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Weighloss?
Just checking to see if others are experiencing a small albeit constant weight loss on Ropinerol? I also take Topamax for chronic migraine. Have been taken both for just over a year now and have lost all appetite. Nearly 4 stones in weight during this year, and I do eat some very naughty food like everyone
Just checking to see if others are experiencing a small albeit constant weight loss on Ropinerol? I also take Topamax for chronic migraine. Have been taken both for just over a year now and have lost all appetite. Nearly 4 stones in weight during this year, and I do eat some very naughty food like everyone
Mulle74
in
Restless Legs Syndrome
2 years ago
Chronic Fatigue Syndrome and Fibromyalgia treatment with B12 injections and oral folate
In the category of "not helpful but interesting", I am sharing this paper decribing a research project which treated patients with Chronic Fatigue Syndrome and Fibromyalgia with B12 injections and oral folate. One interesting facet is that dose of B12 and folate is based on symptoms as reflected in clinician
In the category of "not helpful but interesting", I am sharing this paper decribing a research project which treated patients with Chronic Fatigue Syndrome and Fibromyalgia with B12 injections and oral folate. One interesting facet is that dose of B12 and folate is based on symptoms as reflected in clinician
WiscGuy
in
Pernicious Anaemia Society
2 years ago
Blood result question
Hi everyone I finally received a copy of my initial haematology appointment letter. No idea what numbers mean but understand they are still querying PV and Primary or Secondary Polycythaemia. Sept 21 I had haemoglobin of 167g/1 & 48.5% haematocrit. Jan 2022 haemaogloblin of 164g/1 & 45.9% haematrocrit
Hi everyone I finally received a copy of my initial haematology appointment letter. No idea what numbers mean but understand they are still querying PV and Primary or Secondary Polycythaemia. Sept 21 I had haemoglobin of 167g/1 & 48.5% haematocrit. Jan 2022 haemaogloblin of 164g/1 & 45.9% haematrocrit
LittleLuna
in
MPN Voice
2 years ago
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Folate Deficient (3rd time since October 2019)
Evening everyone I’m just wondering if anyone has any advice/experience with folate deficiency please? This is the third time my folate has dropped <2 I’m on my 2nd month (of 4 month prescription) of Folic Acid (5mg daily) but to be honest I still feel quite poorly, dizzy/off balance, extremely tired
Evening everyone I’m just wondering if anyone has any advice/experience with folate deficiency please? This is the third time my folate has dropped <2 I’m on my 2nd month (of 4 month prescription) of Folic Acid (5mg daily) but to be honest I still feel quite poorly, dizzy/off balance, extremely tired
Shazy-B
in
Pernicious Anaemia Society
2 years ago
Folate deficiency (3rd time)
Evening everyone I’m just wondering if anyone has any advice/experience with folate deficiency please? This is the third time my folate has dropped <2 I’m on my 2nd month (of 4 month prescription) of Folic Acid (5mg daily) but to be honest I still feel quite poorly, dizzy/off balance, extremely tired
Evening everyone I’m just wondering if anyone has any advice/experience with folate deficiency please? This is the third time my folate has dropped <2 I’m on my 2nd month (of 4 month prescription) of Folic Acid (5mg daily) but to be honest I still feel quite poorly, dizzy/off balance, extremely tired
Shazy-B
in
Thyroid UK
2 years ago
Advice before discussing private blood result with doctor please
Hi, I am trying to get to the bottom of a list of unusual symptoms. GP ordered various blood tests, notable results as follows: Serum Folate 1.7 (4-26) Deficient Ferritin 38 (30-300) Vitamin D 42 <50 Inadequate MCV 94.8 (76-98) MCH 31.4 (27-32) Only tested total B12, result was 325 (180-770), so no
Hi, I am trying to get to the bottom of a list of unusual symptoms. GP ordered various blood tests, notable results as follows: Serum Folate 1.7 (4-26) Deficient Ferritin 38 (30-300) Vitamin D 42 <50 Inadequate MCV 94.8 (76-98) MCH 31.4 (27-32) Only tested total B12, result was 325 (180-770), so no
BERTIE4500
in
Pernicious Anaemia Society
2 years ago
Help with iron results please
Hello As always, a huge thank you for all of your help to date! I’ve recently had an iron panel and could really do with some help understanding the iron results. I really don’t know what these mean and I’m confused by the over/ low and what this all suggests?? I don’t supplement at the moment as wanted
Hello As always, a huge thank you for all of your help to date! I’ve recently had an iron panel and could really do with some help understanding the iron results. I really don’t know what these mean and I’m confused by the over/ low and what this all suggests?? I don’t supplement at the moment as wanted
Hidden
in
Thyroid UK
2 years ago
Folate
I am confused about how much folate to supplement with when taking B12 injections. These were my labs were done a year ago (when B12 deficiency was discovered): B12: 240 (range 239-931) Folate: 8.4 (range 7-31) After only 4 injections my folate dipped to 5.2. My neurologist had me start 400 mcg or folate
I am confused about how much folate to supplement with when taking B12 injections. These were my labs were done a year ago (when B12 deficiency was discovered): B12: 240 (range 239-931) Folate: 8.4 (range 7-31) After only 4 injections my folate dipped to 5.2. My neurologist had me start 400 mcg or folate
lambuth_eagle
in
Pernicious Anaemia Society
2 years ago
Magnesium supplement advice please
I've been taking magnesium glycinate supplements, no sure if they helped but heho, I've ran out so I need to reorder. I don't want the same brand as they were huge! I've searched on here and it looks like taurate might suit me better as I struggle with ectopic heartbeats a lot. Can any of you recommend
I've been taking magnesium glycinate supplements, no sure if they helped but heho, I've ran out so I need to reorder. I don't want the same brand as they were huge! I've searched on here and it looks like taurate might suit me better as I struggle with ectopic heartbeats a lot. Can any of you recommend
Baggiesfan
in
Thyroid UK
2 years ago
Iron infusion
hello all - I have a question about iron infusions. By way of background info, mmy rheumatologist tells me I have lupus of the 'mild' type i.e. no cardiac, or kidney damage has yet been discovered, however, I do experience joint pain, raynauds, horrible fatigue and other symptoms. I have experienced
hello all - I have a question about iron infusions. By way of background info, mmy rheumatologist tells me I have lupus of the 'mild' type i.e. no cardiac, or kidney damage has yet been discovered, however, I do experience joint pain, raynauds, horrible fatigue and other symptoms. I have experienced
Ophelia1
in
LUPUS UK
2 years ago
New to all of this Pernicious Anemia Confused about physical response?
I am new here and this is my first question ever in this group. I have pernicious anemia due to GERD and much antacids, Protein Pump inhibitors, which have now wrecked my body and B12 levels. I started injecting 1000 cc daily, (from Vitamin Quick Shop and Pernicious Anemia org.) for a week, than every
I am new here and this is my first question ever in this group. I have pernicious anemia due to GERD and much antacids, Protein Pump inhibitors, which have now wrecked my body and B12 levels. I started injecting 1000 cc daily, (from Vitamin Quick Shop and Pernicious Anemia org.) for a week, than every
RisingOne
in
Pernicious Anaemia Society
2 years ago
Haemolytic anaemia
Does anyone know anything about haemolytic anaemia? (It's the result of red blood cells not functioning properly). My situation is I've had ET for 6 years, hydroxy , then pegasys for the last 18 months, finally my platelets are nearly down to normal, but haemoglobin has been steadily falling, now at
Does anyone know anything about haemolytic anaemia? (It's the result of red blood cells not functioning properly). My situation is I've had ET for 6 years, hydroxy , then pegasys for the last 18 months, finally my platelets are nearly down to normal, but haemoglobin has been steadily falling, now at
Joetcalr
in
MPN Voice
2 years ago
Testing for PA
Has anyone had all the bloodwork (IFA, parietal cell, MMA, homocysteine) and endoscopy & colonoscopy (including biopsies) that all came back fine yet still have B12 deficiency or PA? Is it possible to still have PA without having any definitive test results. Endoscopy and colonoscopy did not turn up
Has anyone had all the bloodwork (IFA, parietal cell, MMA, homocysteine) and endoscopy & colonoscopy (including biopsies) that all came back fine yet still have B12 deficiency or PA? Is it possible to still have PA without having any definitive test results. Endoscopy and colonoscopy did not turn up
lambuth_eagle
in
Pernicious Anaemia Society
2 years ago
New to this forum!
Hi. I was diagnosed with PA about 6 years ago. I had my B12 shots at my surgery but after my initial boosters, they only gave me 1 a month (if that). So when Covid rocked up, I bought everything myself and have been self injecting for the last few years with my GP’s approval. I’m just about to run out
Hi. I was diagnosed with PA about 6 years ago. I had my B12 shots at my surgery but after my initial boosters, they only gave me 1 a month (if that). So when Covid rocked up, I bought everything myself and have been self injecting for the last few years with my GP’s approval. I’m just about to run out
Hidden
in
Pernicious Anaemia Society
2 years ago
H Pylori and B12 deficiency
I am aware that untreated H Pylori can cause a vitamin B12 deficiency, but was wondering by how much? (I.e. could this be the *sole* cause of my B12 deficiency?) Maybe difficult to quantify I know, but was thinking whether I might in the future (after eliminating my recently diagnosed H Pylori) be able
I am aware that untreated H Pylori can cause a vitamin B12 deficiency, but was wondering by how much? (I.e. could this be the *sole* cause of my B12 deficiency?) Maybe difficult to quantify I know, but was thinking whether I might in the future (after eliminating my recently diagnosed H Pylori) be able
Edso57
in
Pernicious Anaemia Society
2 years ago
Results Help
Hi, I'm looking at my results and would like a bit of help in working out what might be the right direction to follow. I am currently taking 125mg and will need to go for another GP blood text in the next couple of weeks. Currently I normally don't sleep well, waking up during the night either being
Hi, I'm looking at my results and would like a bit of help in working out what might be the right direction to follow. I am currently taking 125mg and will need to go for another GP blood text in the next couple of weeks. Currently I normally don't sleep well, waking up during the night either being
Shufflebunnie
in
Thyroid UK
2 years ago
Iron panel results
Good morning, after advice on here decided to get iron panel done as low ferritin. Iron 30 .3 range 5.8 -34.5 Ti bc 63.6 range 45-81 Uibc 33.3 range 24.2-70.1 Transferrin Sat 47% range 20-50 Ferritin 40.6 range 13-150 My ferritin is usually 15 to 20 . I have blood tests every month,sometimes every
Good morning, after advice on here decided to get iron panel done as low ferritin. Iron 30 .3 range 5.8 -34.5 Ti bc 63.6 range 45-81 Uibc 33.3 range 24.2-70.1 Transferrin Sat 47% range 20-50 Ferritin 40.6 range 13-150 My ferritin is usually 15 to 20 . I have blood tests every month,sometimes every
4youreyesonly
in
Thyroid UK
2 years ago
High ferritin low serum iron
Hello :) Last year I had blood taken and my ferritin was 86, at the middle of the reference range (15-150) However my serum iron was 65, in the low part of the range (50-170) Has anyone experienced high ferritin but low iron? I just had more bloods done and ferritin was 129. There was no serum
Hello :) Last year I had blood taken and my ferritin was 86, at the middle of the reference range (15-150) However my serum iron was 65, in the low part of the range (50-170) Has anyone experienced high ferritin but low iron? I just had more bloods done and ferritin was 129. There was no serum
Charlyemmalouise
in
Thyroid UK
2 years ago
Welcome to another Skcin ambassador
Mrs Aenone Harper Machin is a Consultant Plastic Surgeon and an Honourary Senior Lecturer working in one of the busiest specialist plastic surgery departments in Europe. Specialising specifically in melanoma of the head and neck area she performs some of the most complex surgery worldwide. Based at
Mrs Aenone Harper Machin is a Consultant Plastic Surgeon and an Honourary Senior Lecturer working in one of the busiest specialist plastic surgery departments in Europe. Specialising specifically in melanoma of the head and neck area she performs some of the most complex surgery worldwide. Based at
SkcinHQ
Partner
in
Skin Cancer UK
2 years ago
Timings for Supplements
Good morning everyone. Now that I'm over a month into my Levo prescription (50mcg trial agreed to by GP with some gentle persuasion from fabulous knowledge from you all ;)) I'm looking to start adding some supplements in gradually to try to get my vitamin levels back on track. My D3 was low so GP has
Good morning everyone. Now that I'm over a month into my Levo prescription (50mcg trial agreed to by GP with some gentle persuasion from fabulous knowledge from you all ;)) I'm looking to start adding some supplements in gradually to try to get my vitamin levels back on track. My D3 was low so GP has
AtemiM
in
Thyroid UK
2 years ago
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