Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

6,607 members • 8,142 posts

All posts for January 2024

tumor marker question

Hello!! My mom had her tumor markers checked on Oct 17th 2023. They were 333 that’s when we found out her anfintor wasn’t working 2nd line treatment. She...

Hello!! My mom had her tumor markers checked on Oct 17th 2023. They were 333 t...

Flower1513

•4 months ago

44 Replies

US Insurance Question

I know when I first joined this site there were a lot of discussions about medicare and disability in the US. So, here are my questions for US ladies - and if...

I know when I first joined this site there were a lot of discussions about medic...

Iwasborntodothis

•4 months ago

47 Replies

Test Results

I had a CT and bone scan last week. All looked good. Saw the dr yesterday, all was good with him too. In my previous CT scans they were watching cysts on both...

I had a CT and bone scan last week. All looked good. Saw the dr yesterday, all w...

Sharon0122

•4 months ago

12 Replies

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travel insurance (again)

for those on palbociclib, when asked if you’re on chemotherapy and you can only give a yes /no answer do you say yes as palbo is a targeted chemo? This is...

for those on palbociclib, when asked if you’re on chemotherapy and you can only ...

bikebabe

•4 months ago

36 Replies

Elecestrant & sleep

Hi all, I've been on Elecestrant for 6 months now and after the first month I noticed that I couldn't sleep. I've been taking 10 mg of Melatonin and that...

Hi all, I've been on Elecestrant for 6 months now and after the first month I n...

tanz2019

•4 months ago

15 Replies

Piqray/Alpelisib (plus Fulvestrant injections) Trial so far

Hello everyone. From Stevie and me. Just popping in to let you all know that I am nearly 2 months into my Piqray journey. (The trial is called CAPTURE here...

Hello everyone. From Stevie and me. Just popping in to let you all know that I...

Timtam56

•4 months ago

24 Replies

Urgently seeking pain management tips

Hi everyone! I was so glad to see 2023 come to an end, but unfortunately, my transition into the new year has not been much better. I think I’ll make a...

Hi everyone! I was so glad to see 2023 come to an end, but unfortunately, my...

13plus

•4 months ago

53 Replies

ONJ? WTF

So after 4.5 years of monthly Xgeva. It looks like I have early stage ONJ. It showed up in the form of an ulcer like thing in the roof of my mouth that...

So after 4.5 years of monthly Xgeva. It looks like I have early stage ONJ. It ...

Pbsoup

•4 months ago

35 Replies

Mutations

I am on Orserdu (elacestrant) for a ESR1 mutation and feeling great but my CA27-29 tumor marker numbers continue to rise. Prior to this medication I was on...

I am on Orserdu (elacestrant) for a ESR1 mutation and feeling great but my CA27-...

Healthplus1

•4 months ago

1 Reply

Chemo Hair! Don’t Care! Lol

Abraxane is working! Scan results coming soon!

Hotlantaphatz

•4 months ago

33 Replies

Fentanyl

Happy New Year! I have been suffering with fractured vertebrae for over a year now. I’ve been on Tramadol, ocycodine, steroid shots and morphine. None of...

Happy New Year! I have been suffering with fractured vertebrae for over a yea...

Sharon0122

•4 months ago

18 Replies

Newly diagnosed Stage 4

hello I’m new here I’m very happy to be there. I read a lot of stories about people with Metastase breast cancer. Thank you so much you give me a lot of...

hello I’m new here I’m very happy to be there. I read a lot of stories about p...

life2990

•4 months ago

64 Replies

paxlovid and cdk4/6 inhibitors

I got Covid for the first time and was given Paxlovid tablets yesterday. I am on abemaciclib/Verzenio and faslodex. My GP talked to an oncology registrar who...

I got Covid for the first time and was given Paxlovid tablets yesterday. I am on...

Split

•4 months ago

19 Replies

Question about tumors

Hello everyone & Happy New Year!! I haven’t posted before, but I’m on here a lot reading posts to educate myself on treatments. My Mom was diagnosed Feb...

Hello everyone & Happy New Year!! I haven’t posted before, but I’m on here a lo...

MBC2023

•4 months ago

12 Replies

Capivasertib (TRUQAP)

Happy New Year! I'm starting Capivasertib tomorrow and curious to know if anyone else is on this or has experience with it. Apparently I’m the first one to...

Happy New Year! I'm starting Capivasertib tomorrow and curious to know if anyon...

JustmeMary

•4 months ago

10 Replies

Who uses steroids?

Hello everyone! I hope everyone had a nice holiday. I have a question about steroids. I recently had whole brain radiation for a bunch of tiny Mets ....

Hello everyone! I hope everyone had a nice holiday. I have a question abou...

Ticket123

•4 months ago

22 Replies

Epigenetic therapy (decitabine) shows promise for endocrine-resistant breast cancer

Using a low dose of the epigenetic therapy drug decitabine, which is currently used to treat some blood cancers, the researchers significantly suppressed the...

Using a low dose of the epigenetic therapy drug decitabine, which is currently u...

Split

•4 months ago

4 Replies

lobular

hi ladies. Well after 6 years on faslodex and ibrance they found cancer in my stomach lining and ascites. Is anyone dealing with this I am so nervous and...

hi ladies. Well after 6 years on faslodex and ibrance they found cancer in my st...

marianne88

•4 months ago

22 Replies

faslodex and verzenio

Has anyone found any thing helpful to help with side effects faslodex and verzenio . Is there anyone feeling good ?

Has anyone found any thing helpful to help with side effects faslodex and verzen...

Proudmetsmama

•4 months ago

27 Replies

No benefit of chemo for ER+HER2- invasive lobular beyond estrogen therapy

Just found this in the digest I get of medical journal articles (MD Edge): Women with estrogen receptor (ER)–positive, human epidermal growth factor receptor...

Just found this in the digest I get of medical journal articles (MD Edge): Wome...

TammyCross

•4 months ago

18 Replies

Update finally on treatment

Hello ladies and gentlemen, I am finally on treatment, it took nearly 4 months from dx to treatment (due to moving from South Carolina to Seattle area). I am...

Hello ladies and gentlemen, I am finally on treatment, it took nearly 4 months f...

monkeygirl62

•4 months ago

10 Replies

Hair loss on taxol

Yesterday I finally got my first Taxol infusion! Everyone at the cancer center was kind and helpful. The nurse I was assigned to was a young man, the only...

Yesterday I finally got my first Taxol infusion! Everyone at the cancer center ...

PJBinMI

•4 months ago

23 Replies

Letrozole and Fulvestrant

morning ladies !! After being diagnosed MBC last November in my pelvis and vertebra I was put on Verzenio and monthly injections of Fulvestrant. Before the...

morning ladies !! After being diagnosed MBC last November in my pelvis and verte...

Tanyateresa

•4 months ago

15 Replies

lymphangitic carcinomatosis

Has anyone heard of this? Does anyone here currently have it? If so, what is the treatment for it? I’m so distraught about the unknown. I had scans today and...

Has anyone heard of this? Does anyone here currently have it? If so, what is the...

CTGirl1962

•4 months ago

9 Replies

unending chemo

Hi everyone. I’m currently on Enhertu and have been since last April. Right now, I only have Mets to my bones. Everyone is always asking me when I will finish...

Hi everyone. I’m currently on Enhertu and have been since last April. Right now,...

Jhshl512

•4 months ago

53 Replies

bone marrow

I was on ibrance for 3 1/2 years. Stopped working and was switched to Orserdu. I’ve been on this drug for almost 4 months. Tumor markers down and natera...

I was on ibrance for 3 1/2 years. Stopped working and was switched to Orserdu. ...

1glajon

•4 months ago

8 Replies

coughing

I developed a bronchial cough, likely due to lung inflammation or pneumonitis while on both Kisqali, then Ibrance. My onco stopped the ibrance and put me on...

I developed a bronchial cough, likely due to lung inflammation or pneumonitis wh...

DianaTrapani

•4 months ago

4 Replies

Xeloda Dosage

2week on 1 off Scedule is seeming to be to harsh. Any Ladies have experience with better dosages and Scedules that worked best for them. Really struggling...

2week on 1 off Scedule is seeming to be to harsh. Any Ladies have experience wi...

ForestHermit

•4 months ago

4 Replies

Failed on Piqray... off to xeloda I go....

hi friends... so looks like my time piqray is coming to an end... latest pet scan showed a few more spots on liver! I only got 4 months out of it which I guess...

hi friends... so looks like my time piqray is coming to an end... latest pet sca...

DianaSav

•4 months ago

12 Replies

Stomach cancer

Hi, My wife started feeling sick couple of months after the birth of our son. GP thought it was possibly birth related. She started having pain and lost weight...

Hi, My wife started feeling sick couple of months after the birth of our son. GP...

Carefull

•4 months ago

4 Replies

Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

All posts for January 2024

tumor marker question

US Insurance Question

Test Results

travel insurance (again)

Elecestrant & sleep

Piqray/Alpelisib (plus Fulvestrant injections) Trial so far

Urgently seeking pain management tips

ONJ? WTF

Mutations

Chemo Hair! Don’t Care! Lol

Fentanyl

Newly diagnosed Stage 4

paxlovid and cdk4/6 inhibitors

Question about tumors

Capivasertib (TRUQAP)

Who uses steroids?

Epigenetic therapy (decitabine) shows promise for endocrine-resistant breast cancer

lobular

faslodex and verzenio

No benefit of chemo for ER+HER2- invasive lobular beyond estrogen therapy

Update finally on treatment

Hair loss on taxol

Letrozole and Fulvestrant

lymphangitic carcinomatosis

unending chemo

bone marrow

coughing

Xeloda Dosage

Failed on Piqray... off to xeloda I go....

Stomach cancer

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