroid UK
4 months ago
Testing for Intrinsic Factor - borderline results
Hello to you all on this precious platform, thank you for saving my sanity on many occasions. I was diagnosed with pernicious anemia 10 years ago. My elder sister, following a lengthy battle with her GP was diagnosed a couple of years ago and given loading doses followed by 8 week top-ups. We both
Hello to you all on this precious platform, thank you for saving my sanity on many occasions. I was diagnosed with pernicious anemia 10 years ago. My elder sister, following a lengthy battle with her GP was diagnosed a couple of years ago and given loading doses followed by 8 week top-ups. We both
Discombobulated247
in
Pernicious Anaemia Society
7 months ago
Can't increase my iron levels
Hi all, I posted in February 2023 my low iron results and started taking 200 Ferrous Sulphate daily then. My iron results after 3 months were Ferritin 39 (20-204) Serum iron 18.6 (4.4-27.9) Feb 23 was: serum iron 11, ferritin was 29. So not a huge improvement. But now, a year on, even worse! Despite
Hi all, I posted in February 2023 my low iron results and started taking 200 Ferrous Sulphate daily then. My iron results after 3 months were Ferritin 39 (20-204) Serum iron 18.6 (4.4-27.9) Feb 23 was: serum iron 11, ferritin was 29. So not a huge improvement. But now, a year on, even worse! Despite
Suzanneharb
in
Thyroid UK
4 months ago
Anyone have hypercalcemia?
Hi, All! I've been doing pretty well since my diagnosis and b12 injections for 5 months or so. I still had some lingering symptoms that I felt were not related to pernicious anemia. Anyway, the other day I ended up in the ER with kidney stones and hyponephrosis (urine backing up into kidney, swollen
Hi, All! I've been doing pretty well since my diagnosis and b12 injections for 5 months or so. I still had some lingering symptoms that I felt were not related to pernicious anemia. Anyway, the other day I ended up in the ER with kidney stones and hyponephrosis (urine backing up into kidney, swollen
Iheartb12
in
Pernicious Anaemia Society
10 months ago
When to test?
Good morning.....I have PA diagnosed in 2016. My younger daughter has Sapho Syndrome (autoimmune) and has also suffered Endometriosis (?autoimmune) for nearly 30 years....She is about to have an endoscopy, also several bi opsies. I keep feeling that a lot of her symptoms could be PA...I have eventually
Good morning.....I have PA diagnosed in 2016. My younger daughter has Sapho Syndrome (autoimmune) and has also suffered Endometriosis (?autoimmune) for nearly 30 years....She is about to have an endoscopy, also several bi opsies. I keep feeling that a lot of her symptoms could be PA...I have eventually
edeuweed
in
Pernicious Anaemia Society
4 months ago
Exhaustion
Hello, my husband has 'early child a chirrosis' he has previously had bleeding varices and he has a clot on his portal vein. This is all due to complications following a splenectomy, which caused the clot, which is turn affected the liver. He is currently working stretches of 7 days in a row, with a
Hello, my husband has 'early child a chirrosis' he has previously had bleeding varices and he has a clot on his portal vein. This is all due to complications following a splenectomy, which caused the clot, which is turn affected the liver. He is currently working stretches of 7 days in a row, with a
Lili6
in
British Liver Trust
10 months ago
What does this mean?
Hi. Me = male, ET, 80 year old. I am off to see the Haematologist on Tuesday so I asked the GP surgery for a copy of my latest Blood count - and I would appreciate any comments. All levels refer to 'normal' reference ranges My White Blood Cell count, MCV, MCH, Neutrophil and Basophil are all above
Hi. Me = male, ET, 80 year old. I am off to see the Haematologist on Tuesday so I asked the GP surgery for a copy of my latest Blood count - and I would appreciate any comments. All levels refer to 'normal' reference ranges My White Blood Cell count, MCV, MCH, Neutrophil and Basophil are all above
quanglewangle
in
MPN Voice
10 months ago
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