Posts - Restless Legs Syndrome | HealthUnlocked

Restless Legs Syndrome

21,483 members • 15,160 posts

All posts for August 2023

Total despair with RLS

Hello there, I'm a 57yr old lady who is no longer able to work (since nov 22 ) over the last few months I've been going out of my mind with what i presume is...

Hello there, I'm a 57yr old lady who is no longer able to work (since nov 22 ) ...

Fendersblue1

•9 months ago

16 Replies

Pain specialist

Saw pain specialist, he has put me on targin 10mg twice a day and taken me off buprenorphine.....I do hope this stops or eases the electric tugging pain I have...

Saw pain specialist, he has put me on targin 10mg twice a day and taken me off b...

Hidden

•9 months ago

2 Replies

The gut, Parkinson's and RLS.

The role of gut health and microbiome come up on this site quite regularly. This bit of research may be of interest to some contributors....

The role of gut health and microbiome come up on this site quite regularly. This...

Madlegs1

•9 months ago

5 Replies

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Gabapentin and test

I'd be very grateful for thoughts or experience of Gabapentin being responsible for low platelet, red blood cell (marginal) and white blood cell counts. All...

I'd be very grateful for thoughts or experience of Gabapentin being responsible ...

Johan10

•9 months ago

8 Replies

Low dose opioids

Hi, Does anyone know a doctor in the UK South East who I can see privately who will prescribe low dose opioids? I'm on 1800mg gabapentin and still having...

Hi, Does anyone know a doctor in the UK South East who I can see privately who ...

Believer1234

•9 months ago

16 Replies

Genetic/familial RLS

Genetic/familial rls respond to iron in the same way? Just found out that my sister suffers from rls and we feel that our father may have. I have taken...

Genetic/familial rls respond to iron in the same way? Just found out that my s...

Dires

•9 months ago

13 Replies

RLS and Pregabalin, etc

Thank you Joolz, Sue and everyone, really helpful replies. Will note and come back in a while with results! Very best wishes to all xx

Thank you Joolz, Sue and everyone, really helpful replies. Will note and come b...

Bowie4eva

•9 months ago

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RLS and HRT

I’ve always suffered mild rls in the evenings but some leg lifts and going to sleep stopped it , last few months it’s severe , I was up every half hour all...

I’ve always suffered mild rls in the evenings but some leg lifts and going to sl...

Ronniebongo

•9 months ago

11 Replies

Pramiprexole

I have just been advised by my doctor to stop taking pregabalin and change to pramiprexole I have serious restless legs problems. Does anyone have any...

I have just been advised by my doctor to stop taking pregabalin and change to pr...

Avocadopal

•9 months ago

5 Replies

Guidance for RLS

Hi Everyone, I'm new to this forum and am so glad to have found you. I have suffered with RLS for years, and in the past year, it's become pretty severe. I get...

Hi Everyone, I'm new to this forum and am so glad to have found you. I have suff...

PinkTLC

•9 months ago

3 Replies

Dicyclomine 20 mg

Hi, Dear members, I need help from anyone who has experiences taking the medication Dicyclomine. I am suffering from severe abdominal pain and the ER doctor...

Hi, Dear members, I need help from anyone who has experiences taking the medicat...

halperinchen

•9 months ago

6 Replies

Methadone Use

I am interested in hearing from others of their methadone use. Did you start out with a small dosage, and within months, became immune to that dosage, and...

I am interested in hearing from others of their methadone use. Did you start out...

vikkitennis

•9 months ago

41 Replies

Buprenorphine dosage.

Hi Sue, Just been prscribed Morphine Sulphate and to take 1.25ml twice a day orally. Unfortunately this amount is not doing anything to take my symptoms...

Hi Sue, Just been prscribed Morphine Sulphate and to take 1.25ml twice a day or...

VENEER

•9 months ago

3 Replies

Sciatica and RLS

My RLS is fairly well controlled right now, thanks to information from this wonderful site. Unfortunately I now have a recurrence of sciatica nearly six...

My RLS is fairly well controlled right now, thanks to information from this wond...

Stelladevico

•9 months ago

3 Replies

Some of life's treats!

Has anyone had an occasional glass of wine when on buprenorphine?I take my low dose buprenorphine at 10pm plus gabapentin (I find wine has no side effects on...

Has anyone had an occasional glass of wine when on buprenorphine?I take my low d...

Simkin

•9 months ago

11 Replies

RLS also in arms

Been diagnosed with RLS for 12 years now about 4 year ago it started in my arms as well I get the jerks with it as well it’s so embarrassing that I hate going...

Been diagnosed with RLS for 12 years now about 4 year ago it started in my arms ...

Jgou

•9 months ago

9 Replies

Safe to take Gabapentin for life?

I haven’t been able to find any reliable info on whether Gabapentin is safe to take for life (30+ years), specifically for severe PLMD with pain. My husband...

I haven’t been able to find any reliable info on whether Gabapentin is safe to t...

Nightbird11

•9 months ago

12 Replies

Great Band Name

I have a Google News Alert for Restless Leg Syndrome. It yields almost nothing, particularly when you compare it to the information found on this site, but I...

I have a Google News Alert for Restless Leg Syndrome. It yields almost nothing, ...

ilovebluewater

•9 months ago

3 Replies

Just looking for help like most of you.

I have been lurking here and on other sites, hoping to find some path to reduce or eliminate if possible my PLMD. I think I have had it for many years, but...

I have been lurking here and on other sites, hoping to find some path to reduce ...

stteb

•9 months ago

11 Replies

MS and RLS, Top UK Neurologist talks about Dopamine Agonists

One of the top MS neurologists in the UK has written about RLS in MS patients and states that he does not prescribe dopamine agonists because of the risk of...

One of the top MS neurologists in the UK has written about RLS in MS patients an...

Joolsg

•9 months ago

5 Replies

Bupenorphine (Morphine Sulphate)

Hi Sue, I have now taken 1.25 ml of Buprenorpine (Morphine Sulphate)and my symptoms are still persistent?????I can take another 1.25ml later tonight but can...

Hi Sue, I have now taken 1.25 ml of Buprenorpine (Morphine Sulphate)and my sympt...

VENEER

•9 months ago

5 Replies

Changing brands

My Pharmacy has been messing around with my ropinirole. The last batch I collected was in a small round container and the pills were so tiny. I take 0.5mg x...

My Pharmacy has been messing around with my ropinirole. The last batch I collec...

mickeyrose

•9 months ago

4 Replies

Urgent help needed. Extremely severe RLS, cannot identify cause.

It's so goddamn severe that at this point, I either have the most severe case of RLS in medical history or it's something else. I rate it 9 on the severity...

It's so goddamn severe that at this point, I either have the most severe case of...

RestlessDaily

•9 months ago

46 Replies

Nooro

Curious if anyone has tried THIS particular massager for RLS, PLMD, or neuropathy?...

Curious if anyone has tried THIS particular massager for RLS, PLMD, or neuropath...

kicker2

•9 months ago

9 Replies

Fillers in supplements and medications making RLS and PLMD worse?

Has anyone ever experienced or heard of anyone experiencing worsening of RLS and PLMD due to fillers used in supplements or medications? Or perhaps the generic...

Has anyone ever experienced or heard of anyone experiencing worsening of RLS and...

Nightbird11

•9 months ago

2 Replies

Help with Gabapentin please

Hello, I'm wandering if I need to up my ropinerole again during the day? I until the last few days have been coping, taking 1mg ropinerole at 6pm and 2...

Hello, I'm wandering if I need to up my ropinerole again during the day? I unti...

Cobobay

•9 months ago

11 Replies

Tramadol works

I’ve had RLS for 30+ years and suffered through many different medicines. I’ve been taking Tramadol for 20 years and it’s worked. My biggest problem is...

I’ve had RLS for 30+ years and suffered through many different medicines. I’ve ...

wildlegs

•9 months ago

18 Replies

RLS effects

Does anyone else get an irritation/itch on the soles of their feet when the RL is kicking in?

Does anyone else get an irritation/itch on the soles of their feet when the RL i...

Ulstergal

•9 months ago

7 Replies

DBS in restless legs syndrome: a new therapeutic approach

has anyone any information on Deep Brain Stimulation (DBS) and RLS? This is the title of a short case study in Sleep Medicine 2020 by Casoni et al...

has anyone any information on Deep Brain Stimulation (DBS) and RLS? This is ...

thorp

•9 months ago

2 Replies

Why no symptoms when i have a stinker of a cold

One thing i have noticed is that when im ill with a cold or flu i dont seem to have such terrible symptoms of rls ...i am able to sleep during the day without...

One thing i have noticed is that when im ill with a cold or flu i dont seem to h...

Oscarsaurus

•9 months ago

14 Replies

Posts - Restless Legs Syndrome | HealthUnlocked

Restless Legs Syndrome

All posts for August 2023

Total despair with RLS

Pain specialist

The gut, Parkinson's and RLS.

Gabapentin and test

Low dose opioids

Genetic/familial RLS

RLS and Pregabalin, etc

RLS and HRT

Pramiprexole

Guidance for RLS

Dicyclomine 20 mg

Methadone Use

Buprenorphine dosage.

Sciatica and RLS

Some of life's treats!

RLS also in arms

Safe to take Gabapentin for life?

Great Band Name

Just looking for help like most of you.

MS and RLS, Top UK Neurologist talks about Dopamine Agonists

Bupenorphine (Morphine Sulphate)

Changing brands

Urgent help needed. Extremely severe RLS, cannot identify cause.

Nooro

Fillers in supplements and medications making RLS and PLMD worse?

Help with Gabapentin please

Tramadol works

RLS effects

DBS in restless legs syndrome: a new therapeutic approach

Why no symptoms when i have a stinker of a cold

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