Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

6,607 members • 8,142 posts

All posts for October 2023

Patient Portals

If you haven't been told about Patient Portals (PPs) it could be extremely helpful for you to ask at the place you are being treated. They are easy for us to...

If you haven't been told about Patient Portals (PPs) it could be extremely helpf...

PJBinMI

•7 months ago

7 Replies

Should I be concerned?

Hi all - I have been on Letrozole and palbo for just over three years and remain NEAD (for now). No noticeable side effects until I was diagnosed recently...

Hi all - I have been on Letrozole and palbo for just over three years and remain...

JKMS

•7 months ago

26 Replies

Newly diagnosed MBC

I am a cancer survivor of 25 years but a recent ER trip, (I was sent there by my PCP because my blood pressure was really high). Five hours later, a CT scan...

I am a cancer survivor of 25 years but a recent ER trip, (I was sent there by my...

monkeygirl62

•7 months ago

46 Replies

Want to take advantage of all our features? Just log in!

MRI on Monday

My first MRI taught me that I am not claustrophobic, LOL, but the noise really made me crazy! I think this will be the first MRI since I started Xeloda...

My first MRI taught me that I am not claustrophobic, LOL, but the noise really m...

PJBinMI

•7 months ago

18 Replies

Changing times.

I am STILL on Ibrance and Anastrozole, after being on this treatment for 5 years. But I fear things are about to change as I am now showing up as anaemic all...

I am STILL on Ibrance and Anastrozole, after being on this treatment for 5 years...

Timtam56

•7 months ago

36 Replies

“Exceptional Survivor” Wonderful article Bestbird/Anne wrote🌸

https://www.inquirer.com/health/when-she-was-diagnosed-with-breast-cancer-outlook-was-grim-seven-years-later-shes-an-exceptional-survivor-20190425.html?utm_sour

https://www.inquirer.com/health/when-she-was-diagnosed-with-breast-cancer-outloo...

RedAzalea

•7 months ago

17 Replies

Just wondering?

Who here has been taking PIQRAY and Faslodex? Have you had any sever side effects? What should I know about this combination?

Who here has been taking PIQRAY and Faslodex? Have you had any sever side effec...

Justme153

•7 months ago

10 Replies

Is it just me?

Hi all. I have been at this for almost 4 years. I really like my Onc and the team is very nice. But.... I find it odd that in all that time not one nurse or MD...

Hi all. I have been at this for almost 4 years. I really like my Onc and the tea...

Onedayatatime60

•7 months ago

31 Replies

Has somebody "steped back" to a former drug?

I asked some days ago for a drug that takes effect on liver. Trovelvy seems to be a good possibility - THANKS for this information :) On Friday my good...

I asked some days ago for a drug that takes effect on liver. Trovelvy seems to ...

deHans

•7 months ago

14 Replies

Results on Cervix

PRAISE GOD NEGATIVE!!! My gynecologist/oncologist said that we will see what the next Petscan looks like. If it still lights up then we will do a biopsy. Not...

PRAISE GOD NEGATIVE!!! My gynecologist/oncologist said that we will see what t...

Gentelforce

•7 months ago

6 Replies

pertinieum nodule

hi ladies. So I have stage 4 lobular and they just found a small nodule in my pertinieum and I’m just wondering if anyone else has this and how are you doing?...

hi ladies. So I have stage 4 lobular and they just found a small nodule in my pe...

marianne88

•7 months ago

3 Replies

My Cancer Reality Check

I am having one of those “I can’t believe I have cancer and I am having to go through all of this” moments!!!! Feeling a bit low with all of this...

I am having one of those “I can’t believe I have cancer and I am having to go t...

Hotlantaphatz

•7 months ago

64 Replies

CT scan

I started on Ibrance and Anastrozole roughly in June 2023. Took it for 2 months and had to go off Ibrance for 5 weeks for surgery. Back on it for a month. Has...

I started on Ibrance and Anastrozole roughly in June 2023. Took it for 2 months ...

mkrienke55

•7 months ago

7 Replies

Pelvic /SI joint pain Radiation update

After CT and Bone scans in late September showed intense uptake at the site of the original pelvic Mets, I saw my ONC on Oct 3. All of September and now...

After CT and Bone scans in late September showed intense uptake at the site of t...

Dragonfly2

•7 months ago

29 Replies

Mets in the liver and Enhertu doesn't work - searching for other treatment

My very good friend has breast cancer since 2007 / relaps in 2018. Since Okt 2021 she has mets in bones and lymph nodes. She took Fulvestrant, Ibrance and...

My very good friend has breast cancer since 2007 / relaps in 2018. Since Okt 202...

deHans

•7 months ago

9 Replies

Ibrance fatigue vs Verzenio fatigue

Hello all, I recently switched from Ibrance to Verzenio. Still less than a month ago. With Ibrance my fatigue was more like slogging through deep mud everyday...

Hello all, I recently switched from Ibrance to Verzenio. Still less than a month...

Nocillo

•7 months ago

9 Replies

bone pain relief?

I have extensive bone Mets and am in constant pain. Just started Orserdu and doc says it takes time to work. Anyone have any suggestions for pain management...

I have extensive bone Mets and am in constant pain. Just started Orserdu and doc...

pinkbody2

•7 months ago

23 Replies

2nd Enhertu infusion

2nd Enhertu infusion today.Also had my bone infusion to strengthen my cancerous bones. Had the Enhertu at 6:45 am .Bone infusion following that. I was to have...

2nd Enhertu infusion today.Also had my bone infusion to strengthen my cancerous ...

Figletf

•7 months ago

10 Replies

Weak Knees

Hi Fellow Warriors In sept I had a fall outside my home broke my nose and bump on forehead. Went to ER referred to plastic surgeon. Had surgery to move...

Hi Fellow Warriors In sept I had a fall outside my home broke my nose and bump...

Tam-56

•7 months ago

26 Replies

Hello

I was first diagnosed with stage 3 breast cancer in 2001 I had a mastectomy with reconstructive surgery followed by chemo and radiation. Following that I was...

I was first diagnosed with stage 3 breast cancer in 2001 I had a mastectomy with...

chancemiracle12

•7 months ago

4 Replies

5/2 alternative schedule for ibrance study

Copied from under "Abstract" paragraph: Palbociclib, 5-days-on/2-days-off weekly, met its primary endpoint with reduced G3 + ANC, without compromising...

Copied from under "Abstract" paragraph: Palbociclib, 5-days-on/2-days-off weekl...

Godbeforme

•7 months ago

17 Replies

Good News

Got great news at .my oncologists 3 monthly visit. He only wants to see me every 6 months instead of every 3 and CT scan once a year instead of twice. No...

Got great news at .my oncologists 3 monthly visit. He only wants to see me every...

Alnmouth

•7 months ago

50 Replies

Pherephral neuropathy

Omg just completed 12 weeks of chemotherapy paclitaxol absolutely awful. Have numb legs, feet,hands and face. Pherephral neuropathy is debilitating my life....

Omg just completed 12 weeks of chemotherapy paclitaxol absolutely awful. Have nu...

Julesdubai

•7 months ago

29 Replies

Enhertu: Round 2 🥊

infusion day went well. I did ask for fluids this time and did not eat before treatment. No tummy upset! Today, day 2, I got up and went to my yoga 🧘‍♂️...

infusion day went well. I did ask for fluids this time and did not eat before tr...

Hotlantaphatz

•7 months ago

7 Replies

Lynparza/ Olaparib

Hi everyone- after my dad met with his oncologist regarding the mild progression he had- he will be switching to Lynparza/ Olaparib for the BRCA2 gene. He was...

Hi everyone- after my dad met with his oncologist regarding the mild progression...

Jenniferp2122

•7 months ago

11 Replies

Feeling low. Wind out of my sails

Update - Saw doc this morning and I was hoping that the Enhertu would be working after the 4th cycle, but markers went up +289. Now I am at 2130 (15.3) and...

Update - Saw doc this morning and I was hoping that the Enhertu would be working...

Hopeful4Cure

•7 months ago

41 Replies

best treatment after Xeloda?

I was diagnosed with MBC in Feb 2022 with bone mets. I am HER2 low ER positive. I have been on kisquali, Ibrance, Faslodex, and lastly 4 rounds of Xeloda....

I was diagnosed with MBC in Feb 2022 with bone mets. I am HER2 low ER positive....

Breege_M

•7 months ago

16 Replies

Newbie Here with CA 27.29 Question

I live in Humboldt County, Ca., which is far northern area - almost Oregon. Our Medical Community lacks continuity in care, especially Oncology. I’ve “seen” 8...

I live in Humboldt County, Ca., which is far northern area - almost Oregon. Our ...

RedwoodLady

•7 months ago

26 Replies

Breast Cancer Awareness Month

October is BC Awareness Month. October 13 is MBC awareness day. A good time to wear pink! I've acquired various pink accessories over the 19+ years since...

October is BC Awareness Month. October 13 is MBC awareness day. A good time to...

PJBinMI

•7 months ago

6 Replies

Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

All posts for October 2023

Patient Portals

Should I be concerned?

Newly diagnosed MBC

MRI on Monday

Changing times.

“Exceptional Survivor” Wonderful article Bestbird/Anne wrote🌸

Just wondering?

Is it just me?

Has somebody "steped back" to a former drug?

Results on Cervix

pertinieum nodule

My Cancer Reality Check

CT scan

Pelvic /SI joint pain Radiation update

Mets in the liver and Enhertu doesn't work - searching for other treatment

Ibrance fatigue vs Verzenio fatigue

bone pain relief?

2nd Enhertu infusion

Weak Knees

Hello

5/2 alternative schedule for ibrance study

Good News

Pherephral neuropathy

Enhertu: Round 2 🥊

Lynparza/ Olaparib

Feeling low. Wind out of my sails

best treatment after Xeloda?

Newbie Here with CA 27.29 Question

Breast Cancer Awareness Month

Search posts

Pinned Posts

Latest poll

Has this community positively impacted your breast cancer journey? If yes, please describe how in the replies below

Topics

Archive