Search
Search
About
Log in
Join
Experiences with
Aplastic anaemia
Posts
Communities
7,510 public posts
Filter results
B12 test
Hi I fear I've been deficient for many years, digestion issues for 20 years, always exhausted hair loss, teeth enamel worn away. stuttering dizziness memory loss confusing words and palpitations (got worse)started about 3 years ago. October 2022 my health took a nose dive, dementia like symptoms, extreme
Hi I fear I've been deficient for many years, digestion issues for 20 years, always exhausted hair loss, teeth enamel worn away. stuttering dizziness memory loss confusing words and palpitations (got worse)started about 3 years ago. October 2022 my health took a nose dive, dementia like symptoms, extreme
Hidden
in
Pernicious Anaemia Society
1 year ago
Feeling worse after B12 Injections
Hi all, I am a 21 y/o male who eats meat and was diagnosed with a B12 deficiency (not PA) about 2 months ago. I went into the walk-in about 3 months ago with heart palpitations, fatigue, severe anxiety, inability to focus, and some vision issues. I was diagnosed with generalized anxiety disorder and
Hi all, I am a 21 y/o male who eats meat and was diagnosed with a B12 deficiency (not PA) about 2 months ago. I went into the walk-in about 3 months ago with heart palpitations, fatigue, severe anxiety, inability to focus, and some vision issues. I was diagnosed with generalized anxiety disorder and
juanpablo111
in
Pernicious Anaemia Society
1 year ago
Am Iwell?
I have my bi-monthly consultant review next week, which always starts with the question, well how are you? My usual reaction, is that perhaps you should tell me! I have just got the results (After 1 hour) of my latest blood test but I'm not sure which questions to ask. I started treatment with 6xRituximab
I have my bi-monthly consultant review next week, which always starts with the question, well how are you? My usual reaction, is that perhaps you should tell me! I have just got the results (After 1 hour) of my latest blood test but I'm not sure which questions to ask. I started treatment with 6xRituximab
Dawson21
in
CLL Support
1 year ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
HELP PLEASE
hi guys it’s been awhile since I have posted, I’m in desperate need of some clarification, it’s my son he’s been so poorly for quite awhile, reoccurring viruses, sever fatigue, joint pain, and is so pale😳😔 he’s in His early 20s and really struggling with all this, I have a diagnosis of Pernious anemia
hi guys it’s been awhile since I have posted, I’m in desperate need of some clarification, it’s my son he’s been so poorly for quite awhile, reoccurring viruses, sever fatigue, joint pain, and is so pale😳😔 he’s in His early 20s and really struggling with all this, I have a diagnosis of Pernious anemia
Steph0077
in
Pernicious Anaemia Society
1 year ago
Hyperparathyroidism
Hi there! I have been diagnosed as having possible primary hyperparathyroidism. I am a shocked that there is not a group for this disease. Can anyone help with this? So many people think I have something wrong with my thyroid when I say I have it, when in fact it is to do with the parathyroid glands
Hi there! I have been diagnosed as having possible primary hyperparathyroidism. I am a shocked that there is not a group for this disease. Can anyone help with this? So many people think I have something wrong with my thyroid when I say I have it, when in fact it is to do with the parathyroid glands
love25032607
in
Thyroid UK
1 year ago
Bloods Results
These where printed out for me as requested, any advice most welcome 🌸 Was taking teva levo 75mcg, thybon henning t3 10mcg, prior to these results. Now taking 5mcg three times a day. Supplement vit D with k2, mk7 and magnesium glycinate
These where printed out for me as requested, any advice most welcome 🌸 Was taking teva levo 75mcg, thybon henning t3 10mcg, prior to these results. Now taking 5mcg three times a day. Supplement vit D with k2, mk7 and magnesium glycinate
Geegee777
in
Thyroid UK
1 year ago
Questions & Advice for a newbie please!
Hi all, I've been investigating possible causes of long-term fatigue. My symptoms & PA risk factors are listed below. I'm currently waiting on results for the Intrinsic factor antibodies test (bloods taken over 2 weeks ago through GP). On advice of a nutritionist I've been taking an oral B complex,
Hi all, I've been investigating possible causes of long-term fatigue. My symptoms & PA risk factors are listed below. I'm currently waiting on results for the Intrinsic factor antibodies test (bloods taken over 2 weeks ago through GP). On advice of a nutritionist I've been taking an oral B complex,
Spiralizer
in
Pernicious Anaemia Society
1 year ago
Folate deficiency
Please can you give me some advice as to what supplement should be take for a folate deficiency. Is it folic acid tablets or folate tablets? I am somewhat confused. Also what is the optimal folate level for a person with Hashimotos? Thanks in advance
Please can you give me some advice as to what supplement should be take for a folate deficiency. Is it folic acid tablets or folate tablets? I am somewhat confused. Also what is the optimal folate level for a person with Hashimotos? Thanks in advance
Pinkisland
in
Thyroid UK
1 year ago
IFAB testing guidelines per Mayo clinic laboratory website
I found this IFAB test guideline. I found a few things pretty interesting. This particular lab which is the lab that did my IFAB test says that you should be fasting for 8 hours before you take this test and you should not have had any B12 injections within 2 weeks prior to the test. Another interesting
I found this IFAB test guideline. I found a few things pretty interesting. This particular lab which is the lab that did my IFAB test says that you should be fasting for 8 hours before you take this test and you should not have had any B12 injections within 2 weeks prior to the test. Another interesting
EllaNore
in
Pernicious Anaemia Society
1 year ago
optimal levels for vit d, folate, ferritin and vit b12?
can anyone advise on what would be considered optimal levels for the above? ferritin 29 (13-150) folate 1.94 (>3.89) b12 91.9 (37.5-150) Vit D 85 (50-200) Thanks. Asking for a friend.
can anyone advise on what would be considered optimal levels for the above? ferritin 29 (13-150) folate 1.94 (>3.89) b12 91.9 (37.5-150) Vit D 85 (50-200) Thanks. Asking for a friend.
Mickeydooley
in
Thyroid UK
1 year ago
What happens next?
I have recently been told by my GP on a telephone consultation that I have ET. No explanation of what it is other then ‘It’s a platelet thing and just making you aware as it might raise its head in the future when you have routine blood tests done. ‘ the GP spoke to Haematology who said they are not
I have recently been told by my GP on a telephone consultation that I have ET. No explanation of what it is other then ‘It’s a platelet thing and just making you aware as it might raise its head in the future when you have routine blood tests done. ‘ the GP spoke to Haematology who said they are not
BarnyKat
in
MPN Voice
1 year ago
Folic Acid
Hi, I have been having B12 injections for 20 years (every 10 wks), but last year started fainting and having really bad palpitations, I actually pased out in the gps surgery, they tested my bloods and found Im low in iron so they gave me a 3 month course of Ferrous Sulfate which brought my levels
Hi, I have been having B12 injections for 20 years (every 10 wks), but last year started fainting and having really bad palpitations, I actually pased out in the gps surgery, they tested my bloods and found Im low in iron so they gave me a 3 month course of Ferrous Sulfate which brought my levels
Mioe
in
Pernicious Anaemia Society
1 year ago
4th time lucky: an interesting appointment
This might not make a lot of sense to anyone who didn't see my last post about angular cheilitis, but if you are interested, have a look (photo attached). After three cancellations, I finally got to see my Oral medicine consultant. At first, I saw a junior that I'd never met before - and felt that
This might not make a lot of sense to anyone who didn't see my last post about angular cheilitis, but if you are interested, have a look (photo attached). After three cancellations, I finally got to see my Oral medicine consultant. At first, I saw a junior that I'd never met before - and felt that
Cherylclaire
Forum Support
in
Pernicious Anaemia Society
1 year ago
PCV 20 Guidelines ? Get 20 if you already had 13 and 23 - or not ?
One pharmacist in Florida refused to give PCV 20 "because guidelines say that if you had other previous pneumo vaccinations you do not need PCV 20 !" I got PCV 13 in 2015 and PCV 23 in 2005. My understanding of the literature is that PCV20 is now "updated" and everybody should get it who may get it
One pharmacist in Florida refused to give PCV 20 "because guidelines say that if you had other previous pneumo vaccinations you do not need PCV 20 !" I got PCV 13 in 2015 and PCV 23 in 2005. My understanding of the literature is that PCV20 is now "updated" and everybody should get it who may get it
janvog
in
CLL Support
1 year ago
Any recent experiences of AIHA developing in progressive CLL - particularly in those treated with or awaiting Venetoclax treatment?
Hi all. Well, 2nd line treatment day one came yesterday, and I dutifully scrubbed up and turned up at the hospital for 0830 to start my planned Venetoclax ramp up. I was somewhat apprehensive tbh, partly because of side effects, partly because of having to hang around haem/onc waiting room for 6 hrs
Hi all. Well, 2nd line treatment day one came yesterday, and I dutifully scrubbed up and turned up at the hospital for 0830 to start my planned Venetoclax ramp up. I was somewhat apprehensive tbh, partly because of side effects, partly because of having to hang around haem/onc waiting room for 6 hrs
jibs60
in
CLL Support
1 year ago
Positive GP experience!
I had my first meeting with my GP following private consultation and initiation of B12 SI treatment 8 weeks ago. He accepted what was said in the letter the private consultant wrote, and agreed to follow up ferritin and folate blood tests. I advised I would have a follow up consult and I would forward
I had my first meeting with my GP following private consultation and initiation of B12 SI treatment 8 weeks ago. He accepted what was said in the letter the private consultant wrote, and agreed to follow up ferritin and folate blood tests. I advised I would have a follow up consult and I would forward
Beccy_123
in
Pernicious Anaemia Society
1 year ago
Can you ‘feel’ your spleen?
I’ve been feeling pressure, not particularly pain, under my ribs on the left for a while. I’ve mentioned this to haematology but no reaction from them. I can feel it most when I’m sat or laid down. Is this relatively normal? I had an iron infusion last as very anaemic, which hasn’t made any difference
I’ve been feeling pressure, not particularly pain, under my ribs on the left for a while. I’ve mentioned this to haematology but no reaction from them. I can feel it most when I’m sat or laid down. Is this relatively normal? I had an iron infusion last as very anaemic, which hasn’t made any difference
lizzziep
in
MPN Voice
1 year ago
between a rock and a hard place.
I’m supposed to get my platelets down,according to my MPN specialist, below 400 before my hip surgery on 12/21. So had to take hydrea daily instead of 4x a week. Got first bloods today after upping dose. Platelets at 531 from 572 two weeks ago but MCV and MCH at top of range. 100 and 33. They’ve taken
I’m supposed to get my platelets down,according to my MPN specialist, below 400 before my hip surgery on 12/21. So had to take hydrea daily instead of 4x a week. Got first bloods today after upping dose. Platelets at 531 from 572 two weeks ago but MCV and MCH at top of range. 100 and 33. They’ve taken
Pounds11
in
MPN Voice
1 year ago
B12 next steps - advice please
Hi - I have also posted this in the Pernicious Anaemia section but I know there is also some good knowledge within this group too. I have autoimmune hypothyroidism. Following a disappointing Endo appointment I wrote a detailed email to request an appointment with the Consultant as I felt I hadn’t had
Hi - I have also posted this in the Pernicious Anaemia section but I know there is also some good knowledge within this group too. I have autoimmune hypothyroidism. Following a disappointing Endo appointment I wrote a detailed email to request an appointment with the Consultant as I felt I hadn’t had
GW1000
in
Thyroid UK
1 year ago
Timing of bloods when taking alternate daily levo dose please?
Hi,Took 125mcgs levo for yrs, reduced early Summer as over felt medicated..GP reduced it to a 100mcgs but altho bloods were ok I felt dreadful...so since Aug have been taking 100/125 mcgs on alternate days ie average 112.5mcgs daily...I will book a blood test soon but am thinking I should book it for
Hi,Took 125mcgs levo for yrs, reduced early Summer as over felt medicated..GP reduced it to a 100mcgs but altho bloods were ok I felt dreadful...so since Aug have been taking 100/125 mcgs on alternate days ie average 112.5mcgs daily...I will book a blood test soon but am thinking I should book it for
fluffyhat
in
Thyroid UK
1 year ago
1
...
49
50
51
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Pernicious Anaemia Society
3466 results
Thyroid UK
2403 results
Restless Legs Syndrome
334 results
View top 10 communities
Sort by
Most Relevant
Newest