I am sorry to be the messenger of a disappointing news. I am so upset
Here is the update from Danny Goss who is one of the administrators of “ErSO activism for breast cancer” group on Facebook.
A message from admins :
Like everyone else in this group, we were very disappointed today to hear through multiple channels that Bayer have decided to terminate the licensing agreement with Systems Oncology to develop pre-clinical drug ErSO as a cancer therapy. We do know that work continues on developing ErSO in the lab where it was discovered, and we maintain hope that Systems Oncology will continue to move ErSO forward towards Phase 1 trials in humans.
We are trying to get in touch with Systems Oncology to find out their plans for ErSO in the future, if we hear any news we will post it here as soon as we can. As all admin members in the group are also on our own MBC journeys, we know how difficult this news is to take, and we worry about the impact of the news on the members of the group. We think everyone here is incredibly brave while battling this insidious and hideous disease and we really believe there is good reason to maintain hope, not just with ErSO but with other, emerging MBC treatments. All the best to everyone and we will keep working to keep you as informed as we can.
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Cureforever
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Ohhh well that could happen!! Bayers perhaps sold to another pharmaceutical company, maybe Pfizer? Either way it would be great that Erso not cancelled?
Hi Stacy. Thank you very much for all your efforts. I read it as soon as you posted it but everything is up in the air now. I was ready for a clinical trial with Bayer. I am still very very upset. The researchers sold it to the Systems Oncology. Thus, they are the only ones who can deal with the future of ErSO. Best,
He just wrote back again I posted it on the group he wants to speak to one person. I’m waiting for one of the most knowledgeable people from our group to respond and contact him ASAP but I’m not getting any response. Who do you thinks the most knowledgeable? Thanks marina❤️🥰🌹💕
Stacy, I am communicating with you here and there. Thank you very much for everything you are doing. Danny is a member of this group as well. I believe his screen name is Dannygoss29. You may try to send him a private message or a public one. It doesn’t matter. Thank you againMarina
Marina lol 😂 I know , I don’t know how to send somebody a private message on here I’m gonna leave that to you if that’s OK. I sent him a private message on Facebook I have not had a response. I just want the reporter to get contacted immediately so he doesn’t forget that he made the offer to speak to somebody. I believe whoever speaks to him he’s going to publish the article. He’s also on television and a filmmaker
That’s awesome thanks , no one is responding and I just fell lol and bent my wrist back. Oh gosh I’m in horrible pain . I might need to go to the emergency. I’m so upset. I got a try to drive I’m on my own. Speak to you soon
I hope you get someone to drive you to the ER. In our area we have a company called Wheels for Wellness and for a small donation will drive us to and from hospital and doctors visits. It is such a wonderful service. They will actually drive hundreds of kilometers. It is just so wonderful. Maybe your area has something like that. And I hope your wrist is just bruised or at the worst sprained. Hugs and best wishes Marlene
I am sorry. I hope you have no fracture. Does he want someone to contact him by phone or email? Did you post it on Facebook. I feel so bad for you. Hope everything will be fine
What’s a phone cot ? He wrote me over night asking me to tell him about myself . I told him my entire grim story . Maybe I’ll be featured in his movie , lol just kidding , but he is also a film maker . Wouldn’t that be wonderful if a movie was made . That would hit the hearts of many . I think my pain meds are messing with my mind , I’m daydreaming 😶🌫️ ❤️🌹good morning Marina 💐
Good morning Stacy, I hope you are fine. I do not know if Danny was able to get in touch with the reporter. I hope he did. Libby posted a message from the lead researcher saying that Systems Oncology is in charge now He also said that they will move it to clinical trials. But we were very close with Bayer. Now we are far from clinical trials. I had such faith that Bayer will start the clinical trials. It was very very upsetting.
Yes he did the reporter contacted me over night . I’m trying to private message you on messenger through face book . Please open your messenger on face book xx
Marina I have no idea either but I am going now to send you a private message on Facebook with my cell number and you can regular text me off here any time . 🌹❤️
Hi , thank you Marina 🌹no break but my hip and wrist are injured ouch . Can’t wait to see what goes on with reporter . Danny wrote that he will get in touch when he has something . You are so nice and caring 🌹❤️🥰💕🙏
Thank you Corrina , so kind . I am hurt, I slipped on a tile floor and tried to stop my fall with my wrist /hand . Ouch 🤕. I went down hard . Xxoo 🤕❤️🌹👏🏼 Stacy 👏🏼
That’s awesome 😎 I go to Hallandale often ❤️🌹👏🏼🙏 I private messaged you on messenger in Facebook can you go and confirm that it you , lol I’m not good at all of this stuff .
I did but I did not see it there. I am sorry I have to get back to work. I am working from home. I will get in touch with you later. Hope you are better 😍🤞🙏💕
I did not see your message but I use Facebook for this group only. Sometimes I use my husband’s access and sign my name underneath. I like this forum a lot and communicate with many ladies here. I go to Facebook just to check the news from our group and comment on them. I wonder if Danny got a hold of this reporter.
I had my onocologyst appt today and went over my CT scan. 2 bones had started to heal from my last CT scan, but thing good or bad on this one. The issue right now is my liver, last scan nothing. This scan some growth. She doesn't want to change medication right now as this is my first treatment of hormone medication, Ibrance/letrozole. Also, this my 6th cycle.
Is anybody else taking Ibrance and letrozole and liver leision as well?
Thank you ❤🙏. I try not to get upset about it. She is still happy with the progress, just the liver. I know we can still do radiation if need be. The lesion is on the middle. I guess just wait it out.she has scheduled another CT scan in 2 mths. Its crazy because I feel better than I have in years !! I am blessed with that, I am grateful 😁.
I think I’ve become very cynical about the pharma companies. It sounded promising but I always wondered about the cost. At the prices that my hospital bills for these drugs. How could they survive without that income?
Yes I can get disappointed, but never as badly as I had when I was first diagnosed. This isn't a sprint, it is a slow walk lol. I have a Dr who wants to make sure, I like that about her. I have always said my liver will be the stubborn one. I put it through a lot the last 20 yrs. I know it work out fine. It's a good scan if they don't find anymore 🥰. Good luck wishes to you for your up coming scans and yes they are a bit high blood pressure pronded !! But you are a strong Canadian lady !!! Full of spunk and hope 🇨🇦🤗. Hugs from the east coast Halifax 🦞
Yes that is disappointing but I am so suspicious of big pharma as it is. I kind of feel that they’ll never develop a cure for cancer. Why would they? They’d lose way too much money in doing so! Sorry. I don’t mean to be offensive.
Thanks Sandra for your suggestions. You are a very smart lady. Recent news about ErSO gave me so much stress that I noticed extra gray hair on my head. I am trying to get calmer. You predicted this. I still hope that the Systems Oncology will move forward with ErSO but it’s still only a hope. Best,
Thank you Sandra for your suggestions and support. I know that someone posted a wrong information about SO. It was in comments. But the researchers are still optimistic. Thus, I still have hope. I tried to meditate but it did not help much. I also go to the Accupunturist which helps but very little.
I am still optimistic that ErSO will eventually go to clinical trials for mbc. It might take longer than we would like to hear but I believe it will happen. Too many women are suffering and there is going to be pressure on scientists to help us all to find a cure. Politics might be involved and that is the only part of this that makes me sad. A cure for mbc is also a financial loss for drug companies so it wouldn't surprise me that they have put pressure on Bayer to not go ahead with the trial. I hope I am wrong. Thank you for keeping us informed. Hugs Marlene
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