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Advice on folic acid
I was diagnosed with pernicious anaemia in nov last year . I am 65 years old and also have hashimotos thyroiditis for 30 + yrs. I had been under my gp for low b12 and folate for over a year ( just given folic acid) as my b12 was not low enough to start injections. PA runs in our family though. In the
I was diagnosed with pernicious anaemia in nov last year . I am 65 years old and also have hashimotos thyroiditis for 30 + yrs. I had been under my gp for low b12 and folate for over a year ( just given folic acid) as my b12 was not low enough to start injections. PA runs in our family though. In the
Charlie27612
in
Pernicious Anaemia Society
1 year ago
Can anyone figure out my MRD
Can anyone figure out what my MRD ( CLL cells per 10,000) is from this report. Component Your Value Standard Range Interpretation Flow cytometric immunophenotyping performed on the peripheral blood shows a small, dim kappa restricted B-cell population (representing ~98% of B cells, 6% of total
Can anyone figure out what my MRD ( CLL cells per 10,000) is from this report. Component Your Value Standard Range Interpretation Flow cytometric immunophenotyping performed on the peripheral blood shows a small, dim kappa restricted B-cell population (representing ~98% of B cells, 6% of total
johnliston
in
CLL Support
1 year ago
Introducing Better Together for Healthy Bone Marrow
With heartfelt thanks to players of the National Lottery and TNL Community Fund, and our partners The
Aplastic
Anaemia
Trust, Congenital Anaemia Network CAN, DBAUK, Fanconi Hope, PNH Support and SDS UK. #nationallottery #partnerships #rarediseases
With heartfelt thanks to players of the National Lottery and TNL Community Fund, and our partners The
Aplastic
Anaemia
Trust, Congenital Anaemia Network CAN, DBAUK, Fanconi Hope, PNH Support and SDS UK. #nationallottery #partnerships #rarediseases
JayKayPee
Administrator
in
DC Action
2 years ago
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PMR and low White Blood Cell Count
A recent blood test (CBC) shows several low markers related to white blood cells - lymph, abs lymph, mono, and eosinophils. Also, two of the red blood cell counts were high, including MCV fL and neutrophils. I realize a slightly high or low number may not be cause for concern, but I don't know what is
A recent blood test (CBC) shows several low markers related to white blood cells - lymph, abs lymph, mono, and eosinophils. Also, two of the red blood cell counts were high, including MCV fL and neutrophils. I realize a slightly high or low number may not be cause for concern, but I don't know what is
DakotaMae
in
PMRGCAuk
1 year ago
Intrinsic factor antibody result
Hi all, I've only just seen the result of an Intrinsic Factor Antibody test that was done in December before I started SI which I don't know how to interpret. I got a result of 2 u/ml (reference range is 0-24 u/ml). Is that a positive or a negative result? Does that confirm PA or not? Can someone explain
Hi all, I've only just seen the result of an Intrinsic Factor Antibody test that was done in December before I started SI which I don't know how to interpret. I got a result of 2 u/ml (reference range is 0-24 u/ml). Is that a positive or a negative result? Does that confirm PA or not? Can someone explain
Gecko22
in
Pernicious Anaemia Society
1 year ago
B12 injections stopped by GP
I have been on B12 injections for 4 years. (I had exhaustion, nausea, headaches etc and B12 was confirmed as being 40.)Had.loading dose and been having 3 monthly injections ever since. Intrinsic Factor was negative, but I do not have a restrictive diet. Anyway, GP decided to check my B12 when I asked
I have been on B12 injections for 4 years. (I had exhaustion, nausea, headaches etc and B12 was confirmed as being 40.)Had.loading dose and been having 3 monthly injections ever since. Intrinsic Factor was negative, but I do not have a restrictive diet. Anyway, GP decided to check my B12 when I asked
ValentinoBlue
in
Pernicious Anaemia Society
1 year ago
Ferrous Fumarate
I have just had blood tests done. I was found to be low in iron so the GP gave me ferrous fumarate to take for a month. I am on Levothyroxine (one day 75, next 100) I have just started taking escitalopram 10mg for the most awful anxiety and depression. But my anxiety is still really bad I’ve read ferrousfumarate
I have just had blood tests done. I was found to be low in iron so the GP gave me ferrous fumarate to take for a month. I am on Levothyroxine (one day 75, next 100) I have just started taking escitalopram 10mg for the most awful anxiety and depression. But my anxiety is still really bad I’ve read ferrousfumarate
sidneymark70
in
Thyroid UK
1 year ago
List of Neurological Symptoms
Asking for help again. Working with a friend who is navigating the UK medical system. Tests for B12 were taken prior which showed B12 deficiency and GP did not interprete the results correctly. No surprise there. More tests have been ordered after the GP was given information about B12 deficiency
Asking for help again. Working with a friend who is navigating the UK medical system. Tests for B12 were taken prior which showed B12 deficiency and GP did not interprete the results correctly. No surprise there. More tests have been ordered after the GP was given information about B12 deficiency
WIZARD6787
in
Pernicious Anaemia Society
1 year ago
How do you cope with the fatigue.
Hi This is my first post after being diagnosed and i am struggling. I was diagnosed with ET Jak2 last December after a 20 month wait from being referred by my GP, i am 62. Was diagnosed with reactive thrombocytosis in 2012 so no idea how long i have had ET. I also had some TIA's in 2018 which they
Hi This is my first post after being diagnosed and i am struggling. I was diagnosed with ET Jak2 last December after a 20 month wait from being referred by my GP, i am 62. Was diagnosed with reactive thrombocytosis in 2012 so no idea how long i have had ET. I also had some TIA's in 2018 which they
Arnoldthecat
in
MPN Voice
1 year ago
Low hemoglobin and Niraparib
It’s 2:29am and am just back from A&E. Had my usual bloods done today and at 10:15pm got a call saying my hemoglobin result were very low and I needed to go asap to hospital. Did so, fantastic treatment and back tomorrow to have a blood transfusion. Has anyone else experienced low hemoglobin whilst on
It’s 2:29am and am just back from A&E. Had my usual bloods done today and at 10:15pm got a call saying my hemoglobin result were very low and I needed to go asap to hospital. Did so, fantastic treatment and back tomorrow to have a blood transfusion. Has anyone else experienced low hemoglobin whilst on
Skyeplus
in
My Ovacome
1 year ago
Your thyroid and iron deficiency stories, please
My ferritin is now 7. (Safe levels being 13 and above). Haemoglobin is 114 (Safe levels used to be 120 and above but now all of a sudden are 115. Surely just a coincidence that it’s women who experience lower iron levels, as a rule. Surely). MCHC, transferrin, serum iron etc all out of whack, too
My ferritin is now 7. (Safe levels being 13 and above). Haemoglobin is 114 (Safe levels used to be 120 and above but now all of a sudden are 115. Surely just a coincidence that it’s women who experience lower iron levels, as a rule. Surely). MCHC, transferrin, serum iron etc all out of whack, too
HowNowWhatNow
in
Thyroid UK
11 months ago
German online Hydroxocobalamin ??
Help! Today I went online to find my ordinary package of 10 "ampullen" B12 Hydroxocobalamin on Amazon.de, but they only had cyano..., and so did Versand Apo, Flensburg Apo, Or..., they did not ship to outside Germany. Help, help, what to do? I cannot handle cyano cobalamin, and here in Denmark, it
Help! Today I went online to find my ordinary package of 10 "ampullen" B12 Hydroxocobalamin on Amazon.de, but they only had cyano..., and so did Versand Apo, Flensburg Apo, Or..., they did not ship to outside Germany. Help, help, what to do? I cannot handle cyano cobalamin, and here in Denmark, it
indywindy
in
Pernicious Anaemia Society
1 year ago
Vits tested
I’ll ask the GP for some iron, I’ve bought a blood test online which is more thorough. Waiting for day 3 of my period as there’s lots of hormones included, just wondered if the b12 or folate are ok? Serum vitamin B12 level 311 ng/L [180 - 640] Serum ferritin level 20 ng/ml [15 - 200] Serum folate
I’ll ask the GP for some iron, I’ve bought a blood test online which is more thorough. Waiting for day 3 of my period as there’s lots of hormones included, just wondered if the b12 or folate are ok? Serum vitamin B12 level 311 ng/L [180 - 640] Serum ferritin level 20 ng/ml [15 - 200] Serum folate
Happytiredbunny
in
Thyroid UK
1 year ago
Low folate and neurological symptoms
Hi All I have low folate at the moment and neurological symptoms. I also have another condition that does affect me neurologically so I'm not sure whether it is that or the folate deficiency that is causing my recent symptoms. I have numbness is my face mainly on one side but also in my back and
Hi All I have low folate at the moment and neurological symptoms. I also have another condition that does affect me neurologically so I'm not sure whether it is that or the folate deficiency that is causing my recent symptoms. I have numbness is my face mainly on one side but also in my back and
Galaxy2
in
Gluten Free Guerrillas
1 year ago
High active b12
Hi everyone just wanted to know is it normal to have high active b12 when on 3 monthly Injections. I have had a private blood test done for multiple thing. Thyroid anemia ect included was active b12 which has come back at >300 pnol/L my last injection was December. Bit worried at how high it is.
Hi everyone just wanted to know is it normal to have high active b12 when on 3 monthly Injections. I have had a private blood test done for multiple thing. Thyroid anemia ect included was active b12 which has come back at >300 pnol/L my last injection was December. Bit worried at how high it is.
alpeec
in
Pernicious Anaemia Society
1 year ago
serum iron
While seeing a Dr at Leicester hospital I was asked to have a blood test, it wasn’t a fasting one. I have just had a letter, my serum iron was 12 there is no mention of anything else. The registrar has written “ Low iron can make restless legs worse and therefore I would be grateful if you could investigate
While seeing a Dr at Leicester hospital I was asked to have a blood test, it wasn’t a fasting one. I have just had a letter, my serum iron was 12 there is no mention of anything else. The registrar has written “ Low iron can make restless legs worse and therefore I would be grateful if you could investigate
Elsie77
in
Restless Legs Syndrome
11 months ago
Blood test for intrinsic factor. How accurate is it?
Have been well for quite a while on my eight weekly B12 injections but had been referred to a gastroenterologist for worsening IBS . He wants to find out why I have B12 deficiency and has requested I have blood test for intrinsic factor. Just wondering how accurate this is as sure I’ve had before and
Have been well for quite a while on my eight weekly B12 injections but had been referred to a gastroenterologist for worsening IBS . He wants to find out why I have B12 deficiency and has requested I have blood test for intrinsic factor. Just wondering how accurate this is as sure I’ve had before and
Mavis15
in
Pernicious Anaemia Society
1 year ago
What does Anaemic mean ?
I am a bit confused about what anaemic means. I have low folate at 3.82 ( the normal range is >3.89) , and red blood cells are 3.7 ( normal range 3.8 -5.8). Haemoglobin is 135 ( normal range 115-160) This is from blood tests done recently at my surgery. Yet at my last clinic visit my haematologist
I am a bit confused about what anaemic means. I have low folate at 3.82 ( the normal range is >3.89) , and red blood cells are 3.7 ( normal range 3.8 -5.8). Haemoglobin is 135 ( normal range 115-160) This is from blood tests done recently at my surgery. Yet at my last clinic visit my haematologist
jodary
in
MPN Voice
1 year ago
Iron deficiency anemia and increased A1C levels
Have those of you who receive phlebotomy for PV experienced elevated A1C levels? I get phlebotomies ever couple of weeks, which as expected, has caused me to be iron deficient and a bit anemic (HGB 11.1, Ferritin <3 ng/mL, Iron 29, Transferrin 6%, UIBC 434, and IBC 463). I am also on 2 aspirin/
Have those of you who receive phlebotomy for PV experienced elevated A1C levels? I get phlebotomies ever couple of weeks, which as expected, has caused me to be iron deficient and a bit anemic (HGB 11.1, Ferritin <3 ng/mL, Iron 29, Transferrin 6%, UIBC 434, and IBC 463). I am also on 2 aspirin/
LIGEBA
in
MPN Voice
1 year ago
Vitamin D
Good afternoon, I have been asked by my gp to take an over the counter B vitamin supplement that contains at least 400mcg of folic acid. I managed to buy Thorne Basic B complex with folate but I am finding the tablets difficult to swallow because of their size. Can anyone recommend another brand of vitamin
Good afternoon, I have been asked by my gp to take an over the counter B vitamin supplement that contains at least 400mcg of folic acid. I managed to buy Thorne Basic B complex with folate but I am finding the tablets difficult to swallow because of their size. Can anyone recommend another brand of vitamin
Pinkisland
in
Thyroid UK
1 year ago
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