Cancer

[skybluepink]

Can there be primary cancer emanating from lymph nodes or is it a chicken & the egg situation so only those with it as a secondary can access help? Deep in my groin they rise when one antibiotic short because the GPs play games knowing my hospital appts 3 weekly with Prof been curtailed as he and they are on remits.

Could it possibly be the microscopes not showing up the microvascular problems as in my case .The chronic utis acute 3 weekly do not show up on hospital tests & fibromyalgia trigger points causing stress on condition so much MI[ cardiac arrest] 11 yrs ago with angioplasty to revive as died 3x.Serious? Still angina stable/unstable ignored?

Still the classic heart failure symptoms caused by restricting antibiotics & ignoring protests[ complaints].still continued to last year.As for oedema .Has it become lipo-lymphoedema with no diuretics so felt like inflatable doll till accessed the correct diuretics because a Reveal Device did not show daily consciousness problem but did show PAH not showing anywhere else .

This is what happens when blinkered Health Service ignore symptoms & research forbidding Testing & Referral .

Now stopping Testing in Primary Care & A&Es for those of a certain age .Surely this is making a rod for their own backs .When is reason & ethics going to prevail?

PS The Prof had operational microscope not out of date testing one??!!!

[AnneBury]

Sorry, can't understand what you are saying but I think at the beginning you are mixing primary and secondary lymphoedema with primary and secondary cancers. Primary lymphoedema is usually caused by a genetic defect. Secondary lymphoedema is usually caused by a trauma, often cancer treatment. In many cases people with secondary lymphoedema (particularly when caused by cancer) find it easier to get treatment (for lymphoedema) than those with primary lymphoedema.

[skybluepink in reply to AnneBury]

So where can I get a genetic test as mistook the raised hard lumps in groin as Cancer when suspect they were now lymph nodes responding to a lack of antibiotic? Slow growing rare forms off cancer on both sides my family .A hysterscopy confirmed 9mm thick endometrium Is benign & cysts on vulva also. Do I trust was they say? Why no Genetic Test? When chronic utis are acute 3 weekly this is very stressful no wonder heart failure & lipo -lymphoedema stage 2 .

[AnneBury in reply to skybluepink]

Have you tried a cancer group/site? This is a lymphoedema group and many can only comment on lymphoedema.

[Kir6]

Skyblupink, your post is a little confusing and you don’t state which country you are in making it difficult to comment on care available. There is no actual genetic test for Primary Lymphoedema as yet. It is usually diagnosed after ruling out other causes. Sometimes a timed scan will be done after a small injection of nuclear material into the affected limbs to confirm how quickly Lymphatic fluid is moving around your body but it won’t affect how you treat/manage your condition. Diuretics are not usually recommended for LE either and antibiotics won’t clear blocked lymph nodes unless they are actually infected?

[CCT67]

Hello

As others have said it’s unclear quite what you’re seeking advice about. In relation to diagnosis there is genetic testing however this is not how LE is diagnosed, it can establish which genetic fault the LE is attributable to however this would be after a diagnosis is made. Few hospitals undertake genetic testing worldwide. St. George’s in London leads in genetic research and testing.

You may find this link helpful -the last consensus document re diagnosis and treatment of LE written by the leading doctors in vascular and lymphatic medicine. It explains the diagnostic scans used to diagnose LE. The gold standard scan is Lymphoscintigraphy. This would be completed before genetic testing for LE

lymphology2013.com/wp-conte...