Experiences with

Aplastic anaemia

So as well as Pernicious Anaemia it seems I may have acquired aplastic anaemia according to my bone marrow results. Does anyone else have this?

Hey all, Just wondered if it’s okay to take Three Arrows iron at the same time as a methyfolate supplement? I did google it as I know iron can affect absorption of other supps but can’t find an answer. I’ve decided to go ahead and start supp’ing everything I’m lacking (results in prev post) I’m

I can't understand why my haemoglobin levels drop so quickly when there is an SLE flare. Can anyone give any tips on the maintenance of haemoglobin? I have had an iron infusion which has helped massively, but feel my levels have dropped. I have another blood test this week. Iron tablets are not the

My most recent oncologist appointment was very encouraging. Since I started taking Brukinsa (zanubrutinib), my white blood count has been coming down from a high several months ago of 133K, it is now at 61K and has been dropping about 15 points monthly! The corresponding lymphocyte count is now in the

I have always had very low blood pressure to the point of having to add extra salt to my diet. I have been taking 50mg of iron bigylcinate every night which does help me sleep and diminish my RLS. But now my blood pressure as risen to the 130-140/70s and I am wondering if I am getting too much iron

Hi there, ever since embarking on clean keto my cholesterol has risen and I was diagnosed with NAFLD. I also have had slightly elevated liver enzymes for a year now. Anyone else experience this? I am stopping keto and going back to how I used to eat which included good complex carbs

Hi - I had a right hemicolectomy for neuroendocrine cancer (tumour in my terminal ileum) in April '24. The previous December (Dec '23) i went to my GP with mouth ulcers that wouldn't heal and after a blood test was diagnosed with a Folate deficiency and prescribed folic acid. Following that I was really

Hi I've joined to maybe get some advice as I don't feel well. I am seeing my doctor as I'm feeling fatigued, generally weak and my coordination seems off. When I give blood my Haemoglobin is always border line, I can only just get through to donate. They say my iron is low and to see my doctor.

Diagnosed with pernicious anemia in June. Just found out that my ferritin dropped to 10 after doing B12 shots for 7 months. Have been feeling very tired, dizzy, and having vision issues (floaters, blurry vision, etc.). Should I supplement iron in addition to b12 shots or pause b12 shots and supplement

good morning, I am wondering if taking a multi vitamin and mineral supplement would be too much along with the cofactors that we need to take with our B12 I take methyl folate , iron, vit d, mk7, potas, and mag. and B12. I'm starting my 8th month inj. and am able to handle more of the cofactors now.

Good that the article has been published - but they should not have missed the different forms of B6 which might be very important. [i]Simon never linked the pain in his hands and feet to multivitamins – but a pathology test did[/i][i]A growing number of consumers are presenting with symptoms

just seen results of my iron studies, not good to say the least! My GP held her hands up and admitted she knew next to nothing about RLS and was receptive to the literature I printed off for her. She is not happy to start a tapering regime until she gets advice from a neurologist and has referred me

I have suffered from mild anaemia in the past and took iron tablets for it. Now despite taking iron tablets I am still anaemia. My haematologist has told me not to take iron every day (I wasn’t told why) but now I find that nothing is helping. I do intend to talk to my GP about this but wondered if anyone

I’ve been off Ropinorole for about 2 months. Taking Gabapentin 400 mg. Twice daily. The problem I have now is RLS in my arms. I started taking Bupropion two weeks ago for depression. Last night my arms started when I went to bed. The twitching got so bad my whole upper body was twitching and shaking

Hello, I’m new here, but have been lurking for a couple of weeks whilst I try and get my head around what I think is going on. I am grateful for all the information I have gleaned from you all.....thank you! I am now convinced I have PA, because I have so many symptoms, for quite a number of years

Dear forum members, FallingInReverse radd I am trying to work out the best way to maintain my ferritin level. I took lactoferrin for 3 months (July, August, September: see previous post) and I have just received my results from x2 Three Arrows weekly(Oct, Nov, Dec), I’d be very grateful for your input

I am so glad I am not the only one I was recently changed to a different surgery in our old surgery I was having vit b12 injections for at least 10 yrs my mother had pernicious anaemia and died at the age of 52 but she refused her injections I was diagnosed as probable pernicious anaemia as there's a

Hi All Last time I inquired about where to get the Pegasus in Australia. Through this forum I came to where I can order and get it here. The company delivered in three days from order. Thank you all who let me know. Now with venesection and injection once a month the results became v satisfactory

I have felt exhausted for years. I had blood tests in May that showed my b12 levels were 74. Iron was 23, so only just normal. Vitamin d was deficient (24). I had six loading doses of vitamin b12 plus loading dose of vitamin d and ferritin tablets. I felt like a new woman after the b12 shots but within