Posts - Advanced Prostate Cancer | HealthUnlocked

Advanced Prostate Cancer

21,372 members • 26,728 posts

All posts for January 2023

Ring the bell day tomorrow!!

35 rounds of IMRT and in month 3 of 6 ADT after failed RALP. Glad to put the daily trips in the rear view mirror. Head to Mexico in a couple months to...

35 rounds of IMRT and in month 3 of 6 ADT after failed RALP. Glad to put the dai...

runtrails

•1 year ago

10 Replies

Recommendations for outstanding doc at Duke Durham

Hey everyone, We are considering a (third) opinion at Duke. My husband is stage 4 mPC. Does anyone know of any outstanding docs (best is urologic oncologist...

Hey everyone, We are considering a (third) opinion at Duke. My husband is stag...

Newdiag-NC

•1 year ago

13 Replies

BAT Question

I would like to know for those folks experimenting with BAT or actively doing so with their MO once your T rises again and then when you reinitiate ADT do you...

I would like to know for those folks experimenting with BAT or actively doing so...

watertender

•1 year ago

18 Replies

Want to take advantage of all our features? Just log in!

I would like to connect with fellow warriors that are HSPC and on Darolutamide to discuss Time to Failure, early detection assays etc...

Hello fellow warriors, Is there any other warriors that are still hormone sensitive and taking darolutamide? Are there any HSPC taking it without docetaxel....

Hello fellow warriors, Is there any other warriors that are still hormone sensit...

KocoPr

•1 year ago

28 Replies

Vacation time?

I'm starting year 5. I started in 2018 with PC a surprise finding during an MRI for chronic but low grade low back pain. For past 4 years I've had stable...

I'm starting year 5. I started in 2018 with PC a surprise finding during an MR...

pdold

•1 year ago

13 Replies

cancer, coronary artery disease... melatonin question

Healthunlocked repeatedly keeps deleting my posts in the middle of typing, so ill keep this brief, in hopes that it won't get deleted as well. I had just...

Healthunlocked repeatedly keeps deleting my posts in the middle of typing, so il...

GeorgeGlass

•1 year ago

25 Replies

Had to Laugh

Just recently started Orgavyx. Soon after got an email entitled: >>>>>>>>>>>>>> Welcome to ADT >>>>>>>>>>>>>>> ...for their security systems, of course....

Just recently started Orgavyx. Soon after got an email entitled: >>>>>>>>>>>>>>...

compiler

•1 year ago

67 Replies

Dr Thomas Seyfried of Boston College

Mitochondrial damage repair. This refers to Brain Cancer, but worth taking note of as we move forward. This is NOT a recommendation of treatment. This is one...

Mitochondrial damage repair. This refers to Brain Cancer, but worth taking note ...

Spyder54

•1 year ago

3 Replies

Clarification on ALP and LDH markers

I was wondering if anyone can fill me in on Alkaline Phosphatase (ALP) and lactate dehydrogenase (LDH) changes with second time docetaxel treatment. What do...

I was wondering if anyone can fill me in on Alkaline Phosphatase (ALP) and lact...

fmoser

•1 year ago

1 Reply

BAT trials

Does anyone know if there are BAT trials going on in Canada? Specifically Vancouver? I am very interested in trying this and I have a friend who may be...

Does anyone know if there are BAT trials going on in Canada? Specifically Vancou...

gsun

•1 year ago

5 Replies

brain fog

I started Lupron and Zytiga about 5 months ago. Along with all of the other side effects, I have had a noticeable mental fog the has descended. Anyone else?

I started Lupron and Zytiga about 5 months ago. Along with all of the other side...

OldGuysRule

•1 year ago

25 Replies

Starting relugolix / Orgovyx

My healthcare provider indicated they wouldn't prescribe Orgovyx and to use Lupron instead. Has anyone dealt with this? Are there ways to get the meds cheaper...

My healthcare provider indicated they wouldn't prescribe Orgovyx and to use Lupr...

plato123

•1 year ago

12 Replies

Leg Numbness and Tingling

noahware's recent post about nerve issues in left jaw prompted me to write tonight. My husband was diagnosed with PCa recurrence in November after PSMA and...

noahware's recent post about nerve issues in left jaw prompted me to write tonig...

Emmett50

•1 year ago

5 Replies

bone pain

I have stage 4 with spot on pelvic bone. My psa has gone down to .1 with hormone therapy. My question is why would my bone hurt worse with such a low psa...

I have stage 4 with spot on pelvic bone. My psa has gone down to .1 with hormon...

bill1029384756

•1 year ago

3 Replies

ADT working well

PSA was rising , went to 0.5 so back on systemic treatment, took casodex for a month then had a 3 month zoladex injection at the beginning of December , had...

PSA was rising , went to 0.5 so back on systemic treatment, took casodex for a m...

Merlin1960

•1 year ago

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Hoping for Urologist Recommendations/Referrals in the LA/OC CA area.

4 years post Proton Radiation and ADT. I’m now having a few urination issues. Current urologist seems stumped. Hoping to find a new urologist in the LA/OC CA...

4 years post Proton Radiation and ADT. I’m now having a few urination issues. ...

Tristag

•1 year ago

5 Replies

First Post

I have been reading everything I can here, but still feel a little terminology and technically lacking. What would be helpful in helping new members is very...

I have been reading everything I can here, but still feel a little terminology a...

Sam2346

•1 year ago

10 Replies

Testosterone gradually going down while PSA gradually going up (I'm not currently on any treatment)

Hello folks! I checked my blood results today (and I have an appointment next week with the oncologist to discuss them.) Basically, I had an RP in the summer...

Hello folks! I checked my blood results today (and I have an appointment next w...

Terry33

•1 year ago

9 Replies

PSA increase with anxiety

Dx 2012 at age 58 ,RP(2012). G(3+4). SRT (2017) to prostate bed only with No ADT. Psa continued to rise to 1.5. Psma scan showed many small LN lesions in...

Dx 2012 at age 58 ,RP(2012). G(3+4). SRT (2017) to prostate bed only with No ADT...

Ahk1

•1 year ago

43 Replies

Mandibular (trigeminal) nerve interference... relief?

For over a week I have experienced discomfort in my left ear and jaw, with some headache also on the left side. Over the weekend the discomfort worsened a bit...

For over a week I have experienced discomfort in my left ear and jaw, with some ...

noahware

•1 year ago

33 Replies

Free Abiraterone

I also have about half a bottle of Abiraterone as I stopped taking it before starting my Lu177 treatment. Feel free to message me with your address and I will...

I also have about half a bottle of Abiraterone as I stopped taking it before sta...

Ollie1948

•1 year ago

2 Replies

Colonoscopies after Salvage SBRT -- How Safe?

My internist has recommended that I get a colonoscopy. But simply to make sure there is no indication of any rectal problems. I have no symptoms of any rectal...

My internist has recommended that I get a colonoscopy. But simply to make sure t...

Boonster

•1 year ago

18 Replies

Future treatment

Non metastatic castration resistant prostate cancer - C61 cancer prostata operata pT3a NX M0, Gleason 3+4=7, PSA 12,6 PD 09/07. nmCRPC 04/19. I was taking...

Non metastatic castration resistant prostate cancer - C61 cancer prostata operat...

Jansverr

•1 year ago

2 Replies

Milk does a body good?

But first of all, that fake stage voice. Pretty hard to listen to but he has practiced it to perfection. If my doctor talked to me like that, ehhh, well, I’d...

But first of all, that fake stage voice. Pretty hard to listen to but he has pra...

Deadwood

•1 year ago

4 Replies

severe pain

Had 5 rounds of Docetaxel- wasn’t working so could not have 6th as of November 2022 - last chemo November 2, 2022. Had PSMA scan December 12 and consult at...

Had 5 rounds of Docetaxel- wasn’t working so could not have 6th as of November 2...

EB6653497

•1 year ago

5 Replies

One of my 20 something yr pt gave me St Peregrine - Patron St for Cancer victims. Have it up at the front desk

If you're inclined, say a lil Prayer for the Brothers here and their Caregivers 💙🙏https://en.wikipedia.org/wiki/Peregrine_Laziosi

If you're inclined, say a lil Prayer for the Brothers here and their Caregivers ...

dockam

•1 year ago

21 Replies

O2 saturation and chemo

I finish my last does of paxlovis and starting to feel just slightly human. I thought the 4th dose of doxytaxel was horrible but it seems it is largely due to...

I finish my last does of paxlovis and starting to feel just slightly human. I th...

spencoid2

•1 year ago

8 Replies

How content should I be with my current treatment 🤷

Yay, I finally expanded my treatment history into a useful document! Just did the update. The dust seems to have settled into my current treatment of Lupron,...

Yay, I finally expanded my treatment history into a useful document! Just did th...

Lewellen

•1 year ago

6 Replies

Chemo and gout

is it normal to get gout after taxorere chemo

Shadoz

•1 year ago

11 Replies

Free XTANDI

I have an unopened 120 count bottle of XTANDI. I am in the Denver Colorado area. If you are local and would like to pick it up, just send me a message. If...

I have an unopened 120 count bottle of XTANDI. I am in the Denver Colorado area....

Eugmn

•1 year ago

7 Replies

Posts - Advanced Prostate Cancer | HealthUnlocked

Advanced Prostate Cancer

All posts for January 2023

Ring the bell day tomorrow!!

Recommendations for outstanding doc at Duke Durham

BAT Question

I would like to connect with fellow warriors that are HSPC and on Darolutamide to discuss Time to Failure, early detection assays etc...

Vacation time?

cancer, coronary artery disease... melatonin question

Had to Laugh

Dr Thomas Seyfried of Boston College

Clarification on ALP and LDH markers

BAT trials

brain fog

Starting relugolix / Orgovyx

Leg Numbness and Tingling

bone pain

ADT working well

Hoping for Urologist Recommendations/Referrals in the LA/OC CA area.

First Post

Testosterone gradually going down while PSA gradually going up (I'm not currently on any treatment)

PSA increase with anxiety

Mandibular (trigeminal) nerve interference... relief?

Free Abiraterone

Colonoscopies after Salvage SBRT -- How Safe?

Future treatment

Milk does a body good?

severe pain

One of my 20 something yr pt gave me St Peregrine - Patron St for Cancer victims. Have it up at the front desk

O2 saturation and chemo

How content should I be with my current treatment 🤷

Chemo and gout

Free XTANDI

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