Lymphodena / MLD / Factor V Leiden: Wondered if anyone... - LSN

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Lymphodena / MLD / Factor V Leiden

Ingrid3
Ingrid3

Wondered if anyone knows if MLD is ok with Factor V, I recently had four sessions five months after mastectomy - I have arm and trunk swellings but ankle and leg have now swollen as well after the MLD and I had 10 days of extreme pain under scar which is thankfully subsiding. I did wonder if practitioner was experienced enough especially when she suggested I buy a compression unit for the trunk on telephone when I know you need to be measured by an expert and when I called them they indeed confirmed this. I have not booked any more. Any thoughts would be appreciated. Thank you.

8 Replies
oldestnewest

Ingrid - where did you have the treatments? Did the therapist liaise with your breast cancer surgeon or nurse? Are you on anticoagulants? Has the leg swelling been checked to rule out thrombosis?

Ingrid3
Ingrid3
in reply to Lynora

It was in Oxford with someone recommended by MLD Uk and yes she had letter from oncologist I can’t get appt with GP for five weeks but spoke with her and she said wait and see - felt really looked after - not !

Lynora
Lynora
in reply to Ingrid3

I have sent a PM.

Ingrid3
Ingrid3
in reply to Lynora

I am new to this site where do I find your pm? 🙄

Lynora
Lynora
in reply to Ingrid3

The little ‘thought bubbles’ icon at the top of the page will be orange, indicating you have a PM.

Good Day!

Has your physician approved of MLD?

If yes, MLD can be done. However, the physician must dictates the grade of compression that will benefit you, then you get measured by the MLD practitioner or a representative from the likes of Juzo, etc.... Ask your doctor if you need Ted hose versus compression stockings, sleeves, etc...

Hope that this is useful to you. The DOCTOR's guidelines...key factor. Good Day🤗

Ingrid3
Ingrid3
in reply to Gearla

Thank you she didn’t say anything other than have MLD will call tomorrow thank you for the advice x

Lynora
Lynora
in reply to Gearla

Gearla are you in the UK?

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