Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

72,180 members • 52,780 posts

All posts for September 2022

Operation cancelled!!

Hi there, My Operation got cancelled due to my pre op blood tests came back low B12 now I'm waiting for a new date to have my ovaries removed and a mirena...

Hi there, My Operation got cancelled due to my pre op blood tests came back lo...

Hidden

•2 years ago

7 Replies

Regular Blood Tests

Hi everyone, Do you have regular blood tests done? To check iron, thyroid etc. I am beyond struggling at the moment and I have no idea if it’s my Endo /...

Hi everyone, Do you have regular blood tests done? To check iron, thyroid etc...

HMC18

•2 years ago

2 Replies

Post-op symptoms

Just wondering if anyone has experience post endo op? I had an op a few weeks ago to remove the endo and haven’t experienced any endo pain since. (Amazing!)...

Just wondering if anyone has experience post endo op? I had an op a few weeks ag...

charlatan

•2 years ago

2 Replies

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referred shoulder pain

hi I was wondering if anyone had experience of referred shoulder pain from endo growing high on the diaphragm? I stopped taking birth control in March to TTC...

hi I was wondering if anyone had experience of referred shoulder pain from endo ...

Duopuss

•2 years ago

1 Reply

Chronic Fatigue in Pelvic Pain Disease - Endometriosis/IBD/Bladder Pain

Hi everyone, I am new to this group, and am hoping for some help and support from seasoned pelvic pain sufferers. I will give a bit of background of my...

Hi everyone, I am new to this group, and am hoping for some help and suppor...

Hidden

•2 years ago

5 Replies

Dienogest with mirena coil

I had a 2nd laparoscopy in March 2021 where I had the mirena fitted at the same time. I had bleeding for 6 months after and I started to get pain again when my...

I had a 2nd laparoscopy in March 2021 where I had the mirena fitted at the same ...

Maxyy93

•2 years ago

2 Replies

Zoladex Injections

I’m waiting on a total hysterectomy due to endo, fibroids and PID. I have seen a consultant on the NHS and also private to speed things up. Whilst I am...

I’m waiting on a total hysterectomy due to endo, fibroids and PID. I have seen ...

Hidden

•2 years ago

18 Replies

Ovarian Remnant Syndrome

Ovarian remnant syndrome is a relatively rare condition if taking the female population as a whole and occurs when remnants of ovarian tissue are left behind...

Ovarian remnant syndrome is a relatively rare condition if taking the female pop...

Lindle

•2 years ago

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Deeply upset by A&E visit that was very unhelpful

Where are women supposed to go when they’re in agony with endo flare ups!? I went to my A&E at 4am last night and took 7 hours to see a doctor. I was having...

Where are women supposed to go when they’re in agony with endo flare ups!? I wen...

Surfingblue

•2 years ago

54 Replies

Some advice

Hello, I don't really know how to start off. Around a year ago I was diagnosed with primary dysmenorrhea. I have been suffering with pain and fatigue since I...

Hello, I don't really know how to start off. Around a year ago I was diagnosed...

thealevelstudent

•2 years ago

4 Replies

hysterectomy 8 weeks post op and heart palpitations- still have ovaries

Hi everyone , I am 8 weeks post op total laparoscopic hysterectomy for large fibroid and still have my ovaries, has anyone e oriented heart flutters and...

Hi everyone , I am 8 weeks post op total laparoscopic hysterectomy for large fib...

KimG21

•2 years ago

18 Replies

Thoracic endometriosis - catamenial pneumothorax

Hey, Does anyone else suffer from thoracic endo? I've had 11 lung collapses in the past year now. I had lung surgery in March which didn't work so they've...

Hey, Does anyone else suffer from thoracic endo? I've had 11 lung collapses ...

Ecorc

•2 years ago

8 Replies

leaving endometriosis alone

interested to hear from women what advice they have recieved if they didnt want surgery and just left endometriosis alone (simple pain managed) Are there...

interested to hear from women what advice they have recieved if they didnt want ...

Bondi64

•2 years ago

11 Replies

Infection after Laparoscopy - really struggling

Hi everyone, this is my first time posting on here, and I hope that this is ok to share. Buckle up, it’s quite a long post. I had a laparoscopy that I paid...

Hi everyone, this is my first time posting on here, and I hope that this is ok t...

AlexB7

•2 years ago

4 Replies

feeling completely lost😔 sorry it's a long post

hello! Im new to the group! I've recently been diagnosed with endometriosis via a laparoscopy last month! Ive been suffering for many years. I've been...

hello! Im new to the group! I've recently been diagnosed with endometriosis vi...

Lanniepie

•2 years ago

3 Replies

NHS Service for Endometriosis surgery

Hi everyone. I come from Indonesia to study PhD in Glasgow starting in January 2023. My wife has been diagnosed with endometriosis cyst, and a local...

Hi everyone. I come from Indonesia to study PhD in Glasgow starting in January ...

hearts95

•2 years ago

5 Replies

Merina Coil removal/pregnancy

Hello, I am due to be getting my coil taken out, had it for 7 years now, and changed 3 times due to having surgery last November again for endo. After it was...

Hello, I am due to be getting my coil taken out, had it for 7 years now, and ch...

EQAC

•2 years ago

1 Reply

Passed from pillar to post, feeling ignored and dismissed

After years of severe pain with periods, I finally gave in and saw the gp, told twas normal and to get on with it. I kept returning to the gp who finally sent...

After years of severe pain with periods, I finally gave in and saw the gp, told ...

rubine7521

•2 years ago

14 Replies

had surgery in March and no follow up appointment

I had surgery (laparoscopy) in March and was told my follow up appointment would be 6 months after. I just received an email saying that they don't have any...

I had surgery (laparoscopy) in March and was told my follow up appointment woul...

Emmeline14

•2 years ago

3 Replies

Endometriosis scan

Hi, wondering if anyone can help me as I’m a little bit lost and confused with this process of figuring out wether I do have Endometriosis or not. I’ve been on...

Hi, wondering if anyone can help me as I’m a little bit lost and confused with t...

13-13

•2 years ago

7 Replies

Superficial endo removed but suspected deep infiltrating ?

I had an MRI scan and laparoscopy last November. The MRI showed deep nodularity accross both sides of the peritoneum and cysts in the uterus walls. During...

I had an MRI scan and laparoscopy last November. The MRI showed deep nodularity...

iLoveMyTortoise

•2 years ago

15 Replies

Endometriosis stage 3 or 4 ?

Hi There. I was diagnosed with endometriosis last November 2021 through laparscorpy surgery. The sugeron never clarity what stage endometriosis I have . I...

Hi There. I was diagnosed with endometriosis last November 2021 through lapar...

Cockapoo-2016

•2 years ago

7 Replies

please can anyone help?

Please Help! Not sure what the best option is? have recently been diagnosed with Endo , consultant confirmed need hysterectomy. really don’t want another...

Please Help! Not sure what the best option is? have recently been diagnosed wi...

L-a-i-n

•2 years ago

2 Replies

Does anyone have experience with discrimination by HE provider?

Debilitating endo symptoms meant that my in-person attendance has always been quite bad for years now. Not long ago, I was told that I would not be allowed to...

Debilitating endo symptoms meant that my in-person attendance has always been qu...

Frieda_3287

•2 years ago

6 Replies

My gynaecologist was nearly struck off !!!!!!

Update - I've just googled 1 of my gynaecologists, he did my 2nd lap for endometrial cyst removal and diagnostic. He was nearly struck off for poor...

Update - I've just googled 1 of my gynaecologists, he did my 2nd lap for endom...

emm27

•2 years ago

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feeling a bit lost

I finally got my medical records from the consultant who performed my laparscopy and diagnosed me with endometriosis in 2018 and feeling so lost. it...

I finally got my medical records from the consultant who performed my laparscop...

Escapologygirl

•2 years ago

2 Replies

endo pain & pregnancy

I have luckily been able to fall pregnant following my endo removal surgery last year. I am now 22 weeks pregnant and the pain in my side and back has been...

I have luckily been able to fall pregnant following my endo removal surgery last...

jadelaura4

•2 years ago

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Confirmed endometrioma on right ovary, but no endo diagnosis?

TW: miscarriage Hi everyone, I was hoping someone in this community might be able to help shed some light? I'm 34, have experienced very extreme period pain...

TW: miscarriage Hi everyone, I was hoping someone in this community might be ab...

Toz88

•2 years ago

11 Replies

Gabapentin advice please ladies

Hey warriors, I hope you're all having a good day. I was hoping for some of your experiences of Gabapentin. For context - 2 laps in the last 2years,last...

Hey warriors, I hope you're all having a good day. I was hoping for some of yo...

emm27

•2 years ago

3 Replies

Pain after menopause

Hi all, I haven't been around for a few years. A brief back story. I had always suffered from painful heavy periods, since 16 years old. Numerous visits to...

Hi all, I haven't been around for a few years. A brief back story. I had always...

foosey

•2 years ago

5 Replies

Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

All posts for September 2022

Operation cancelled!!

Regular Blood Tests

Post-op symptoms

referred shoulder pain

Chronic Fatigue in Pelvic Pain Disease - Endometriosis/IBD/Bladder Pain

Dienogest with mirena coil

Zoladex Injections

Ovarian Remnant Syndrome

Deeply upset by A&E visit that was very unhelpful

Some advice

hysterectomy 8 weeks post op and heart palpitations- still have ovaries

Thoracic endometriosis - catamenial pneumothorax

leaving endometriosis alone

Infection after Laparoscopy - really struggling

feeling completely lost😔 sorry it's a long post

NHS Service for Endometriosis surgery

Merina Coil removal/pregnancy

Passed from pillar to post, feeling ignored and dismissed

had surgery in March and no follow up appointment

Endometriosis scan

Superficial endo removed but suspected deep infiltrating ?

Endometriosis stage 3 or 4 ?

please can anyone help?

Does anyone have experience with discrimination by HE provider?

My gynaecologist was nearly struck off !!!!!!

feeling a bit lost

endo pain & pregnancy

Confirmed endometrioma on right ovary, but no endo diagnosis?

Gabapentin advice please ladies

Pain after menopause

Search posts

Pinned Posts

Latest poll

If you were eligible to take part in a medical research trial about endometriosis, how would you like to find out about it?

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Archive

Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

All posts for September 2022

Operation cancelled!!

Regular Blood Tests

Post-op symptoms

referred shoulder pain

﻿Chronic Fatigue in Pelvic Pain Disease - Endometriosis/IBD/Bladder Pain

Dienogest with mirena coil

Zoladex Injections

Ovarian Remnant Syndrome

Deeply upset by A&E visit that was very unhelpful

Some advice

hysterectomy 8 weeks post op and heart palpitations- still have ovaries

Thoracic endometriosis - catamenial pneumothorax

leaving endometriosis alone

Infection after Laparoscopy - really struggling

﻿feeling completely lost😔 sorry it's a long post

﻿NHS Service for Endometriosis surgery

Merina Coil removal/pregnancy

Passed from pillar to post, feeling ignored and dismissed

﻿had surgery in March and no follow up appointment

Endometriosis scan

Superficial endo removed but suspected deep infiltrating ?

﻿Endometriosis stage 3 or 4 ?

please can anyone help?

Does anyone have experience with discrimination by HE provider?

﻿My gynaecologist was nearly struck off !!!!!!

﻿feeling a bit lost

endo pain & pregnancy

Confirmed endometrioma on right ovary, but no endo diagnosis?

﻿Gabapentin advice please ladies

Pain after menopause

Search posts

Pinned Posts

Latest poll

If you were eligible to take part in a medical research trial about endometriosis, how would you like to find out about it?

Topics

Archive

Chronic Fatigue in Pelvic Pain Disease - Endometriosis/IBD/Bladder Pain

feeling completely lost😔 sorry it's a long post

NHS Service for Endometriosis surgery

had surgery in March and no follow up appointment

Endometriosis stage 3 or 4 ?

My gynaecologist was nearly struck off !!!!!!

feeling a bit lost

Gabapentin advice please ladies