Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

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All posts for November 2021

Leptomeningeal disease

Hi A beautiful young mummy called Emma, aged 40 who I’m in contact with here in the UK with MBC has now also been diagnosed with leptomeningeal disease. I...

Hi A beautiful young mummy called Emma, aged 40 who I’m in contact with here in ...

Sunnydrinking

•3 years ago

5 Replies

Enjoying our mini break in Brixham

Hi Steve, Teddy & me are currently enjoying our mini break in Brixham, Devon. The weather has been sunny & unusually mild for November. I have competed Day 1...

Hi Steve, Teddy & me are currently enjoying our mini break in Brixham, Devon. T...

Sunnydrinking

•3 years ago

9 Replies

My piece of peace away from MBC

The allotment (piece of land we manage) still keeps giving. Makes me smile.

Hidden

•3 years ago

23 Replies

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Any one Herceptin Perjeta long term?

I've been on both since December 2020. Initially, I had no side effects, now I do. Does it get better once the body is accustomed to these medications? Has...

I've been on both since December 2020. Initially, I had no side effects, now I...

EZSZ

•3 years ago

17 Replies

My CA 15-3 is rising slowly, I’m scared

At one point it was 56 ,that’s when they diagnosed me metastatic to the ribs . With medication it went down over time in 3 years it went down to a 9 . Every 2...

At one point it was 56 ,that’s when they diagnosed me metastatic to the ribs . W...

Ycats277

•3 years ago

15 Replies

Sad update about ErSO

Hi friends, I am sorry to be the messenger of a disappointing news. I am so upset Here is the update from Danny Goss who is one of the administrators of “ErSO...

Hi friends, I am sorry to be the messenger of a disappointing news. I am so upse...

Cureforever

•3 years ago

67 Replies

Sad news about ErSO

Unfortunately Bayer stopped ErSO development I received an email today from their top executive. I am so upset. There are no words to describe how upset I am...

Unfortunately Bayer stopped ErSO development I received an email today from the...

Cureforever

•3 years ago

24 Replies

Tom Brady’s mom

Tom Brady’s mom had Mbc she’s cured I believe can anyone find out who was her dr 🙏🙏🙏🙏🙏🙏🙏

Tom Brady’s mom had Mbc she’s cured I believe can anyone find out who was her dr...

Rego-park

•3 years ago

1 Reply

Medicare part D

I have to go on Medicare part D since I was switched to Ibrance from faslodex. Apparently Medicare does not pay for cancer treatments in pill form . My...

I have to go on Medicare part D since I was switched to Ibrance from faslodex. ...

sevoia

•3 years ago

41 Replies

My sister had her first shots of faslodex after ibrance stopped working she was in so much pain we went to emergency and she got morphine

Faslodex injection insane pain did anyone experience ?

Rego-park

•3 years ago

14 Replies

Myelodisplasia and Metastatic breast cancer

Hallo - Have any of you been diagnosed with MDS while having breast metastasis? I am newly diagnosed with MDS - apparently it is treatment induced from chemo...

Hallo - Have any of you been diagnosed with MDS while having breast metastasis?...

Joey1965

•3 years ago

2 Replies

Starting Denosumab when bone mets are stable -advice needed

Hi, I was diagnosed Feb 2021 ( 4 and a half years after my primary BC diagnosis); with multiple mets to my lungs and a small area on a rib, with an axillary...

Hi, I was diagnosed Feb 2021 ( 4 and a half years after my primary BC diagnosis...

Guitarbella

•3 years ago

7 Replies

New diagnosis of metastasised breast cancer in lung.

In 2014 I had treatment for +++ ER stage 2 breast cancer including chemo, mastectomy, lymph clearance, radiation, Herceptin. Following pleurisy and a CT scan...

In 2014 I had treatment for +++ ER stage 2 breast cancer including chemo, mastec...

IAMALIVE33

•3 years ago

5 Replies

Thank you for being here for me!

I’m still trying to wrap my head around my current situation, so please forgive me if I’ll repeat what was discussed in my previous posts. Just to reiterate:...

I’m still trying to wrap my head around my current situation, so please forgive ...

Tolife_18

•3 years ago

6 Replies

Taxol

I have had 4 Taxol treatments so far now my urea nitrogen , my bun/ creatin,potassium and alkaline phosphates are high and gfr is low. Has this happened to...

I have had 4 Taxol treatments so far now my urea nitrogen , my bun/ creatin,pota...

Iwouldlike2knowmore

•3 years ago

1 Reply

Radiation 1 treatment to sacrum for pain .

Hi Ladies It has been suggested that I have a 1 session radiation treatment for pain in the sacrum . Can anyone share with me what I can expect after the...

Hi Ladies It has been suggested that I have a 1 session radiation treatment for...

Hidden

•3 years ago

6 Replies

Gemzar

Has anyone had experience with Gemzar IV chemo after oral chemo. My oncologist now wants to add Carboplatin, another IV chemo. Any experience with both. I...

Has anyone had experience with Gemzar IV chemo after oral chemo. My oncologist n...

Kellyonekanobe

•3 years ago

1 Reply

ErSO update

Hi wonderful people, Many of you asked to post the update. Here is the update posted on Facebook in “ErSO activism for breast cancer” Hello Friends, We thought...

Hi wonderful people, Many of you asked to post the update. Here is the update po...

Cureforever

•3 years ago

13 Replies

Amazing News from the FDA!

Our voices regarding treatment-related side effects have been heard! Earlier this year, the Patient-Centered Dosing Initiative presented the results of an MBC...

Our voices regarding treatment-related side effects have been heard! Earlier thi...

Bestbird

•3 years ago

10 Replies

Did anyone on Xeloda have low neutrophils and high lymphocytes?

I started my third round of Xeloda. I got my bloodwork today. My neutrophils went down but lymphocytes went up. Did anyone experience this problem? Thank you...

I started my third round of Xeloda. I got my bloodwork today. My neutrophils wen...

Cureforever

•3 years ago

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So happy I’m able to enjoy putting my tree etc up for Christmas. Could not wait.

Last year I was diagnosed with MBC Nov 2020. Did not understand much about the disease at the time and when I put my tree away was a bit sad. So this year ( as...

Last year I was diagnosed with MBC Nov 2020. Did not understand much about the d...

debbiedo2063

•3 years ago

28 Replies

Modern Booster

I got the Modern booster, 3 weeks ago; the only reaction was soreness, around the injection site. The "checkout" nurse did advise me to drink plenty of water,...

I got the Modern booster, 3 weeks ago; the only reaction was soreness, around th...

smile29

•3 years ago

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Out of options

Had scan results. Fulverstant doesn't seem to be working as tumors in breast and under arm have grown. Due to my heart problem and old age I do not think there...

Had scan results. Fulverstant doesn't seem to be working as tumors in breast and...

Hidden

•3 years ago

20 Replies

Hello troopers

My sister has been on ibrance for 2 years it stopped working she’s been givin faslodex injections , but I see a lot of you have been offered both ? What should...

My sister has been on ibrance for 2 years it stopped working she’s been givin fa...

Rego-park

•3 years ago

8 Replies

Third covid jab / covid booster

Hi all Just wondering if those of you who are immunosuppressed as confused as I was with regards to the above. I like in the uk and have been on ibrance since...

Hi all Just wondering if those of you who are immunosuppressed as confused as I ...

Archiedog

•3 years ago

7 Replies

Tumor markers rising

My tumor marker has went up to 146 from 72 in July .the onc in Houston told me I have to start other meds because they saw progression and he says it’s not...

My tumor marker has went up to 146 from 72 in July .the onc in Houston told me ...

Eliactida1955

•3 years ago

54 Replies

Moderna Booster

Good Evening - I’m scheduled for a Moderna booster vaccine tomorrow and I’m curious to know if anyone had any reaction with theirs. I had a terrible reaction...

Good Evening - I’m scheduled for a Moderna booster vaccine tomorrow and I’m curi...

JustmeMary

•3 years ago

31 Replies

A HUGE Change Regarding Dosing!

BIG news: the decades-long paradigm of leveraging the highest and most toxic dose of a cancer drug, called the Maximum Tolerated Dose (MTD), may be coming to...

BIG news: the decades-long paradigm of leveraging the highest and most toxic dos...

Bestbird

•3 years ago

26 Replies

Does anyone have experience with the chemo IV Gemzar?

Hi I have stage 4 MBC with Mets to bones and liver. Mets to liver have been enlarging and spreading for several months. Now the cancer has spread to my stomach...

Hi I have stage 4 MBC with Mets to bones and liver. Mets to liver have been enla...

Kellyonekanobe

•3 years ago

4 Replies

Erbb2

Anyone here has this mutation? If so what are your treatments?

kduck

•3 years ago

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Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

All posts for November 2021

Leptomeningeal disease

Enjoying our mini break in Brixham

My piece of peace away from MBC

Any one Herceptin Perjeta long term?

My CA 15-3 is rising slowly, I’m scared

Sad update about ErSO

Sad news about ErSO

Tom Brady’s mom

Medicare part D

My sister had her first shots of faslodex after ibrance stopped working she was in so much pain we went to emergency and she got morphine

Myelodisplasia and Metastatic breast cancer

Starting Denosumab when bone mets are stable -advice needed

New diagnosis of metastasised breast cancer in lung.

Thank you for being here for me!

Taxol

Radiation 1 treatment to sacrum for pain .

Gemzar

ErSO update

Amazing News from the FDA!

Did anyone on Xeloda have low neutrophils and high lymphocytes?

So happy I’m able to enjoy putting my tree etc up for Christmas. Could not wait.

Modern Booster

Out of options

Hello troopers

Third covid jab / covid booster

Tumor markers rising

Moderna Booster

A HUGE Change Regarding Dosing!

Does anyone have experience with the chemo IV Gemzar?

Erbb2

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