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A helpful video for me.
https://www.youtube.com/watch?v=q5cyMLt6N7Q This was posted by someone else on this site 6+- months ago and resonated with me. I do not know who the creator is or their credentials. I am more than fine that it is not blessed/authenticated and find it valuable. It differentiates between Intrinsic
https://www.youtube.com/watch?v=q5cyMLt6N7Q This was posted by someone else on this site 6+- months ago and resonated with me. I do not know who the creator is or their credentials. I am more than fine that it is not blessed/authenticated and find it valuable. It differentiates between Intrinsic
WIZARD6787
in
Pernicious Anaemia Society
10 months ago
Frequency of B12 injections
I have just been for my usual injection after 10 weeks and 2 days and it has been refused because it's not 12 weeks since the last one.I have had injections every 10 weeks for 18 years since I was diagnosed with pernicious anaemia. I was told at the start the injections were due every 10 to 12 weeks
I have just been for my usual injection after 10 weeks and 2 days and it has been refused because it's not 12 weeks since the last one.I have had injections every 10 weeks for 18 years since I was diagnosed with pernicious anaemia. I was told at the start the injections were due every 10 to 12 weeks
Suesue246
in
Pernicious Anaemia Society
7 months ago
Problems with medication supplies
Hi. Since I recently swapped to home deliveries for medication, every 4 weeks some meds are missing or out of stock.I didn't have this problem when I ordered directly from the GP, changed over because I was struggling to get into town to collect my prescriptions. The messages from Lloyds Pharmacy says
Hi. Since I recently swapped to home deliveries for medication, every 4 weeks some meds are missing or out of stock.I didn't have this problem when I ordered directly from the GP, changed over because I was struggling to get into town to collect my prescriptions. The messages from Lloyds Pharmacy says
Wytchylady
in
LUPUS UK
7 months ago
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Iron and ferritin advice requested
I have recently had a full set of iron and ferritin blood tests completed and would like some advice on the numbers, please (prior to these tests, only my ferritin levels have been tested). They result from early morning fasting with no iron supplements for one week. My serum ferritin was 160 µg/L.
I have recently had a full set of iron and ferritin blood tests completed and would like some advice on the numbers, please (prior to these tests, only my ferritin levels have been tested). They result from early morning fasting with no iron supplements for one week. My serum ferritin was 160 µg/L.
MrVimes
in
Restless Legs Syndrome
4 months ago
GP wont prescribe Hydroxycobalamin until further blood tests conducted despite neuro involvement.
Good morning.I've found this forum out of desperation having experienced what I now know are symptoms of B12 deficiency for a few years. After repeated B12 levels over the years which consistently showed my levels dropping (treatable since 2021 in some parts of the country) they were finally low enough
Good morning.I've found this forum out of desperation having experienced what I now know are symptoms of B12 deficiency for a few years. After repeated B12 levels over the years which consistently showed my levels dropping (treatable since 2021 in some parts of the country) they were finally low enough
Betwelvepatient
in
Pernicious Anaemia Society
7 months ago
Ferritin
I know that Ferritin is stored iron but I’m a bit confused about how Ferritin and iron correlate. Is it possible to have Ferritin in range but low iron - and what would be considered optimal Ferritin? My level has just been tested and has gone down from a stable 88 to 34 I’m sorry to be so dumb
I know that Ferritin is stored iron but I’m a bit confused about how Ferritin and iron correlate. Is it possible to have Ferritin in range but low iron - and what would be considered optimal Ferritin? My level has just been tested and has gone down from a stable 88 to 34 I’m sorry to be so dumb
Hidden
in
Thyroid UK
4 months ago
What level is normal after B12 injections
First post after being diagnosed with very low B12 (67). I am in the UK and had the course of six injections within two weeks 12 weeks ago. My level of B12 has just been tested and is 360 but I have no idea whether this would be normal at this stage? I am debating whether to have another injection or
First post after being diagnosed with very low B12 (67). I am in the UK and had the course of six injections within two weeks 12 weeks ago. My level of B12 has just been tested and is 360 but I have no idea whether this would be normal at this stage? I am debating whether to have another injection or
NeverSayDi
in
Pernicious Anaemia Society
7 months ago
Restless legs and iron anaemia
Pronounced iron anaemia, but no possibility of iron infusion in Denmark. So I'm now taking iron tablets, but I'm not sure how much iron I should take? My doctor knows less about restless legs, about augmentation and how much iron in iron anaemia than I do!Will it be enough to take Amino Iron Ferrocel
Pronounced iron anaemia, but no possibility of iron infusion in Denmark. So I'm now taking iron tablets, but I'm not sure how much iron I should take? My doctor knows less about restless legs, about augmentation and how much iron in iron anaemia than I do!Will it be enough to take Amino Iron Ferrocel
Gibbel
in
Restless Legs Syndrome
4 months ago
1 or 2 time a day vit b12 1000 microgram???
Hello dear friends I read here some post that someone is injecting one or two time a day of vitamin b12 ampules (1000 microgram or 1 mg). Is it safe to inject such a massive b12 one or two time a day for life??? I thought that the protocol for b12 deficiency treatment is loading doses of 6 ampules during
Hello dear friends I read here some post that someone is injecting one or two time a day of vitamin b12 ampules (1000 microgram or 1 mg). Is it safe to inject such a massive b12 one or two time a day for life??? I thought that the protocol for b12 deficiency treatment is loading doses of 6 ampules during
Emiroskui
in
Pernicious Anaemia Society
10 months ago
buprenorphine -what next
I’ve been on buprenorphine for about 2 months now. I take 600 micrograms. I have also been slowly reducing from pregabalin by 25 mg every two weeks and am now on 100mg. I had nausea when I started buprenorphine but that stopped after a couple of weeks only to return. I have totally lost my appetite
I’ve been on buprenorphine for about 2 months now. I take 600 micrograms. I have also been slowly reducing from pregabalin by 25 mg every two weeks and am now on 100mg. I had nausea when I started buprenorphine but that stopped after a couple of weeks only to return. I have totally lost my appetite
Happykaz
in
Restless Legs Syndrome
10 months ago
Help with supplementing iron
GPhas prescribed ferrous sulfate . I am finding it makes me very constipated. Has anyone else had this problem and can anyone advise anything better to take? Thanks in advance!8
GPhas prescribed ferrous sulfate . I am finding it makes me very constipated. Has anyone else had this problem and can anyone advise anything better to take? Thanks in advance!8
Heatheronthehill
in
Thyroid UK
10 months ago
Full-text article from 1969
This article is beyond me. I am posting it because it seems relevant on the face; in addition, it is a 1969 article, and full text of articles from the 1960s and 1970s are rarely available, which would seem to suggest that this article is a special case. Therefore, some people on this forum might be
This article is beyond me. I am posting it because it seems relevant on the face; in addition, it is a 1969 article, and full text of articles from the 1960s and 1970s are rarely available, which would seem to suggest that this article is a special case. Therefore, some people on this forum might be
WiscGuy
in
Pernicious Anaemia Society
7 months ago
re tested
Bloods Tested again and results are TSH <0.01 mlU/L (0.55-4.78) FreeT420.8 pmol/L. (11.5-22.7) Vit B12 is 637 pg/mL (200) Serum folate 17.00 ng/ml. (>5.50) Ferritin 62 ng/mL (301480) Can I have your thoughts ps. I'm currently taking Vit d spray, b12 drops and I have about 2 weeks left of folic
Bloods Tested again and results are TSH <0.01 mlU/L (0.55-4.78) FreeT420.8 pmol/L. (11.5-22.7) Vit B12 is 637 pg/mL (200) Serum folate 17.00 ng/ml. (>5.50) Ferritin 62 ng/mL (301480) Can I have your thoughts ps. I'm currently taking Vit d spray, b12 drops and I have about 2 weeks left of folic
Welshscot
in
Thyroid UK
10 months ago
Blood test results
Just had my yearly check up with full blood tests. I can access the results but will also be seeing my GP face to face (!) next week as this is part of the check up. Can you tell me what these two results mean, please? Serum Creactive protein level 7.8mg/L (normal below 5) and Mean corpus haemoglobin
Just had my yearly check up with full blood tests. I can access the results but will also be seeing my GP face to face (!) next week as this is part of the check up. Can you tell me what these two results mean, please? Serum Creactive protein level 7.8mg/L (normal below 5) and Mean corpus haemoglobin
oscarandchloe
in
PMRGCAuk
10 months ago
Eustachian tube dysfunction is it possible this is connected to b12 deficiency?
My partner has has b12 deficiency symptoms for years, only recently diagnosed. He gets a fullness in his ears, he cant pop them even with all methods ENT teach you. I was just wondering if anyone else had had these problems. Initially we thought his off balance feeling when walking was caused by this
My partner has has b12 deficiency symptoms for years, only recently diagnosed. He gets a fullness in his ears, he cant pop them even with all methods ENT teach you. I was just wondering if anyone else had had these problems. Initially we thought his off balance feeling when walking was caused by this
Nic878
in
Pernicious Anaemia Society
10 months ago
Iron results - any help please?
Inflammation CRP HS 1.850 mg/L (Range: < 3) Iron Status Iron 15.4 umol/L (Range: 10 - 30) TIBC 57.1 umol/L (Range: 45 - 81) UIBC 41.7 umol/L (Range: 13 - 56) Transferrin Saturation 27.0 % (Range: 25 - 45) Ferritin 123.00 ug/L (Range: 30 - 150) Morning all, I've finally got round to checking
Inflammation CRP HS 1.850 mg/L (Range: < 3) Iron Status Iron 15.4 umol/L (Range: 10 - 30) TIBC 57.1 umol/L (Range: 45 - 81) UIBC 41.7 umol/L (Range: 13 - 56) Transferrin Saturation 27.0 % (Range: 25 - 45) Ferritin 123.00 ug/L (Range: 30 - 150) Morning all, I've finally got round to checking
FoggyThinker
in
Thyroid UK
10 months ago
intrinsic factor test
My GP agreed to do an intrinsic factor antibody test. The test he did was IgA and the results came back as within normal range.1.10gl normal range 0.8 to 4.0 . Was this the correct test for pernicious anemia? Thank you
My GP agreed to do an intrinsic factor antibody test. The test he did was IgA and the results came back as within normal range.1.10gl normal range 0.8 to 4.0 . Was this the correct test for pernicious anemia? Thank you
Painttube
in
Pernicious Anaemia Society
7 months ago
Possible dangers of too much iron.
Iron supplementation is often advised on this forum. This article points up new research on the effect of iron on Alzheimer's. I would appreciate anyone with medical knowledge running their eye over this in case of any relevance to RLS. They do mention MS, which can be associated with RLS. Lhlklttps
Iron supplementation is often advised on this forum. This article points up new research on the effect of iron on Alzheimer's. I would appreciate anyone with medical knowledge running their eye over this in case of any relevance to RLS. They do mention MS, which can be associated with RLS. Lhlklttps
Madlegs1
in
Restless Legs Syndrome
10 months ago
Is my problem poor T4-T3 conversion also Endo recommendation please.
Hello all this is my first post although I have been a member of this group for quite a while and have taken so much advice from all the posts. For the past year I have been working on gut health and maximizing my Vitamins. I have been taking Vits – D with K2, B complex with folate not folic acid (
Hello all this is my first post although I have been a member of this group for quite a while and have taken so much advice from all the posts. For the past year I have been working on gut health and maximizing my Vitamins. I have been taking Vits – D with K2, B complex with folate not folic acid (
nannieJen
in
Thyroid UK
4 months ago
Clonidine - success with RLS anyone?
Evening team I have a query. As some of you may remember I was prescribed Buprenorphine two years ago by a neurologist for my restless limbs. I have a feeling I may have asked this question before, maybe not in one of my posts, (can't remember!) Does anyone out there take Clonidine for RLS? if
Evening team I have a query. As some of you may remember I was prescribed Buprenorphine two years ago by a neurologist for my restless limbs. I have a feeling I may have asked this question before, maybe not in one of my posts, (can't remember!) Does anyone out there take Clonidine for RLS? if
Heatherandgorse
in
Restless Legs Syndrome
4 months ago
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