Sad update about ErSO

[Cureforever]

Hi friends,

I am sorry to be the messenger of a disappointing news. I am so upset

Here is the update from Danny Goss who is one of the administrators of “ErSO activism for breast cancer” group on Facebook.

A message from admins :

Like everyone else in this group, we were very disappointed today to hear through multiple channels that Bayer have decided to terminate the licensing agreement with Systems Oncology to develop pre-clinical drug ErSO as a cancer therapy. We do know that work continues on developing ErSO in the lab where it was discovered, and we maintain hope that Systems Oncology will continue to move ErSO forward towards Phase 1 trials in humans.

We are trying to get in touch with Systems Oncology to find out their plans for ErSO in the future, if we hear any news we will post it here as soon as we can. As all admin members in the group are also on our own MBC journeys, we know how difficult this news is to take, and we worry about the impact of the news on the members of the group. We think everyone here is incredibly brave while battling this insidious and hideous disease and we really believe there is good reason to maintain hope, not just with ErSO but with other, emerging MBC treatments. All the best to everyone and we will keep working to keep you as informed as we can.

[Ycats277]

But I posted happier news now I got a response that changed all that . Go to the group and read it . It from my reporter lead . You will be happy 😍

[Lulu4545 in reply to Ycats277]

Hi to all,Could you give us more information on your happier news?

I think we all need it.

LOvexxx

Lucie

[Ycats277 in reply to Lulu4545]

It won’t fit but I received a nice uplifting post from a reporter that says it’s not mixed

[Ycats277 in reply to Lulu4545]

He said it’s not cancelled just another company is buying oicence

[Debbigbang in reply to Ycats277]

Ohhh well that could happen!! Bayers perhaps sold to another pharmaceutical company, maybe Pfizer? Either way it would be great that Erso not cancelled?

[mariootsi in reply to Ycats277]

Ok.

[Ycats277 in reply to Lulu4545]

Sorry He is investigating it and he says that the earth so project it’s not over just Bayer gave it up and others will take over .

[mariootsi in reply to Ycats277]

I wonder why Bayer gave it up?

[Cureforever in reply to Ycats277]

Hi Stacy. Thank you very much for all your efforts. I read it as soon as you posted it but everything is up in the air now. I was ready for a clinical trial with Bayer. I am still very very upset. The researchers sold it to the Systems Oncology. Thus, they are the only ones who can deal with the future of ErSO. Best,

Marina

[Ycats277 in reply to Cureforever]

He just wrote back again I posted it on the group he wants to speak to one person. I’m waiting for one of the most knowledgeable people from our group to respond and contact him ASAP but I’m not getting any response. Who do you thinks the most knowledgeable? Thanks marina❤️🥰🌹💕

[Cureforever in reply to Ycats277]

Stacy, I am communicating with you here and there. Thank you very much for everything you are doing. Danny is a member of this group as well. I believe his screen name is Dannygoss29. You may try to send him a private message or a public one. It doesn’t matter. Thank you againMarina

[Ycats277 in reply to Cureforever]

Marina lol 😂 I know , I don’t know how to send somebody a private message on here I’m gonna leave that to you if that’s OK. I sent him a private message on Facebook I have not had a response. I just want the reporter to get contacted immediately so he doesn’t forget that he made the offer to speak to somebody. I believe whoever speaks to him he’s going to publish the article. He’s also on television and a filmmaker

[Cureforever in reply to Ycats277]

I just sent Danny a public message on health unlocked

[Ycats277 in reply to Cureforever]

That’s awesome thanks , no one is responding and I just fell lol and bent my wrist back. Oh gosh I’m in horrible pain . I might need to go to the emergency. I’m so upset. I got a try to drive I’m on my own. Speak to you soon

[Cureforever in reply to Ycats277]

I am so sorry. What city are you in? You may go to the urgent care

[mariootsi in reply to Ycats277]

Oh geez! Hope you are ok!

[Ycats277 in reply to mariootsi]

Thank you , I was for sure I either broke my wrist or hip but just bruised , I thank you , I must thank zometa or Xgeva 🙏👏🏼❤️‍🩹🌹❤️🥰💕Stacy

[viennagirl in reply to Ycats277]

That is good news! M.

[Ycats277 in reply to mariootsi]

Thank you mariootsi , Stacy 🌹

[viennagirl in reply to Ycats277]

Dear Ycats,

I hope you get someone to drive you to the ER. In our area we have a company called Wheels for Wellness and for a small donation will drive us to and from hospital and doctors visits. It is such a wonderful service. They will actually drive hundreds of kilometers. It is just so wonderful. Maybe your area has something like that. And I hope your wrist is just bruised or at the worst sprained. Hugs and best wishes Marlene

[Ycats277 in reply to viennagirl]

Thank you I’m fine 🙂

[Ycats277 in reply to Cureforever]

Darn it my mom is very upset , I will be off awhile ouch

[Cureforever in reply to Ycats277]

Stacy. What is the phone cot reach out to the reporter?

[Cureforever in reply to Cureforever]

Please post it on Facebook. I am very sorry for your pain

[Ycats277 in reply to Cureforever]

What is a cot ? His email ? I will give you what ever I have ❤️🌹

[Ycats277 in reply to Cureforever]

I just private messages you Marina through face book if that’s you lol .

[Ycats277 in reply to Cureforever]

[e-mail] on my way to hospital

[Cureforever in reply to Ycats277]

I am sorry. I hope you have no fracture. Does he want someone to contact him by phone or email? Did you post it on Facebook. I feel so bad for you. Hope everything will be fine

[Ycats277 in reply to Cureforever]

What’s a phone cot ? He wrote me over night asking me to tell him about myself . I told him my entire grim story . Maybe I’ll be featured in his movie , lol just kidding , but he is also a film maker . Wouldn’t that be wonderful if a movie was made . That would hit the hearts of many . I think my pain meds are messing with my mind , I’m daydreaming 😶‍🌫️ ❤️🌹good morning Marina 💐

[Cureforever in reply to Ycats277]

Good morning Stacy, I hope you are fine. I do not know if Danny was able to get in touch with the reporter. I hope he did. Libby posted a message from the lead researcher saying that Systems Oncology is in charge now He also said that they will move it to clinical trials. But we were very close with Bayer. Now we are far from clinical trials. I had such faith that Bayer will start the clinical trials. It was very very upsetting.

Stay well😍🤞🙏💕

Marina

[Ycats277 in reply to Ycats277]

Yes he did the reporter contacted me over night . I’m trying to private message you on messenger through face book . Please open your messenger on face book xx

[Cureforever in reply to Cureforever]

I am not sure how to send a private message here as well. Danny sent me a few ones. I will try to figure it out

[Ycats277 in reply to Cureforever]

Marina I have no idea either but I am going now to send you a private message on Facebook with my cell number and you can regular text me off here any time . 🌹❤️

[Ycats277 in reply to Cureforever]

You send them on messenger through Facebook easy peasy 🌹

[Cureforever in reply to Ycats277]

Stacy,How are you feeling? How is your wrist?

I am worried about you.

Danny will contact the reporter tomorrow morning.

I hope there is no fracture there.

Good night

Marina

[Ycats277 in reply to Cureforever]

Hi , thank you Marina 🌹no break but my hip and wrist are injured ouch . Can’t wait to see what goes on with reporter . Danny wrote that he will get in touch when he has something . You are so nice and caring 🌹❤️🥰💕🙏

[Corrina97 in reply to Ycats277]

So sorry you have hurt yourself . Hope you recover quickly. Thanks for giving us back some hope🥰take care x

[Ycats277 in reply to Corrina97]

Thank you Corrina , so kind . I am hurt, I slipped on a tile floor and tried to stop my fall with my wrist /hand . Ouch 🤕. I went down hard . Xxoo 🤕❤️🌹👏🏼 Stacy 👏🏼

[Cureforever in reply to Ycats277]

Hi Stacy,I am glad that there is no break there. What city are you in? I just woke up.

Keep in touch.

Best,

Marina

[Ycats277 in reply to Cureforever]

I live in Lauderhill, Florida , where are you from 🌹🌹

[Cureforever in reply to Ycats277]

I am also in Florida now, Hallandale Beach. I live in New York but when Covid started I spend more time in Florida.

[Ycats277 in reply to Cureforever]

That’s awesome 😎 I go to Hallandale often ❤️🌹👏🏼🙏 I private messaged you on messenger in Facebook can you go and confirm that it you , lol I’m not good at all of this stuff .

[Cureforever in reply to Ycats277]

Thanks. I am not good with Facebook but I will try . I opened a Facebook account especially for this group. I never use it.

[Ycats277 in reply to Cureforever]

In face book go to messenger , that is where we all private message everyone . It’s called messenger 🌹❤️ I left you message there 🥰

[Cureforever in reply to Ycats277]

I did but I did not see it there. I am sorry I have to get back to work. I am working from home. I will get in touch with you later. Hope you are better 😍🤞🙏💕

[Cureforever in reply to Ycats277]

I did not see your message but I use Facebook for this group only. Sometimes I use my husband’s access and sign my name underneath. I like this forum a lot and communicate with many ladies here. I go to Facebook just to check the news from our group and comment on them. I wonder if Danny got a hold of this reporter.

[Ycats277 in reply to Cureforever]

You have to open messenger on Facebook later after you finish work 🙏

[Lulu4545]

well, there's still hope then...

[Ycats277 in reply to Lulu4545]

Correct ErSO is alive and well 🌹❤️👍🏼

[Pbsoup]

Hmmm. Why would Bayer give it up if it is promising?

[Debbigbang in reply to Pbsoup]

I would probably say money??

[Pbsoup in reply to Debbigbang]

That’s my point…if it was effective they stood to make Money!

[Debbigbang in reply to Pbsoup]

There is more money needed to prepare for human trials. But to be honest the ins and outs of getting medicine from first stage on is confusing.

[Debbigbang]

I had my onocologyst appt today and went over my CT scan. 2 bones had started to heal from my last CT scan, but thing good or bad on this one. The issue right now is my liver, last scan nothing. This scan some growth. She doesn't want to change medication right now as this is my first treatment of hormone medication, Ibrance/letrozole. Also, this my 6th cycle.

Is anybody else taking Ibrance and letrozole and liver leision as well?

Thanks

Deb

[mariootsi in reply to Debbigbang]

Deb, glad to hear bones are healing. Good the onc didn't change meds. Hopefully next scan will show no liver change.

[Debbigbang]

Thank you ❤🙏. I try not to get upset about it. She is still happy with the progress, just the liver. I know we can still do radiation if need be. The lesion is on the middle. I guess just wait it out.she has scheduled another CT scan in 2 mths. Its crazy because I feel better than I have in years !! I am blessed with that, I am grateful 😁.

Deb

[Pachira]

I think I’ve become very cynical about the pharma companies. It sounded promising but I always wondered about the cost. At the prices that my hospital bills for these drugs. How could they survive without that income?

[Debbigbang]

Hi Sandra

Yes I can get disappointed, but never as badly as I had when I was first diagnosed. This isn't a sprint, it is a slow walk lol. I have a Dr who wants to make sure, I like that about her. I have always said my liver will be the stubborn one. I put it through a lot the last 20 yrs. I know it work out fine. It's a good scan if they don't find anymore 🥰. Good luck wishes to you for your up coming scans and yes they are a bit high blood pressure pronded !! But you are a strong Canadian lady !!! Full of spunk and hope 🇨🇦🤗. Hugs from the east coast Halifax 🦞

[Yumibelle]

Yes that is disappointing but I am so suspicious of big pharma as it is. I kind of feel that they’ll never develop a cure for cancer. Why would they? They’d lose way too much money in doing so! Sorry. I don’t mean to be offensive.

[mariootsi]

Such sad news!

[mariootsi]

Sandra good luck with your scan. Always a concerning time. Stay strong. We are all with you.

[Cureforever]

Hi Sandra,Good luck with your scans. I am always very nervous but you are strong and optimistic

Best,

Marina

[Cureforever]

Thanks Sandra for your suggestions. You are a very smart lady. Recent news about ErSO gave me so much stress that I noticed extra gray hair on my head. I am trying to get calmer. You predicted this. I still hope that the Systems Oncology will move forward with ErSO but it’s still only a hope. Best,

Marina

[Cureforever]

Thank you Sandra for your suggestions and support. I know that someone posted a wrong information about SO. It was in comments. But the researchers are still optimistic. Thus, I still have hope. I tried to meditate but it did not help much. I also go to the Accupunturist which helps but very little.

Best,

Marina

[Cureforever]

Thank you so much.

[viennagirl]

I am still optimistic that ErSO will eventually go to clinical trials for mbc. It might take longer than we would like to hear but I believe it will happen. Too many women are suffering and there is going to be pressure on scientists to help us all to find a cure. Politics might be involved and that is the only part of this that makes me sad. A cure for mbc is also a financial loss for drug companies so it wouldn't surprise me that they have put pressure on Bayer to not go ahead with the trial. I hope I am wrong. Thank you for keeping us informed. Hugs Marlene

[Cureforever in reply to viennagirl]

Hi Marlene. Thank you for being so optimistic. I hope that ErSO will go to trials soon and be successful for all of us. Hugs,

Marina