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NRAS

36,686 members • 45,326 posts

All posts for June 2020

Online Self-Management Survey

We are proposing to develop some online meeting groups, where we will focus on specific subjects. The aim will be to give you an opportunity to share and learn...

We are proposing to develop some online meeting groups, where we will focus on s...

emmab-NRAS

•4 years ago

12 Replies

What a difference a day makes

Humidity gone and I’m positively spritely . Although woke tired no pain or stiffness ( even my problematic Achilles) took a a walk in the rain (over a mile)...

Humidity gone and I’m positively spritely . Although woke tired no pain or stiff...

Hidden

•4 years ago

5 Replies

do I have indication of immunosuppresion?

I work in the nhs and have to do a self risk assessment. Am.i classed as having any indication of immunosuppression??? I have rheumatoid arthritis. I am on...

I work in the nhs and have to do a self risk assessment. Am.i classed as having ...

simba91

•4 years ago

10 Replies

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Biological drugs

CERTOLIZUMAB PEGOL & ADALIMUMAB Hi, can any1 help if they have or are using these bilogical drugs and if used during pregnancy, pre and after? Would you...

CERTOLIZUMAB PEGOL & ADALIMUMAB Hi, can any1 help if they have or are using the...

Chelsear30

•4 years ago

2 Replies

It’s torrential rain here!

This will bring a smile to your face.... I am having a new roof, old one comes off today... the rain here is like waterfalls.....I can only smile!😁

This will bring a smile to your face.... I am having a new roof, old one comes o...

Elizabethhampson

•4 years ago

6 Replies

Happy Birthday to me!

It’s my birthday today. Love to everyone here 😊. Not much to do in the way of celebrating, but I got some lovely presents 🎁

It’s my birthday today. Love to everyone here 😊. Not much to do in the way o...

Hidden

•4 years ago

42 Replies

methotrexate problems

hi everyone i hope you are all keeping well. i have a telephone appointment with my rheumy next week and wondered if this was something i could mention. i...

hi everyone i hope you are all keeping well. i have a telephone appointment with...

oliviagodfreyxx

•4 years ago

21 Replies

Facebook Live 18th June at 7pm

We're pleased to announce that tomorrow's Facebook Live will be hosted by Nadine Garland, Manager of the NRAS Helpline team. She will be joined by Dr Lizzy...

We're pleased to announce that tomorrow's Facebook Live will be hosted by Nadine...

Anita-NRAS

Partner•4 years ago

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Sorry

I would just likened say sorry for My Rant on here yesterday was soo down and just couldn’t get out of pain :(

I would just likened say sorry for My Rant on here yesterday was soo down and ju...

Deejojo

•4 years ago

26 Replies

Jak inhibitors - help please🙂

Afternoon peeps 🙂 Hope this finds you as happy and healthy as can be? I may have to change my meds... Does anybody have experience of jak inhibitors? Thanks...

Afternoon peeps 🙂 Hope this finds you as happy and healthy as can be? I may hav...

Moomin8

•4 years ago

18 Replies

Hydroxychioquine

Has anyone stopped taking there Hydroxychioquine with the press saying it’s dangerous.

Has anyone stopped taking there Hydroxychioquine with the press saying it’s dang...

Laceygreen

•4 years ago

10 Replies

supplements interfering with medication

I know it's an obvious one but what are your thoughts/experiences with taking supplements that may interfere with, in my case hydroxychloroquine, or other...

I know it's an obvious one but what are your thoughts/experiences with taking su...

Brychni

•4 years ago

18 Replies

Feeling lost

I apologise if I appear dense, but I am in a very difficult position at the moment and feeling a bit lost and out of my depth. Apart from 3 years when I lived...

I apologise if I appear dense, but I am in a very difficult position at the mome...

candyangel

•4 years ago

16 Replies

WEATHER IS CAUSING HAVOC TO BODY

Flippin weather. When the humidity started last week I could give Popeye a run for his money . Swelling more manageable but... yesterday with all the storms I...

Flippin weather. When the humidity started last week I could give Popeye a run f...

Hidden

•4 years ago

25 Replies

Stage Four almost

In my last post I mentioned my mom was diagnosed with stage three kidney failure. Today she’s been seen by a new specialist since we recently moved again. We...

In my last post I mentioned my mom was diagnosed with stage three kidney failure...

Ccrowlu

•4 years ago

12 Replies

Change from Humira to Imraldi

hi everyone hope your all keeping safe! I was humira for 8 years, last year it was changed to the cheaper version Imraldi. The last few months I’ve been...

hi everyone hope your all keeping safe! I was humira for 8 years, last year it ...

Cindy

•4 years ago

2 Replies

Nuffield

Omg I’m sooo. Fed up rand hospital this afternoon and the stupid woman on the end of the phone was sooo rude I was Only ringing up to ask if they had any Idea...

Omg I’m sooo. Fed up rand hospital this afternoon and the stupid woman on the en...

Deejojo

•4 years ago

18 Replies

Tonight its real chips !

The one thing I've really missed is fish and chips once a week. so as shielding could go on I'e bought a deep fat fryer not the healthy one but the one that...

The one thing I've really missed is fish and chips once a week. so as shielding ...

medway-lady

•4 years ago

24 Replies

Frustrated with the lack of communication

Is anyone else getting frustrated with the lack of an update? Current shielding advice (for England) is end of June, that’s in two weeks which really isn’t far...

Is anyone else getting frustrated with the lack of an update? Current shielding ...

Domhem

•4 years ago

39 Replies

Ritx

Hi. So as everyone’s rituximab been stopped I’m sure I seen read on here someone had it few weeks ago.. I had a phone conversation with the consultant today...

Hi. So as everyone’s rituximab been stopped I’m sure I seen read on here someo...

Vonnie10

•4 years ago

10 Replies

Sore sore blistered feet skin peeling off ? Help plz if you can .

Hi there ,Is anyone every had problems with the soles of there feet ,red sore blister like skin coming off and very very tough skin at that . Since Feb it...

Hi there ,Is anyone every had problems with the soles of there feet ,red sore bl...

Weemillie

•4 years ago

5 Replies

Tocilizumab injection vs infusion

Hi all hope you’re all ok. I was on tocilizumab infusions until last month but was switched to injections because of COVID. Have any of you found the...

Hi all hope you’re all ok. I was on tocilizumab infusions until last month but...

PM193

•4 years ago

9 Replies

Rock and a hard place.

Afternoon all. Hope everyone is as well as can be. Bit of a pickle today. As many of you know. I suffer with RA and AS as well as a lung condition. I am on...

Afternoon all. Hope everyone is as well as can be. Bit of a pickle today. As m...

Eiram50

•4 years ago

60 Replies

Hopeless...

Hi. I am a 49 year old female from the United States. I was diagnosed with Rheumatoid Arthritis in 2014. I have also been diagnosed with Major Depressive...

Hi. I am a 49 year old female from the United States. I was diagnosed with Rheum...

RebellousRed

•4 years ago

22 Replies

Shielding

Can we go out if your shielding.? And can we meet with family ... I’m lost don’t know what to do

Can we go out if your shielding.? And can we meet with family ... I’m lost don’t...

Laceygreen

•4 years ago

7 Replies

Hello and thank you

Hi everyone. I found this site a few weeks ago and I am so pleased I did. Although I was diagnosed some years ago I have learned more from the posts here than...

Hi everyone. I found this site a few weeks ago and I am so pleased I did. Althou...

Bopeep12

•4 years ago

4 Replies

Need a new office chair

Good morning, I have finally worked out why my whole back has been throbbing for a few weeks - my office chair is broken! I noticed it being rather wobbly so...

Good morning, I have finally worked out why my whole back has been throbbing fo...

JulezH

•4 years ago

12 Replies

Shielding

Well I have been shielding for 12 weeks like the letter stated I have rang my works and they have done a risk assessment so I am returning to work next week if...

Well I have been shielding for 12 weeks like the letter stated I have rang my wo...

Soundofmusic52

•4 years ago

9 Replies

Covid Letter

Should people shielding be receiving another letter from government, gp or rheumatology with advice now?

Should people shielding be receiving another letter from government, gp or rh...

alton

•4 years ago

44 Replies

STEROID SHOTS IN THE EAR

I had been told that I picked up viral infection from the hospital when I had my recent wrist fusion. After seeing ENT and put on meds for 2 weeks my left ear...

I had been told that I picked up viral infection from the hospital when I had my...

oznaf

•4 years ago

11 Replies

Posts - NRAS | HealthUnlocked

NRAS

All posts for June 2020

Online Self-Management Survey

What a difference a day makes

do I have indication of immunosuppresion?

Biological drugs

It’s torrential rain here!

Happy Birthday to me!

methotrexate problems

Facebook Live 18th June at 7pm

Sorry

Jak inhibitors - help please🙂

Hydroxychioquine

supplements interfering with medication

Feeling lost

WEATHER IS CAUSING HAVOC TO BODY

Stage Four almost

Change from Humira to Imraldi

Nuffield

Tonight its real chips !

Frustrated with the lack of communication

Ritx

Sore sore blistered feet skin peeling off ? Help plz if you can .

Tocilizumab injection vs infusion

Rock and a hard place.

Hopeless...

Shielding

Hello and thank you

Need a new office chair

Shielding

Covid Letter

STEROID SHOTS IN THE EAR

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