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Anaemia
Well, seems that I am anaemic after all: blood tests at Marsden showef Hb of 114: low enough for me to feel lousy but not low enough for transfusion. Maybe one unit in s couple of weeks time if on retesting. Its dropprd below 110. Will then try starting EPO injections when I get back from holiday
Well, seems that I am anaemic after all: blood tests at Marsden showef Hb of 114: low enough for me to feel lousy but not low enough for transfusion. Maybe one unit in s couple of weeks time if on retesting. Its dropprd below 110. Will then try starting EPO injections when I get back from holiday
Rachelthepotter
in
MPN Voice
9 months ago
FINALLY found a scientific study that supports my theory about Brain Iron and Serum Iron. Finally!!!
First, the relevant quote from the article: “The serum iron concentration was significantly higher in the RLS group than in the control group, but remained within normal ranges in both groups. In this study, there was a significant correlation between serum and CSF iron concentrations, both in the RLS
First, the relevant quote from the article: “The serum iron concentration was significantly higher in the RLS group than in the control group, but remained within normal ranges in both groups. In this study, there was a significant correlation between serum and CSF iron concentrations, both in the RLS
DesertOasis
in
Restless Legs Syndrome
6 months ago
How quickly does homocysteine rise following cessation of B12 injections?
Previous post for context: @https://healthunlocked.com/pasoc/posts/149711971/antibody-to-transcobalamin-ii-causing-functional-b12-deficiency?responses=149728666 I have been trying to convince doctors that I need daily injections to prevent B12 deficiency symptoms from returning. They simply do not believe
Previous post for context: @https://healthunlocked.com/pasoc/posts/149711971/antibody-to-transcobalamin-ii-causing-functional-b12-deficiency?responses=149728666 I have been trying to convince doctors that I need daily injections to prevent B12 deficiency symptoms from returning. They simply do not believe
jeremycat_
in
Pernicious Anaemia Society
9 months ago
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Adenosylcobalamin
I am trying to find out how to administer Adenosylcobalamin in the most efficient way. I am aware that Adenosylcobalamin is water soluble at .097 mcg/ml which with my limited chemistry knowledge means the most I could inject is .097 mcg/ml. However water solubility of hydroxocobalamin is 0.0273 mg
I am trying to find out how to administer Adenosylcobalamin in the most efficient way. I am aware that Adenosylcobalamin is water soluble at .097 mcg/ml which with my limited chemistry knowledge means the most I could inject is .097 mcg/ml. However water solubility of hydroxocobalamin is 0.0273 mg
WIZARD6787
in
Pernicious Anaemia Society
9 months ago
Liquid Iron
Has anyone with atrophic gastritis had any success with taking and tolerating liquid iron please ?I have iron deficiency finally accepted by my doctor after many visits and blood tests !
Has anyone with atrophic gastritis had any success with taking and tolerating liquid iron please ?I have iron deficiency finally accepted by my doctor after many visits and blood tests !
davina70
in
Pernicious Anaemia Society
9 months ago
My baby girl.
Good morning all. I've been writing my updates as anonymous as possible but trying to give relevant information and updates to the condition. In reality I've been writing on my wife's behalf. She was diagnosed in February this year and was taking tremendous strides in getting better. She looked fantastic
Good morning all. I've been writing my updates as anonymous as possible but trying to give relevant information and updates to the condition. In reality I've been writing on my wife's behalf. She was diagnosed in February this year and was taking tremendous strides in getting better. She looked fantastic
Hidden
in
British Liver Trust
9 months ago
"Subacute" "Combined" spinal cord degeneration, decoded?
An ongoing question is the meaning of the initial terms of Subacute Combined Spinal Cord Degeneration. Jade recently posted a link to the article, "A Case of Subacute Combined Degeneration of Spinal Cord Diagnosed by Vitamin B12 Administration Lowering Methylmalonic Acid" I was grazing through the references
An ongoing question is the meaning of the initial terms of Subacute Combined Spinal Cord Degeneration. Jade recently posted a link to the article, "A Case of Subacute Combined Degeneration of Spinal Cord Diagnosed by Vitamin B12 Administration Lowering Methylmalonic Acid" I was grazing through the references
WiscGuy
in
Pernicious Anaemia Society
9 months ago
Migraines
Hello lovely community, I was in hospital yesterday with a flare-up; we now think it was an atypical migraine. But it looked a lot like past episodes I have had. For the past few years I have had recurrent unexplained heart episodes, where my heart rate goes up and stays elevated for hours at a time
Hello lovely community, I was in hospital yesterday with a flare-up; we now think it was an atypical migraine. But it looked a lot like past episodes I have had. For the past few years I have had recurrent unexplained heart episodes, where my heart rate goes up and stays elevated for hours at a time
MusicalFurbaby
in
LUPUS UK
5 months ago
Loosing the weight/Blood Results
hi, this is my second post regarding under active thyroid & trying to get a straight answer for loosing the weight. Was given lots of advice from your members & advised to get full bloods done, saw GP & she did all bloods, results are on here now, asked about the weight & still couldn’t get a straight
hi, this is my second post regarding under active thyroid & trying to get a straight answer for loosing the weight. Was given lots of advice from your members & advised to get full bloods done, saw GP & she did all bloods, results are on here now, asked about the weight & still couldn’t get a straight
Btsfan
in
Thyroid UK
9 months ago
Eligibility for autumn 2023 COVID-19 booster jabs
We have updated our page on COVID-19 vaccinations to include information about who will be eligible for the autumn 2023 boosters. This will be a wider group than those who were eligible for the spring boosters. Read more here: https://www.lupusuk.org.uk/covid19-vaccination/
We have updated our page on COVID-19 vaccinations to include information about who will be eligible for the autumn 2023 boosters. This will be a wider group than those who were eligible for the spring boosters. Read more here: https://www.lupusuk.org.uk/covid19-vaccination/
Debbie_kinsey
Administrator
in
LUPUS UK
9 months ago
Where do I go to?
I am a 60 year old male, I don’t know if I have PA, B12 deficiency or other. I have a number of symptoms which lead me to believe it is at least a B12 deficiency. Having asked my GP for an “active” B12 test I received a full serum test which came with normal levels and apparently that was me cured, my
I am a 60 year old male, I don’t know if I have PA, B12 deficiency or other. I have a number of symptoms which lead me to believe it is at least a B12 deficiency. Having asked my GP for an “active” B12 test I received a full serum test which came with normal levels and apparently that was me cured, my
Isok
in
Pernicious Anaemia Society
9 months ago
Vitamin b12 deficiency
I posted recently about my mum stopping her pregabalin and iron tablets and how she was having a few symptoms which we werent sure were withdrawal effects of pregabalin or just pred side effects.Anyway we seemed to get over that and she was feeling better until last week when she started getting quite
I posted recently about my mum stopping her pregabalin and iron tablets and how she was having a few symptoms which we werent sure were withdrawal effects of pregabalin or just pred side effects.Anyway we seemed to get over that and she was feeling better until last week when she started getting quite
Buchanan16
in
PMRGCAuk
9 months ago
Anybody left with servere virtigo after covid ?
I caught covid after visiting the hospital for an MRI to look at my gastric issues. The virus hit my balance to the extent I wasn't able to walk unaided which I have to say was very disturbing to say the least. Since the virus has cleared I have suffered a few events of vertigo ! I am not the steadiest
I caught covid after visiting the hospital for an MRI to look at my gastric issues. The virus hit my balance to the extent I wasn't able to walk unaided which I have to say was very disturbing to say the least. Since the virus has cleared I have suffered a few events of vertigo ! I am not the steadiest
Jillymo
in
Pernicious Anaemia Society
6 months ago
Testing for Intrinsic Factor - borderline results
Hello to you all on this precious platform, thank you for saving my sanity on many occasions. I was diagnosed with pernicious anemia 10 years ago. My elder sister, following a lengthy battle with her GP was diagnosed a couple of years ago and given loading doses followed by 8 week top-ups. We both
Hello to you all on this precious platform, thank you for saving my sanity on many occasions. I was diagnosed with pernicious anemia 10 years ago. My elder sister, following a lengthy battle with her GP was diagnosed a couple of years ago and given loading doses followed by 8 week top-ups. We both
Discombobulated247
in
Pernicious Anaemia Society
6 months ago
Hello strangers.
Hello, just thought that having been banned from the Cllforum years ago for no good reason, I would catch up with what has been happening to some of the people I liked so much. (I was banned for complaining about the ALT-MED stuff that used to appear so regularly there, and the fact that it was treated
Hello, just thought that having been banned from the Cllforum years ago for no good reason, I would catch up with what has been happening to some of the people I liked so much. (I was banned for complaining about the ALT-MED stuff that used to appear so regularly there, and the fact that it was treated
andysnat
in
CLL Support
9 months ago
Blood test results
I have so little faith in my surgery these days, and because I was feeling really drained I did a home anemia test. The result was abnormal, so I contacted the surgery to arrange for a blood test. What a performance!!! I told the receptionist I did a home test and the result was to see a doctor. It
I have so little faith in my surgery these days, and because I was feeling really drained I did a home anemia test. The result was abnormal, so I contacted the surgery to arrange for a blood test. What a performance!!! I told the receptionist I did a home test and the result was to see a doctor. It
Suziscrews
in
Thyroid UK
9 months ago
amgevita
Hi I had my first adalimumab injection yesterday at the hospital, although on the packet it says Amgevita . Was ok but not had much sleep with stomach issues. I sat googling what I have to avoid food wise on this med about 4.30am this morning! No wiser…. I understand about eggs and unpasteurised milk
Hi I had my first adalimumab injection yesterday at the hospital, although on the packet it says Amgevita . Was ok but not had much sleep with stomach issues. I sat googling what I have to avoid food wise on this med about 4.30am this morning! No wiser…. I understand about eggs and unpasteurised milk
Amb1xkr
in
NRAS
9 months ago
Ferritin levels
I have collected my blood test results and am looking for information before my g.p. follow up appointment tomorrow.I am under the impression that ferritin levels should be "optimum" in order for my B12 injections to work for pernicious anaemia. Although I've been told all of my blood results are "normal
I have collected my blood test results and am looking for information before my g.p. follow up appointment tomorrow.I am under the impression that ferritin levels should be "optimum" in order for my B12 injections to work for pernicious anaemia. Although I've been told all of my blood results are "normal
Suesue246
in
Pernicious Anaemia Society
6 months ago
New PAS blog posts
Hi, I noticed that there were recent blog posts on PAS (Pernicious Anaemia Society) website. From 8th Nov 2023 is "The Patient Experience in Diagnosis and Treatment of Autoimmune Gastritis and Pernicious Anaemia" https://pernicious-anaemia-society.org/blog/the-patient-experience-in-diagnosis-and-treatment-of-autoimmune-gastritis-and-pernicious-anaemia
Hi, I noticed that there were recent blog posts on PAS (Pernicious Anaemia Society) website. From 8th Nov 2023 is "The Patient Experience in Diagnosis and Treatment of Autoimmune Gastritis and Pernicious Anaemia" https://pernicious-anaemia-society.org/blog/the-patient-experience-in-diagnosis-and-treatment-of-autoimmune-gastritis-and-pernicious-anaemia
Sleepybunny
in
Pernicious Anaemia Society
6 months ago
Biologic therapies
I am interested to know if anyone found the injection painful? My first was in the thigh and I am wondering if next time to try the arm or stomach area? Or am I just being a big baby?! 🫣
I am interested to know if anyone found the injection painful? My first was in the thigh and I am wondering if next time to try the arm or stomach area? Or am I just being a big baby?! 🫣
Headoverheels
in
Asthma Community Forum
9 months ago
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