Posts - Advanced Prostate Cancer | HealthUnlocked

Advanced Prostate Cancer

21,428 members • 26,837 posts

All posts for January 2023

Leading German Facility for Prostate Cancer research.

Where is the best Medical Facility in Germany for treatment of Advanced Prostate Cancer? I am living in Italy.

Where is the best Medical Facility in Germany for treatment of Advanced Prostate...

Lkolcese

•1 year ago

19 Replies

5years in of a forecast 5 to 10 years expected survival - age 78 now.

DX 2017 metastatic PC T3 a/b on MR metastatic on bone scan [ 1 spine 1 pelvis ] psa 11.2 Gleason 9. Started Abi + pred and Prostap (lute)after 2 years stopped...

DX 2017 metastatic PC T3 a/b on MR metastatic on bone scan [ 1 spine 1 pelvis ] ...

Dondodoc

•1 year ago

2 Replies

Husband diagnosed with metastatic prostate cancer

He is 79. The diagnosis process lasted six months or so...and ge wasn't diagnosed until he had a psma pet scan on January 6.

He is 79. The diagnosis process lasted six months or so...and ge wasn't diagnose...

Barnacle124

•1 year ago

7 Replies

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Clavicular lymph node metastases

I have just googled many research articles related to subraclavicular lymph node/virchow’s node/Cervical lymph nodes and prostate cancer. I was surprised that...

I have just googled many research articles related to subraclavicular lymph nod...

Daughter17

•1 year ago

4 Replies

QoL Alert!!! Super QoL ifragilisticexpialidocious

Had a QoLy Holiday with Mary(Poppins) the Musical in Redondo Beach with a former front desk lady and her daughter - both patients 😊...

Had a QoLy Holiday with Mary(Poppins) the Musical in Redondo Beach with a former...

dockam

•1 year ago

22 Replies

QOL post. Out hiking in New Hampsha with my best friends and enjoying the snow.

that’s me with white coat. Had a little campfire and wine, spirits and laughs.

that’s me with white coat. Had a little campfire and wine, spirits and laughs. ...

KocoPr

•1 year ago

8 Replies

Omega 6 linoleic acid

Are any STUDYS on omega 6 and linoleic acid ,increases your doubling time> a prominent oncologist , referenced that it does are any studys done on this subject...

Are any STUDYS on omega 6 and linoleic acid ,increases your doubling time> a pro...

Channelhomec

•1 year ago

Be the first to reply

R-Lipoic Acid - Are there any counter indications or reasons not to take it?

R-Lipoic Acid - Are there any counter indications or reasons not to take it?R-Lipoic Acid apparently helps with neuropathy. I seem to remember someone here...

R-Lipoic Acid - Are there any counter indications or reasons not to take it?R-Li...

cesanon

•1 year ago

19 Replies

Two years and counting

I thought I'd provide an update. Some info may be of help to others. I met with Dr Sartor of Tulane University, Jan 10, 2023. He said my bloodwork was...

I thought I'd provide an update. Some info may be of help to others. I met wi...

Skippy3

•1 year ago

18 Replies

Jevtana (Cabazitaxel) before Xofigo (Radium 223)

Hi I was speaking to an Oncology nurse last week who suggested that after Docetaxel, Oncolgists were inclined to prescribe Jevtana before Xofigo. This...

Hi I was speaking to an Oncology nurse last week who suggested that after Docet...

Finlay66

•1 year ago

4 Replies

Post RT decisions on ADT and relative risk benefit

apologies for long ramble again … Next month I discuss how long to stay on HT (zoladex) after RT last December. I can feel like dealing with some multi...

apologies for long ramble again … Next month I discuss how long to stay on HT ...

SimMartin

•1 year ago

12 Replies

Halfway through chemo, new scans, seeking advice

Have now completed 4 of 6 Docetaxel/Carboplatin treatments and went to Mayo in Rochester for PSMA Pet scan (Ga-68, see results below). My PSA remains...

Have now completed 4 of 6 Docetaxel/Carboplatin treatments and went to Mayo in R...

Skifanatic

•1 year ago

6 Replies

Is Xtandi necessary or even helping me?

This may be a stupid question but it's been on my mind for a while. I started on Prostap (Lupron) last July and my testosterone dropped to less than 1.0 by...

This may be a stupid question but it's been on my mind for a while. I started on...

Benkaymel

•1 year ago

18 Replies

QoL and personal decision-making

I came across this article, which was published in a general interest magazine, written by a noted researcher in Medical Ethics who is also a long time...

I came across this article, which was published in a general interest magazine, ...

maggiedrum

•1 year ago

29 Replies

Dr Walsh describes conversations with prostate cancer patients

https://youtube.com/shorts/QeLHNF-0Ajk?feature=share

Darryl

Partner•1 year ago

Be the first to reply

Radiation CAT scan mapping

I’m starting radiation and scheduled for CAT scan mapping of pelvic floor. Any advice on how to ensure maximum accuracy of this process? The clinic wants me...

I’m starting radiation and scheduled for CAT scan mapping of pelvic floor. Any ...

plato123

•1 year ago

26 Replies

Docetaxil first, then Pluvicto or Pluvicto first

Zytiga failed and Dr Milowsky, my MO at Lineberger Cancer Ctr recommends I go on chemotherapy first and if or when that fails, go to Pluvicto. Dr Almaguel, a...

Zytiga failed and Dr Milowsky, my MO at Lineberger Cancer Ctr recommends I go on...

Flyfisherbug

•1 year ago

35 Replies

MH Support

Anyone know of any mental health professionals in Rhode Island area with experience in PC issues? The joys of ED and climacturia are taking a toll. I’ve had...

Anyone know of any mental health professionals in Rhode Island area with experie...

C-RI

•1 year ago

4 Replies

Degraders for Metastatic Prostate Cancer

I am thinking about signing up for a Degrader Clinical Trial (phase 1). I have metastatic prostate cancer, diagnosed seven years ago, now at 758 PSA. Am...

I am thinking about signing up for a Degrader Clinical Trial (phase 1). I have ...

fsiefert

•1 year ago

4 Replies

shooter

has anyone heard from Shooter, thinking about him last few days🙏

Hidden

•1 year ago

4 Replies

Xofigo experience and thoughts requested

My husband, age 68, has been approved for Xofigo. He has 7 detectable bone metastasis, but had not experienced pain as yet. Gleason 9, PSA is 17 and trending...

My husband, age 68, has been approved for Xofigo. He has 7 detectable bone metas...

Tinuriel

•1 year ago

3 Replies

Plenty of lymph node metastases (also outside of pelvic area): treatment and success?

What kind of treatment do you have/had in situation when cancer has spread already to many (distant) lymph nodes? My dad’s aggressive prostate cancer is...

What kind of treatment do you have/had in situation when cancer has spread alre...

Daughter17

•1 year ago

6 Replies

QOL-St. Peregrin

Dockam showed an adorable ceramic St. Peregrine made by the monks at St. Andrew's Abby. St. Peregrien is the patron saint of cancer sufferers. The crazy...

Dockam showed an adorable ceramic St. Peregrine made by the monks at St. Andrew'...

spencoid2

•1 year ago

2 Replies

Can someone explain the following article in layman's language?

Recently, I came across this article: https://www.mskcc.org/news/new-discovery-explains-how-prostate-gland-regenerates-itself New Discovery Explains How...

Recently, I came across this article: https://www.mskcc.org/news/new-discove...

dac500

•1 year ago

4 Replies

What to do next?

At the end of a Lupron break in June my PSA was 1.1 and CT scan showed a new lymph node. I was put on six months of Lupron starting with a month of Casodex....

At the end of a Lupron break in June my PSA was 1.1 and CT scan showed a new lym...

dac500

•1 year ago

20 Replies

A doctor who listens

https://youtube.com/shorts/A9mOsecKDlg?feature=share

Darryl

Partner•1 year ago

1 Reply

Both GHSR and IGFBP7 from the growth hormone/insulin-like growth factor axis group may suppress whales’ cancer risk.

This is pretty far off topic for PCa but studying these genes may lead to some clues on controling cancer in humans....

This is pretty far off topic for PCa but studying these genes may lead to some c...

Scout4answers

•1 year ago

2 Replies

Tandem lu177 PSMA and ac225 PSMA - good results

It seems that the combination treatment has far better results than the single agents, the problem is that this medical service is only offered in Baku and de...

It seems that the combination treatment has far better results than the single a...

Hidden

•1 year ago

3 Replies

Need meal ideas for low-dose abiraterone

First post! My husband (dx Oct '22, PSA 270, advanced PCa with extensive bone mets), is about to start the low-dose abiraterone regimen (250mg with small...

First post! My husband (dx Oct '22, PSA 270, advanced PCa with extensive bone me...

HikerWife

•1 year ago

19 Replies

Xofigo

I have mild-moderate bone metastasis. Gleason 9, Brac 2, psa 3 down from 200 14 months ago .On Lynparza and Orgovx. Just finished radiation for painful L5...

I have mild-moderate bone metastasis. Gleason 9, Brac 2, psa 3 down from 200 14...

nuc1111

•1 year ago

9 Replies

Posts - Advanced Prostate Cancer | HealthUnlocked

Advanced Prostate Cancer

All posts for January 2023

Leading German Facility for Prostate Cancer research.

5years in of a forecast 5 to 10 years expected survival - age 78 now.

Husband diagnosed with metastatic prostate cancer

Clavicular lymph node metastases

QoL Alert!!! Super QoL ifragilisticexpialidocious

QOL post. Out hiking in New Hampsha with my best friends and enjoying the snow.

Omega 6 linoleic acid

R-Lipoic Acid - Are there any counter indications or reasons not to take it?

Two years and counting

Jevtana (Cabazitaxel) before Xofigo (Radium 223)

Post RT decisions on ADT and relative risk benefit

Halfway through chemo, new scans, seeking advice

Is Xtandi necessary or even helping me?

QoL and personal decision-making

Dr Walsh describes conversations with prostate cancer patients

Radiation CAT scan mapping

Docetaxil first, then Pluvicto or Pluvicto first

MH Support

Degraders for Metastatic Prostate Cancer

shooter

Xofigo experience and thoughts requested

Plenty of lymph node metastases (also outside of pelvic area): treatment and success?

QOL-St. Peregrin

Can someone explain the following article in layman's language?

What to do next?

A doctor who listens

Both GHSR and IGFBP7 from the growth hormone/insulin-like growth factor axis group may suppress whales’ cancer risk.

Tandem lu177 PSMA and ac225 PSMA - good results

Need meal ideas for low-dose abiraterone

Xofigo

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