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NRAS

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All posts for March 2024

zoledronate risk factors ?

Hi , risedronate has only worked on my spine and not my hips for the last 2 years. hips at 16% risk, t_score -3.6. albeit I have not been taking enough vit D...

Hi , risedronate has only worked on my spine and not my hips for the last 2 year...

lindyloo2018

•1 month ago

9 Replies

holidays abroad and biologics?

Hi please could people advise how they cope with travelling abroad with their biologic 's. I don't know how the drugs should be kept safe (and cool?) whilst...

Hi please could people advise how they cope with travelling abroad with their b...

lindyloo2018

•1 month ago

26 Replies

Hypoglycemia with sulfasalazine and hydroxychloroquine

I've had several hypoglycemic episodes over the past few months, characterized by extreme weakness and tremors, and with the last two episodes, severe sweating...

I've had several hypoglycemic episodes over the past few months, characterized b...

girldoc

•2 months ago

4 Replies

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March NRAS Live

In this month’s NRAS Live on 27th March, Stuart Munday introduces you to our Senior Policy Officer, Sadé, whom like many of our community has lived with RA....

In this month’s NRAS Live on 27th March, Stuart Munday introduces you to our Sen...

Aribah-NRAS

Partner•2 months ago

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I had the shingles jab in 2019 I thought it was forever?

Hi Guys I have been asked to have another one, but I had one in 2019, well I had one then a booster a few weeks after, but now the GP have booked me in for...

Hi Guys I have been asked to have another one, but I had one in 2019, well I had...

VeronicaF

•2 months ago

25 Replies

employer moved me

Discovered private nhs employer has moved me from room on my own to room with other staff during my absence from work after emergency hip replacement surgery...

Discovered private nhs employer has moved me from room on my own to room with ot...

1984cockapoo

•2 months ago

11 Replies

Excessive Thirst and Leflunomide

Hi everyone Has anyone had problems with being extremely thirsty when on Leflunomide? I have been struggling with this for a while now and although I have T2...

Hi everyone Has anyone had problems with being extremely thirsty when on Leflu...

Kati66

•2 months ago

7 Replies

no teams to help us

I am sad that Northamptonshire has changed their RA support. You talk about these lovely team that is there to support us but in truth we are on our own. If...

I am sad that Northamptonshire has changed their RA support. You talk about thes...

Parker16-

•2 months ago

13 Replies

Biologic and methotrexate injections

hi I have had an infection and had to delay my methotrexate by a few days which is fine apart from it’s now on the same day as my Biologic/Adalimumab. Does...

hi I have had an infection and had to delay my methotrexate by a few days which ...

Amb1xkr

•2 months ago

12 Replies

Antihistamine

Take one antihistamine each day for all the summer to prevent moskito reaction. Only way to stop suffering. I had reaction like this since i'm little. A doctor...

Take one antihistamine each day for all the summer to prevent moskito reaction. ...

Shadow35

•2 months ago

6 Replies

Pain, stiffness & fatigue but low active disease

hi, feeling particularly low today (and in pain / exhausted).. 18 months on from diagnosis and shortly due to start biologic, as do have some active disease...

hi, feeling particularly low today (and in pain / exhausted).. 18 months on from...

Sapphire1701

•2 months ago

23 Replies

Raynaud's in nipples?

I've posted this in Lupus and the Raynaud's & Scleroderma groups, and no responses. Surely I can't be the only one?

I've posted this in Lupus and the Raynaud's & Scleroderma groups, and no respons...

Brychni

•2 months ago

9 Replies

Steroid in thumb & finger joint

Hi Seizing up at a rate of knots. 😬 RA seemed to be in remission and I just had one stiff MCP joint in my right hand when I was last in clinic in 2022. For...

Hi Seizing up at a rate of knots. 😬 RA seemed to be in remission and I just h...

whitedog

•2 months ago

4 Replies

Anti mosquito stuff?

Hi. What do people find the best at keeping mosquitos away from you on holiday? I get bitten for sure if they are around and am a bit wary now I'm on...

Hi. What do people find the best at keeping mosquitos away from you on holiday? ...

Haz58

•2 months ago

35 Replies

colds and coughs

I am recently diagnosed with RA, I am on immune blockers. And I keep getting colds and coughs. is this due to my immune system being reduced. And is there...

I am recently diagnosed with RA, I am on immune blockers. And I keep getting c...

Toiletseat

•2 months ago

7 Replies

Has methotrexate caused liver damage

I had a blood test which showed raised levels of ALP 136, Aspartate Transaminase 68. My GP said that my RA meds have caused damage to my liver!!! I am having a...

I had a blood test which showed raised levels of ALP 136, Aspartate Transaminase...

Beanyynwa

•2 months ago

9 Replies

supplements

I’ve been on Methatrexate long term and tolerating it well thankfully, I’ve just recently started taking a multivitamin/mineral and that’s the only other thing...

I’ve been on Methatrexate long term and tolerating it well thankfully, I’ve just...

A234

•2 months ago

55 Replies

Mulders click

Hi hope your all keeping well .you lot are amazing with advice and knowledge, I seen physio he thinks its mulders click in my right foot i cannot walk...

Hi hope your all keeping well .you lot are amazing with advice and knowledge, ...

Vonnie10

•2 months ago

4 Replies

RA and hand palm pain

Hi, been diagnosed more than 10 years ago with RA. Had extreme pain inside my hand for many days ( palm) . I find it hard to open my hand and fingers as...

Hi, been diagnosed more than 10 years ago with RA. Had extreme pain inside my ha...

virginied

•2 months ago

28 Replies

Duloxetine...

Any info about this please, I know what it is and what it does, just need people's views please 😊😊

Any info about this please, I know what it is and what it does, just need people...

RAat13

•2 months ago

5 Replies

persistent oral thrush

I've been on an increased dose of prednisolone since August last year. I've started reducing since January (tried before with a flare-up). I also use a steroid...

I've been on an increased dose of prednisolone since August last year. I've star...

oldtimer2

•2 months ago

5 Replies

biological treatment

How long did it take you to receive biological treatment after diagnosis RA or Psoriatic arthritis and what qualifies you to receive biological treatment?

How long did it take you to receive biological treatment after diagnosis RA or P...

Beata0102

•2 months ago

18 Replies

Hospital appointment

So attended hospital today who were amazing had a range of tests chest. xray ECG. B12 and folate checked. As I have a range of issues extreme fatigue can only...

So attended hospital today who were amazing had a range of tests chest. xray ECG...

welsh12

•2 months ago

6 Replies

Fungal nail

Hi all Looking for advice as any of you suffered from fungal nail I have had problems for the last four years no treatment has help could I ask if anyone as...

Hi all Looking for advice as any of you suffered from fungal nail I have had pr...

231952

•2 months ago

14 Replies

Covid for 3rd time

hi I have just tested positive for Covid can I get anti virals for a 3rd time. Going to call dr but I thought I'd ask you guys first

hi I have just tested positive for Covid can I get anti virals for a 3rd time. G...

Dawnee28

•2 months ago

16 Replies

Tocilizumab (RoActemra) and low neutrophils?

I've been injecting TOC for just over a year, but in the last three months my neutrophil level has been falling and is now below normal at 1.6 x10^9. I...

I've been injecting TOC for just over a year, but in the last three months my ne...

Lolabridge

•2 months ago

7 Replies

covid and metratrexate for RA

morning all!! I tested positive for covid on the 24th of February and was told by the Rheumatologist nurses and the consultant to stop the metratrexate and...

morning all!! I tested positive for covid on the 24th of February and was told ...

Mybirthday1975

•2 months ago

11 Replies

Diagnosed with RA - are there alternatives to taking drugs

I've been diagnosed with RA. My hands and arms hurt - typing can be an issue on some days. and noticed now that my feet hurt. I have not taken any drugs as...

I've been diagnosed with RA. My hands and arms hurt - typing can be an issue on...

nat_options

•2 months ago

48 Replies

RA and lymphoedema

Hi, just wondering if anyone has secondary lymphoedema and rheumatoid arthritis and if so what RA medication you are on, I am waiting to find out what...

Hi, just wondering if anyone has secondary lymphoedema and rheumatoid arthritis ...

Keb22

•2 months ago

1 Reply

How good should it get?

Hi, first post here. I was diagnosed with RA in November and started on 15mg of methotrexate in December. Before diagnosis I was struggling to walk due to my...

Hi, first post here. I was diagnosed with RA in November and started on 15mg of ...

Cat-E

•2 months ago

33 Replies

Posts - NRAS | HealthUnlocked

NRAS

All posts for March 2024

zoledronate risk factors ?

holidays abroad and biologics?

Hypoglycemia with sulfasalazine and hydroxychloroquine

March NRAS Live

I had the shingles jab in 2019 I thought it was forever?

employer moved me

Excessive Thirst and Leflunomide

no teams to help us

Biologic and methotrexate injections

Antihistamine

Pain, stiffness & fatigue but low active disease

Raynaud's in nipples?

Steroid in thumb & finger joint

Anti mosquito stuff?

colds and coughs

Has methotrexate caused liver damage

supplements

Mulders click

RA and hand palm pain

Duloxetine...

persistent oral thrush

biological treatment

Hospital appointment

Fungal nail

Covid for 3rd time

Tocilizumab (RoActemra) and low neutrophils?

covid and metratrexate for RA

Diagnosed with RA - are there alternatives to taking drugs

RA and lymphoedema

How good should it get?

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